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Finished!
So excited to share that I finished the 10-mile race that I promised myself I would run after I learned I had cancer but had to defer a year when I found out my cancer was more aggressive and required further treatment. I cried at mile one, seven and at the finish. At mile seven someone had written “Fight Cancer” in chalk…
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Small Bowel Obstruction - PEG Tube for Drainage
My dad has been battling stage IV colon cancer for four years now. He was not considered a candidate for surgery based on some other health issues so they recommended chemotherapy, which he received as needed for the first three years. The cancer went into remission once during this time, but unfortunately came back. About…
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Magnesium and neuropathy
Here is an interesting article about magnesium intake and chemotherapy induced neuropathy: http://www.mdpi.com/2072-6643/10/4/398/htm Magnesium intake during chemotherapy was statistically significantly associated with lower prevalence of CIPN [Chemotherapy-induced peripheral neuropathy] (prevalence ratio (PR) 0.53, 95%…
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Lots of Blood
Hi everyone, I want to ask your opinion about something unpleasant. I am having the second chemo, my regimen is Folfox, and they are giving also Avastin in this round. I'm staying at hospital since the chemo takes more than 48 hours. As you know these drugs worsen the diarrhea, and I went for toilet before falling asleep…
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Husbands recent scans not good
Last week we had DH's PET/CT scan at MD Anderson. Two places are of concern. Liver and lungs were said to be clear, so that was a blessing. After we met with the dr, they had us meet with the surgeon to discuss what may need to happen if the places come back positive. They said one place was in the wall of the colon and…
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Getting results from CT scans and toxicology
Help! Tumor found in Sigmoid colon last Friday. Blood test came in kidney,liver and blood is all good, but I am Anemic. Monday I got a CT scan in and my appointment from the CT scan and Toxicoloy are in. What to expect 42 yo male never smoked, drugs or alchol. My rectal bleeding started 9 months ago, with narrow stools and…
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Colon tumor grew back, Surgery April 20th
I was upset to learn that my colon tumor had grown back, and was causing blood in my stools. I thought the blood was from hemroids or aggravation from diarhea caused from chemo, and that's what all the doctors have told me every time I mention bloody stools or bloody diarhea. I've only had one chemo treatment since last…
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Some surprising news
my husband had two tumors in his liver one in the caudate lobe that caused him to be jaundice from May -aug of last year. That was ablated due to location. The second was 5cm and the surgeon was upset he did not get good margins at all for it. He was glad he was putting in the HAI pump because of that. Turns out it was NOT…
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Symptoms or paranoia
Hello all, This is my first time posting on any sort of forum, so I'm sorry if I'm posting this to the wrong area. I'm 42 and I finished chemotherapy for stage 3b CRC with 6 of 20 lymphnodes positive for cancer 1 year ago. Most recent PET scans (Dec.) showed 2 small (>1cm) lesions in the lung and a 6x10cm heterogeneity…
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My CBD and THC experience so far...
I finally got my medicinal cannabis oil a few days ago. Quite the process here. First, I had to see a special clinic, then get referred to a doctor who can prescribe it, then have the Rx sent to the supplier, then order it, then get it delivered. There were issues with the payment because they changed the amount twice so…
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News from Yale Cancer Center
Here's a summary from Yale media on results from their cancer center on a minor dietary intervention (2 or more one ounce servings of nuts per week) which had very significant results for Stage III colon cancer patients - over 50% increase in overall survival at an average of about 6 years of follow-up.…
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Celebrating FOUR years NED
How blessed I feel! I thank Dr. Rembetski, my bowel surgeon. Dr. Singh, my Oncologist. Dr. Kos, my Radiation Oncologist and Dr. Galanopoulos, my liver surgeon. And of course, I am thankful for my family, my friends, and all who have prayed and sent good vibes my way. I also thank myself. Yeah, I'm a work in progress. I am…
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Joan M - Wishing you well
Hoping that you are recovering well from your surgery. We have all been thinking of you. Tru
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Husband is having a bit of a hard time
it’s so difficult being here with him there. I only know what he tells me and I think he is leaving things out. So it’s day 5 and as of yesterday his bowels did not wake up from the surgery. He was throwing up so they put in an NG tube during the night last night. It did it’s job because they started to work, but he is…
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Drink up?
Am I reading this wrong? The abstract of this study (I cannot find the full text) says that good diet and exercise result in a 42% lower risk of death over 7 years for stage III colorectal survivors. However, the odds seem even better for those with the highest levels of alcohol consumption: [P]atients with a 5 to 6 score…
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Neuropathy?
