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My First Juicing Experience!
Hi all - My Champion juicer arrived Saturday. With some fear and trepidation I set off to purchase organic veggies and apples this morning. With even more trepidation I figured out how to use the thing (really worried that I would gag at the taste). Then it was time to start.... I used Emily's recipe, although I threw in a…
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got my ct results
hello all. got my ct results on fri. the long and short of it is that my onc called it improved when he thought it would go the other way. some of the tumor have grown and some got smaller, which i guess the ones that grew have learned to outsmart the chemo. i have 2 in the right lung and still several in the left. the one…
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Xeloda Questions
I would like to know success stories while being on Xeloda, my dads cat scan showed his tumor in abdomon has grown just a little while being off chemo for 3 months. His options where back on chemo, radiation or Oral Xeloda. He has choosen Oral Xeloda. I prefer radiation but it is his body and his choice. Has anyone been on…
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has anyone heard...
Has anyone heard of the cyber knife. (It is a little different than the gamma knife used for brain tumors). It is a fine beam of radiation that can "cut" around a tumor without needing margins. It is supposed to be excellent for tumors on major blood vessels. My mother has a solitary liver met that is growing. Her…
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cpt-11 side effects?
Hello everybody. I am taking CPT-11 with a pump for 46 hours. On Monday and off of it Wednesday. I take 5-FU and the avastin thru chemo once every two weeks. The CAT scan reveals very tiny nodules in my lungs so the doctor feels the treatment this time needs to be more aggressive. My hair started coming out by the handfuls…
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More info on CPT-11
Hi everyone!!! I have another question regarding CPT-11. I get treatment every 2 weeks. Does this med accumulate over time? When I was on, 5-FU it did. My treatments were 6 weeks on and two weeks off. The first few were not so bad. By number 6 I was extremely fatigued. It took me two weeks to recover. If anybody had info…
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Iscador, anyone have any info?
Hi everyone, I hope you are doing well! Has anyone ever heard of Iscador. It has been highly recommended by my alternative medicine doctor to go along with chemo. It has apparently been used in Germany for many years with good results. Thanks in advance for any information! Jamie
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Feel much better
Hi everyone. Went to NY for the Sloan Kettering opinion. THe surgeon completely agreed with the MD Anderson plan - so I feel much better. The NY surgeon told me I may not need my entire right lung removed, but we would find out while I am open during the surgery itself. OK! I feel so good about the plan now - it is not a…
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thanks and got a juicer
You are all so wonderful. Thank you so much for the thoughtful notes! Makes me smile to see them.. I keep going back to my post and reading. :) I got a Champion juicer at Ebay for $106!! Hurray! I should get it this week. Just wanted to let you all know about the deals on Ebay. Keep in mind, I don't have it in my hands…
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Clinical Trial - Panitumumab?
My wife was diagnosed with stage IV colon cancer. We're interviewing oncologists and one is recommending a clinical trial involving Panitumumab (study drug from Amgen). Human version of Erbitux. We've heard this is being fast tracked, but want to verify. Has anyone heard about the status of Panitumumab? Thanks.
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More Chemo
Hello hello, Well here I am two weeks after my liver surgery...doing pretty darn good - off painkillers and pretty much able to do most activities (Amazing to me!!). As of now it appears that what they took out of my liver was not cancer - Woohoo! The original plan was for me to have more chemo after I recoverd from this…
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oxaliplatin help
I was diagnosed with colon cancer in October. After a resection I was stage 3 with 7 lymph nodes. I started with IV oxy and oral Xeloda. The oxy is every three weeks. The first session wasn't too bad- however, the following 2 sessions have been horrible. I am in bed for 5-6 days. The symptoms are extreme nausea (I have…
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FAB COLON CANCER
I HAVE JUST BEEN RECENTLY DIAGNOSED WITH COLON CANCER, ITS HEREDITARY BUT IM THE FIRST IN MY FAMILY TO GET IT. I HAD SURGERY DEC. 6,2005, HAD WHOLE COLON AND RECTUM REMOVED. I NOW HAVE AN ILEOSTOMY. I STARTED CHEMO A WEEK AGO AND IM ALSO ON THE AVASTIN, PART OF A RESEARCH STUDY. IVE KEPT A POSITIVE ATTITUDE SO FAR, IT GETS…
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please pray
hello to all.i hope all is going well for everyone.i continue to keep everone in my prayers and i now need your prayers.i have had some lower back pain on my left side near the kidney area.i had some lab tests done and some things have been ruled out such as kidney stones,infection etc.my oncologist has referred me for a…
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Sigh:-(
I'm just having a pity party don't mind me. My liver studies went up quite high about 2 weeks before Christmas. We decided to hold on the oxaliplatin and just do the 5FU, leucovorin and avastin until they came down. Then my platelet count went down. So everything is on hold. It was taking a long time for the liver studies…
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Sore mouth and tongue
Hi all, Could anyone give me some help for a sore mouth? My husband is on tretment No 11 of Folfox with Avastin and has developed a sore tongue and mouth, he has been using Mycostatin mouthwashes but it doesn't seem to be helping much. Take care and Thank you. Jackie
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introduction and question
Hi, I am a 46 year old female, diagnosised with colon cancer in November 2005. I had colon resection in November. One foot of colon was removed in sigmoid area. Tumor was pT2 and there was metastasis in one of 32 lymph nodes examined (pN1). I started chemo this month- folfox6. Chest X ray and bloodwork is all normal. My…
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horrible rash
Hi everyone, sorry I haven't posted in a while... but.... christmas eve I developed painful blisters all over my right forehead. Thought it was shingles and started a medicine. Next day it was all over my entire back and then my palms. It hurt a lot!!!!!! I called my onc on Tues and he said it was probably a side effect of…
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Seizures?
