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First Chemo day was Crappie !!!!! Messed up port!!
Hey amigos! I spent all night last night with an ice pack on my port because I was in such pain. They had told me before I had left the hospital that I wouldn't be needing anything for pain..... NOT! M.D.Anderson did not have an available doctor to do the procedure so they had to send me across the street to St. Luke's to…
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calling all stage 4 with mets to liver, start chemo tomorrow need positive feedback
Start first chemo treatment tomorrow, so scared....stage 4 mets to liver, colon resection on the 14 of May. Need some positive feedback that I can fight this and become NED Please!!!
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Pet scan results pt 2
Well. I'm still smiling but it's bad news. I have 10 new tumors. 4 in my left lung, one in my right. Plus 5 in my liver. The results seemed puzzling since my last CT scan in April showed only one possibly tiny spot in each lung. I start chemo on monday. I would have had my Thyroid and lung tumors taken out at the end of…
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FYI: Embedding images in posts
I don't know if anyone noticed this other than KatUSA and myself, but we are no longer able to embed images in our posts. I asked the powers that be about it and they gave their reasons for this which made sense to me. Actually, we were never allowed to post them but a glitch made it possible for a short period of time. We…
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How do you know when your last treatment will be?
My onc doctor won't give me a time line for how long I'll have to go through chemo. He told my husband, without me being in the room, that he's counting on this going on for two or three more years. I don't know if I can go through that. How many of you were given a specific number of treatments you would go through?…
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Half way through 2nd round of Chemo
This 2nd round has been a nightmare. I went in Tuesday for my 2 hour infusion of Oxi and right after it ended I had a bad reaction. They gave me more anti-nausea meds, steroid, benedril, nothing worked. I went back Wednesday and got more fluids, anti-nausea and hooked up to my pump for 5FU. THIS SUCKS!!! I said it before,…
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Here I am again doing late night searches on the web
Deja vu! I think I was doing a bunch of this late night searching last year about this time. Once again I've been both encouraged and discouraged by what I find. Results of failed clinical trials, promising new treatments, stories of renewed life and death are abound. Oh what fun. I did stumble upon on promising little…
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Started my LAST Round today
I drove myself today and had a nice chat with the Dr, then the first of my 5 treatments this week. Drove home and now I can feel the tiredness settling in. But I took my Emend and so far, no nausea. I have been in tears for two days now, and couldn't figure it out. The Dr said it's natural...big changes are coming. It's…
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Scan tomorrow - trying 2B calm and positive!
I have a checkup PET scan tomorrow. I am trying to stay calm and positive but gee it ain't easy. Aside from the discomfort of the scan itself (I know I know -- all you have to do is lie there! But you know what I mean -- the needle, the hospital, the arms-above-head-till-they-cramp....),it is hard to be positive about…
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New start
I guess I'm about the same place I was when I started last year. I first thought I was in a worse place, but in retrospect, I do have some advantages over last year. Last years prognosis was that I just had a few months. I had little hope for surgery and I didn't know if chemo would work. This time around, I know Folfox…
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Good news test results
Hi everybody. Just thought I'd pass along, got my MRI test results today, all good, the spot on liver has not changed, and is believed to be benign or blood cell cluster, and thickening in colon has resolved, was believed to be spasm or parastalysis. No change in the liver lesion in four months, sounds great to me. 5 years…
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Onc Visit and Hernia Surgery
Hi All... I had a good visit with the oncologist who said "I have nothing bad at all to tell you!!" CEA low as ever, CT Scan of liver clear, Chest x-ray good. Everything looking good! This is 2 years post liver recurrence/RFA/Chemo. Yeah!! So tomorrow it is off to the hospital for an "incisional hernia" repair. I've had a…
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liver regrowth after resection
I had a liver resection just over a year ago. I had read so many articles about how the liver grows back after having a liver resection & have heard people on this board talk about how theirs was growing back too. Interestly, when I asked my liver surgeon if he could see any liver regrowth on my CT scan, he said "not much,…
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Round 2 tomorrow...wish me luck!
I go tomorrow for chemo round 2...and I am scared! I made through round 1 okay...I was queasy, TIRED and I had bad stomach cramps. Couldn't eat for 2 days. The issue is I have actually felt good since last Thursday. It has been a long time since I could say that!!! I have been eating and actually driving myself places and…
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PET scan results
My surgeon has a terrible habit of calling me the day of my PET scan if something ugly has popped up. I had it yesterday morning and he didn't call, my appointment is tomorrow. So maybe things are looking up. I'll know tomorrow afternoon.
