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Can the oncologist tell ...
... how well the chemo is working based on the blood test and it's results?
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Stage 4 to NED (no surgery?)
Hi everybody, Is there anyone out there that has gone from stage 4 to NED without getting any surgery? (chemo only) Or have you ever heard of anyone doing this? I've been doing chemo since last july, liver tumor is too big for surgery.. dont know if it will ever shrink enough for removal.. or if it could shrink on chemo…
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Friday Riddle / Teaser
RIDDLE: If you break me, I do not stop working. If you touch me, I may be snared. If you lose me, Nothing will matter. What am I?
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Stage IV withMets - CEA count
I was diagnosed with Stage IV Colon with mets to liver in Dec. of 06. Have had chemo since then until 1 month ago (Mar. 08). CEA counts have been steadily on the rise. At the time of colon resection cea count was 330. Dropped to 11 at one point in my chemo. My last cea count was 2357. Has anyone had cea counts this high?
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Cancer in Liver - Fatigue
Background - Stage IV since 2002 Recent - could not receive treatment for the past three weeks for two reasons: due to erbitrux a sore near the port site and low red blood cell count - so doctor ordered an iron transfusion (did not work) and then ordered a blood transplant. Both prior to and right after (a couple of days)…
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sister diagnosed
Hi, I was diagnosed with colon cancer 6/03 at age 39, had a complete hysterectomy, bowel resection, 6 mos of chemo, PET/CT every 6 mos - all have been NED. I had genetic testing in 2006 which came back inconclusive. The gene was mutated? My father was also tested. His test showed nothing. My mother passed away in 2002, she…
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not good
I come to this board every day but only posted 2times.One of the post was rising cea,well ct scan now shows 2 enlarged mesenteric nodes both 1.4cm and a 2.8 cm mass in the liver and a stable mass in the pelvic area.I am terrified.Any hope for me
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Reduction in chemo drugs
For the sixth chemo treatment of 5-FU and Oxiplatin, the Oxiplatin was not given due to unusual side effect - I gagged every time I tried to take in liquids and my voice was affected and I had a strange feeling in my throat all the time. Felt miserable for nine days after treatment. I am getting chemo every other Monday…
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getting close to being done
I've only got two more folfox treatments. I feel good but i feel anxious or something.Not sure what it is.Maybe knowing im going to be going back to work.I am trying to do somethings so i can be a little prepared.I just wondered if anyone else had these feelings when almost done.
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Call to Stage IV Survivors
Hi everyone: I remember our friend Nanuk, who we sadly lost some months ago, put out a call to Stage IV survivors about a year ago. The response was amazing, and needless to say, inspired hope to a lot of newbies and those of us fighting the big fight to get to NED. We'd love to hear from you. Monica
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Friday Riddle / Teaser - ANSWER
Jamie4 is this week's winner. CONGRATS :) :) RIDDLE: My voice is tender, my waist is slender and I'm often invited to play. Yet wherever I go I must take my bow or else I have nothing to say. What am I? ANSWER: Violin
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problems after surgery
Hi My sister had colon cancer surgery almost 3 weeks ago. She started having problems with right back side pain. They feel it is a pocket of fluid. She has been put back into the hospital. Have any of you had infection after surgery or anything like this?
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not good (correction)
Sorry,I did not mention that I was writing about my husband
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Naked Happy Dance!
We have come to be danced Not the pretty dance Not the pretty pretty, pick me, pick me dance But the claw our way back into the belly Of the sacred, sensual animal dance The unhinged, unplugged, cat is out of its box dance The holding the precious moment in the palms Of our hands and feet dance. We have come to be danced…
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Surgery today
Well I had my VAD put in today and man is it sore. Did anyone else get "knots" on each side of the neck when the port is in the right chest. I think its weird having them in my neck. Chemo starts Tuesday so I hope it feels better by then. I guess I'm still being wimpy cuz it sure is sore.lol Deb
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Week Two
Well, it's gorgeous here in Michigan and week number two with the chemo/rad combo is done. I don't want to jinx myself, but so far it's been uneventful. Does it stay like this for the next three weeks or will I get some sort of side effects? I have noticed a change in bowel movements (I no longer have that urgency to go…
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pet scan
I had my pet scan Thursday,I will see my onc Monday,I'm scared but I know there is always hope,I hope I will start my chemo soon.But most of all I wish they would hurry up and fix that chat so I could talk to some of you,I mean it has only been out of service for over a month,they must have just one 15 yr old working on it…
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port versus vein??
