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only one more chemo left!
After getting all excited last week, and then getting shot down by low white cells, today I finally had #11 FOLFOX! In two weeks, Lord willing, I will have my last one. Today and the last time three weeks ago, I had an entirely new problem. I got home around 2 pm with my little pump, and I felt awful. Backache, joint…
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Still hasn't gone to doc for results of 6 mo CT scan !
Hi all, Just sitting here wondering how you all felt when you finished your chemo and had your follow up scans and blood work. My husband finished chemo 2 weeks ago and had his CT scan last Monday. He has not made an appt. with the onc to get the results. I know he is scared (fear of the unknown is kicking in I think) so I…
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advice/comments please
went to the surgeon today...it's not as "simple" as I thought..The 2 tumors are in the psoas muscle..anyone have had it there ? One is almost an inch the other one 1/2 inch..he said that there are in the back of the stomach...very difficult to find, they can be between fats and the may not be visible at all...one of the…
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Update
Hi all, Haven't posted for awhile but I too read the posts nearly everyday and keep you in my prayers. Brief history, DX 7/06, Colon stage 3c. Did chemo 9/6 to 3/7...seems CEA is a good indicator for me. Started at 4.8 before and after surgery...then down to 1.7 with chemo...number stayed that way for last 2 months on…
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I'm back, on a new study
Hi everyone, with a special hello to all you new people. Sorry I was gone for so long.. needed soem space. But, I am back and will try to check in more often! I started a new study about 5 wks ago. It is a phase 1 study because the drugs have never been used together before. I get: oxali, 5FU (and leucovorin), erbitux, and…
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Lost
Hello Everyone, I am a 18y/o female who was recently diagnosed with colorectal cancer. I am so lost. I dont know where to begin. I have choosen to only tell my fiance and my sister about this because of my distraught family ties. I am so confused about what to do and all of my options. I have been presented with a lot of…
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good news
I got a call today at 1:45 while I was in Santa Barbara with my family that the CT scan was stable and there was no change or evidence at this time. Please schedule an appointment in 3 months.... Best phone call...EVER... Thanks all so much Impactzone
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Go-Lytely anyone?
Hi all. The annual colonoscopy is coming up in July and I was wondering if any of you used the Go-Lytely prep (Colyte). I used that nasty phosphosoda last year. Anyone used this Go-Lytely? How did it come "out"? He he he. Pun intended.
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Update Stage 4
Hello all. It has been a while since I posted but I read everyones. I am 47 yrs old with 2 kids and great wife DX August 06 with colon sugery followed by chemo for 3 months along with a liver resection for 1 met followed by 3 more months of chemo. Along the way I met many wonderful Dr.'s, nurses and people who fight with…
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Responding to Patrusha
System won't allow me to answer your post. I take the visicol, but I break them in two. They are scored so you can do it easily. It doubles the number, but they are much easier to swallow. After the first 20, the best thing to do is get a book and retire to the bathroom. The quiet storm will soon reveal itself. I am then…
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Anyone with some answers about permanent ileostomy
I have had a permanent ileostomy for a year and just found out they did not remove the entire rectum. I was diagnosed with rectal cancer in 2004. I have been bleeding from thr rectum since the permanent ileostomy. Is it normal? The Dr. say it is but I am not so sure. I have a small piece of rectum left and the Dr's. I have…
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On Support Groups...
Thought for the day... Vickie Girard, in her book "There's No Place Like Hope", looked up the meaning of support and had this to say... "I once looked up support in the dictionary. It says: "To carry the weight; To maintain position to keep from falling, sinking, or slipping; To be able to bear - withstand; To keep from…
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Banner Up? Banner Down?
Hello SemiColon Friends, I finished chemo just after Christmas, was re-staged NED (originally stage III), and was back to work the first week of January. I worked up until May and was still in treatment getting Ferrelicit infusions when I got married and relocated from the West Coast to the East Coast. A cross country…
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Stage IV Good News + Question
Hello - Just wanted to pass on some Stage IV good news. I just received the results of a recent CT scan and I continue to be NED. That's 10 months since my colectomy and ablation to one tumor in each side of my liver. I continue to be amazed and hopeful with the success stories here and wanted to share mine. My question…
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Question about Irinotecan & Erbitux.. Anyone have this treatment before??
Hi, My dad just started his chemo treatment of Irinotecan & Erbitux 2 weeks ago and I have a few questions for anyone who has been on this or knows of someone who has. He just completed his 2nd chemo treatment and he has already gotten the acne like rash on his face and neck as they told us he would. Do you know if this…
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How Do I Cope?
