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Experience with Xelira and extreme cramps?
My partner just did his second dose of Xelira (Xeloda, Irinotecan & Avastin) on Friday and starting Saturday afternoon began having severe abdominal cramps which are really bad today. He says he's never felt worse in his life. He called the on-call oncologist, who said he had never heard of anything like this. I'm just…
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emily - alkaline water?
Hi Emily and everyone, Since 1 lymph node popped positive after 4 weeks after chemo, **** will start treatment again.(chemo) In addition he is going with the Anticancer and Alkaline food and water choices. We are going to beat cancer and grow old together. The alkaline water systems are so expensive that we want to buy the…
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The Reading Room: An Article on Avastin
I just read this article which kind of scared me, because I'm on Avastin: http://www.msnbc.msn.com/id/33026327/ns/health-cancer/ What do you think ? will Avastin be stopped all together? should it be? I'm kind of nervous of heart failure now. Hugsss! ~Donna
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Not depression
I was shocked this week to learn from my doctor that he does not believe there is depression, just people who "think too much about themselves". He said this as he was leaving the room, which was a good thing because I think my husband was going to deck him. My husband is a Registered Nurse who has worked 8 years as a…
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no gas yet and surgery was tues, now sat?
Hi everyone, wondering if I should be getting concerned, Had my reversal on tues and now it is sat,I have had a few very small bowel movements, no gas. I do have bowel sounds. I am mainly on clears because I vomitted the last 2 times I ate, I did just try some crackers, so I guess time will tell if I keep it down.. Thanks…
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Stage 3 now 4 officially
Hi everyone, well I guess now it's official, I had the biopsy and i definitely have mets to my lungs. I felt so discouraged, I don't know why, I knew I had it but maybe being official like that made me feel worst. I give all of you so much credit with the bravery and grace that you have shown us all on the board. I was…
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how can you be sure
I was diagnosed with colon cancer on the 21 of July after they found the tumor try to take care of what started out to be a abcess, when the abcess cleared they found the tumor. It was a incased tumor, nothing in the nodes. But because the tumor had been there quit awhile and had attached itself to the colon wall, they are…
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hiccups - update
Hi all, Thanks to all who posted regarding my "hiccups" question. I talked witht hubby's doctor about the problem since I had him on the phone for other issues. He recommended that hubby take the his nausea medication once every six hours. Thankfully, the hiccups slowed and has stopped for now. It is a relief to my. I can…
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Thanks from Katie in Pensacola
You guys are great, I really appreciate hearing from people that really live with the colostomy. Friends and family tell you "lots of people do it", my response has been, "yeah, but not you". Now that I've heard from so many, my fears are greatly reduced, I will follow the overwhelming advice to speak to the ostomy nurse…
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MIRACLE
My mom had her liver ressection Wed the 17th. The doctor said before hand there was a spot on her stomach.I saw the scan it was a very bright starlike pebble.He said it was more than likely cancer.He was going in to look at it before they started the liver ressection because the would not be able to do it if that spot had…
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been out of it & family venting
HI Everyone, I've been away from the board for a little while. Craig so kindly sent me a PM asking about how I'm doing & so I thought I'd better check back in with you all! I've been doing okay w/ my chemo, except it really has made me feel pretty sick for a few days following each infusion. Even this last time, I was…
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too much
Hi All, This is a bit off subject but I am still coming to you for support. Our 12 year old daughter who has autism and epilepsy has not had any seizures for the past 5 months. Last night **** and I were relaxing and we heard a knocking sound in her room and we looked on her monitor (she is always on video camera) and saw…
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mets to spleen
I was wondering if anyone has had mets to the spleen. My husband was dx'd with stage 4 in June of 2005. In the beginning, there were only spots on the liver. He has been treated with all the combos of drugs including one that was used many years ago before for all the new treatments were available. Currently, he continues…
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follow up colonoscopy question
ok - so, last year the tumor and resection. then the chemo. then the follow up colonoscopy. so, that showed 5 polyps, and as I said before, one was a bad one. the doc thinks he got it all, but tattooed the spot and I go back in 6 months to check it again (gosh I hate gatorade). here's the question - shouldn't the chemo…
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Rectal bleeding after surgery??
I had surgery three weeks ago. Doc removed 10" of colon, and 50% of my rectum. BM's haven't been great. VERY frequent and small. This morning there was blood in the bowl, and on the toilet tissue. The blood was light. Has anyone ever experienced this? If it wasn't Saturday, I'd ring the surgeon's office. Thanks.
