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Starting Folfiri January 19th after 5 month chemo break
I've been off chemo since August 2017 due to an inflamed gallbladder and subsequent failed attempt to remove it. I had a biliary tube through my abdominal wall until the day before Thanksgiving, and was recovering from surgery through the first week of December. After that I started feeling better and flew to MD Anderson…
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cancer using diatomaeous earth and apricot seeds
When I had my first colonoscopy I had two polyups that had cancer cells in them. They had not started growing yet. Went back in three years had another polyup with cancer cells not growing yet. I started drinking human grade diatomaeous earth and eating ground up apricot seeds which I froze to keep fresh and each time I…
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Stage 4 CRC -- are trials worth it?
Hi everyone, I've already asked this before in a different post, but thought it wouldn't hurt to ask again in an attempt to make a rational decision. I'm currently have stage 4 colon cancer, been stage4 for 9 years, now age 44, male, really nice guy. Why is it the nicest people always get cancer? Anyway, here is my…
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Another secret cure for cancer?
Okay, i've been reading everything i can on hidden secrets of curing cancer, and i've discovered something VERY interesting. Many people are claiming that apricot kernels, all by themselves, cure cancer! It would seem too simple to believe, but then i asked myself why is it illegal to sell apricot kernels? At any rate, i'm…
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CEA level
Hi, my husband just had his sigmoid colon removed on Monday. His initial CEA level was .5 with the tumor that they removed. They also removed the lymph nodes around the area and the Dr. Said he didn’t see anything , however, the test do not come back until Friday . Can anyone share any knowledge on the probability that…
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Followup
its my dad followup with oncologist his surgery was on 28 Nov it has been 4 months but still his HB is 10.5 todays report 2 april 2018which was 10.9 in feb 2018 and his eosinophils are 6.8 percent and calcium is 9.7 do i need to worry about his hb his report says iron deficiency his PET scan of jan was free of Mets and…
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Itching after Liver Resection?
Hello everyone! My dh had an open liver resection two weeks ago and gallbladder also removed. Yesterday, he started having itching and redness on the palms of his hands and feet and ankles. I googled this and nothing good really came up. We will call the doctor in the morning because it is too late today to get a call…
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trouble eating and swallowing
Hi all I am new to this group. I am going to be 60 next month and have been very much a 'glass half full' person. I usually find humor in even the darkest of days, but lately been having trouble remaining positive with chronic pain and chemo symptoms. I also have lupus, which complicates everything. I was diagnosed w/…
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Mum’s rectal cancer stage 4-I just got the CT scan results and it’s not good-please advise
My mom has stage 4 rectal cancer with mets in liver and the lungs. The mets were diagnosed 20th of September (previous CT scan), it took us 1 month and 10 days to start chemo , she started Folfox 4 in November 1st, she had 4 rounds since then and doctor asked for a CT scan now to check progress. I just got the results…
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Reeling from bad news...seems like my Doctor gave up on me
My story is typical I guess. After a couple of years of mysterious miscellaneous stomach and intestinal symptoms, I finally decided to have a colonoscopy that I had put off. I am 62, that was over a year ago in September. Low and behold, they found a mass and said it looked like cancer. I was pretty shocked and immediately…
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Cold sensitivity
Hello all, My name is Traci and I am 53 years old. I am new on here and I am thankful that I found this site. I was diagnosed in August of 2017 with stage III colon cancer 8/24 nodes. I have had surgery to remove the cancer and will be having my last treatment soon. My question is that I started with the neuropathy in my…
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CT scan results not favorable
Well, I had to go ahead and read my CT results on the patient portal, and they revealed I have gone from 3 spots on my liver in December to at least 17. They are growing rapidly. I have yet to consult with my Oncologists, but I am fearing the worst. If I wasn't a candidate for surgery with 3....how can they help me now? My…
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Post Microwave ablation
I've been away from the boards awhile, dealing with the after effects of this surgery. I was told at first that I was going to have the Y90 procedure or possibly the TACE which is beads either laced with chemo or radiation inserted in the liver to get rid of liver tumors. I had six tumors. I posted previously that the…
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Surgery finished
My post evaporated haha on a wifi at hospital. Anyway, my surgery is done. Four days later I can tell you it wasn't very pleasant. It was open surgery. I had no choice as to position in the middle of the kidney. Thanks to everyone for the support. It means a lot
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Our appointment went well at Sloan today!
