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A Long Weekend for Me!
Hi all! Me and my hubby are heading to RI for a long weekend! Won't be back til Wed. I will be keeping you all in my prayers and will miss you. Mary
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colon surgery recovery
My mom recently had her laproscopic colon cancer surgery last Friday. The good news is that it was only in stage 1. The other news is that she's having problems recovering. I guess it's not just too serious, but her colon has inflated and she has some blockage there and she is constantly throwing up. So, now they have put…
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Colon Palooza 2
Just a reminder and an invitation to everyone here to put October 25 - 28 on your calendar!!! That's the Colon Palooza 2 date in Las Vegas at Alladin's Hotel. Good fares can still be purchased and if you act NOW you can still get a good room rate. It will be lots of fun, meaningful conversation, and did I mention FUN!…
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Acid vs. Alkaline
Good Morning, I was wondering if anyone has used any type of supplement to raise the body's alkaline level. My Dad is as acid as a body can get and from what I have been reading, cancer causes that. Being acidic prevents the body from being able to optimally fight anything. I have also read about some studies that showed…
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Well meaning friends and family
Just for tonight, I'm going to be an ungreatful sister. Everytime my brother calls to see how my husband, 49, with side effects from colon cancer, chemo side effects and surgery screw-ups, (36 day hospital stay because of a leak and now scar tissue) is doing, he gives us a "positive attitude" speech if we tell him anything…
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Help with correct spelling
I am spelling this drug like it sounds but what is the correct spelling? Er-a-t-can
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Linda and Jana
Linda and Jana, I have been AWOL for a few weeks. Vacation and then other non cancer stuff. I logged in tonight for the first time in over a week and found myself crying just thinking of you both. You are 2 of my original lifelines on this board and your pain is mine and has been from day 1. Linda, Do what you can for…
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How many treatment drugs are there?
My dad was diagnosed with Stage 4 colon cancer with mets to the liver. He has been on a couple different drugs...I know there is Avastin, Oxaplatin(Eloxatin), Erbitux(which I was told is not a chemo drug but used to help shrink tumors), 5-FU(Zeloda, Xeloda pill which equals the infusion form of 5-FU. Do I have this much…
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Tumor Marker Levels
How much emphasis did any of you put on your Tumor Marker levels? We've been told not to pay that close attention to them because they truly only go by the CTScan then we've been told well yeah they do use them some to give them an idea if something is going on. It's so confusing. My dad had his appointment and treatment…
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ct scan results
Ok I think i have good news but i'm not sure. my dad had his ct scan today and everything looked fine except for a tiny spot in his lung that was there last time but it looks a little more "conspicuous" but nothing to worry about evidently. The radiologist thinks its a granuloma. DOes anyone know what a granuloma is????…
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Another Update
Hi all, it's been a hell of a weekend. I had to call an ambulance for Scott Saturday. His pain was excrutiating. It started out as a dull pain in his groin area and worked its way down his thigh and into his back now. He has some kind of blood infection. They have him on antibiotics. They started him on morphine but the…
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Happy Birthday Judith...
Hi Semi- Colons, Let's all join in and wish Judy a very Happy Birthday, 55 years young today..... So Judy I hope your having a Super Day with family & friends. Always, Lisa Rose
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CT; take 2
Well, it is that time again. I got my repeat CT on Thursday... and now I wait for the results on Monday. I am asking for the good vibes to come flowing my way - chasing off any cancer!! I had a scan 2 months ago which showed "activity" above my right hilar lymph nodes (in the lungs). I had a lung met removed 5/04 and would…
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For all of those going through bad times
And even those who aren't... I have been so busy lately that I haven't had much chance to reply to any messages though I read them every day. I know that I am still new here and very unknown so I know my lack of responses aren't missed. I do want to say this. Every message on this board touches my heart. Whether it is…
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Radiofrequency Ablation
Have any of you had Radiofrequency Ablation on your liver and was it succesfull, my dad is supposed to have this as his heart is not strong enough to take the liver resec... I am so scared for my dad, I just don't want to give up hope for him, but things are getting worse not better. We were so looking forward to this…
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I Love NED!!!!!!!!!!!
