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Need Prayers and Positive Thoughts
Well, I got some bad news today. My parents have known since September but did not want to tell me. After my dad's bought with pnemonia in August, he asked his doctor how much time he had left and the doctor said 6-12 months. My dad is stage IV since May 2002 (many surgeries and treatments). We have been very lucky, we…
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Allergy to cancer?
Has anybody experienced severe rash and itchy hives which could be considered as an allergy to cancer. Ever since I am battling CC, I'm suffering relatively often severe allergic reaction even when I am not on chemo. Hives are occurring on my arms legs and buttocks. I was intensively trying to find out the reason but with…
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How to know if you are getting enough chemo? All of your different regimens make me wonder
For colon cancer you read that 6 months of Folfox is the standard treatment, and that seems to be generally what most colon cancer patients get. However i keep hearing my onc telling people in my cancer center that 14 treatments are the standard for colon. Where is she getting her info from? I sure have not found it on the…
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My vanity is showing - any thoughts on coloring hair while on chemo?
I've just started Xeloda, Oxilaplatin, and avastin for stage IV colon cancer (1st recurrance). I really don't want to go a year like I did on the first go round without coloring my hair as the regrowth is nasty! I thought maybe the semi-permanent color that washes out would be okay. I guess I should just be thankful that I…
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update
Sitting in chemo with mom right now. We have just been told that she has the kras mutation so erbitux is out. She also has an enzyme deficiency that makes her body tolerate folfiri more harshly than the normal person which makes giving her a normal dosage out of the question. She rec'd half the dosage last time and still…
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Resolved - Who cares about statistics!!!
I was really depressed a couple of days ago when I found out that my dad's doctor said he might have 6-12 months to live and I came to the board looking for thoughts and prayers. You all are wonderful. I appreciate everything that you said. I am resolved to enjoy the time I have with him and not worry about the statistics.…
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What a day...
I got my mom's thyroid biopsy results back today. She has a new primary cancer. Papillary Thyroid cancer. She does not know yet and will find out on the 6th. Her ENT wants a ct scan of the neck and will have to coordinate with her oncologist for colon cancer to decide how to progress. She may take a further break from…
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PET RESULTS
Hello Everyone Haven't been posting very often but I do try to keep up with everyone and how they are doing. There are so many wonderful people here that have helped me so much get though the past 3 years. My husband was diagnosed Jan. 30 2006 stage 3 rectal cancer. He is doing great, just had his 6 month followup…
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UPDATE ON HOP --- GREAT NEWS
Evening folks: I'm tickled to death to report some great, great news.....The doctor's office called this afternoon, after the PET and CT scans...They said the scans showed no evidence of the cancer metastisizing to other organs AND the CEA test indicated same. They also "finally" gave us the results of the biopsy on the…
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Beginning to get a little nervous
Am recovering from surgery of the colon. I'm feeling pretty good physically but am beginning to be a little bit nervous about the next treatment stage, mainly chemo. I will go to my check up tomorrow.
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CARINGBRIDGE
Evening, Folks: I've set up a "Caringbride" for Hop and it indicates we have 32 msgs. from family/friends. I cannot find them. Can someone help me out here....where do I go on that format? Marygale
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Why?
I have reached an anniversary, one year ago this month was my last of 12 grueling chemo treatments for stage 3 colon cancer. Found it during my 50 year old check up in May 07. I have just had a wonderful christmas with family. I had my 12 month check up with nothing but good news. But... I can't sleep again. I feel like ?…
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Shouldn't have looked
Hey, guys. I might have myself unnecessarily nervous. I got copies of my medical reports from the last year, because I'm seeing a new gastroenterologist in January, and his office requested stuff. For those of you who remember my story, I was diagnosed very quickly and had surgery the same week, so I didn't have time or…
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Happy 2009!!! and a quick update...