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Surgery Weds me: "The Unique One"
Greetings, this is Amy aka Slammer, so the news is kind of sudden but I am having surgery this Weds after something found on routine CT & confirmed on PET scan, Man have they been rushing me thru this so I am alittle scared but the surgeon is awesome and has got a team of extra to be there. Still have no specific idea…
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expectations
Ive been helping take care of my dad who has stage 4 colon cancer(spread into his liver and lungs) and he had colon surgery which resulted in having a colostomy done....he decided not to have any chemotherapy treatment and wants just to have enough pain meds to keep him comfortable for as long as he has...i've been told by…
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New Here
I was diagnosed with stage 1 anal cancer November 2008. I caught the flu from my granddaughter and actually got an abscess on my tumor otherwise they might not have found it so early. My tumor was so small they almost didn't see it in my colonoscopy. On December 1st I started radiation and chemo, (5-FU and Mitomycin). I…
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Has anybody taken oral drug for Chemo?
Hello everybody,I have a question waiting for answer.This afternoon my hubby and I went to see the oncologist.Oncologist said there is an oral drug which is called "Capecitabine" for chemo.Is it effective and safe? Has anybody here ever tried it? The oncologist said there is a clinical trail which has four arms(Group…
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man, this disease is frustrating...after 4th chemo, mom is feeling ok, but...sharp liver pains
ok so i havent gotten on...basically the last 4 chemos have been pretty good, she has a 4-5 day down time then like 1 1/2 week of awesome energy...today, i had some time to take my mind off these things, i get home, asked mom what happened..and she is feeling sharp pains on the left of her stomach..basically around the…
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Got Port today..... start chemo tomorrow
wow.... finally. I had my surgery over 8 weeks ago and I finally am getting my first shot of chemo tomorrow. Waiting has created more nodules but it was my choice to wait for this second opinion. I got the port put in today and I just told them what a big wus sissy I am and they loaded me up with pain killer stuff in my…
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What is the norm on scans
My husband has had 7 treatments of FOLFOX + Avastin. His Onc. does an exam before every treatment and can tell that the liver has gone down in size. He has Mets to the lungs and a spot on one of his adrenial glands. The doc says they will wait a month after his 12th treatment and do a scan. Do others have scans more often?…
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Veteran
I got great news today!! I found out that I qualify for full medical benefits under VA. I served 15 years in the military and with my illness more then qualify for medical insurance. This is so great, because now if I have to go on LTD, I have medical benefits. My having to go on long term disabilty or being laid off was…
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VIT D
ANy thoughts on taking Vit D, I have heard that it really helps with your immune system, energy and moods. I watched an infomercial about it and heard a doc talking about it on a radio show, how so many people are have low Vit D levels. My Partner also said that Fish oil was good for me too. WEll I decided to go ahead and…
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i am scared
i found out on Christmas eve 2008 I have stage 4 colon cancer. I was 47. it was found because I had low blood. part of my colon was removed but i had a small spot on my liver that th dr could not get to. i did 5 rounds of chemo and then was sent to a liver speacalist and he removed the small part of my liver where the spot…
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how long does neuropathy last after last treatment?
Hello folks I currently amd 5 weeks out form my last chemo (5FU, oxali, leukovorin) and have neuropathy on the soles of my feet (pins and needles sensation-no pain or numbness though there are strange sensations). It interferes a bit with balance and flexibility though yoga and foor strengthening and stretching helps the…
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scared, friend has colon stage 4
One of my best friends was just told she has Stage 4 Colon Cancer. Surgery removed most, but not what has spread to other organs...liver, etc. 2 weeks ago she was a healthy, 38 year old mommy! How does this happen? Internet says it is only an 8% five year survival rate. How do you actually grasp that in your head?? How do…
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Chemo Questions..... Have you did one of these drugs?? Tell me about it
ok....doc told me what my "cocktail" will be today... isnt that what it's referred to? I get my port installed Tuesday and start wednesday with the chemo. Oh yeah...that port thingy... they said I have to put this cream on the port 30 minutes before chemo to numb it so it dont cause any discomfort prior to them starting…
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A "colonoscopy virgin"
Dear Online Family, Mary from WI here hoping each and every one of you are safe, happy and well today and always! Also, I wanted to update everyone on my 1st colonoscopy that I had today - thus I am/was a colonoscopy virgin... ha! ha! Everything looked normal with one small hemorroid (sp?) that isn't anything to worry…
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Biopsy Reports just in
GREAT NEWS! The biopsy reports just showed small scarring from the radiation. I am definately NED! Feels great. We expected that this would be the report as did my doctors, but this morning was still a little edgy just waiting to hear for sure. Don't need another colonoscopy for three years so long as I stay symptom free!!…