Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Neuropathy?
Hi everyone, My hands and feet started to ache out of blue. I have redness where are painful on my palm. What do you think? Is this how neuropathy starts? If so, how can I prevent it from worsening? Thanks in advance for your help, Uğur
Rectal Cancer Summary
Hi. This is my first interaction with any support forums/chats since my Rectal Cancer diagnosis in early October 2017. I'm sure i'll post more history, but right now, i have a couple of major concerns i'm hoping someone else has some experience with and/or considerations to share. I had 80% of my rectum removed on June 23,…
Help for my neice
Hello, I was hoping perhaps someone might be able to share some insight with the diag my Neice just recieved. She is just 27 years old. We are told it's poorly differenciated carcinoma with neuroendocrine features, originating in the ascending colon and metastized into the liver. Liver has lesions over 80%. She is anemic,…
First Surgery to Colon
As some of you know I am fighting stage 4 CRC only for a month. I had my two rounds of Folfox, but due to some complications I will have to go for surgery to remove the main tumor from colon. The main tumor is not that big, it is 20 cm inside of the colon and they will remove around 8-10 cm of the large intestine. Probably…
Blood clots, cancer is growing, and now no port........
My poor husband is having a time with all this. His chemo Dr called and told him to travel 3 hours to Pittsburg because of all the blood clots (even in the vera cava vein) to see the specialists there. They upped his blood thinner shots and removed his port. We were told that the port along with the drug Avastin were a…
Anxiety around CEA
I posted this on Colontown and figured it might help out some on the forum here. CEA and the dreaded rise. There has been numerous posts about CEA rise and all the anxiety associated with it. We all get it and understand. For the most part I see posts about rises that are few tenths or maybe a point or two. But there…
MD Anderson long term
My husband may be staying in Houston for 7 weeks or so for radation and chemo depending on test results at the end of the month. We are looking to rent an apartment For his stay. I've looked on the lodging website and there are many options. I am just wondering if anyone has any experience doing this. We will definitely…
New Diagnosed Stage 4 - 28 yo
Hello everyone, I have just found this amazing community, and wanted to hear some opinions. I was diagnosed as S4 Colon Cancer with mets on my liver, on both side around 23 mm(sorry I'm from Europe). I am waiting for biopsy report to learn which kind of chemo I'll have. I'm 28 yo, and I feel generally healthy except the…
Fourth recurrence- Trying radiation this time...any advice
Hi. Stage four survivor. Have had bum lymph nodes pop up a couple of times (this is the third time) and we did surgery the last two times to remove (Chemo before the second surgery). Can't do surgery again. Going to try radiation and Xeloda. Nervous, as I am worried the radiation will damage my intestines. But, I am…
I have some pretty good news, finally
I wish it was "I'm NED" but it's not. I went to my onc today and we've decided that I'm going to wait until the CT scan is done before I go back on the chemo. So not until June. Yay, because my skin is really giving me grief still and I haven't been on it for three weeks. My CEA before just the two treatments was 52. Now…
Xeliri infusion one
I survived my first infusion ever with no immediate adverse reaction. They gave me steroids, anti-nausea, and anti-diahrreal meds too. I took a wee nap, and feel my appetite waning tonight. But other than that, not sure what to expect next. I also spent infusion time reading half of a new book called Everything Happens For…
Surgery went well!
it went well, but took longer because of scar tissue. He was able to ablate the tumor in the caudate lobe that caused all his jaundice issues last year. The other tumor he resected but the margins were not good, so there is high probability it will come back. Luckily he was able to put in the HaInpump, that should really…
Johnson and Johnson discontinuing HAI pump
Just found out Johnson and Johnson is discontinuing the manufacture of the HAI pump used by Dr. Kemeny/MSKCC for treatment of metastatic spread to the liver. I found this out from Colontown. There are a few individuals there organizing a formal petition to get Johnson and Johnson to reconsider. In the interim, it appears…
Pomegranate
From the “it probably can’t hurt department”: I am not much of a juice drinker, but I have recently added pomegranate juice to my regime after reading some preliminary studies about its anti-cancer effect. The evidence is not overwhelming and is based mostly on test tube and rat studies, but hey, I figure a glass a day…
Second Opinion Confirms Things - It Is Back & Inoperable - Not Happy :(
Got a second opinion and it confirms what I was told. Inoperable and it is just a question of when I go back on chemo and see how long it lasts. The second opinon actually said start chemo now, though waiting to see when it spreads or I become symptomatic is also an approach to follow. I think I am going to stick with that…
