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maintenance of chemo
Has anyone been on maintenance chemo and for how long? I just finished 13 rounds of folifri with Avastin. I was going to go in for surgery to remove the nodes in the lung and liver but they are too small to find so they put me on a maintenance schedule of xeloda and Avastin. I just don't know for how long. What side…
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First pet scan results
Hello everyone Because my husband was misdiagnosed (see "new-wife of-34 yr old....." post) and his cancer was not found until he had surgery for what we thought was crohns, he never had any scans or blood tests to determine the extent of the cancer. The tumor was pretty big, about T3 but almost considered T4 because there…
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Surgery and SIRT
Happy New Year! With the New Year comes a new treatment plan. After 12 rounds of chemo (folfox+avastin), the lesions in my liver shrunk from 8.8 cm to 5.8cm, and two smaller ones from 2cm to 1.1 cm. Still too risky for resection. So my docs suggest that I have surgery first to remove the primary tumor in the rectum.…
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Self Esteem
I have had a colostomy bag for three years now. My first way of dealing with this was to pretend that it didn't change anything even though it had. Now I feel that it is slowly eroding my self esteem. I have gained alot of weight, my intrest in sex is way down and can't seem to muster the energy to change it. Can anyone…
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Drug List
Hello: I wanted to start a dialogue about all the drugs currently used to treat colon cancer and those coming down the road. We live all over the country as well as the world and have lots of information that we can share with one another. I have listed below the only drugs that I know can treat colon cancer. Is anyone…
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Perm
hey does anyone know if I get my hair permed will chemo effect it in any way???? Thanks
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Happy New Year
I want to wish everyone a Happy New Year and I hope this new year brings only the best to all. I'm on my 9th treatment of 5fu (I had 6 with oxi), onc took me off due to the bad neuropathy I was having. My feet and fingers are getting much better now. The closer I get to the end of the treatment, the more nervous I'm…
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To Changing2
Hello: I was wondering if you would mind sharing the state of your disease with me. You mentioned you were on the same treatment as my dad. My dad has not been completely free on cancer since Summer 2006. He is not a candidate for any surgical or radiation procedure at this time. So, he is just on treatment. Any info would…
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Good news
Dear Everyone, I can never thank you enough for all your prayers. I had my colonoscopy this mornig-After being so sick for the past 3 months. No Cancer in the colon,No polyps. I have sever Diverticulotis. Controled completely by diet.Tho Family history I must repeat every three years. Joke for my family and kids Besides…
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Dr. Lenz
I have discovered that Dr. Lenz who has been mentioned in previous mails as a renowned physician in the field of colorectal cancer is blogging on the Colorectal Cancer Coalition website starting in January and that he can be found now on Revolution Health website by entering Lenz in the search mode and that will take you…
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Neupogen shots
I'm starting Neupogen shots for the first time tomorrow. My oncology nurses thought it was amazing that I've gone for a year and a half and have never needed them before, so I guess I'm grateful for that. What should I expect? I will be administering to myself because the insurance won't pay the oncology nurses to give…
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Anyone ever have RFA treatment ?