Good Morning, My Dad, 62 years old, has been dealing with stage IV for 3 years. He has done exceptionally well until recently when it seemed like everything started to go wrong. Last week he was hospitalized and they drained 20 lbs of fluid from his abdominal area. Apparently there is cancer in the omentum now and it is…
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I appreciate this board...
Greetings Semicolons!! I just want to say how much I appreciate this board. I've been connecting for the last month or so while recovering from surgery and undergoing chemo for a liver met recurrence. Between the nausea, diarrhea, and low white blood count I've been spending a lot of time at home (at a time of year when…
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my father
I realize this is stressful for everyone involved. But feel I must explain my use of words in my last post as not to look like a male pig. My sibling is my fathers primary care giver. Shes a nurse and actually works in the hospital where my father is now. Well I could go into a long 3 page explination as to what lead to…
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So, What do I make of this?
My mom has colon cancer- I posted about 3 weeks ago. She had a colostomy which 'fell apart' due to her health and nutrient level (she really hid how thin/sick she had gotten in order to care for my dad). They re-worked the colostomy. Now, they are waiting for her bloodwork to 'improve' so that they can do the required…
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ileostomy reversal
Hello all My husband got through his ileostomy reversal about three weeks ago. He is doing well for the most part. He continues to have frequent stools and leakage. Of course this is very bothersome for him and also causes alot of soreness and pain at times. We can't figure out why he does really well some days and others…
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restage from stage IV to stage III ???
can someone explain this to me like I am a 5 year old ? Talked to my surgeon before the surgery...To start, this is a new surgeon ( very well know in the area )Before the surgery he ordered a new CT, x rays and a MRI. After he got the results he called my old surgeon and asked him if it was posible that my cancer was a…
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chemo and menopause
I just finished 8 cycles of Folfox 4 and was wondering how women are dealing with the mentruation/menopause issue. I was "peri-menopausal" prior to chemo...I'll be 49 in a few months and wondering if I am menopausal or not. I know I'll need to find out from my gyn., but I wanted to hear from others how chemo affected their…
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Abdominoperineal Resection
Hi, I have a T2 rectal cancer that is being removed later this month. I'm having this rather radical procedure not only because the cancer is very low, but because, having HNPCC there is quite a good chance of it coming back. Well, it can't come back is there is nowhere for it to live. ( yes, I'm in denial about Mets ) I…
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For IIeana and all newbies.
Hello, I am now in my 14th year since stage 4 Colon Cancer, amd am NED. A brief history. 1993 Dec. Diagnosed with Colon Cancer. Hemicolectomy and wedge resection of large liver met Dec 20th 1993. I had 52 weekly infusions of 5fu, plus levamosole every second week for 3 days. Next year I had a partial mastectomy,…
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Insurance Coverage for Avastin
I posted some time ago that our insurer, Blue Cross of California, had (retrospectively) denied coverage for Avastin chemotherapy my husband has had for stage four colon cancer. A number of you were kind enough to post responses that were generally supportive and encouraged me that that everything would work out. Our…
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just started
I just started radiation and after the first day became so nauseated I haven't been able to eat much. Nurse said that is very unusual. Would someone comment on the best anti-nausea drugs or has anyone tried acupunture?? My name is Robin and I have stage 3 rectal cancer, already had surgery and was suppose to be taking…
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DO YOU HAVE PAIN
background: Stage IV April 2005, recurrence October 2006 in stomach, in remission as of April 2007. I'm still taking Avastin every other week. Does anyone else have pain thru out the body? I take pain meds and muscle relaxers and I wish I didn't have too but I couldn't handle the pain without them. I was just wondering if…
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Hmmm, what is going on?
Ok, maybe it's me, but has anyone noticed that there seems to be some element of "weird" going on lately? What prompted this is that some folks who have recently appeared are giving others the feeling that they are not what they appear to be. I guess my question is why on earth would someone not disclose their relationship…
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thanks for all your replies
I am sitting here crying tears of joy at all the replies I got from my posting. This is a great way to communicate with others that are going through this cancer thing. The replies will be a great help to me in more ways than one. Bless each and everyone here. Love Robin
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how do I e-mail people?
Hi Everyone, I cannot figure out how to e-mail people on this site unless they have e-mailed me first. Help! Thanks, Jamie