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Any stage IV's out there who've done RFA??
They've come a long way with this procedure and I would like to know about anyone's experience. Thanks so much. Kathryn
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none
this site sucks...just spent 30 minutes trying to access it to reply to a needy poster...fix it!
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re: For Glimmerofhope
I read your post for "Mother's Lungs Update." It sounds like you have been through a lot. Did you ever have the liver and/or lung surgery yourself? Have you tried other trials or can you tell me about some of the regimens you've been on? My friend Mark is starting a second trial to see if it will shrink some of his many…
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cancer is back/need positive stories
Well after almost 2 months of ct's and byopsies..i just got the newsw...is positive,2 spots in 2 lymph nodes...trying to get an appt. at MD anderson. Mt appt with my oncologist is on the 9th. Need some positive words.. Thanks and God bless... Ileana
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Life after chemo
Hi Everyone, I wanted to post something else good that has happened since chemo. Just a quick bio. I was dx Dec 19, 2006 with tumor out Dec. 20, 2006. Stage 3, 1node, no mets. I was on Folfox and finished 9/12 treatments due to neuropathy and other issues. Now to the good part. LOL. My other issues were the chemo was…
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Low WBC; Rescheduled 4th Treatment
I was scheduled to receive my 4th FLOFOX regime on 29 September 06, but found out that my Neutrophil (WBC)was too low (.7). Normal range is 1.8 - 7.4. My total WBC was 3.4 which wasn't too bad. So now the 4th treatment is scheduled for Friday, 6 October and my LAST session is now 26 Jan 07. QUESTION: I now alot of people…
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first post
Thank you for your post. I am happy to see someone respond and offer me some hope that despite the long term ordeal, there might be a therapy that works. I really appreciate your thoughts. Lortex52
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panitumumab or Vectibix, sounds promising
I was just about to post a question regarding this new chemo drug when I saw the one below - Vectibix is the exact same thing. Has anyone tried this?? One of Mark's oncologists mentioned this in passing before he signed the papers for his current trial which will be starting soon. After much research, this sounds much…
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just out of the hospital
Hi everybody! I went to the emergency room on Thursday night with severe stomach cramps. It turned out I had a small bowel obstruction. Because it wasn't complete, I was in the hospital for 3 days; I was on IV fluids, then clear liquids, then soft foods. The pain has really been so much better. I also had a CT scan. I…
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low platelets count update
I post a message about a week ago about my low count, today my count went from 39 to 177, so thank God I was able to received my fourth treatment, thanks to all of you that answered my post, because I could find out at that point that this has happened to other people and is common.Lots of hugs to all of you.
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Free flights/lodging for cancer victims
I know free flights exist for people with cancer - does anyone know off hand who does this? I need to find out pronto. I've found an doctor out of state doctor who will see Mark on Tuesday, very short notice, who does some cutting edge therapy for stage IV patients (super RFA). Thanks so much! Kathryn
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just diagnosed sounds bad. help.
5 days ago I was diagnosed with metastisized cancer of the bowel. I go in for a ct scan in 3 days. I think it is also in my stomach because I have been having nausea for about 10 days. I fear I am dying. I am trying to be hopeful, but I have three daughters and I am so messed up. Has anyone experienced a diagnosis like…
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Made the decision, Wish me luck!
For those who have been following, I am stage 4, had colectomy, moderately differentated 9/1 found 1 liver met with PET and CT. My CEA right now is 10. I went to UCSF and Stanford to get opinions. One said surgery right now the other said 3 months chemo then surgery.I have made a decision to go with the 3 month of…
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Update on my scan
I had a CT scan done and they see a spot on my spine. So today I had a MRI done. On Monday I will be calling my onc to see what's next! I'm hoping for all good news but what ever it is I'll see you guys in Halifax!
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Special thoughts for Btrcup ( Linda )
Dear Semi-Colon Friends, Tomorrow October 1st will be the first anniversary of Scott's passing. Let's all join together with special thoughts, love & prayers for Linda, Scotty and Kerilyn at this difficult time. With Love, Lisa Rose
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Colon removed--Stage II, N0, M0
On Aug 3 I had surgery to remove my colon and other than 10 long days in the hospital, a minor set back after going home, I am happy to report that things seem to be moving in a positive direction for a a change. I returned to work 6 weeks post surgery--not because I had to, but because I felt good and wanted to. My…
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Did you guys hear about this?
