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Hello Everyone
I have been absent for a long time, but I have been thinking of you. I finally finished my Masters degree!!!!!!! It was a terribly rough year for my family because I was so busy. I even missed my 5 YEAR NED anniversary with you guys (it was February 24th 2007) I hope that this silly note finds everyone well and happy. Now…
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sick and nervous
I finished my chemo about 1.5 wks ago and have been running around, joyously. Developed a sore throat, which then deteriorated. Went to see dr. yesterday. He said prob a virus but is putting me on antibiotics just in case. They did a blood test and my WBC count is very low -- neutrophils are 0.8! I'm going to do three days…
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fresh PORT A CATH blood clots
We had to rush my mom to the hospital yesterday morning due to the port a cath, blood started gushing out, soooo much I thought she was going to bleed to death, she just got it done a week ago, the doctors said it might of been a blot clot, they were not really sure they took a chest xray and it showed the port a cath was…
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Of flinches and words...can we say 'rectum'????
Ok, now that I said it...not so bad, right? I am so happy that this word, along with it's cousin, "colon", is getting more play in the outside world. And it's all the semi-colons that refuse to remain part of a 'silent' group!!! If I ever questioned the advancement of cancer treatment...well, all I have to do is look at…
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Amifostine? Ethyol? Anyone know?
I have my 'researcher' hat on. My sister's rad/onc has listed this as a daily pre-treat to radiation. It is an infusion that is given before rads to protect the dry mouth/sores. Some pretty hefty sides... The only usage I could find was for head and neck cancer...I'm wondering if this guy is going a bit over on patient…
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Hooray...NED has a new partner!
Today I got the results from my first 3 mo follow up testing. The onc didn't expect to find anything but it's still great to get the all clear. This is the first part of my battle with cancer to go smoothly. But if I had to pick one out of what I've been through so far this would be it. Now all I have to decide is where I…
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Dealing with this
good afternoon. I am Adam from NY. in Aug 2005 was dx with colon cancer. had resection of colon at end of aug '05. First regimen of folfox Oct'05 till may'06. had follow up Pet/ct in aug 2006. dr. found lesion on right lobe of liver. Sept 07 had RFA (radiofrequency ablation). Had 2 regimen of chemo with folfiri. during…
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Thank you all for the welcome!
I spoke with my sister, and she is holding up well. I told her about your responses, and she was happy. She told our mom. That was hard. Mom is a 2x survivor (breast and endometrial), and me going to 2x (rectal and breast), mom was pretty sad about my sister. But she is glad that they have an 'expert' of sorts to shepard…
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TPN Please help
My mom has colon cancer and because of illness has not been able to tolerate anything besides a colostomy. The first colostomy 'fell apart; Now the new one is falling apart. She is really sick in the hospital critical care unit with C diff and Sepsis. She cannot eat. Therefore they are going to start her on TPN to tryand…
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Hi Everyone I am new
Hi my name is Beth, I am 38, and live and work in AZ. I work in Law Enforcement for the feds. About 6 weeks ago I found out I have colon cancer. My doctors were a bit shocked because of my age and no family history of this. Needlessly to say I was double shocked. I had the tumor removed june 6th, on the 9th found out it…
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Thanks for your posts!
Toeveryone who responded to my new diagnosis and scared post - Many thanks! It really helps to know there are others out there with the same condition and are living life. I am working on staying positive and plan on fighting this all the way. Thanks again to all
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To jams67 and thank you guys
Hi, first of all thank you all so much for your "congrats". To jams: I can tell you I had the "cocktail" too and it was terrible, but now that I am only on Avastin, I have no side effects at all. I go every two weeks and I am only at the center for about 1 1/2 hrs and out I go. I still have trouble off and on from the…
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new diagnosis and scared
Hi there - I was just diagnosed with stage IV colon cancer. I'm just 45 and female. Dr's thought it was ovarian cancer but pathology revealed colon cancer. I've had surgery to remove a 2 in section of colon, and 2 ovarian tumors. I'm to start chemo on Monday. Dr says outlook isn't good, but what are chances of success with…
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For crazylady....Jamie
Hello Jamie, Hope you enjoyed your 4th of July. I know you're going through so much right now, so I hope you were able to put it all aside and enjoy a good time in spite of it all. I also remember you mentioning your surgery being scheduled for tomorrow, the 6th. I just wanted to send you my best and most positive thoughts…
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We MUST be 'more than 1%' by now!!!!!!
