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"Go away" my onc said!.....
I went for my 3-month check, and my oncologist said "I don't want to see you for 6 months"!!!!! Music to MY ears!!! CEA was 1.1, CA27.29 (Breast cancer marker) was 18....both WELL within normal range (probably the only thing on my body that IS normal..lol!). As an added bonus, my cholesterol is, for the first time in my…
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MARCH in Halifax NS Canada 2007
A few of us Colon Cancer family members and Patients are forming a march here IN Halifax, Nova Scotia , Canada, some time this coming month Sept, Oct, for anyone in this area or surrounding area (or any wheres for that matter)that are interested in Joining us I will let everyone know when, This March is for the Nova…
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Ileostomy
Hi all, I'm new to this discussion board. I was diagnosed with Rectal cancer in April have gone thru chemo/Radiation, Surgery and now have an temporary Ileostomy. I have 2/3rds of my sphincter muscles left as the cancer was very low. I have been reading about fecal incontinence after the reversal of the Ileostomy and…
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Great news
Hi all, I don't post very often, I am another of those lurkers here. My hubby was dx'ed in Jan 06 at age 48 with stage 5 colon cancer which had metastasised to his peritoneal wall, with 3 nodes involved. He had 2 surgeries (the last one being "The Sugar Baker Protocol" on Apr 13/06 (atleast that is what they call it here…
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out of town
We were out of town for the weekend, and there were so many more posts than there usually are on the weekend that it took forever to get through them. Lots of good news and interesting comments. Everyone must be home from their vacations and back to school or work. Glad to hear from all of you. Jo Ann
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CT Scan next week
Well, another 3 months have come and gone. It is time for my husband to get his check up next week.(Dx stage 3 rectal in Sept 06, chemo and radiation, surgery, Folfox, and reversal in late May) We have so many questions this time. After his reversal, he has still been in so much pain on and off. I am sure he will never be…
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TIME TO TAKE A BREAK
OK... I've been away for a pretty long time. I came back to find way too much gloom and doom posing and decided to lighte n things up a bit! http://beboframe.com/FlashFrame.jsp?Size=S&FlashBoxId=3309347442 Yes, we are all here to seek and or give advice and cheer each other up, but PLEASE - let's not limit ourselves to…
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what does this mean
I went to see my Doctor to-day for a general check-up, Pap test etc. I had blood work done one week ago and she is "concerned" about my creatinine levels. I've heard that it is not uncommon to have elevated levels during chemo because the kidneys are working overtime to get rid of the toxins. I'm 10 months out of Folfox.…
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i am wondering
hello i have colon stage iv with multiple tumors in the liver and both lungs. i am 3 weeks into an oxaliplatin/5-fu/leucovorin W/bevacizun and erbitux trial. is anyone eles on this -- if so how r u doing? i am having a chest x-ray in two weeks to see how things are progressing and am nervous. thanks
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Back after break - and happy
Dear Ones, A brief bio for those not overly familiar with me: diagnosed 2003 with Stage 3 rectal cancer. Recurrence (lung met) in 2005 and in 2007. In June, I finished 6 months of chemo (FOLFOX plus Avastin). A thousand thanks, from the bottom of my heart (I'm teary as I write this!) to all of you who helped me get through…
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Spongebob and everyoneles
i just read your note on being upbeat and less glummy. ok alittle about me . i am 38. i went into the doctors appt with chest pains and 48 hours later was being told that i have stage 4 colon cancer w/ tumors in my liver and both lungs. (is there a difference between liver mets ans tumors?). before that day (i almost blew…
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Colon Cancer? Please help me - this is new
I had a colonoscopy last week and the results came in this week. A semisessile poly 14mm with severe displasmia (sp?). I am scheduled for surgery Tues. My dr. told me he thought I would be clear - that chances are they already got it all in the colonoscopy. But then I read all the "stuff" on the internet and I'm SCARED TO…
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And the world is good....
I MUST share my good news. I was going to anyway, but now that I just read my dad's post...well, I felt the urge (no, not to use the pot...although...I digress...). As you all know, my last 3 years have been, to put it mildly, a bit of a challenge to my sanity. I actually left for Europe this summer worried that, like…
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SpongeBob
I have been part of this board for 12 months and do understand where you are coming from and your point of view. It it hard and can be hard to provide guidance, help, support, advice, etc to anyone who is only interested in the "gloom" portion of the story or event. Many posts do consists of gloom and doom but that is also…
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Upcoming CAT scan....
