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Stage 4 with 6 kids.....
Hello everyone, I am new here...I don't know what took so long but today I decided to search the web for some guidence and maybe a peace of mind. My girlfriend was diagnosed on Jan 24 with colon cancer. She had been complaining of a side pain for a month or so and I finally broke down and begged her to go to the doctors.…
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Changes in skin color
Does anyone out there experience changes in skin color ? I have had 5 infusions of Folfox with Avastin and have noticed my skin changing colors quite often. It's kind of funny watching it happen. One hand and arm will have a deep dark tan and the other is white. An hour later it will be the opposite hand and arm. Just…
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forgot how bad chemo sucks
Yeah, just got my pump off. It was 100 degrees today. I had a bunch of stuff to do. Now I feel like crap. I think I might be a bit dehydrated. Either way folfox sucks. I'll be glad when no one has to take this 5fu anymore.
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Just got PET scan results..... I am a mess.... HELP ME!!!!
I can barely see through the tears to type this... my hands are shaking uncontrollably. I had to come here for some answers. I have never felt such despair in all my life. This is the first pet scan i have had since surgery. I have been nervously awaiting results. The tumor that was removed had grown thru the colon and…
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Has anybody got leg pain from 5-FU?
Hi everybody.My hubby is on his first round of chemo and radiation before sugery,the first couple days of this week,he was ok,but since the night before last night,he couldn't sleep well,he got pain in his legs and he feels like he did 20 or 30 miles hiking,but that was more pain than sore, finally he couldn't tolerate…
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Scan came back clear
I just talked to my onc at Stanford - he was gone this week - and he said the scan looks good, NED.... If I could, I would rename my firstborn Ned... It feels very good and I am grateful to all. I have been here before with good scans and not good ones so I try to remain steady but tonight I am drinking some wine. Chip
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CBC
Hi everyone, Jennie brought up the blood test question. I have one for you guys also. Is there a web site that tells you what everything on the CBC print out means? In terms regular people understand. I have googled it and found info on some but not all and to much on other stuff. John's Onc just says things look okay. I…
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Peristent nausea after surgery
Hi, Has anyone suffered with persistent nausea after colon resection? The doctor said my husband's surgery went well (removed approx 8" of sigmoid colon). He was very well after surgery for a few days. Then they removed the epidural and cath and he started vomiting everything. He would have a good day and would take in…
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Blood Test Question
I have to get a blood test before my next chemo session. I am assuming this is protocol before every session??? Also, if counts are not up to par do they still let you have chemo or what happens then??? Thank u Jennie
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Let's Talk Poop
Hey you awesome Semi-Colons! I posted this info on the Constipation thread, and I thought this might be of interest to a wider variety of semi-colons. So I pasted it here as well. I mean really, how many of us have three bowel movements/day? But that's what's healthy. I didn't know that before I had colon cancer. And I…
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Pop star has died
My news channel just announced Michael Jackson has died.
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promising new drug in the news being tested..some of you stage IV may qualify for this trial...
hi i always think that everyone who si stage IV would know about every trial out there but working in healthcare i have found many that do not.. a new promising drug has been making the news for the treatment of advanced genetic cancers such as breast, ovarian, and prostate and the results have been very promising with…
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Friday Riddle
RIDDLE: 75% can be written as 3/4. How would 58 1/3% be written as a fraction (when reduced to the lowest denominator)?
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Oxaliplatin
I am currently taking 5FU and radiation before surgery and then will be doing chemo with the Oxaliplatin after surgery. My dr told me I couldn't pick up or touch anything cold. I also read that you aren't supposed to breathe cold air. I will be taking this treatment during the winter months. Has anyone experienced dealing…
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Botch Job on Port Installation???