I remember going to a conference a year ago where I was politely but firmly told that because of my age, and my sex (hummm, wasn't...oh! TMI), that I fell in the "less than 1%" of all colorectal cancer patients!!!! With my sister, and other women I know in the 45-55 age range 'aquiring' this rare rectal cancer, even with…
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AVASTIN and Ambrotose Mannateck product
Has anyone ever taken the Ambrotose for the immune system? what about Avastin for stage 4 colon without surgery? does it work ? what side effects did you have? Thanks
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Update
Hi everyone: Diagnosed Stage IV with mets to liver and lungs, currently in Buenos Aires trying out a new treatment along with six weeks of chemo (Erbitux and Irinotecan). Latest scan results show that the lungs are clear (yippee) and there has been shrinkage in the liver tumors. The doctors are considering liver resection.…
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low hemoglobin
I had my first 3 month check up after finishing my treatment. The blood work came back with a low hemoglobin level. I had my last chemo on 2/28 and had my ileostomy reversed on 4/16. My onc is having me redo the CBC to recheck it. I do have some minor bleeding from a fissure. How much do you have to bleed to impact your…
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Looking for Hope AGAIN
Well, chemo got put on hold because of hgh liver studies due to oxali (since I'm not drinking anymore) and low platelets (also due to oxali) Probably just as well because my CEA level went up despite treatment. CEA has always been a good indicator for me and now it's at its highest level yet. Have an appt to discuss with…
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How many cycles are enough?
Hi to all, Please forgive me for, again, coming to you guys w/your comments and experiences regarding the total number of cycles one needs to finish the chemo Folfox regimen and feel okay about the decision and outcome. This is becoming a real issue for me since I'm winding down with the treatments. I'm going to be doing…
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Improved Eyesight
My optometrist says that I am much less near-sighted than I was 4 years ago and possibly attributes it to chemo (Folfox 2 years ago) and that the changes were 3 times as much as normally seen in someone my age (69). Maybe there is a small silver lining to chemo;-)
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Now that I have calmed down....
So it's been a few days since I was here last and I just want to thank everyone who answered my last post with encourging words. Replay...husband had his CT scan after finishing his 6 months of chemo and it wasnt' so good. So I have a copy of the CT report and this is what it says.. R upper lobe in lung 3-4 cm nodule, also…
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Another Dip In The Road :(
Hi to all my wonderful semi-colons- I have not been on this site for quite some time. We are still right in the middle of moving, and don't have wireless yet, and because my mom is not doing very well. Five weeks ago, my mom started having some pain in her lower back that radiated through to the front. Over the last five…
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Trouble sleeping
Hi, My husband has gone through soooooo much in the past 1.5 years. Chemo, radiation, surgery for removal of the rectum, colostomy, surgery for liver resection, now back on chemo, waiting for tumor to shrink for another liver resection, that he's been having trouble sleeping! Major trouble... He has not slept in 3 weeks!…
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OH SO NAKED.........
Hi friends, just wanted to say I had CT scan today and I am happily danceing with NED!!! Thank you God for so many blessings! Recap:Dx Nov 2003, St 4 w/liver mets, colon resect, liver resect, rads, chemo Oxali/5FU/leucovorin for 11mos. Remission end of Oct 04. Recurrence Jan 06 in liver w/2nd liver resect, chemo…
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Yo, Limey!
Hey Limey, I've been thinking about you...how are you? I've been hoping and praying your scans went well. Oh, and by the way...great picture of you on the CSN start page. Hope all is well and Happy 4th of July!
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Oh Speedoman and Thongman.......
Yes, the pool is open. Come on in. And George, I don't want to hear anything about any shrinkage. Excuses, excuses. Elaine
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your first post
Hello semi's, I was looking back at old posts and found my first post back on 7/23/2004. Here are the names of the first members to respond to my post,Stacy Gleason,Judiths,Steved,Jana11.these were the first family members to touch my life here on this wonderful site. Do you guys remember your first post and the family…
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WHERE OR WHERE IS KANGA????
HEY WHERE ARE YOU THONG MAN!!!!! LOOKING FORWARD TO HEARING FROM YOU. BE WELL NEVER,EVER GIVE UP!!!!! BRUCE
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Hope for unresectable liver tumors
Largest Study to Date Confirms Effectiveness of Radioembolization for Unresectable Liver Tumors 02-26-2007 CARY ÃÂ Radioembolization is considered a safe and effective treatment for patients with liver tumors that cannot be surgically removed and can be safely applied to a wider group of patients, according to the…