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new to site
Hello, I was told that i have stage 4 colon cancer . My husband is in the navy and was deployed to Afghanstan so i was very stressed at the time and so when i began having problems i just chalked it up to stress . He had been there for 7 months and was due to come home in a month . i was so tired all of the time but just…
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NED for 12 years.
Hello everyone, well I go for a colonoscopy on Tuesday 21st, and a CAT Scan on March 1st. I am hoping my rising CEA and CA 125 are due to something other than a return of my cancer, as they well could be, as we all know by now they are not always a sign of returning cancer problems. I would just like a few prayers coming…
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Folfox6 question
Hi all! Once again I want to thank you for your support! You guys are amazing! I am a 46 year old female with stage 3a cancer. I just had my 4th treatment of Folfox 6 yesterday, and so far the side effects have been manageable. My blood work the previous day to chemo showed that my WBC really went down and in particular my…
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Ablation for liver cancer
I've been reading about treatment of liver cancer with ablation. Has anyone experienced this? I'm trying to find encouraging words for my friend facing chemo and liver surgery. I'm not finding anything postive at the moment. HELP!
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BCIR (appliance-free) Ileostomy chat
This chat on Thursday Feb. 23 looks interesting. I've cut and pasted the info. I'd appreciate feedback from others concerning this and maybe ideas for questions. Thanks. Kindred Appliance-Free Ileostomy A Breakthrough for You? Thursday, February 23 at 6 PM Pacific Standard Time (GMT -8) You go to either of these websites…
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Adenocarcinoma
Husband 60 years, diagnosed with adenocarcinoma of small intestines, metastised to liver, and peritoneum, in stage IV. No chemo started yet due to recent surgery to remove large sections of bowel. No one will give us a prognosis for this aggressive cancer. What is survival rate after chemo? Any clinical trials in Florida?
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Follow-Up Guidelines
Hi, I am almost done with treatment. I've been trying to find guidelines for follow-up testing. Could anyone help by pointing me to websites about this or by telling me what your follow-up testing schedule was? My oncologist mentioned that I would get a colonoscopy at about 6 months after re-section, then every 3 years.…
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what to expect
hello this is my first post. my grandfather has stage IV colon cancer. He was diagnosed jan 2004. He also has a spot on his kidney, most of his liver is consumed. We recently found out that he had a tumor in his neck which was compressing his spinal cord. Also lymph node positive, and small lesion on one of his joints. He…
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Dead liver tumor tissue Question
I have a friend and also my father who were recently dianosed with stage IVcolon cancer and liver mets. Question is : when the CEA numbers go down drastically it suggests some of the tumors in liver could be dead tissue even though CAT scan shows not much change (or at least thats my understanding...I heard PET scan is the…
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xeloda and rectal bleeding
Hi everyone, does anyone know if a side effect of Xeloda is rectal bleeding? My dad has been taking it for about 2 weeks and started having rectal bleeding. He has had rectal bleeding in the past but he is concerned its from the Xeloda. Thanks if anyone has any information on it.
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sad day today
First I apologise for not answering any posts as I am away from home and borrowed a puta and have limited access time. I had some news today that a dear friend, Janette, who for the past 6 years has fought a cancer that has spread throughout her body, is now under full care with failing health. I went to visit her tonight…
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ileostomy bag nightmares
My friend just had rectal surgery (went well but for the cancerous spot on liver). He has a temporary ileostomy that is causing him such grief. This bag will not stay secured to his skin. He is now resorting to taping it to his body with various tapes. Is there a brand that someone can recommend that stays on for more than…
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erbitux rash
Hi everyone again. My husband has been on erbitux with irinotecan for 3 1/2 months. He had one break in his treatment the first month because his rash(which we expected as the side effect) was so severe he was running a fever from it. With antibiotics and ointments it became stabilized. This past week it is so severe…
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More in the news...
