The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Common thread for metastatic cured

glimmerofhope
glimmerofhope CSN Member Posts: 53 Member
edited March 2014 in Colorectal Cancer #1
HERE'S WHAT I'D LIKE TO SEE!!!!!!

A review of all the people in the world who have had metastatic colon cancer and have had no evidence of disease for 5 or more years.

I would like to know what they believe contributed to their success.

I personally know only one person who fits this description, but I understand there are hundreds or thousands. Most of these people are busy living their lives and not reading these pages now.

How can we bring this together to look for a common thread?

Comments

  • foxy
    foxy CSN Member Posts: 188 Member
    Hi, I had a semicolectomy and liver resection in 1993. I had just 5fu and levamisole for 52 weeks, I am still here now to tell my story!!!!
  • BusterBrown
    BusterBrown CSN Member Posts: 221 Member
    Greetings:
    Although I very recently was told that I'm in remission, this news no doubt brings a smile to my face. I had crc w/ liver mets, was dx last dec 05, and today I feel teriffic. Here's what I think contributed to my success, my will, positvie attitude, friends and family, my dr and his staff, and a change in diet.
    I truely feel blessed and I can only wish that those of you who have this disease one day get the hear the words "remission/NED".
    Buster
  • Limey
    Limey CSN Member Posts: 446 Member

    Greetings:
    Although I very recently was told that I'm in remission, this news no doubt brings a smile to my face. I had crc w/ liver mets, was dx last dec 05, and today I feel teriffic. Here's what I think contributed to my success, my will, positvie attitude, friends and family, my dr and his staff, and a change in diet.
    I truely feel blessed and I can only wish that those of you who have this disease one day get the hear the words "remission/NED".
    Buster

    HOORAAAAHHHH.. I love the word remission. I am gonna fight like hell until i hear my doctor says that or cured. Although i am new to having my colon cancer come back I believe it is attitue, prayer, and diet, as much as it is the doctors.
    Mark
  • nanuk
    nanuk CSN Member Posts: 1,358 Member
    I'm not sure how to bring this about, but a post such as this on all cancer-related sites would be a start..Yahoo has a semi-colon group:TheSemiColonClub@yahoogroups.com Nanuk
  • nanuk
    nanuk CSN Member Posts: 1,358 Member
    I'm not sure how to bring this about, but a post such as this on all cancer-related sites would be a start..Yahoo has a semi-colon group:TheSemiColonClub@yahoogroups.com Nanuk
  • nanuk
    nanuk CSN Member Posts: 1,358 Member
    I'm not sure how to bring this about, but a post such as this on all cancer-related sites would be a start..Yahoo has a semi-colon group:TheSemiColonClub@yahoogroups.com Nanuk
  • shl717
    shl717 CSN Member Posts: 1

    Greetings:
    Although I very recently was told that I'm in remission, this news no doubt brings a smile to my face. I had crc w/ liver mets, was dx last dec 05, and today I feel teriffic. Here's what I think contributed to my success, my will, positvie attitude, friends and family, my dr and his staff, and a change in diet.
    I truely feel blessed and I can only wish that those of you who have this disease one day get the hear the words "remission/NED".
    Buster

    I too was diagnosed 12/04. At the moment I am NED also. I have a 3 month ckup 12/19. I had 3 tumors in my liver, 2 had RFA and 1 was resected. What did you have to your liver?