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bummer....
Chemo ended in July, I worked all the way through it, I stayed upbeat, and now.....I still get too tired too easily, I think I'm developing a small hernia at my stoma, my fingers and toes are often numb, and I'm whiny. Please forgive me for dumping all this. I'm sorta depressed, and I don't understand why now! Things are…
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2nd infusion with accupunture
Hey Everybody, I had my 2nd infusion of oxaliplatum, the 1st one sent me into a funk so bad that I was ready to give up and then God opened my eyes to accupunture. This time was not as bad just really, really, tired but so far no pain. If anyone is considering using accupunture as an add on for pain, nausea control, I…
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Running out of options?
My dad is stage iv since 12/05. He has been on folfox 4 + Avastin he had to stop because of neuropathy. It was working very well. Went to Xeloda & Avastin and 4 months CEA began climbing. Nov. 06 Folfuri (Vectibix) it was working but had to stop because the rash was so bad. April 07 Erbitux/Camptosar failed. Now we are…
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Drat
Got my CT scan report today. Not just the same as last time but not definitely bad. It hints that there may be some markings in one area that could represent peritoneal carcinomatosis. Now I am scheduled for a PET scan on Monday. If that area lights up then it likely represents cancer. However, I still may not be…
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Quick update
Surgeon feels he got the whole tumor out this time. Now it needs time to heal. We will then address the second lesion with stereotactic radiosuregy, but I think I need to wait at least a month for surgery repair. After we adress that, perhaps we can deal with those nasty little lung mets that I've been dealing with for 3…
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xeloda side effects -need help
HI I just started on a several month cycle for Xeloda. Had one round (2 weeks on ) so far and am already having bad effects. I can't find any info on how to help or manage these. Anyone with info please let me know. I have burning feet and hands. Is this brought on by exercise, heat, cold, or just happens? I am pretty…
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colonpalooza 5
Saw the pictures! Sure looks like a whole lot of fun. Thanks for sharing. Maybe I won't be in the middle of treatments one of these years!
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new vacine
Very interesting. http://news.bbc.co.uk/2/hi/health/7022081.stm Jo Ann
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Life after chemo!
Well, I'm off the chemo for now, I have a checkup in November & will have a CT and colonoscopy in Feb. This is my second week after chemo, you guys know what that's like. Anyway, I've never been this exhausted. I was so looking forward to feeling better having energy. What was I thinking??? I'm am so fatigued that probably…
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Pictures from colonpalooza 5 in Nashville
Pics are posted on the Colonpalooza Five link at http://www.colonpalooza.com/
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Thank you!
Hi... I'm not a regular poster here, but I just wanted to pop on and thank the community on here for the support! My dad used to come on here and look up information on his treatments and loved that there were others in his same situation. His username was Rick894 (I believe), I'm sure none of you remember him since it's…
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I'm home!
I'm tired, but I'm home after what I'm told was successful neurosurgery!!!! More to come tomorrow Mary
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Can you believe?
I just found out after talking with the home heathcare nurse that hooks up by Dad's 5 fu pump that his dosage is half of what it should be. The only reason I found out is because I told her my Dad's tumor markers were going up and that the doctor said we are running out of options. I called the doctor's office and said I…
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sigmoidoscopy not so good
Hi all, I had my test today and it seems the tumor I have been working on killing outside my colon has started to grow through the wall at the original resection site. They are doing a biopsy to confirm the bleeding is from tumor but they are quite sure. I will meet with my doctors next week to discuss another resection or…
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revisiting hormone therapy issue...