Dr Kingham wanted an mri so we have to do that before his appointment. I am not a huge fan of NYC or getting up early so tomorrow will be great fun lol the nurse said his tumor was in a difficult spot so I don’t know if we will get surgery. i feel no matter what they will want an HAI Pump which is good. If anyone reads…
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Gallbadder damage due to Microwave ablation and Y90
I have been suffering from gallbladder problems since August of 2017. The surgeons were unable to remove my gallbladder due to scar tissue that had developed all around my gallbladder. A test in October showed that the cystic duct was blocked. My CT scans showed fluid in my gallbladder and doctors were concerned it could…
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Managing side effects from pain meds and the cancer.
Hi Im new to this site,, Ive made it past my experation date by 10 weeks.. I have signet cell ring cancer,, I thought I had it beat 3 1/2 years back with Surgery only, we found it early when was having my routine Colonosapy comming out of my apendex.... They took out quite a bit of parts, found 6 of the 12 nodes had the…
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One year--all clear
Today is the one year anniversary of my surgery (3b) and coincidentally today I got the results of the most recent CT scan saying I am all-clear for now. I've aged a decade in the past year (with chemo and all) but I am looking forward to a four month pause before my next CT scan. For now, I hope to live life to its…
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New member checking in!
Hi everyone! My name is Alan, and although I have been reading this forum for quite a while now, I just decided to sign up so I to can join in the fun! I was diagnosed with Stage 4colon cancer in October of 2016 after they found a rather large tumor blocking my intestines. I waited nearly a year before I started any…
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How high can cea levels go?
Can anyone tell me how high the cea levels can go. I have seen where some posts say they are in the 6000 range is that possible? just trying to understand the ranges ant find it on the net. Thanks, Patti
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I made it.
So far my reversal surgery has been without any incident, other than a couple of hours in the recovery room while we regained control of my pain. The surgeon said it all went well. My ostomy was closed up and I did not need a drain nor will I need to pack it with gauze, etc. I am now portless as well. Couldn't ask for…
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In the clear for 6 more months
I'm just back from my lastest scan and MRI at Sloan Kettering. I went back early because I have pain where I know that there is tumor growth, and was afraid that it had grown so much as to cause problems. The tumor has grown, but only minimally, and would not be causing my pain. As my surgeon (Dr. Paty) is convinced it is…
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Worried...
If you’ve been following my case I’ve been NED since 12/5/2014. I recently posted about being ”deported” as I had my port removed since all was going well. Before it was time to remove the bandage from the port removal I had an incident. I experienced irritable bowels shortly after eating a spicy lunch. Had to rush to a…
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Airborne72 and Surgery
Not sure if I'm able to post Monday but wishing you the very best in your surgery and hope all goes well. I'll be praying and thinking of you and your doctors/assistants for a successful outcome. Just let us know how you are doing when you can. Remember that after your surgery you are only a question away from someome that…
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immediate viagra use for colon cancer stage 4
Hi all, you likely have seen the recent news coverage of viagra's affects on reducing colon polyps by 1/2. There is also an NIH study that shows it reduces colon cancer tumor sizes and arrests growth in mice (this study was published in 2015 so the study was likely done in 2013-14). So it appears that this drug might…
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Drinking wine, is it okay?
I almost never drink. But, I went to friend's on the weekend and she had the most delicious moscato and I had two glasses. It's a sweet, white slightly sparkling wine. I had the best sleep that night. I'd love to get a bottle and have a small glass a bit before bed at night. I'm on the folfox5 right now and I see my…
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My Dismal Weekly Poop Count
It's been years since my ilestomy reversal and just recently took a count daily of how many times in a week that I'd went. This was a daily count and most days were 14 but one was only 5 but the total count was 75 in one week. It's nothing anything that I've eaten, nothing I've drank, nothing different. I'm going during…
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What really does help the immune system?
There's been lots of talk about it and there are plenty of articles on Facebook but I'm wondering if anyone has weeded out what actually works and what doesn't. I'm back on the chemo that I got sepsis while I was on last time. I'm taking antibiotics to prevent that happening again but I'd like to help my immune system as…
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For women only
i have a question for all the women so no peeking from men. Lol Has the chemo affected your menstral cycle? During my chemo treatment between September 2017 till my last one of February 2018, I have experienced some irregular cycles where I would be late in some months and the month of November and February were completely…
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Fare thee well, Sir John Sulston
http://www.bbc.com/news/science-environment-43349774 The unsung heros of our time. I'm also going to add this link. A female surgeon walked eight miles in blizzard conditions, to perform surgery on a CRC patient in Glasgow, Scotland. http://www.bbc.com/news/uk-scotland-43343056 Tru