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My Turn..... I'm in Hospital
Ok... I don't know what happened.... maybe you'll can explain this one to me. Don't remember waking up today..none of it....well, bits and pieces.. not much of anything that made much sense til about 9pm after ambulance had already came to my house cause family called and hospital had run all kinds of tests. Have had…
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Lavaquin Antibiotic
Has anyone had problems with this antibiotic? I've been reading up on it and asked my ocologist about it and he just stated that all medication has side affects. http://www.lawyersandsettlements.com/articles/12773/Madison-country-levaquin-lawsuits.html?ref=newsletter_bca_Madison-country-levaquin-lawsuits Thanks
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Another newbie...
Hey all...after weeks of lurking, I figured it's time for me to finally register, say hello and introduce my/ourselves, and give a great big "thank you" for all the great information we've found here so far. I'm the husband of Staci, a 32-year-old who certainly doesn't look like there's anything the matter with her…
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Finally, the attack plan is set!
We still don't have all the answers, but have gone ahead with the attack plan. The colon cancer nurse navigator came down from the other office to be at my appointment with me. She is a real gem – a great source of information specific to colon cancer and treatments, and she knows her way around the lab, insurance…
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Kathleen and one positive node
**** has one positive node after being off of chemo for a month- not in the same place as before, so it is considered a met. And he is going back on chemo. Right so far? Have they talked about surgery to take out the node? Just had a friend with almost identical situation-only they knew after the resection he still had a…
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Radiation Starts Tomorrow
Tomorrow I begin a program of radiation to knock back a recurrent tumour that started on the outside of the rectum and has grown into the sacrum. Ouch! I'm scheduled for 15 daily treatments from now until mid-October. This is all part of dealing with what is a very discouraging development in my 5-year journey with stage 4…
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ned for me too
I found out today that I am NED...my cea's were down to 2.8. For this I am so happy and grateful. five years, 3 surgeries, 3 regimes of chemo.....there IS always hope for stage 4....2 liver re-sections. Like Nana b I have some fluid on the liver but there was no talk of draining. Craig thank you for your PM...I enjoyed it…
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need some ideas
Hey everyone As many of you know, my husband recently finished his chemo treatments. We are expecting our son to arrive in just under a month and my husband has been SUCH a trooper! He's been through SOOO much, as you all know and understand. It recently hit him for the first time the he is a cancer survivor AND he's about…
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Are Nausea Meds Cumlative like Chemo
Hi All, It's me again with yet another newb question. I have been suffering from Nausea since my first treatment, I'm on my week off from #2 on FOLFOX. Anyhow, are the effects of anti nausea meds cumlative, do they work better the more time your on them. I was on Zofran and it didn't work and constipated the heck out of…
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It's just hitting me??????Why?????
I've had cancer for over 5 years now. Since that anniversary in May I have just been slowly building up to a breaking point. I think I am there. I just had to release it tonite. I have never really shared anything on discussion boards. Never wanted to admit it I guess. When I was filling in the discussion board category…
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Newly Diagnosed
I was diagnosed via a colonoscopy on Monday. Luckily I have a cousin in the field and it’s coming out on Monday. I feel great about my surgeon, especially after getting compliments from my GP on my selection. I’m 38 with a beautiful wife and 2 year old daughter. I feel good right now, but the week has been a rollercoaster.…
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I am dancing with NED!
Thank you all for your prayers! I got my results from my bloodwork and scan at MD Anderson - ALL CLEAR!!! I feel like I can take on the world right now! My liver even grew back great...or as the doctor said, I have a 'very attractive liver'! And they said by looking at my bloodwork you couldn't really tell I went through a…
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Hepatic Pump Question....
Has anyone had a good experience with the Hepatic pump? Where did you happen to receive your treatment? Would you say that the pump is effective? Thanks for your feedback! Jon
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What?
Since my husband was diagnosed in 2006, his hearing has deteriorated significantly. He did have chemotherapy (Xeloda, Camptosar and Avastin) but did not have radiation. Has this happened to anyone else? Perhaps his hearing problem is simply the result of growing older, but I wonder about the coincidence of this…
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My Alaskan Mother... She is with the Lord now
Hello I was on here briefly in the last couple months asking questions concerning my mothers needs and health issues and some of you were wonderfully supportive in your responses. I felt to at least let you all know that my Mom passed away on Sept 7th. We are going to be celebrating her new life with the Lord as a Family…