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Question about ports...
Happy New Year everyone! I just finished my 12 rounds of FOLFOX and am counting down the days until my reconnection surgery. I was just wondering how many of you that had ports put in prior to chemo had them removed right after you were finished. Part of my wants it out, but I also know that I'm at a higher risk than most…
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Survival
I come to this message board occasionally and always find it inspiring. This question may have been posted before but please let me know if anyone knows. My last PET scan in late October showed four new lesions on my liver. I have started my third series of chemo. This time Irinotecan, Avastin and Xeloda. My doctors have…
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A real pain in the butt
I'm new here and have a problem I can't resolve. For background, I'm 68 never broke a bone or spent a nite in a hospital, not a pill taker other than vitamins and thought I was in perfect health untill I started rectal bleeding. After 5 wks of chemo and radiation then 5 wks off the Mayo Clinic Jacksonville Fl. did the…
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Problems with colonoscopy
Hey everyone, Been awile since I posted. Just a quick question about after the colonoscopy's. Had mine on the 29th-Due to severe pain upper left side of body-After coming home had trouble passing the gas-By 7 pm that night had excrutiating pain on right side of body for a good 2 hours till things started to move. Since Dx…
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Any ideas?
Hey, guys. I posted a question on the stomach cancer board, but apparently they're not as active as we are. My sister developed a stomach bruise right after Christmas. Couldn't remember doing anything, but our family bruises easily. She went to the doctor about something else and casually mentioned the bruise. The doctor…
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BRRRRRRRRR!
Well, I sit here with a blanket around me, looking out to a snow-covered field, with a canal in front of it that is frozen solid. I just looked....it's 5 below 0!!!!!! Tomorrow will be my 3rd (!) time skating...this time, right out in front of the house on the canal. It is so beautiful...the sky is clear, but the days are…
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xeolda
My dad has been on xeolda sinc the end of September. His only side effect is slight stomach pains late in the day since he takes 4 pills in the morning and 4 in the evening (500 mg each). He does not have the hand/foot syndrome. Is that okay? Does that mean it is not working? I am not sure. I know with erbitrux, he had the…
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Need Prayers and Positive Thoughts
Well, I got some bad news today. My parents have known since September but did not want to tell me. After my dad's bought with pnemonia in August, he asked his doctor how much time he had left and the doctor said 6-12 months. My dad is stage IV since May 2002 (many surgeries and treatments). We have been very lucky, we…
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Allergy to cancer?
Has anybody experienced severe rash and itchy hives which could be considered as an allergy to cancer. Ever since I am battling CC, I'm suffering relatively often severe allergic reaction even when I am not on chemo. Hives are occurring on my arms legs and buttocks. I was intensively trying to find out the reason but with…
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How to know if you are getting enough chemo? All of your different regimens make me wonder
For colon cancer you read that 6 months of Folfox is the standard treatment, and that seems to be generally what most colon cancer patients get. However i keep hearing my onc telling people in my cancer center that 14 treatments are the standard for colon. Where is she getting her info from? I sure have not found it on the…
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My vanity is showing - any thoughts on coloring hair while on chemo?
I've just started Xeloda, Oxilaplatin, and avastin for stage IV colon cancer (1st recurrance). I really don't want to go a year like I did on the first go round without coloring my hair as the regrowth is nasty! I thought maybe the semi-permanent color that washes out would be okay. I guess I should just be thankful that I…
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update
Sitting in chemo with mom right now. We have just been told that she has the kras mutation so erbitux is out. She also has an enzyme deficiency that makes her body tolerate folfiri more harshly than the normal person which makes giving her a normal dosage out of the question. She rec'd half the dosage last time and still…
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Resolved - Who cares about statistics!!!
I was really depressed a couple of days ago when I found out that my dad's doctor said he might have 6-12 months to live and I came to the board looking for thoughts and prayers. You all are wonderful. I appreciate everything that you said. I am resolved to enjoy the time I have with him and not worry about the statistics.…
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What a day...