"Thought that many of you would be interested in this. Hope you are having a great day, Suzanne" LabCorp(R) Now Offering UGT1A1 Pharmacogenetic Test for Dosing Colorectal Cancer Therapy Monday February 13, 8:19 am ET Rights to Test for UGT1A1 Mutations Associated with Serious Adverse Reaction to Irinotecan Hydrochloride…
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reply to caregivers please respond
Thank you all so much for your responses 1) to all the caregivers that answered- you made me cry, brought a smile to my face, a nod and a sigh- it is so humbling to read others peoples posts and realize that I am not alone- thank you so very much from the bottom of my heart for sharing your feelings- and if any of you…
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CA 125 counts
Hey guys, I need a little information. I hope everyone is doing well. My wife (Jerri) has been off treatments since April, 2005 after doing chemo and radiation for Stage IV, mets to ovaries and a few lymph nodes. On the day of her surgery (Oct., 2004), her CEA was less than 1. But her CA 125 was way up there (I don't…
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CT results and a question
After 6 rounds of folfiri and avastin we had great news- stable (10% shrinkage)- my question is to others on this regimen- how many treatments did it take for any of you to get either a full or partial response? Thanks for your response.
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Rising CEA
I wonder if any of you had rising CEA (not while on chemo) and yet CT scan shows nothing? My husband's last CEA was 3.3 and is now 3.5. The CT scan shows no change in two lesions on the liver which were seen on CT scan nearly two years ago. Pet scan showed they were not malignant. I have read that a slowly rising CEA…
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palooza 3---all please read!
Howszitgoin guys n dolls???? The ozzies from down under have booked flights to Austin....that means...BRACE YERSELVES!! Jen and I have been on the phone to Kerry and after her first week doing chemo and radiation she tells us that she is doing fine. (and she could be tellin lies too just to make me feel better!) However,…
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Prayers Please!
Hi all, just wanted to drop a quick note for some prayers my brother-in-laws way. Steve is Scott's identical twin. He has a colonoscopy scheduled for Thurs. because they found blood in his stool. When Scott was first diagnosed in Feb. 2004, his brothers and sister had colonoscopy's at the request of Scott's oncologist.…
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My Treatment for Bev ~
Hi Bev, my treatment was Oxaliplatin, 5 FU and Leuvicorin sp? .... I had 4 or 5 treatments of chemo then 28 straight days of Chemo and radiation combined with continuous infusion of Leuvicorin. After 8 rounds of chemo I had surgery for my liver resection in January of 2005 recovered for about 6 weeks then 4 more rounds of…
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good thoughts needed
Well- it is nail biting time- my husband goes for his CT tommorrow after his initial 6 treatment schedule of folfiri and avastin- as this is a trial we need to see at least "stable" for him to continue to get the chemo so hope- prayers- good thoughts and angel whispers needed- no results until next week. Also- thank you to…
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Liver cancer cont. - chemo before liver surgery??
Sorry to start a new thread but I couldn't figure out how to reply to the posts in the last thread I put up ("friend tested positive for liver cancer"). Since the post I've learned he has stage 4 rectal cancer that has spread to the liver - he does not have liver cancer like I thought before. I've also spoken to his…
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NED
I had my 3 week post treatment visit today. ct scan was clean. it's a start. Tim
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Phew normal CEA again
HI everyone I just had more bloodwork done on Friday and I always anxiously await the results. CEA was still NORMAL yeah.... 1.2 Clean PET in January. I pray NED continues. For those of you still going through treatment I was Stage 4 rectal with liver mets. Be strong and FIGHT...
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Kerry and Jana!!
I just wanted to drop and line to see how you guys were doing!!!!! I wanted to email but my computor crashed and I lost everyones email addresses. I have been trying to figure how to retrieve them but with no luck so I figured you guys would be checking in on the site. I so hope that you guys are doing ok!!! I know that…
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hello semi colon's need your advise
hi all, hope all is well with everyone fighting this dragon. i have a question to throw out to you all. i am thinking of changing jobs and that would mean new health insurane. being that i had colon cancer that would be a pre health condition. how would this effect the new health insurance coverage. i appreciate all the…
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Gall bladder problems anyone?
OK, here's my story. When I had my re-section done in 2003 my surgeon told me that he was going to take my gall bladder out at the same time because it was in his experience that the gall bladder goes bad with the colon cancer or maybe just because of the surgery. I really don't remember I was pretty out of it back then.…
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CoFactor - check this out....
I just thought you guys would like to know about this.... CoFactor Plus 5-FU Provides Large Response in Metastatic Colorectal Cancer According to results recently presented at the 2006 Gastrointestinal Cancers Symposium, the addition of CoFactor (ANX 510) appears to significantly enhance the activity of the chemotherapy…
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hello semi colon's need your advise
hi all, hope all is well with everyone fighting this dragon. i have a question to throw out to you all. i am thinking of changing jobs and that would mean new health insurane. being that i had colon cancer that would be a pre health condition. how would this effect the new health insurance coverage. i appreciate all the…