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Friday Giggle (Clean ones :)
Hi Guys: I am back from a fabulous week in India. Got a lot of business done and little sightseeing too. India is a really happening place these days. It's so good to see smart, upbeat people working hard to improve their lives. I was there once 8 years ago. There is been so much progress. I posted a couple of pictures on…
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LYMPH NODE METS
DEAR ALL, I AM STILL ON THE SIDE LINES WITH MY SISTER IN LAW WHO HAD HER ILEOSTOMY REVERESED & A HEPATIC PUMP PLACED. THEY DECIDED AGAINST RESECTION AT THAT TIME DUE TO LYMP INVOLVEMENT, REMOVED WHAT THEY SAW & SHE STARTED ON SYSTEMIC CHEMO AS WELL AS THE PUMP. THE LATEST GOOD NEWS IS THE LIVER TUMORS & CEA ARE SHRINKING.…
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Chemo - when does it end?
My friend Mark is on a clinical trial of Xeloda, Avastin and Oxy. On a trial, there is no discussion of when it stops - it continues until it either stops working, starts reversing or until the patient themself decides to stop. Question - for those of you on "regular" chemo, you are given a finite amount of time, correct?…
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Coming to the end of my chemo
Hi everyone, I hope you don't mind me joining you. I'm from England, am 38 years old and was diagnosed with colorectal cancer Nov '05. I had to have my entire colon removed due to numerous polyps as well as the tumour (I don't have a "bag" though, which surprises many people). It had also spread to my lymph nodes but not…
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Neupogen Has Anyone Had This Shot
My husband has been having the Neulasta shot after he finishes each chemo treatment. In a few days he will be 65 and starting Medicare.As of 10/01/06 Medicare will no longer pay for Neulasta shot as it is too expensive($4,100.)and so my husband will have to take Neupogen which I am told you have a shot each day for 5 days.…
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Chemotherapy Side Effects - HELP
I am 42 and had a Stage II (NO, MX) colon cancer tumor removed on 10 July 06. I have an ostomy also which will be reconnected sometime in March. I was told by my doctors and family that I should undergo a chemotherapy treatment for precautionary and insurance measures to REALLY make sure that there are no cancer cells…
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Answer for Steelerfan
Steelerfan~ My Dad went for a regular check up -- the first in many years. Since he had never had a colonoscopy, his doctor recommended that he do so. Thank God he did! Not only did my Dad not have any symptoms, but he exhibited none of the risk factors associated with colon cancer. Also, he had no family history of colon…
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Barium results
Well i got the "official" results a few minutes ago and they said it was perfectly normal! So with the 3/4 of a colonoscopy done and the end shown by way of barium I guess i hav eto take their word that there is nothing in there! ;) I am so releived and feel like a huge burden has been lifted. He did recommend i get…
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Flu shot?
My GP has suggested before I start chemo that I get a flu shot (this years) and pnenummia vaccine. I teach high school kids and am around lots of stuff. I will be starting chemo around the 28th of Sept. I am Stage 4 with 1 liver met. FOLfox + avastin is recommended. I also have a conflict between my surgeon who suggests 3…
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Anyone in L.A.? Event highly recommended
There is an event in Burbank Sept. 22nd - 24th that I strongly recommend for those in the S. Cali area. It is essentially a vegetarian/vegan event but you won't be chastised if you are neither. What you don't want miss are the priceless lectures by the biggest movers and shakers in the health field. T. Colin Campbell (The…
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IBC....just a root beer!
Okay, I went to my onc today, and she said "No, it is NOT Inflamatory Breast Cancer" and was impressed by the amount of Keflex I am taking....suggested yogurt....RIGHT NOW!!!!! Or acidopholis stuff from the health store.... I LOVE my docs! What a wonderful situation....my docs will still see me to make me feel better, even…
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Patient Advocate Organizational Tool
When my husband was diagnosed with Cancer I had issues with all the paperwork involved with being his caregiver. Through trial and error I came up with a system that helped me organize paperwork regarding test results, second opinions, insurance issues, doctor bills, Chemotherapy treatments, etc. I purchased a binder and…
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round 1 down
hi all, havent posted in awhile, just been lurking in the background. been dealing with alot of issues on top of the cancer but just finished first treatment of folfox today. bad constipation but feel ok. was wondering if this metal taste in my mouth is normal, dont remember getting that with the 5fu. anyways i wish you…
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Question about blockages in colonoscopy
Talked to a lady the other day who told me she just had a colonoscopy and it was interrupted cuz the doc ran into a "blockage." She said the doctor didn't seem concerned about this and she sees him again this week. He made no mention to her of possible cancer. I just advised her to keep her appointment. I am worried for…
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Great News ! (I think)
Hi Everyone, My mom went in for her chest and CAT scan results yesterday. (for those who don't know, she was diagnosed as stage III in Jan 2003). The doctor said she was all clear - yipee ! But, then she said "we see the same mark at the juncture of the large and small intestine that we saw in February 2005, which is…
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back to the board
Hi everyone - I was looking over the posts and see lots of new names. I needed to take a leave of absence to find lots of good energy.... and then I traveled for a bit. I had some crazy medical stuff go on, but it is all ok. My last CEA was elevated, but I refuse to get excited about it. I will get another CT in 3 weeks to…
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PET Scan results
I spoke last night with the surgeon about the PET scan results. There is some hope but it is a long road. The scan shows that there is 1 cancerous tumor in my liver. This puts me at Stage 4 colon cancer. They could not get it out this last surgery because of the location on the back of my liver. That staging determines…
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2007 COLONDARS ARE OUT
Check them out - http://www.colonclub.com/colondar.html This year's cast of characters include college students, a vetrinarian (and CSN member?), an attorney (no comments, you'll hurt Runner Z's feelings), and a former NBA player. Good stuff! - SpongeBob
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Hello everyone
How are you all doing ... Good I hope I have a question is it common for colon cancer to spread to the spine? Thanks everyone HUGS!