I got my mom's thyroid biopsy results back today. She has a new primary cancer. Papillary Thyroid cancer. She does not know yet and will find out on the 6th. Her ENT wants a ct scan of the neck and will have to coordinate with her oncologist for colon cancer to decide how to progress. She may take a further break from…
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PET RESULTS
Hello Everyone Haven't been posting very often but I do try to keep up with everyone and how they are doing. There are so many wonderful people here that have helped me so much get though the past 3 years. My husband was diagnosed Jan. 30 2006 stage 3 rectal cancer. He is doing great, just had his 6 month followup…
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UPDATE ON HOP --- GREAT NEWS
Evening folks: I'm tickled to death to report some great, great news.....The doctor's office called this afternoon, after the PET and CT scans...They said the scans showed no evidence of the cancer metastisizing to other organs AND the CEA test indicated same. They also "finally" gave us the results of the biopsy on the…
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Beginning to get a little nervous
Am recovering from surgery of the colon. I'm feeling pretty good physically but am beginning to be a little bit nervous about the next treatment stage, mainly chemo. I will go to my check up tomorrow.
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CARINGBRIDGE
Evening, Folks: I've set up a "Caringbride" for Hop and it indicates we have 32 msgs. from family/friends. I cannot find them. Can someone help me out here....where do I go on that format? Marygale
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Why?
I have reached an anniversary, one year ago this month was my last of 12 grueling chemo treatments for stage 3 colon cancer. Found it during my 50 year old check up in May 07. I have just had a wonderful christmas with family. I had my 12 month check up with nothing but good news. But... I can't sleep again. I feel like ?…
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Shouldn't have looked
Hey, guys. I might have myself unnecessarily nervous. I got copies of my medical reports from the last year, because I'm seeing a new gastroenterologist in January, and his office requested stuff. For those of you who remember my story, I was diagnosed very quickly and had surgery the same week, so I didn't have time or…
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Happy 2009!!! and a quick update...
Hello everyone: For those of you who don't know me, I was Dx'd November 2005 with a genetic form of colorectal cancer (FAP) when I was 8 months pregnant. Colectomy (01/2006) Liver mets (liver resection - 07/2007), lung mets (lung resection - 08/2008), one bone met (radiation and Exablate), and now retroperitoneal mets. You…
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CARINGBRIDGE
I tried the guest book and can only pull ONE up... Marygale
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maintenance of chemo
Has anyone been on maintenance chemo and for how long? I just finished 13 rounds of folifri with Avastin. I was going to go in for surgery to remove the nodes in the lung and liver but they are too small to find so they put me on a maintenance schedule of xeloda and Avastin. I just don't know for how long. What side…
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First pet scan results
Hello everyone Because my husband was misdiagnosed (see "new-wife of-34 yr old....." post) and his cancer was not found until he had surgery for what we thought was crohns, he never had any scans or blood tests to determine the extent of the cancer. The tumor was pretty big, about T3 but almost considered T4 because there…
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Surgery and SIRT
Happy New Year! With the New Year comes a new treatment plan. After 12 rounds of chemo (folfox+avastin), the lesions in my liver shrunk from 8.8 cm to 5.8cm, and two smaller ones from 2cm to 1.1 cm. Still too risky for resection. So my docs suggest that I have surgery first to remove the primary tumor in the rectum.…
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Self Esteem
I have had a colostomy bag for three years now. My first way of dealing with this was to pretend that it didn't change anything even though it had. Now I feel that it is slowly eroding my self esteem. I have gained alot of weight, my intrest in sex is way down and can't seem to muster the energy to change it. Can anyone…
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Drug List
Hello: I wanted to start a dialogue about all the drugs currently used to treat colon cancer and those coming down the road. We live all over the country as well as the world and have lots of information that we can share with one another. I have listed below the only drugs that I know can treat colon cancer. Is anyone…
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Perm
hey does anyone know if I get my hair permed will chemo effect it in any way???? Thanks
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Happy New Year
I want to wish everyone a Happy New Year and I hope this new year brings only the best to all. I'm on my 9th treatment of 5fu (I had 6 with oxi), onc took me off due to the bad neuropathy I was having. My feet and fingers are getting much better now. The closer I get to the end of the treatment, the more nervous I'm…
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To Changing2
Hello: I was wondering if you would mind sharing the state of your disease with me. You mentioned you were on the same treatment as my dad. My dad has not been completely free on cancer since Summer 2006. He is not a candidate for any surgical or radiation procedure at this time. So, he is just on treatment. Any info would…