Hi everyone, I know I haven't been posting on the board as much lately. I haven't really had much free time since having my baby five months ago (not complaining though). You are all always in my prayers. My dad goes for his follow-up CAT scan this Monday and will get the results on Thursday. For those of you who know me,…
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a great day and an introduction
hello everyone. I have been lurking on this board for some time now and felt like today would be a good time to introduce myself. First off let me just say how much i appreciate all the information and support ya'll offer. In the past few months I have come to this board almost daily.Was dx stage 2b cc Oct.06 after a year…
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Successful surgery and good report
Well, I had the surgery on 8/14. They removed my entire sigmoid colon and part of the descending, so the surgery was a little more indepth than we thought. But I'm blessed - I got good news - the cancerous polyp had not gone any further than the original site and there was no lymph node involvement. The first couple of…
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Good news from a stage 4
I just had my 1-year colonoscopy on Monday, and it came back clear as well. Now there's just the CT scan next month to get past. It will be my first after being off chemo for 3 months. I had a liver resection in Feb 07 and colon surgery in Sept of 06. While its still a long fight, I have hope, and faith. All you stage 3…
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Poly-MVA-----Any experience with this?
Hello All... I am generally not a person that would investigate alternative supplements. I shared with my acupuncturist that my tumors had increased in size and number and she became very concerned. She paused for a moment and decided to tell me about a product by the name of Poly-MVA. She has been researching it and is…
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HELP erbitux sunburn!
Hi all, I cant go outside without getting a sunburn on my face. I always wear a hat and try to stay out of the sun as much as possible. I think maybe the sunscreen is causing most of the problem? I have always been sensitive to the sun on my face.. it never tans, just a shade of red. My face is really red, dryed up, and…
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Very Good News!!!!!
The Doctor said Due's liver looks a little enlarged but there are no signs of Cancer DOING THE HAPPY DANCE He said the liver enlagement may be due to the Tylenol!! he was taking way to much for awhile I'm soooo happy HUGS!!!!!
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'feelin a little dumb
My last post about "feeling abandoned" must have been done when I was in panic mode. With the help of all your input, I called my onc and got the info I needed. I think we got so caught up in a referral process that everything went on hold. I am on a chemo "break", with a PET scan coming up and then the follow-up plan. My…
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liver mets vs lung mets
As you know from my past messages the colon cancer from 2003 has metasisized to the skullin 3 places and also multiple nodules in both lungs. I don't know if this is an appropiate question. BUt which is most successful to treat mets to the lungs or mets to the liver?? I saw my oncoligist on Tuesday and he wants to do…
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what does this mean
I went to see my Doctor to-day for a general check-up, Pap test etc. I had blood work done one week ago and she is "concerned" about my creatinine levels. I've heard that it is not uncommon to have elevated levels during chemo because the kidneys are working overtime to get rid of the toxins. I'm 10 months out of Folfox.…
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Research from Arlington TX, UTA
Check okc@star-telegram.com August 2 addition. I saw this article in the newspaper. "It's a simplification, but the Awashthi/Singhal research boils down to this: A protein called RLIP76 is a multidrug transporter that shows up in cancerous cells, a sort of molecular cell train. Its presence, kicks off a toxic network of…
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Thoughts and Questions?
Hi Everyone, I started chemo today,again and as usual the emotional stuff is more difficult for me to deal with. Yesterday, while talking with my therapist and complaining about not wanting to go back on chemo, she made the comment that she thought that I had not fully accepted the fact that I have cancer. After thinking…
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xeloda/avastin/oxal?anyone?
Is anyone on this regimen who isn't on a clinical trial??. My husband is on a trial involving xeloda/avastin and oxalplatinum. He is doing very well but there may be a possibility of surgery or rfa in the near future, and the ONC is very reluctant and hesitant since he is doing so well and since he would have to stop the…
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Waiting.........
Just wanted to give an update on Carl (stage IV mets to liver, 12 nodes positive, dx 10/06). He saw his onc on Tues. and got his CEA done which came back at 2.6. (It was at 2.6 during treatment as well, which he finished 8 weeks ago) The doc said it was great as anything below 4 was considered normal. He will be having his…
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ileostomy reversal
Hi all - I'm a rectal cancer survivor and well along my path to an ileostomy reversal. As those of you familiar with this can imagine, I've had my plumbing re-routed and reattached. J-pouch style. Can anyone offer their experiences with this? On what to expect? On what to prepare for? My reversal will be occurring about 8…
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I'm done!!!
I just finished my 12th and last treatment and boy does it feel good.. I didn't think I would make it through but I did. I guess I'm stronger then I think. Now I wait for a ct scan on sept 11. I'm going to enjoy what is left of my summer. Thank-you all for you prayers and support. It really helped me.. Michelle