Has anyone every heard of chemo causing seizures? Mom, who is stage IV with mets to liver and lungs, is getting weekly treatments of 5FU and CPT11 with Avastin added every other week. After the first treatment with Avastin she had a mild seizure that we thought was just fatigue and dehydration. But after the second…
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Steps to Healing Guide
Hi SpongeBob, Emily, Lisa, and all the other folks who offer so much great information to newbies - There is an incredible amount of knowlege between all of us. How about we put together a big piece which we can send to newbies that combines everything we know. This way everybody will benefit from our collective knowledge.…
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Thanks
Thanks for all of your advice!! With stage 3a colon cancer, I have not had ANY CT scans,ever. All of my metabolic enzymes are normal and my oncologist keeps telling me that she "sees" problems in liver function enzymes before she "sees" it on the scan. You have all answered my question, I am probably the only person here…
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Inspirational Article / Book
Hey everybody, While I was in the hospital recently for surgery, my mom bought me a magazine to read - "Spirituality & Health". I like it a lot so far. In this February 2006, there is an aritcle written by Mandi Caruso, a Doctor who happened to have gotten breast cancer. The article focuses on living without fear when you…
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I have a question
Next month will be my dad's 1 year anniversary of finishing chemo for stage 3 colon cancer and he was originally diagnosed in July 04. When do you start counting as far as cured is concerned, from the date of surgery or from the completion of treatment??? thanks
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When checkups drop to every 6 months
Hello, I am just wondering when checkups finally drop down to every 6 months and then just once/year....I have heard after 2 and I have also heard after 3. I have heard you are "out of the woods" after 3 and then also, not till 5. I realize that the more time goes by the better off you are, but I was just wondering what…
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Lots of "Newbies"
I'm sure a lot of the veterans here have notices the influx of rookies to our family. I think we should take a minute to do as we've done in the past and give a brief message of hope to them with our own little success stories. Don't you think? I also encourage all the newbies to read the web pages. It will give you a…
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port pain
Hi everyone! Did anyone have any pain asssociated with the implantation of the port? Just wondering. It was really hurting last night and this morning. People told me it would be nothing, but I think I was a little more tramatic that I expected. Yet, let me tell you...I beats being stuck everytime!!! I first go around with…
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Yes!! Surgery scheduled..
Hi, I went to see my surgeon today and he will remove my rectal tumor March 7th..My last radiation and chemo ends tomorrow..I can't wait to have the surgery then get started on tackling the liver tumors..I haven't had any problems with the chemo-radiation treatments..I have a lot of confidence in the surgeon so I will be…
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out of options?
My mother has been battling stageIV colon cancer for over 2 years now. After her colon resection the biopsy revealed it had gone through the colon wall. No nodes were involved so she was not offered chemo. A CAT scan later revealed a small spot in her liver that 2 months later became a 5cm mass. She started chemo Christmas…
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Just started Bafiri
HI everyone! I just started my new protocol of drugs today called Bafiri (avistin, CPt-11, leucovorin, 5-FU push and 5-FU pump (48 hours). To start the day, I received my port (7:45am instillation) and at 10:30 am the chemo meds were started. I did well except when I was half way through the CPT-11, I became flushed and…
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re:out of options
I wanted to thank all of you wonderful people for the replies to my post. I appreciate all of the information and suggestions. My mother's tumor is non-operable because it lies next to the vena cava and hepatic vein. They won't resect it because they can't get wide enough margins. My sister(a cardiologist in Kansas) is…