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Every have those days~
Hi everyone, I am just having one of those not sure how to think days. I honestly think my husband is tired of hearing it. I shouldn't say that but there are days I just don't say things to him anymore. Up until now I have been living life almost like my life before cancer. I've had clean scans since liver resection in…
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Erbitux
Has anyone had positive results from treatment with Erbitux?
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Anyone tell me about a Port being
put into my husband. They said it was outpatient surgery. Just wondering what to expect. Just diagnosed 2 wks ago, and we are still turned upside down, everything is happening so fast. But I was just wondering if this is painful and how long he will be in the hospital. Just hours? Thank you!
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Amgen Tour of California Bike Ride
Hello Semi-conlons! Yesterday and today the Amgen Tour of California bike ride rolled through San Jose. In first place before today's stage was George Hincape, who rode with Lance on all 7 of his famed Tour de France victories. Although Lance wasn't here, I felt his presence, through his team mates on the Discovery Channel…
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Colon-Palooza 3
Hotel information for CP-3 is here!! Marriott at the Capitol 700 East 11th Street Austin, TX 78701 512-478-1111 OR 1-800-228-9290 Key word: SEMICOLONS Our contact person in Austin is Jim Moreno, Sales Manager Room rate: $155 per night I have 15 rooms held, so hurry and make your reservations by APRIL. After that the rooms…
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thank you all
Need to send a special note to all of you who wrote such sweet notes. Thanks. I keep my purple bag of positive feelings with me and showed it to a group of medical students to demonstrate how to give support. I keep each and everyone of you with me. :) jana
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Erbitux rash info
Hi, I just learned some interesting info about the erbitux rash. My son was traveling home and met an oncology nurse on the plane--she said they were seeing good results from patients using Head and Shoulders shampoo as a body wash instead of soap. I am not sure why it works and my husband is trying it for the first time.…
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contagious diseases
I have heard that after all the treatments one can catgh contagious diseases, example chickpox more then one time? Is this true and if so what are the risks? Please help the lost and confused!!
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Colonoscopy
Hi, I had one last Tuesday, which was clear by the way. Today is my first day of feeling sort of normal, just wondering if anyone else has had a bad recovery from this test. The sedation knocked me for a six, it is the first time after many colos this has happened to me, just wondering if anyone has any thoughts on this? I…
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Nervous Wreak (again)
hello to everyone I need some desperate advice, and I am unable to find it anywhere else. My wonderful other half is currently going through 4 cycles of 5fu........1week on, 3 weeks off. Just to recap, he was dx. in sept. with stage 3 colorectal cancer, had rad. and chemo. for 5 weeks, temp. illiostomy, and then surgery in…
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New Here & need advise
My darling husband was dx with stage iv rectal cancer (mets to liver & lungs with node involvement)in April 05. His tumor is inoperatable due to his tumor being attached to pelvic organs. His first line treatment involved 5fu/lev, unfortunately the treatment was unsuccessful and he has just completed his second cycle of…
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i need some cheerleading
hello all. i will have a treatment tomarrow and the last one was so hard i actually sd i am not doing this anymore. i have doing this since 1998 and like i have sd b4 i am getting tired in my body but my spirit is alive and well. it just gets really hard but having my 6 and 8 yr old i want to make sure i am here for as…
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Good News and Questionable News
Hi all - Last Thursday, I had a PET/CT and the results were to quote my oncologist "fabulous". For the third time there is no evidence of disease. She is now consulting with a National Cancer Institute specialist about the possibility of an RFA to zap the area where the met initially showed up. I'll hear back next week -…
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Lindyloo are you still out there?
Dear Linda--I am also quite new to this site. I saw your posting to "Caregivers please respond" in response to Oneeagleswings in early February. I'm glad to hear that your husband is doing well and hope that this has continued. I am a caregiver for my daughter, age 34, whose history seems similar to your husband's. The…
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Fistula
Husband 51 diag 5/04 stg IV CR cancer. Had 29+ rounds chemo, had several urinary track infections then cea went up to 459 chemo chged two weeks ago felt fine for two days then the floor fell out. could not eat went for first pet scan then to er needed fluids went to clinic next day with blood in urine sent home again with…
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Foxy....yu ok?