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'Normal Brain'---NAKED HAPPY DANCE!!!!
Got the results today....MRI says normal brain....no mets!!!! Now, I want NO COMMENTS about my normal brain...I HAVE IT IN WRITING!!!!!!! YEA YEA YEA YEA YEA YEA YEA!!!! Naked happy dance....WHEW! Hugs, Kathi
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Good news so far..........
I went for the scope and all went well until he went to make that last bend downwards and the scope would not flex enough and i was hollaring ouch(even though i was out of it) he said he sees that sometimes in women and especially thin women. SOOOOOOOO, he said he was gonna send me for a barium enema to look at the last…
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A MUST read for cancer patients!
I just finished reading Ty M. Bollinger's new book, "Cancer -- Step Outside the Box" and I honestly could not put this book down! I really thought my first post here would be about my 27 year old son being diagnosed with colon cancer, stage IV with mets to the liver, but instead I wanted to pass this on to all of you…
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1st onc suggestions for Stage 4
Thanks for all your great advise everyone. The first onc basically said treatment wise Folfox + Avastin for the 1 met in your right lobe (2.8 cm. They will continue this and moniter the tumor. Then transfer me to UCLA to a liver surgeon for surgery or radiofrequency abilation. The met is on the back side and to get to it…
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Abdominal blockages
Hi all, Although I don't post often I do read everyones messages daily. I am here to vent today. I am currently NED 2 years 7 months now from stage 3. However, as some of you may remember, I suffer with occassional blockages. I had a bowel resection for this last year and I still get them every now and then. Sometimes I…
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Surgery done -next steps
Thank you to those who responded eariler to my pleas for prayers. I had my sigmoid removed, margins are clean. They preliminary diagnoised as Dukes C or D (Stage 4) 21 nodes removed with cancer in 1 node. The tumor was contained but they do have at least 1 liver met. I had a PET scan done yesterday, the day I was…
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CAT scan results...
Hi everyone, Well, just want to let all of you know that my dad is NED for sure this time!!! For those who are new, my dad was diagnosed last December with stage III cc, then restaged to IV in March with two liver mets. He has been on chemo since March (standard treatment-5-fu,leuco,oxy, avastin then switched to xeloda and…
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See onc today
I had sugery 2 weeks ago. Tumor and 18" of colon removed stage 2a (no lymps). I see the onc today to talk about chemo. I've talked to him once and because of my age (54 - young) and size of tumor (big) the thinking is that 6 months of chemo would provide some benefit (fu4/folfox). I think most of the discussion today will…
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chug a lug.................
Tomorrow is the big day! say a prayer for me that all will be normal! I am a nervous wreck! I just ate breakfast and that will be it until after my procedure tomorrow. My appointment is at 8 am. I start my first drink at 3pm today followed by another at 6. I will update you all tomorrow after the procedure! Danielle
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Tick Tock...
Has anyone looked at the calendar? DO YOU REALIZE THE RATE FOR THE HOTEL IN HALIFAX CAN NO LONGER BE GUARANTEED AFTER TOMORROW?!?!??!?!?! If you need the details, read my post entitled "JUST DO IT!!!" It tells about what you need to do to secure your place on our field trip to Halifax, Nova Scotia. You really will regret…
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superior vena cava syndrone
I have svcs do to a blood clot that formed, blocking my port. The port has been removed due to the symptoms of swelling in the chest, neck, and face, but I can't find anything on the web that tells me how long it takes for all of the swelling to subside. Anyone ever had this? My onc said to hold off on bending over very…