Hi everyone, While reading the responses to Kiersten's post last week about hormone replacement therapy, I was so surprised how many of you had been advised against this. I am 25 years old and went into menopause one year ago due to the pelvic radiation I received for my rectal cancer. I was experiencing hot flashes and…
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Scared, desperate, & need advice (long)
I will try to make this VERY long story as short as possible. Everything started in the early morning hours of July 5 this year. I have had migraine headaches my entire life and I woke up from a deep sleep that morning bc my head was killing me. I got up to take my meds so that I would be able to sleep for a few more hours…
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Chemo and Radiation Therapy
My husband is 57 years of age and was dignoised with colorectal cancer. He had his LAR done on Sept 12, 2007. After the surgery they found that 3 out of 16 polyps had cancer in them and now he has to undergo chemo and radiation treatments. We are in the process of setting up appointements with the chemo doc and radiation…
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new avastin stats ( Great ) !
http://www.cancercompass.com/cancer-news/1,13220,00.htm?c=1004:5:1:2
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Hans did GREAT!!!!!!
The procedure yesterday went well, although it was long....7 hours.... The doctor was very excited about the turnout...of course, I could have told him that, with all the prayers, there was no other outcome but terrific!!!! He finally got to his room at midnight...they had to monitor the insertion points so that he didn't…
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Radiation
Can anyone tell me their experience with radiation treatments. My father has been recently diagnosed with Stage 3A colon cancer. He already had his colon resection and now they will start radiation and chemo treatments. I am confused about the radiation as I thought it was used prior to surgery to shink the cancerous tumor…
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CCA Baltimore conference - anyone going?
Hi all - Rodney and I are going to the CCA conference in Baltimore - 10/19 - 10/21. Anyone else going? Betsy
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short update
passed my adenosine cardiolyte stress test, so still scheduled for neurosurgery on friday to remove a bunch of the larger tumor in my brain. SEND PRAYERS!!!! MARY PS...my lovely insurance company had approved a 3 day stay. generous, huh?
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birthday sex????????
Hiya mates and mate-ettes....that's oz for g'day friends! Sorry to be awol the past month but rest assured we are both well, now. Firstly tho; HAPPY BIRTHDAY Lisa Rose and Emily. Hope you both had wonderfull days and were treated with the love you both deserve.(I won't ask about all the personal adventures...lol!) And yes,…
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how much does it cost?
I go to Florida for the winter. Last year I flew home to Canada in February to get a CT scan. This year I will have my CT scan done before I leave. I have been reading the new recommendations for patient follow-up and would like to have CEA testing done every 3 months. Big question??? How much does it cost to get this test…
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Birthday Sex!
Hey all you awesome Semi-Colons! I hope I got your attention with my subject heading. I figured it would chum more folks in.... THANK YOU for the birthday wishes, belated or otherwise. It was a wonderful birthday. And no, SB, I did not have tofu cake.....duh! I had CARROT CAKE!! And alas, I have moved on from Birkies to…
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Alternatives to Chemo??
Hey everybody, Been gone for a couple of days, did me some good. Now back to reality and my next IV infusion. I have been doing a bit of research about ph levels in the body, juicing, supplements that help fight cancer. But, I just dont have the courage to try those things instead of chemo which has been proven to beat…
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Well its official....Stage IV
My wife and I just left the onc's office. I had a MRI done today to compare the findings of the CT/PET. I am now a stage IV patient with mets to my liver. At 36 years old with no history of CC, this is a MAJOR shock now to say the least. I start Folfox with Avastin on Oct 5th. What is keeping me going is ALL the survival…
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BACK FROM 25TH ANNIVERSARY
Okay at the last minute we changed plans and canceled Kentucky and went back to where we stayed for our honeymoon. The Pocono Mts at Pocono Palace and YES we did get upgraded to one of the rooms that had the Champagne Glass bathtub. When you opened the main door, the 10-12' Champagne Glass Tub was first to the eyes, but…
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Book
A while back I was reading a post about a book, a very positive book that people said was great for people diagnosed with a life threatening illness such aa cancer. I wrote it down, but can't find it.. does anyone know the name/author of this book?? Thanks.. My husband was diagnosed 2 years ago with stage 4 colon cancer,…
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OUT OF HOSPITAL
Hi everyone. I started on erbitux and oxiplatinum 2 weeks ago adter the re-occurance developed in my\both lungs and in the skull. After 1 week I developed the severe acne on my fast as well as shingles on my left leg and left butt. I am beside myself. After I read everybodys posts and what they are going thru I try to…