Diagnostic path - feeling at sea
Hi all, I feel at sea in choosing a diagnostic path forward without clearer advice from my GP. I’m posted overseas for work in a country where it’s evidently routine and easy to add all sorts of different blood tests at will to your blood panel. But the GP seems simply to shrug and say that sometimes the tests may be…
Is CBD without the THC content helpful...
Im hitting the point that Im not feeling hungry.. and thc causus trouble with my already bad anxiety issues, I don't feel its the pain meds because its just started & Im low dosing and have been for 3 1/2 months.. I feel the cancer is causing it or the anxiety. Thanks for any help.. Greg
My husband is having his stent
Removed tomorrow, in preparation for his big surgery Tuesday. It’s been in way too long but they didn’t want to touch it while he was on Avastin. They think it might have caused his infection by harboring bacteria, plus the tumor has shrunk enough to not need it. Also they are ablatiing what’s left of it on Tuesday. I am…
50 polyp's last year and 75 this year. Surgery?
I am 58 male and had 50 polyps removed last year. This year it's 75. None were cancerous. They were only in the very lower portion of my colon and the doctor suggests I get that part of my colon removed. Yet there was no cancer or polyps that looked suspicious. My brother, 13 months older had 1 polyp last year. My dad had…
Radiology report language ... I don't understand
Hi all, I recently had my follow-up scans, done now every 4 months, and the radiologist has noted a 13 mm nodular density at the suture line of the surgical anastomosis which requires further investigation. I am confused by the language that has been used ... can anyone tell me where the location of this density is based…
Is this normal?
My mother is currently battling Stage IV cancer. It has spread extensively to her liver which has been determined as inoperable. She is currently doing FOLFOX every other week and has a pump for 2 days. On the weeks in between she goes for Erbitux. She’s been doing this about 2 months. She is nearly bedridden. Can not do…
Been waiting months for this day....
Today is round 12 of my chemo. Been waiting for a long time for this to be over, at least for now. Hoping for a good scan in the next week or so. That will give me a chemo holiday for a while, and a chance to feel good again. It's very frustrating to feel like crap for 7-10 days, then start to feel better, then get infused…
VATS
Good evening all, Hoping this posts finds everyone doing well. I saw my thoracic surgeon last Friday and I have VATS scheduled next monday. Amazing fast! I am very comfortable with my surgeon. He seems very knowledgeable and experienced. I have two nodules in my lower left lobe. He's assuming they are colorectal cancer but…
High Liver ALT and AST
Hi , Need advice . Looking for people with the same problems. After 4 chemo prosedures with 4 stage colon cancer , liver mets , test show elevated ALT and AST . Does it mean that liver get worse with chemo? Thank you and best of luck with your treatments.
Stage 3 colon cancer
I was diagnose in Feb had surgery resection and 2 nodes removed nothing else seen. My oncologist put me on Oxyapatin iv drip and xeloda pills 3 500 morning and 4 at night and the first iv drip my arms and hands went paralyzed took 2 days to wake up and the next drip was just tuesday he did all day slow drip and was better…
Lifetime Chemo?
Well, I am going on my 12th year of on again - off again chemo treatments. So far, my original diagnosis was Stage 3 in 2006 with 6 months of Folfox. The cancer returned as Stage 4 with mets to liver in 2013 and 6 months of Folfiri with an additional 1.5 years of Avastin. The cancer returned in 2017 as Stage 4B with mets…
Chemopreventive potential of Singulair (montelukast sodium)
Singulair is a popular drug to treat asthma and allergies, which was very effective for me, but which I discontinued on my cancer diagnosis because I thought it inhibited my immune system, which I wanted to be at its best to fight cancer. However, Spring winds and pollen really effected me this year and out of despair, I…
Stage 2A- Chemo or no chemo after surgery??
Hi Everyone I am new to this board and to posting online. On March 14 I had surgery to remove a T3 size tumor and colon resection. 33 Lymph nodes were removed with ovaries and tubes and all were clear. Did not Metasisize. The tumor had gone to the bowel wall so Dr is recommeding chemo. but observation is an option as well.…
Surgery 2 years ago today
2 years ago today I spent the day in surgery after being diagnosed with a recurrence in March. I was not in a good place emotionally. A 3rd surgery, this one just months after aggressive chemo and the loss of one friend to cancer and one of my dearest friends to ALS just a few days prior. To be honest I had just about…
4 weeks ago colon surgery can not keep food down

Colorectal Cancer

Discussion List

Discussion Boards