Hello everyone: For those of you who don't know me, I was Dx'd November 2005 with a genetic form of colorectal cancer (FAP) when I was 8 months pregnant. Colectomy (01/2006) Liver mets (liver resection - 07/2007), lung mets (lung resection - 08/2008), one bone met (radiation and Exablate), and now retroperitoneal mets. You…
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CARINGBRIDGE
I tried the guest book and can only pull ONE up... Marygale
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maintenance of chemo
Has anyone been on maintenance chemo and for how long? I just finished 13 rounds of folifri with Avastin. I was going to go in for surgery to remove the nodes in the lung and liver but they are too small to find so they put me on a maintenance schedule of xeloda and Avastin. I just don't know for how long. What side…
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First pet scan results
Hello everyone Because my husband was misdiagnosed (see "new-wife of-34 yr old....." post) and his cancer was not found until he had surgery for what we thought was crohns, he never had any scans or blood tests to determine the extent of the cancer. The tumor was pretty big, about T3 but almost considered T4 because there…
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Surgery and SIRT
Happy New Year! With the New Year comes a new treatment plan. After 12 rounds of chemo (folfox+avastin), the lesions in my liver shrunk from 8.8 cm to 5.8cm, and two smaller ones from 2cm to 1.1 cm. Still too risky for resection. So my docs suggest that I have surgery first to remove the primary tumor in the rectum.…
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Self Esteem
I have had a colostomy bag for three years now. My first way of dealing with this was to pretend that it didn't change anything even though it had. Now I feel that it is slowly eroding my self esteem. I have gained alot of weight, my intrest in sex is way down and can't seem to muster the energy to change it. Can anyone…
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Drug List
Hello: I wanted to start a dialogue about all the drugs currently used to treat colon cancer and those coming down the road. We live all over the country as well as the world and have lots of information that we can share with one another. I have listed below the only drugs that I know can treat colon cancer. Is anyone…
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Perm
hey does anyone know if I get my hair permed will chemo effect it in any way???? Thanks
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Happy New Year
I want to wish everyone a Happy New Year and I hope this new year brings only the best to all. I'm on my 9th treatment of 5fu (I had 6 with oxi), onc took me off due to the bad neuropathy I was having. My feet and fingers are getting much better now. The closer I get to the end of the treatment, the more nervous I'm…
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To Changing2
Hello: I was wondering if you would mind sharing the state of your disease with me. You mentioned you were on the same treatment as my dad. My dad has not been completely free on cancer since Summer 2006. He is not a candidate for any surgical or radiation procedure at this time. So, he is just on treatment. Any info would…
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Good news
Dear Everyone, I can never thank you enough for all your prayers. I had my colonoscopy this mornig-After being so sick for the past 3 months. No Cancer in the colon,No polyps. I have sever Diverticulotis. Controled completely by diet.Tho Family history I must repeat every three years. Joke for my family and kids Besides…
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Dr. Lenz
I have discovered that Dr. Lenz who has been mentioned in previous mails as a renowned physician in the field of colorectal cancer is blogging on the Colorectal Cancer Coalition website starting in January and that he can be found now on Revolution Health website by entering Lenz in the search mode and that will take you…
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Neupogen shots
I'm starting Neupogen shots for the first time tomorrow. My oncology nurses thought it was amazing that I've gone for a year and a half and have never needed them before, so I guess I'm grateful for that. What should I expect? I will be administering to myself because the insurance won't pay the oncology nurses to give…
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Anyone ever have RFA treatment ?
Hi All ~ I am having RFA for a lung nodule - and I am wondering if anyone has had this done - I have a pretty good chance of lung collapse due to the spot being so small and the fact that I have breast implants - who knew THOSE would get in the way - so I am also wondering if anyone has had a lung collapse and what the…
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You have to see this
My dear friend (and the Managing Editor of both the magazines I publish) Kit Robinson is a fabulous, award-winning art quilter. For Christmas she made me the most incredible wall quilt. Last Fall (before DX) I took a drive into the Rockies (about an hour from my home) and photographed the brilliant yellow/gold/orange Aspen…
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Eartha Kitt
Sad news that Eartha Kitt died today, from colon cancer. I have long admired her spunk and talent. This beast can strike anyone. My prayers to her family and friends. Vicki
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A knitted digestive system
Found this link on another site. Some people just have way too much time on their hands! http://www.strangebuttrewe.com/knitGI.htm mary