I am so mad..... I just think there is no way this new port should STILL be hurting like this. It was installed 9 days ago. I am having sharp shooting pains there. They said to keep the steri-strips on for 2 weeks. When do the stitches come out.... or do they fall out??? I have my next chemo session in 4 days and I am…
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started with new onc and chemo center & update
Well, I did make the change- I saw my new oncologist for the first time a week ago Tuesday. I also consulted with the onc I had been wanting to change to at UCSD the following day. My new onc knew about this consultation w/ the other guy and was very open to it- said he shares patients back and forth with him and they…
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Tests
Heck my blood tests are so out of whack since I have started my first chemo round (Xeolda pills) back in January. My R/W counts were down then, liver enzymes below normal, Blood sugar at 69 (yikes). Last test showed some things going up in stuff and down in others. I just know my platelet count is like 129. Oncologist said…
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Cbc again
The best site I found is web MD but it doesn't list everything that is on his sheet. Guess I'll have to keep looking. Paula G
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Farah
I just received an email from our local news stating that Farah has lost her fight. Debbie
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Another Update
This is her daughter again. I apologize for the major gap in updates. I was hoping that she would be well enough to update herself, but things got worse, and we've been busy. She went home from the hospital May 28th (a Thursday). Her incision had opened up a little at the hospital, but her doctor thought that just putting…
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Mouth and Throat Sores
I'm new to this forum. Was diagnosed with rectal cancer in 2008. I had the whole removal operation and started chemo in February 2009. I had my 8th chemo treatment last week and developed sores. Has anyone else had this problem and if so what was prescribed, if anything? I see my doctor tomorrow. I was also curious if…
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Scary Day
Well, I have a tendency to have days turn out way different than I thought they would, and today was one of those days. Last night I was in agony again with strong abdominal pains. I tried to "gut" it out, but ended up going to the ER early this morning. The ER doc gave me morphine and such for pain and nausea and said he…
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>.<
Hello everyone, Some of you may remember me, who wrote up here a couple times about my mom. Well, I know it is quiet bad to write bad stuff up here where people are trying to be optimistic, but I need to, and I'm sorry in advance. Unfortunately, mom left me yesterday night...it is soooo hard to believe!!! I am very down,…
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holiday weekend affecting chemo treatment
I just found out that I will not get my chemo treatment next week because the cancer center is closed on Friday, July 3rd and can't disconnect me o that day. My insurance will not approve my getting chemo a day early, which would allow me to get disconnected on Thursday, the 2nd. I can't say this bothers me because I go on…
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Thanks for your support of my sister in law. But the bad news continues
Update on Linda Penny: She's now in surgery recovery from her brain surgery. Apparently the tumor grew so much in the past 12 days that the doctor thought it best to go after it. Is is a glioblastoma. He got most of it, but some of the "tendrils" remain and that's the bad news. Her family is with her and naturally…
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#8
Well I am finishing up treatment #8. This time hasn't been bad except for the numbness in hands and feet. It has started in backs of my calves too. I get fanny pack unhooked tommorrow. I am going to see if we can reduce the dosage of the oxy next time, and see if that helps.I have noticed that several people can't finish…
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The GIFT of Helping One Another
I just had a beautiful experience just happen to me that I wanted to share with everybody. I just got in from work and my doorbell rang. One of my neighbors offered to help MOW my lawn for me this Friday, a day he was taking off. I've got a big corner lot with a big yard, so this is no small task. I've never been one to…
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What is the Kanzius machine?
Some people referenced a "Kanzius machine" in a recent post (Eric's, I believe) & some were asking if anyone knew when it would be possible for human trials in the Kanzius machine. Who can fill me (and others) in on what this is? As we all are, I'm always hopeful in looking forward to new treatments. Lisa
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chemo is dripping
I'm getting my treatment now, They're giving me two new drugs this time around. Neither fight cancer. I forgot how absolutely ridiculous I find this. 5fu is the, at best, semi-effective poison, oxaliplatin is a booster, avastin kinda works. Then they give you four drugs to keep you from experiencing complete discomfort.…
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good news bad news
CEA is 89, cell search is 1. My new regimen: .25 mg Aloxi, 20 mg decadron, 547 mg avastin, 1g/1g cal/mag, 908 mg leucovorin, 193 mg oxaliplatin, 908 mg 5fu, 1g/1g cal/mag, 5448 mg 5fu