Hello Have been reading everyone's posts but have been so nervous about my boyfriend's scan last week that I haven't been able to think straight at all. Well.... his CT scan is clear!!! He had 3 or 4 mets to liver in June. I love erbitux!! Onc said that he can't believe the results and that we should be "cautiously…
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Complete badness
Ran into the oncologist at the gym this afternoon. We both did our seperate workouts and then he called my husband and I over to let me know the spot has grown. It started as a <3mm area of unknown inflammation, now it is >3 cm mass. The thoracic surgeon states I don't have time for pre-op chemo... that if I wait, the…
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HNPCC
I was looking for some opinions on HNPCC testing. After my next surgery I have been referred to discuss it with the genetics counsellors. From my view, the good things are; regular screening for related cancers (not covered without positive evidence of HNPCC), allows informed decisions about having children (50% is a big…
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Liver Hemangiomas
I need positive thoughts and stories please! My mom has been through a CT Scan and a liver ultrasound which found a 'spot' on her liver. We thought it was confirmed not to be cancer but it hasn't. Has anyone had a spot on the liver after colon/rectal cancer that turned out to be nothing? julie
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claudia
I have been thinking about you... I almost called you this weekend, but I wanted to give you some home adjustment time. Thanks for the sweet note. I hope you are feeling better. I swear, other than a few lung mets, it gets much easier with time. I'll be strong.. and so must you. I really think the meditation/prayer/yoga…
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scan on wednesday and question
hi guys, it's scan time once again for Daddy, and of course and as usual, i'm scared to death. He had his routine blood work last week and I am thrilled to say his cea is normal at 1.0, but it was always normal, even when he had the colon cancer in him, which turned out to be stage 3, but the one thing really worrying me…
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Hello from sunny Dublin Ireland
Hello This is my first time to contact this board, but I have been reading for quite a while. Diagnosed in October 04, suffering extreme pain in colon area, underwent emergency surgery, got results cancer stage 4 with one possible 2 liver mets. Did the folfiri regime pllus avastin. Got through the chemotherapy fine, and am…
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Cancer-free and NED
Now that all of my doctors have reviewed last week's PET scan, which shows that there is no longer any cancer in my liver but suspicious activity in my formerly colon area, I can now say that I am cancer-free. I still have to endure a few more chemotherapy cycles, just to be sure that all the stray cancer cells are killed…
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Update on Scott
Hi all, it's been a while since I've posted. Things have been hectic with the kids going back to school. Well Scott had a meltdown last night. I felt so helpless! He has another fistula and this one is leaking bad. The wound nurse gave him ostomy bags to collect the fluids, but they break easily. He is just getting more…
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Neuropathy
Hi everyone question. I have been off Folifox treatment with the oxiplatin(sp) for about a month. My hands and feet are worse then being on the chemo now. Some times I have these sharp big toe pains that stop me in my tracks, also my feet are more numb causing me to drag my feet when I walk. At times it feels like my shoes…
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Hello Everyone!!
Hi guys! I am sorry that i haven't been on board in such a long time. Things for me haven't be the greatest. I am still trying. I just don't know which way to go anymore. I have been going through the motions for so long that I don't know what reality is anymore. I am trying to do everything I can to stay grounded. I just…
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Discouraged
My chemo has been postponed AGAIN, due to low white blood cell count. (I'm on FOLFOX, supposedly every 2 weeks, following surgical removal of a single lung metastisis, 2 yrs after tx for Stage III rectal cancer). I am a "pollyanna" by nature, and each time I have a setback I manage to see the bright side, focus on the…
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My Sweetie is Hurting and I hate it
well my husband Hayes is going through it. He asked for his chemo to be changed on FOLFOX w/Avistan as he cannot deal with the neuropathy he has it pretty bad. Well now his hands can hardly close as it so painful, does anyone know if this is normal? He will see his doc today, so that will be a main topic of conversation i…
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Elevated CEA
Hi everyone, I have been reading messages for four years now. My CEA was recently confirmed elevated and I am three weeks into the one month wait for a retake. If still elevated I will be getting the dreaded CT. We all have been there. I have read the messages regarding CEA results and it helps alot, and I do not feel so…
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Good News....
hi everyone, My mother got results from her last CT Scan - ALL CLEAR!!! We had a bit of a panic because there was a new liver spot the CT scan picked up but an emergency ultrasound confirmed its nothing but a 'sist' of some sort. Nothing to worry about! My mother was diagnosed in March 2004 with Stage 3 rectal cancer and…