Hi Virginia....hoping here that all turned out ok for you after your colonoscopy tuesday...thinkin bout yah gal, huggs Ross n Jen
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Anyone here had BCIR after rectal cancer?
This operation sounds very hopeful and perhaps easier to recover from than an ileostomy reversal. Is there anyone out there who's had this after rectal cancer and/or the reversal surgery? I've read the reversal surgery can be a difficult thing to deal with itself. Thanks!
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thomast are you still out there?
I'd like to know the name of the doctor in California that did your wife's liver surgery. Thanks! You can also email me at grimmmusic@yahoo.com
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New Here & need advise
My darling husband was dx with stage iv rectal cancer (mets to liver & lungs with node involvement)in April 05. His tumor is inoperatable due to his tumor being attached to pelvic organs. His first line treatment involved 5fu/lev, unfortunately the treatment was unsuccessful and he has just completed his second cycle of…
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just a thought
Has anyone ever asked you this after they find out you talk to people hundreds/thousands of miles away on the internet about cancer? " How do you cope with the sadness...how can you possibly feel good knowing so much heartache each day?" Yup...it has been asked of me by friends and family...many of you may have been asked…
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surgery coming
Hi everyone. Haven't been here lately - I have been keeping myself busy. My first surgery - left lung met removal is scheduled 2/28/06.. in a week. I actually feel great. My chemo has worn off and I am on fire. I also got on the nutrition band wagon and am totally veggie and organic. With all this I feel really good. So, I…
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caregivers please respond
Hi fellow caregivers: Well- it is Saturday night and my husband is tired, cranky and feeling rotten from his 6th round of folfiri/avastin for stage 4 with mets to liver/lungs and is now sleeping... one of the kids (teenager- egad) has friends over and I am trying to shush them but still trying to maintain a "normal"…
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a fun site
Good morning all. I found this stuff while walking around Newport, Rhode Island a few months ago. It was so "me", I bought some hats and tees right away. I especially thought of Emily. They have a nice one with a cabin on it. Surf, laugh, smile, steal a moment away from those crappy treatments. I remember sitting on my…
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For lg2cyg
I posted this on the thread but was afraid you wouldn't find it. lg2cyg: He has had the surgery, and we were pleasantly surprised in that the surgeon did it laparoscopically. He said he did not have any scar tissue and he is "absolutely amazing." He is 58, and has had a hernia repair, appendicitis, and the colon resection…
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Msg for mikew42
Mike, I posted something for you under "Ablation for Liver Cancer" below. Thanks!
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For mikew42
Mike, please forward your email address to me at grimmmusic@yahoo.com. Thanks!
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surgery on Tuesday
Hi all, I'm having surgery on Tuesday. I am a stage 3 survivor. I'm two years out from my bowel re-section. I am getting my gall bladder taken out and my liver biopsied. I am anxious to have it done since I have been so very sick for the last few weeks. Also, I am very excited that it is thought that it is my gall bladder…
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CEA of 1100 could this be right?
I was diagnosed with colon III cancer in January of 1998. Out of all the lymph nodes checked only 2 or 3 were negative all others were positive. The tumor was removed surgically, I than went on to receive radiation then chemotherapy. In June of 2000 I went in for a colonoscopy and they found a small positive tumor. Again…
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Stomach cramps
Has anyone had severe stomach cramps from Chemotherapy? My husband was on CPT 11 for three treatments and then got switched back to Oxiplaton, Levococorin, and 5FU. He has had stomach cramps for 2 months now. The doctor seems to think it's an ulcer. He has been on meds for this, but it isn't working. They will go in with a…
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Colon Palooza
Alright Class, the lesson is about to begin... Several have recently posted and responded to various messages referring to the upcoming COLON PALOOZA events that are planned for this year. With that stated, I figured a little clarification was in order... As you all have learned, we are a closely-knit group of folks with…