Hi, I am relatively new to all this, dx April 2007, stage 3 retal, surgery, half way through xeloda and radiation treatments, then a rest and back to chemo for 4 months. I have a choice of receiving chemo through port or vein. Would someone care to comment on this, which is best??
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Miralax
After I got out of the hospital this week, the doctor had me start a regimen of Miralax every day. I feel like I'm having the weirdest bowel movements ever. In light of recent events, it's good to go, but is this how it's supposed to be? Anybody else doing Miralax? Gail
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Friday Riddle / Teaser
RIDDLE: My voice is tender, my waist is slender and I'm often invited to play. Yet wherever I go I must take my bow or else I have nothing to say. What am I?
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A little good news
So a few weeks ago I had posted a question about Pet Scan results because I had an area "light" up during a follow up scan. This was after a colonoscopy that showed nothing. So, just to be sure I went for an ultrasound with the potential for a biopsy if something abnormal appeared. Well.....no biopsy...because the…
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Low when I should be high
I am so depressed! I've gone through treatment for Stage III and am NED. Great, right? Why am I so sad? Everything is getting back to normal, but I can't fight back this overwhelming sadness. I seem to be floundering at everything that I used to kick **** at, even during treatment.
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Greetings & a thought
Hello there all of you in this colon cancer discussion area.. being a stage IV colon cancer survivor so far, since 05, I just wanted to say hello & hope all of you who are dealing w/ this in their lives, well God Bless and hang in there. A shout out to all my old buddies here and I am well, and have a check up in May. Life…
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Strange but good news!
I had resection done 7 weeks ago. After still having pain, I had a ct scan done on April 2nd which showed a large cyst on my rt ovary. Also a spot on my liver and adrenal gland, which I will have to do a repeat scan in 6 mos. An ultrasound was done on Tuesday. My doctor called today and said the cyst is gone, it must have…
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I am obviously an idiot
How do you add a friend? Some people have added me, and I can't figure out how to add others. Help!! Step by step please. Are the chat rooms ever coming back?
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bowel obstruction
I was hoping to have a little insight on bowel obstructions as a result of surgery or scar tissue. In me, the surgeon reconnected my small intestine to my newly shortened large intestine. I mention this because I think this is the source of a partial bowel obstruction. Here are my symptoms: heartburn, gas, diarrea, noisy…
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Found out about the pain
I've mentioned several times that I've had pain since my surgery in Nov. (Stage I colon cancer). Well, on Sunday I found out why. I woke up with severe pain that actually made me scream, so we were off to the emergency room, where my doctor met us. A rectal exam showed some blood, so I was admitted for more tests. Had a…
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Accupuncture?
Hello everyone, i'm just curious if anyone out there has tried accupuncture for chemo exhaustion??? Someone had mentioned it to me to try it, is it worth it??? God Bless All Keep Positive!!!!!
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For the Newbies particularly dx IV
You old timers are also welcome to read, but most of you know our story. I truly believe it's important to reiterate if it helps just ONE person and inspires one person to keep the hope alive. Hubby dx stage IV in Dec 06 3 days before xmas after a routine colonoscopy. Our life changed dramatically that day as yours…
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Colonoscopy
I spoke with the gastro's office today. His PA said the reason they're recommending another colonoscopy for me at around 6 months instead of a year, is that guidelines are changing. Even though it's not widely published yet, she said that the thinking is that a follow-up colonoscopy should be at 6 months, especially in…