Hi all, I thought some of you might be interested in learning about this: http://www.forbes.com/forbeslife/health/feeds/hscout/2006/09/27/hscout535192.html
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Juicing and chemo advice needed
I am starting chemo next week and am looking for good advice on diet during this time. I want my immune system strong!
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first post
I've been reading posts for a while and found them to be so helpful and thoughtful. My husband was diagnosed 11/05 and has been on chemo since: FolFuri (Avastin for 8 mos and now Erbitux--3 treatments so far). Colon tumor is situated just below the liver (position name?)with a large liver met 10 cent.+ on rt. lobe and 2…
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CEA Level/# of mets in liver
This is a question going out to everyone who has had more than one met in their liver and whose cea level is a marker for them. CEA level has been a definite marker for my dad. We just received some conflicting results. His cea is 5.5 and the surgeon believes there are 8-10 mets on a pet scan. Background - in Feb 2005, he…
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Rectal Itching
My sister is currently going through chemo for stage IIIC colon cancer. She has just completed chemo 7 of 12. Unfortunately, she is experiencing extreme inching in her rectum area, outside and inside. The doctors have tried steroid creams (proctofoam) and treating her for a bacterial infection. I think she has tried six…
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re: MD Anderson won't do second opinions
In the back of my mind I've been thinking I'd take Mark to MD Anderson if he needs (another) second opinion. Well I am shocked to discover that they will not do a second opinion "at this time." They will only see patients that intend on being treated there. That would almost be worth Mark uprooting himself from his life,…
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Experience with xeloda and erbitux?
I posted my dilemna earlier. I so appreciate your suggestions. If I do start chemo next week it will be xeloda, oxaliplatin and erbitux. Can anyone tell me their experience with these drugs? I am aware of the side effects of oxa, but how about the other two? Can you work with them? Nausea, mouth sores, hand and foot…
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Stage II, w/NO & MO Colon Cancer
I would like to hear from anyone who has been disagnosed and/or survived the cancer I have which is Stage II w/NO & MO. The tumor was removed by surgery on 10 July with an ostomy. I started the FLOFOX Regime (Oxiplation w/Lecavoron & 5FU) on 18 August. Regime is every other week for 6 months. The reason I am asking is that…
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Calling Kerry!
Hey Lady, Isn't this our SF mini-palooza weekend? Please give me a holler when you're in town! I look forward to meeting you! Cheers, Ying
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Help - Need Advice
Brief history - My dad was diagnosed with colon cancer (stage 4) in May 2002. In 2002, he had one spot removed from his liver. The cancer came back in 2004. We had a second surgery to remove a spot from his liver. It returned in January 2005, he had ablation done to remove a spot. In October 2005, he had surgery/ablation…
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Celebrated 6 year survivor anniversary yesterday!
Yesterday, I celebrated my 6 year cancer survivor anniversary. I was originally diagnosed at age 29 with stage 3 CC. Since chemo., I married my best friend and had a beautiful baby boy. Every day is a gift and I try to treat it as such. Laugh loud, live strong, and don't be afraid to reach out to others. I post not for the…
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Help needed deciding course of action
First thank you to all who have written in the past.Your wisdom and kindness is great. I am healthy 47 yr old male with 2 kids, Stage 4 colon cancer with 1 liver met (2.8 X 1.8 cm). On 9/1 I had the colectomy. I have a dilemna after meeting with 2 specialists. Simply put, do I have: 1. Surgery on the met and then chemo or…
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THANK YOU Semi colons!
Hey all you awesome semi-colons! Arthur printed off your birthday wishes from y'all and I want to thank you for them!! My laptop is still kaput--my hard drive is broken and my kids' computer just returned from the shop today so I am on theirs--at home at least--which means I will have to share. We have had so much drama at…
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Friday Giggles
Hi Guys: As expected, here are some giggles to help you roll into the weekend! Have a great one! Cheers, Ying - - - - Doe in the Woods Q: What did the doe say when she came running out of the woods? A: I'll never do that for two bucks again. Sex Over-Easy These two eggs had just been married and were on their honeymoon.…