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Update
Hi, hope everyone is doing well. I thought I would give you a bit of an update on me! About 18 months ago I was diagnosed with rectal cancer, had j-pouch surgery with TME, and a temporary ileostomy. Had my ileostomy reversed in November, and they decided against chemo or radiation. Last month I had my first post surgery…
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For anyone recently diagnosed with liver mets
Hello everyone~ I just wanted to let you know I recently read an article on MD Anderson's site discussing some study results. It stated that there is a " 5-year survival rate of 58% for patients whose lesions were surgically resected. Intrigued by the benefit of aggressive approaches to hepatic resection for colorectal…
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Andrea's Picture
Hi Everyone, I was heartbroken to hear about Andrea's passing. I thought if anyone was going to beat this it was her. It's so sad and tragic. I was reading the guestbook at this link that Lisa Rose provided and if you click on her name at the top of the page it brings you to her obituary where there is a picture of her.…
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Hilluciations while on drugs
Hi everyone. First of all Happy Mother's Day to all the Mothers out there. I wanted to ask if anyone has had experienced this. My dad is 73, ever since he started on Oxicotin and Morphine and an anti-depressant he has been seeing things. He thinks us kids are there and we are not. He saw a lamp shade and thought it was my…
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Andrea Elder's Obituary
Andrea Elder OBITUARY ANDREA ELDER 1982-2006 On Wednesday, May 10, Andrea, cherished daughter of Lesley Lacate and the late Lloyd Elder, beloved sister of Matthew Elder, and dear grand-daughter of Frances Lacate, went gently into that good night; peacefully surrounded by family and friends, at the age of twenty-four, after…
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The Semi - Colons Remembering Andrea
(The previous message didn't post properly, so I am trying this again) Good Morning Everyone, I made this tribute with the help of Bob from the semi colons. It will be at Andrea's wake today on a board. . . . I'm sorry I did not have pic's of everyone so I did the best with what I have. I used sentiments from the…
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need encouragement
o.k. everyone 5 radiation treatments left and i can barely walk. it just seems so depressing that there is still so much more to go through, most days i stay pretty strong but today is not one of them. thanks for letting me whine a little. would be thankful for your always strong words of encouragement. cherri
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CAT scan tomorrow
Hi everyone, Hi everyone. My dad goes in for his CAT scan tomorrow. I am so nervous. He won't get the results until Monday. We definitely appreciate any prayers. Thank you. -Lee-
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An Article on Andrea Elder's Fight
Hi All: I found this article on Andrea's fight. I thought maybe it would help those of us who didn't know Andrea before to learn more about her life and fight. http://www.mcgill.ca/reporter/36/13/stein/ JADot
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Caught in the Insurance Cogs!
Ok, so I'm probably preaching to the choir, but THIS made me SO DARN MAD!!! Hope you all don't mind me venting. I am scheduled for my last chemo on Wednesday of this week, appt with onc yesterday to review. BILLER called and said "Please don't come in today, your insurance company owes us money". After initial panic, I got…
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Still in Remission
Hi Everyone, My Dad just got the results from his 1st scans since going on a maintenance schedule of chemo. NED!!!! Yeah. For any newcomers: Dad was diagnosed 6/04 w/ stage iv, metastasis to liver and peritineum. Told he probably wouldn't make it through Christmas that year. 1st round of chemo killed the beast and he was…
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NED
Hi everyone, Just a brief bio: Dx in July 2003 Stage IV colon cancer, with 2 lymph nodes.. surgery, colostomy for 18 mos... then reversed... yeah!! 7 mos of 5FU, leukovorin, and oxillaplatin. Also 6 wks of radition everyday with the chemo pump. Happy to say went for my Pet CT scan last week, and they called me today to say…
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Hello!! - Thank You!!
Hello guys, I just wanted to drop you guys a line as I will be AWOL for a while. My surgery is tomorrow morning and I am nervous. I just wanted to Thank you guys for making my trip to TX very memeriable!!!! I was nice to dance with merriman and bud. I hope that I didn't step on your feet. It has been a very long time!! I…
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Is there a day without chemo coming?
