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Outstanding results :)
My PET scan results from yesterday came back unbelievable! (Stage IV liver mets too many to count...dx 6/06) After my 16 rounds of chemo, I guess the beast got discouraged as only one small lesion "lit up" in my liver and everything else is dead, dead, dead! No spread, etc. I was so determined to do chemo until I…
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Mary from WI - it's been awhile!
Hello Online Family, I hope each and every one of you are safe, happy, and doing well today and always! ; ) Also, and I don't know if any of you even remember me but... I just wanted to let everyone know that after my mom's battle with Stage IV Colon Cancer - she passed away, at home, and in her sleep during the night of…
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Happy Birthday Lisa Rose!!!
The one that keeps up with so many other's significant dates has one of her own tomorrow!!!!!! I have no idea how old she will be but am guessing it to be around 35...... Happy Birthday my dear friend and I intend to spend many more Paloozas and birthdays with you honey. I look forward to every single one. My love to you…
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stage 1V colon cancer with mets to the liver
anyone out there doing well with colon cancer with mets to the liver and done with chemo? If so can you tell me how your life is going without having to go to the Dr. and just waiting for your next ct scan.
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clean CT scan
I just had my first CT scan and everything came good. I'm free for 3 months if you don't count my appt with my GP Dr and a Mammo. I can't believe how many Drs I've seen in the last year. Well I'm going to enjoy my news and live. Thank-you all who have helped me through the last 6 months. I couldn't live without all the…
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When to remove the port?
I seem to recall seeing some discussion about this before but of course cannot remember the details. I'm curious as to how long people kept in their port after treatment was finished. My onc is talking about removing mine before Christmas (as a Christmas present!). I had surgery just before last Christmas, and 6 months of…
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Kathy-feeling better ?
hey girl..just checking on you... did any of those advices worked ? If not...go buy undies ! yeah I know..kimnd of weird..but as many of you know..that;s what I did when I decided that I AM going to be ok.( really needed some after 1 year without buying any ) God blees Believe
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mucinous adenocarcinoma of the rectum??
Anyone dx with this?? How are you dealing with this?? Dad just dx with it?
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internal pain pump?
Hi Everyone, I hope you're enjoying a great 4th of July! My surgeon mentioned an internal pain pump that could be placed during surgery that would disperse pain medication evenly 24 hours per day. Has anyone heard of this or ever had one? Thanks, Jamie
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Return from my journey to Zion
As much as I enjoyed Zion, I have found Mayo to be that much more. Mayo is an impressive facility. State of the art, comforting and most of all....human. At the end of the day, when you list all of the pros and cons, Cancer Treatment Centers of America did not offer more than Mayo has to offer. I was expecting a more…
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Post colon surgery problems and chemo options
Would like some advice. Hubby 66 great health diagnosed stage III colon cancer 2 of 27 lymph nodes with cancer, 5th day post surgery not passing gas. Any advice, also any advice on opting out of chemo would be helpful. Thanks.
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Well
. A ways to go to get to NED
Had my CT/Pet today and not the news I wanted but then again, I am still breathing and still smiling. Tumor load was maintained but no reduction with this round of chemo so far. With more time on the Xeloda, I may see some tumor reduction. They found a bunch of activity by my rectum that they were not overly concerned with…
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Can I have some Whine with my cheese
This is my first week of chemo, it sucks. Does it get any better?? I went through 6 weeks of rads/xeloda, it wasnt a walk in the park but it was over quickly. Now I face 12 weeks or more. I just feel like I should be able to will myself to feel better?? Any comments or advice would be appreciated. Feeling Blue, Robin
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Hair coloring
Dear friends, it might sounds trivial for some of you to talk about hair coloring, but I'm having issues with my grey hair. Before chemo I would color my hair every 6 weeks, but I have not done it since June, so my grey hair is now showing. My hair has been thinning and I'm worried that if I buy hair coloring from the…
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When to remove the port?