Hi All ~ I am having RFA for a lung nodule - and I am wondering if anyone has had this done - I have a pretty good chance of lung collapse due to the spot being so small and the fact that I have breast implants - who knew THOSE would get in the way - so I am also wondering if anyone has had a lung collapse and what the…
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You have to see this
My dear friend (and the Managing Editor of both the magazines I publish) Kit Robinson is a fabulous, award-winning art quilter. For Christmas she made me the most incredible wall quilt. Last Fall (before DX) I took a drive into the Rockies (about an hour from my home) and photographed the brilliant yellow/gold/orange Aspen…
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Eartha Kitt
Sad news that Eartha Kitt died today, from colon cancer. I have long admired her spunk and talent. This beast can strike anyone. My prayers to her family and friends. Vicki
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A knitted digestive system
Found this link on another site. Some people just have way too much time on their hands! http://www.strangebuttrewe.com/knitGI.htm mary
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First CT Scan after chemo
I completed 6 months of FOLFOX earlier this month and am scheduled for a CT Scan on Jan. 9th - have to wait until the 21st to get result at my follow up appt. I was wondering if anyone had something show up on their first CT after chemo. Seems to me that any remaining cancer cells will still be "hiding out" at this point -…
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Dealing with partner's depression
Hi: I live in Australia and my partner was diagnosed with colon cancer in October. After seeing an oncologist and getting info about chemo (and having appointments set up for chemo preparation and delivery), he decided he did not want to go through with it. He did talk it over with the doctors and instead will be…
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Statistics and Stage III
Hi All, I know the rule of thumb for survivors is to ignore the statistics one reads, or the statistics doctors come up with. But I find that hard to do... especially when the statistics work against me. If they are good statistics, then I tend to say, "That's great, but they are only statistics"... but when they are…
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Invited to speak
I've just been invited by our local Relay for Life organizers to be a speaker at the kickoff event. They said they just need a short little bit on my "cancer experience." I want to do it, but I hope I don't stand there and cry. Cancer always makes me cry. Yikes. I'm not a shy person, but I don't want to mess this up. Help!…
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abnormal papsmears
i have had abnomal papsmears since my chemo and radiation. My pet scan and rs. say everything is ok but i still worry. They found my cancer though a papsmear the tumor had broken though the colon wall.My gyn is going to check me every three months . I guess what scares me is he says its pre cancer. Has anyone else had this…
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On the Home Stretch
At 12:45 am my 5FU pump shut down for the last time (this round)! Really weird, I have the nausea, etc, pretty much under control, but about an hour before it stopped, I was violently ill, vomiting, the whole 9 yards. Then it all went away. I decided it was chemo's last hurrah and I won! I still have to wear it until…
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5Fu ???????
Can some of you tell us what exactly is 5FU and what does it do? I just remembered the surgeon mentioned it and I forgot to ask him this question. Thanks to all, Marygale
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RIDDLE ANSWER
msscolon had the correct answer. CONGRATS!!!!! :) :) Riddle: I am large as a castle, yet lighter than air. 100 men and their horses cannot move me. What am I? Answer: The castle's shadow
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Hello from Holland!
We (I) installed our new high-speed internet today (Sunday afternoon...lol). I LOVE it that I am connected!!! As I have shared, I wasn't looking forward to this trip...so many memories from when my beau's mom was alive... Our trip was good...when I checked in the night before, I changed seats...to seats in Business…
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depression
Hello all I hate to bother you 3 days beofre Christmas when it should be such a happy time. I find myself so frightened so derpessed I am really not moving. I am 6 weeks post liver re-section (mets from the colon) four years ago. Chemo should start again 2nd week of Jan and everytime I think about it I feel depressed. This…
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HAVE ANOTHER QUESTION
I know....I'm getting way ahead of the situation here, but this has been bothering me....If, IF they find the colon cancer has matastisized to other organs, do they normally do the surgery on those other organs while they're already inside? Or in most cases do they do this as a seperate surgery? I'm sure a lot depends on…
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biopsy right now
My mom is having her thyroid biopsy right now as I type this. I pray she isn't in pain. Happy holidays to all of you, you continue to be in my thoughts and prayers. Please don't forget to mention my mom in your prayers. I am asking God to ease her anxiety while we wait for the results of this biopsy. I am also praying that…
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new-wife of-34yrs-stageIII-misdiagnosed as crohns
hello My husband was diagnosed with stage III coloncancer on December 9th. After 2 colonoscopies, 3 CT scans and one hospitalization to drain an abcess, our GI doc was sure it was crohns. All biopsies for cancer were negative. Luckily, our doc was aggressive and when he suspected the reason he could not get the scope…
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Post treatment blahs
Hi, Valerie here. stage 3 colon cancer 1 positive node. I have completed my 12 rounds of chemo, it's been 2 1/2 weeks. I'm still feeling some occasional nausea, and diarheria, fatigue and just an overall blah some days. Is it normal to feel this way after treatment is complete and for how long? Thanks so much for your…
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Merry Christmas
I'm sending this message out to my semi colon extended family. My family and I wish each and everyone of you peace and good will. Keep the hope for a cure to end the pain and suffering we have all had to endure. Faith guides our prayers wrapping the warm arms of our Lord around us in our time of need. My family will be…