Check out this article in the paper today. Wake Forest University is one of the 100 plus Comprehensive Cancer Centers here in the US. This study makes sense to me. It helps the body fight off the cancer naturally instead of "nuking/poisoning the hell out of one's body cells". I bet the pharmaceutical companies don't like…
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Persistent Erbirash & 1 yr. anniversary
It's been FOUR WEEKS since my last Erbitux infusion and I STILL have the rash!!! How long does it take to go away?! I leave for Croatia next Monday and this rash HAS to be gone by then! OK, well maybe I should not complain. It was one year ago tomorrow (May 11, 2005) that my GI doctor performed a colonoscopy and informed…
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Eribux/CPT11
Hi everyone, hope everyone is doing well. I was wondering if anyone is on or every was on Eribux/CPT11. My dad does not respond to Avistin or 5FU anymore and his tumors grew on Xeloda. This is his last resort. He is very very depressed. So much so that he does not leave the couch and only eats once a day. He lost 15 pounds…
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Visiting Halifax ~ CP 4
Hi Everyone, For anyone interested in a free visitors guide of Halifax go to the link below. http://gocanada.about.com/gi/dynamic/offsite.htm?zi=1/XJ&sdn=gocanada&zu=http://www.halifaxinfo.com ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Whats Needed To Enter Canada. . . . Americans do not a visa to visit Canada,…
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ANy encouraging words for a postponed liver resection??
My sister in law went in for her liver resection today. They found lymph involvement & removed all of that & want to wait for the resection. She got her pump, and an Ileo -reversal, so that is 2 out of 3. She is still in recovery, and it just feels like it will be a real let down for her, as well as my brother. They will…
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Options for pancreatic cancer
Hi, hope everyone is doing well. I got some very bad news about my aunt tonight, she has pancreatic cancer that has spread everywhere. They opened her up and closed again, and she is only 52. Does anyone know of options for pancreatic cancer, how about Quillians book, anyone heard of this working for this type of cancer?…
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last entry
On April 15, 2006 my beloved husband passed away from colon rectal cancer. I could not remember this sight until now. Just wanted to say good luck to all of you that have this terrible cancer and hope that things work out better for ya'll. Candice
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Mets in both lungs - feeling sad
Yesterday my friend Mark went for the usual check up with the oncologist. Unfortunately I wasn't able to make this appointment and I really felt anxious about this since I was afraid the Dr. would break down and show him his scan of six weeks ago before starting on the current trial. I saw the scan by accident and it…
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God is good all the time and all the time God is good
I got my results back from the cat scan yestrday. I was nervous when I saw the cancer center's number on the caller id. The nurse asked how I was doing and instantly I knew it was bad news. I braced myself and she told me no cancer was detected in the stomach, pelvic or colon areas! All I could say was Thank you God and…
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How frequently are you scoped?
Hi all - Gotta question. Last November I had my first post surgery colonoscopy (couldn't get all the way thru last May due to sigmoid tumor). Everything checked out and my gastro doc said to come back in two years. He even said that many docs say three years, but he is not comfortable with that. (I am Stage IV but…
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Home from Ileostomy reversal surgery
Hi all, The reversal surgery itself was a breeze. I've hardly needed any pain relievers. I was also lucky enough to get a private room too, which made the three day hospital stay more comfortable. They kept me in hosptial possibly longer than normal because I had bowel obstructions last year following my original surgery.…
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halifax?
i saw a mention of halifax for a palooza???! when is that? i have my reversal surgery for my ileostomy this weekend and want to go on vacation sometime this summer!!!! i love nova scotia! claudia
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Is there a standard amount for radiation?
another good question; (worth re-posting) radiation is cumulative; each individual has a lifetime amount they can tolerate, ask your Dr how many Rads/Gys you have received, how much is received from CT/x-ray, etc, and add them up. Ask him/her what your total number is, and what will result from going over that amount. (in…
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Colonoscopy on Thursday..
I have to have a colonoscopy on May 11th and will do the Phospho-soda prep for this..I also will have to do the prep again on May 16th for liver resection surgery on May 17th..My gastrenologist never completed the first colonoscopy because he couldn't get by my rectal tumor on Oct. 12th, 2005 so I need this done before…
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jerseysue
Hi there... been meaning to tell you. For my radiation, I have red marker all over my right chest. My husband decided it looks like the State of New Jersey. Sooo... being the comical relief guy he is, he calls me Sandra. Because in the movie Miss Congeniality, Sandra Bullock played Miss New Jersey... The point of my story,…
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Interesting Conversation w/ Oncologist
Hi all - I am not trying to call all the anti-chemo activists out of the woodwork - have to say that while I hated it it seems to have saved my life so far. But.......... I got into an interesting discussion with my oncologist today. She went to a meeting where some other local (DC area) oncologist was raving about…
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Pic's From Palooza 3 In Austin
Dear Friends, Below is a link to look at some pictures from Colon Palooza 3. . . Give it a minute to load ~ then enjoy. Have A Wonderful Weekend, Lisa Rose http://media.putfile.com/CP-3 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Palooza 4,…