Hi everyone, My hands and feet started to ache out of blue. I have redness where are painful on my palm. What do you think? Is this how neuropathy starts? If so, how can I prevent it from worsening? Thanks in advance for your help, Uğur
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Rectal Cancer Summary
Hi. This is my first interaction with any support forums/chats since my Rectal Cancer diagnosis in early October 2017. I'm sure i'll post more history, but right now, i have a couple of major concerns i'm hoping someone else has some experience with and/or considerations to share. I had 80% of my rectum removed on June 23,…
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Help for my neice
Hello, I was hoping perhaps someone might be able to share some insight with the diag my Neice just recieved. She is just 27 years old. We are told it's poorly differenciated carcinoma with neuroendocrine features, originating in the ascending colon and metastized into the liver. Liver has lesions over 80%. She is anemic,…
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First Surgery to Colon
As some of you know I am fighting stage 4 CRC only for a month. I had my two rounds of Folfox, but due to some complications I will have to go for surgery to remove the main tumor from colon. The main tumor is not that big, it is 20 cm inside of the colon and they will remove around 8-10 cm of the large intestine. Probably…
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Blood clots, cancer is growing, and now no port........
My poor husband is having a time with all this. His chemo Dr called and told him to travel 3 hours to Pittsburg because of all the blood clots (even in the vera cava vein) to see the specialists there. They upped his blood thinner shots and removed his port. We were told that the port along with the drug Avastin were a…
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Anxiety around CEA
I posted this on Colontown and figured it might help out some on the forum here. CEA and the dreaded rise. There has been numerous posts about CEA rise and all the anxiety associated with it. We all get it and understand. For the most part I see posts about rises that are few tenths or maybe a point or two. But there…
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MD Anderson long term
My husband may be staying in Houston for 7 weeks or so for radation and chemo depending on test results at the end of the month. We are looking to rent an apartment For his stay. I've looked on the lodging website and there are many options. I am just wondering if anyone has any experience doing this. We will definitely…
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New Diagnosed Stage 4 - 28 yo
Hello everyone, I have just found this amazing community, and wanted to hear some opinions. I was diagnosed as S4 Colon Cancer with mets on my liver, on both side around 23 mm(sorry I'm from Europe). I am waiting for biopsy report to learn which kind of chemo I'll have. I'm 28 yo, and I feel generally healthy except the…
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Fourth recurrence- Trying radiation this time...any advice
Hi. Stage four survivor. Have had bum lymph nodes pop up a couple of times (this is the third time) and we did surgery the last two times to remove (Chemo before the second surgery). Can't do surgery again. Going to try radiation and Xeloda. Nervous, as I am worried the radiation will damage my intestines. But, I am…
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I have some pretty good news, finally
I wish it was "I'm NED" but it's not. I went to my onc today and we've decided that I'm going to wait until the CT scan is done before I go back on the chemo. So not until June. Yay, because my skin is really giving me grief still and I haven't been on it for three weeks. My CEA before just the two treatments was 52. Now…
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Xeliri infusion one
I survived my first infusion ever with no immediate adverse reaction. They gave me steroids, anti-nausea, and anti-diahrreal meds too. I took a wee nap, and feel my appetite waning tonight. But other than that, not sure what to expect next. I also spent infusion time reading half of a new book called Everything Happens For…
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Surgery went well!
it went well, but took longer because of scar tissue. He was able to ablate the tumor in the caudate lobe that caused all his jaundice issues last year. The other tumor he resected but the margins were not good, so there is high probability it will come back. Luckily he was able to put in the HaInpump, that should really…
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Johnson and Johnson discontinuing HAI pump
Just found out Johnson and Johnson is discontinuing the manufacture of the HAI pump used by Dr. Kemeny/MSKCC for treatment of metastatic spread to the liver. I found this out from Colontown. There are a few individuals there organizing a formal petition to get Johnson and Johnson to reconsider. In the interim, it appears…
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Pomegranate
From the “it probably can’t hurt department”: I am not much of a juice drinker, but I have recently added pomegranate juice to my regime after reading some preliminary studies about its anti-cancer effect. The evidence is not overwhelming and is based mostly on test tube and rat studies, but hey, I figure a glass a day…
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Second Opinion Confirms Things - It Is Back & Inoperable - Not Happy :(
Got a second opinion and it confirms what I was told. Inoperable and it is just a question of when I go back on chemo and see how long it lasts. The second opinon actually said start chemo now, though waiting to see when it spreads or I become symptomatic is also an approach to follow. I think I am going to stick with that…