I seem to recall seeing some discussion about this before but of course cannot remember the details. I'm curious as to how long people kept in their port after treatment was finished. My onc is talking about removing mine before Christmas (as a Christmas present!). I had surgery just before last Christmas, and 6 months of…
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Vit C IV/ Doctor can't do it
Hi ! I asked my Dr. if I could have the Vitamin C in IV and he said no...they cannot do something that is not in their "format" "structure" or whatever word he used. Where can I go to have this done ? Thanks !
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Interesting article...
Hi everyone I just read this article and thought you might find it interesting: http://www.time.com/time/health/article/0,8599,1662484,00.html God bless, -Lee-
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I have a new grandson!
Hi Everyone, I just wanted to share some happy news. I have a new grandson, Nolan, born Sept. 8. He joins his 2 big brothers who are 4 and 6. I love babies! Take care, Jamie
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Finished Chemo
Folks, I finished my 7th and final adjuvant chemo session yesterday (Xeloda). What a great feeling to be at the goal line. I wasn't sure what to do today without pills to take...? But than I figured it out...and that was to go LIVE my LIFE! It will be a couple of weeks before I can have a reversal surgery...but I feel like…
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Not Good News
Oh my-here we go again..after progression with 1)folfiri/avastin 2)xeloda and oxaliplatin 2)erbitux/irinotecan we are now progressing again (silly word..progress used to mean a good thing)...anyway..more and new lung mets in addition to constant liver mets...oh- it gets better(sarcasm!!)...Peter now has to deal with a huge…
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Liver Resection question
Hi all. I know that there are some of you who have had liver resections due to liver mets and now that my husband has been given that option for surgery next month, and after meeting with oncologist, I'm just wondering how many of you that did have resection, had any follow up chemo afterward when you were considered NED?…
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Colon Palooza Update
Well folks, I just got back home. This Palooza had the most attendees than any other in the past. Hopefully, next year will generate even more interest. I cannot even begin to express how great it was to meet Debbie and John Sladich (sladich), JoAnn and Don Smith (Jams 67), Sue K. (jerseysue), Jana (jana11), Suzanne…
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NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Hi all, I received my scan results Friday afternoon and I am officially NED!!!! I never dreamed how great it would feel to hear those words. It's been almost exactly one year since stage 3 rectal diagnosis and I can't believe everything I went through to get to this point. I am so happy and I just might do the naked…
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pathology report
just got report back, can any help read this: it consists of 6 tax pink tissue fragments ranging in dimension from .2cm to .5 cm. All in submitted in A1. Thanks
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just when I thought...
just when i thought it couldn't get much worse. I had a head ct yesterday at my insistence. I had completed radiation therapy to the brain for brain mets from rectal ca (highly unusual, i'm told) at the end of july. My equilibrium was getting worse. My onc thought we were doing the head ct too soon. That we should wait one…
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Bloody Mucus discharge and Folfox
I started my Folfox treatment 9/14/07 and this morning (9/15/07) I have had some mucus discharge from the anal area that is mucus mixed with bright red blood. I had a temporary Ileostomy after my surgery for rectal cancer, and so I'm wondering if the discharge is related to the chemotherapy of not. I would love to hear…
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Colonoscopy on Tuesday
Hi All, I haven't been around much for 2 reasons: 1. I am looking for a job and feeling too sorry for myself (it's embarrassing-the self-pity, not the unemployment) 2. The site is very slow for me and sometimes I have to leave before I can see that a reply is posted. I think I will contact the webmaster. Anyway, I have a…
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HERE... HERE
The subject line of the last posting got cut off in a most unfortunate location... I don't wish you were "her" - I wish you were HERE! (got all the "her" I can handle...er... need)
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HAVING A LOVELY TIME - WISH YOU WERE HERE!
Greetings from Nashville! I wanted to send out a quick "virtual Palooza post card"' We're having a great time here in the Music City. Stacy picked a great venue less than a block off of the Music Strip, across the street from the Country Music Hall of Fame and the Grand Ol' Opree. Last night's Palooza Party included a…
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RFA surgery = sucess!!
Dear friends, I just wanted to give you an update about my surgery last thursday. Everything went well. My surgeon said he "cooked it well" (referring to the tumor)!! They sent me home on Saturday. It was an open surgery bcse of the location of the tumor and they sent me home with a drain that I have until Friday. It was a…