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Clincal Trials - creating new/more cancer?
musiclover 09-26-2006 05:03 PM EDT re: Clincal Trials - creating new/more ... [reply] I'm at odds with the clinical trials, at least for those with stage IV. For one, there is no end in site. Other's treatments I continue to read are "I went on so-and-so for 4 months...". With the Clinical Trials there is no definitive…
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Update and Advice Please
I have not posted in a long time so I'll give you a quick summary. My dad age 63 was diagnosed with livers mets in August 2005. (This was a recurrance..he had 2 colon resections in the past 10 years) The liver mets are quite large. The mass is about 17cm X 11cm X 10cm. He immediately started chemo in Aug 2005 and has been…
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Cancer is back again
Hi all, I thought it was time I gave you a quick update on my cancer story. Some of you know I was diagnosed 2.5 yrs ago with stage II colon cancer. I did surgery and chemo. November of last year the cancer returned outside of the colon stage IV. I did Folfox for 4 months and the tumors had shrunk to NED. At that time I…
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Irinotecan
Lung mets from my 10/05 resection. Was NED in Feb.I am having biopsy Mon and then we are considering Irinotecan....Anyone with experience? Thanks!
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Hubby hates when I say "chemo brain!"
OK, only after two rounds of chemo I already have experienced what I term "chemo brain." In my case it is this irritating, agitated feeling throughout my head and upper body that makes it hard to concentrate around day 4 and 5 (like today). I feel like I am coming out of the flu and I'm walking in a tunnel. Or, like today,…
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need words of wisdom/update
to refresh your memories...had a ct scan 2 months ago..they found 2 lymph nodes in the psoas muscles...did a biopsy...pulled wrong tissue....I had another ct this past week...one os the lymphs is the same, the other grew 5 cm...will have another biopsy this coming Thursday...Sometime I great frustrated because after all…
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update...Claudia
Hi all. I have not written in months. I was very depressed and my psychiatrist and I decided i would try to stay off web chats for awhile. I am better. I had my ileostomy reversal in May. Still incontinent but diarrhea is better. as a reminder, i am 35 and had RC stage 3 diagnosis in may 2005 a few weeks after my daughter…
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Happy Birthday To Me. . .
Dear Friends, It's a double celebration for me. Today I'm celebrating my 45th birthday. Also 4 1/2 years ago today I was getting ready for my stage 3c rectal cancer surgery. I would like to thank all my CSN family for the love & support that you've shown over the past four years. Lisa Rose aka Baby Lisa
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Happy Birthday Judy
Hi Everyone, Let's all join in and wish Judy in Boston a very Happy Birthday today from her semi-colon family. Happy Birthday to you Happy Birthday to you Happy birthday, dear Judy...... Happy Birthday to you ! And many more. Have a wonderful day with family and friends. Cheers, Lisa Rose
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Happy Birthday Emily (2bhealed )
HAPPY BIRTHDAY EMILY - FROM ALL YOUR SEMI-COLON FAMILY. . . So gang let's all join in and wish this wonderful lady a very Happy Birthday and many more. I raise my glass of carrot juice to you today Emily. Happy Birthday to you Happy Birthday to you Happy birthday, dear Emily...... Happy Birthday to you ! And many more.…
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Didn't Get a Cold
Last fall my sister-in-law was diagnosed with breast cancer and in March of this year I was diagnosed with colon cancer. The two of us were talking tonight about the nutrition class put on by the Touched by Cancer Foundation that we are going to attend on Saturday. She was talking about all the supplements she took, such…
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PET Scan/CT Scan - are they different?
Firstly, thank you for all the lovely replies to my "coming to the end of my chemo thread" it made me feel so much better (and normal!!) Well I finally got the last one out of the way last week and feel physically better today. Had my CT scan yesterday - results 13th October. My elder sister suggested I also had a PET…
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Good Receipes for Vegs & Fruit
I am on FLOFOX Regime which includes Oxiplatin which does not allow cold drinks, food and weather. So I was hoping someone had some good receipes for Vegs and Fruit. Since I can't have cold items, I have been VERY BAD and eating bad things like subs, chips, french fries, steak, etc., but also trying to eat chicken, vegs,…
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re: Bringing up wills, etc. without creating fear
My friend Mark does not have a will or a financial POA. I have offered to be his executor - he didn't even know what that was. My concern is that just bringing this subject up will create more stress for him. He wrote a will before his surgery but it got stolen along with more of his belongings from my car (while I was…
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Need your prayers
My husband's condition continues to worsen. They told us Monday they do not expect him to make it more than a month. Thankfully, they now have his pain under control most of the time. Each day has it's own burdens - he has been very confused today and hallucinating a lot. Hospice Care is helping us - I'm very thankful for…
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low platelet count
I just came from dr. office for the routine blood work, and my platelet count was 39 they want me to go back in 3 day for another blood work to see if they go up, I was told if the count is less than 100, I will not be able to get my treatment next week that make me feel a little depressed, because I would like to finish…
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More RC woes and PICC
Thanks for all the info...My dr. says he has better success with Picc for short infusions..mine will only be 6 wks...i am only now learning how lucky i am in this concern. Has anyone done this with the radiation at the same time...besides the chemo and picc problems i am looking for info about + and - of the radiation. My…
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I did it! 3.2 MILES!!!!
Celebration on the Hill was a great warmup! I was an honorary team member for the Orange County Komen Race for the Cure today....and, I am proud to say, 3 months post treatment....I walked the WHOLE THING!!!!!! It was up and down a BIG hill....but was incredible. There was a HUGE amount of people!!!!!! I am so happy to…
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Intimate Relations - Concerned
I had my Stage II colon cancer removed in July 06 and have not had an intimate relation with my husband since then. I started Chemo on 18 August and will be finished around 19 Jan 07. I have received permission from both my surgeon and Ono doctors to continue relations but I can't seem to figure out why I do not have any…
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fatigue
I've been doing great as a stage 4 suvivor (colon and liver resection) with chemo behind me almost one year and living with N.E.D. My energy and strength have been good and I've been very active, but this past month I feel a lot of fatigue all day and night. No energy. I had a scan and blood test last week and everything…
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I played tennis again!!!!!
I am just writing this to share good news. I am getting ready to have my 5th round of chemo on Monday but yesterday I played tennis for the 1st time since I was diagnosed. I am so excited to be able to do something that I did pre-diagnosis. Tennis was a huge part of my life and I missed it so much. I just want everyone to…
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For everyone
This hangs on the wall in my doctor's office: "Exercise is the closest thing we'll ever get to the miracle pill that everyone is seeking. It brings weight loss, appetite control, improved mood and self-esteem, an energy kick and longer life by decreasing the risk of heart disease, diabetes, stroke, osteoporosis, and…
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Waiting for chemo
As many know. I am stage 4, 1 of 21 nodes, one 3cm liver met on right posterior lobe. I had surgery on 9/1 and now feel pretty good. I was back at work as a high school teacher last week. This week I meet with Dr Warren at UCSF on wednesday and Thursday at Stanford to get 2nd opinions. The local onc want Folfox 6 + avastin…
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just checking up on you folks...
i have not been posting lately... ok, it's been a few years but the runner checks in every once in a while so here goes. i am at the five year point now and my oncologist told me to come for two more scans (once per year) for the next two years since he wants seven before declaring me a *real* survivor. then the chances…
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Correct name of Trial - E7208. Anyone on this?
This is the trial that they are pushing my friend Mark to go on. The drug used is brand new and made by Eisai. Anyone know anything about this?? Thanks so much! Kathryn
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RC woes & PICC
Greetings again, I could pepper you people with questions every day.....thanks! Anyone tell me the truth about PICC lines...pain, care, problems....?? Planning 6 wks of 5fu continous infusion, with radiation. Keith
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More RC woes and PICC
Thanks for all the info...My dr. says he has better success with Picc for short infusions..mine will only be 6 wks...i am only now learning how lucky i am in this concern. Has anyone done this with the radiation at the same time...besides the chemo and picc problems i am looking for info about + and - of the radiation. My…
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Genetic testing for FAP
I haven't posted in a while. I was diagnosed FAP with stage 3 colon cancer in 2003. It has taken me this long to go through all the red tape and such to get an insurance company to agree to pay for the testing. I have 2 boys ages 7 and 8 who could be affected by my disease. Finally had the test in August of this year. The…
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Something fun
I posted about playing a game not long ago. I gave the wrong web address. I didn't realize that it was case sensitve. Try WEBoggle on google. and play under "team colon cancer". Of course you can play under any name, but I thought it might be a diversion from all of the serious stuff we have to do. jams
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RC woes
Thanks to all of you who responded. Surgeon gave me the green light to begin treatments...I go Wed. for ct scan with radio onc. Once that is set up I will get my picc line and chemo and radio start at same time...probably start sometime in first few days oc Oct. Interested in surgeon who specializes in low…