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Johnnybegood, where are you?
Johnnybegood hasn't posted in a month now and I know her neuropathy was very bad. Thinking of you gal! My neuropathy has gotten much worse in the 7 weeks since chemo ended. I'm hoping yours is getting better. Let us know, okay? Diane
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Dietary Info for cancer
Hi semi-colons, This is a continuation of my healing cancer with diet thread headed Juicing. Many of you have emailed me about some specifics that I have done over the past three years to stay cancer free and not having done chemo. I have shared my vitamin and supplement lists, and Eastern healing practices such as…
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survivor fellowship
BE TAUGHT TO FLY` When you come to the end of all the light you know, and it's time to step into the darkness of the unknown, faith is knowing that one of two things shall happen: Either you will be given something solid to stand on or you will BE TAUGHT TO FLY. by Edward Teller This is a Poem that I keep posted at work…
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Frustrated - the port story continues
After a long wait and many tests, I was thrilled to finally have an attack plan in place. I was supposed to start FOLFOX tomorrow. I had a Power Port put in October 1. Due to complications I was sent to the ER on Friday night. I spent the night in the hospital October 2 and 3. On October 4 I had surgery to remove the Port,…
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Question for Donna
Hey Donna, Could not PM for some reason, anyway I wanted to ask since you and I are dealing with multiple mets in the liver, and inoperable at this point until enough shrinkage. Do you still have pain in your liver? It's not severe but feels tender and if I take a real deep breath it feels tender. My last scan showed that…
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doRookie (Beth)
Where are you girl? I hope everything is ok! I can't find your phone number, and been wanting to call you, please let us know that you're ok! Hugsss! ~Donna
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Leakage from rectum
For those of you who had rectum sewn up due to colostomy: do you use anything special to absorb the mucous and other matter that periodically seeps out of rectum? To those who respond,thank you....... Steve
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How often do you all get scanned?
My doc has me set up to get scanned now every 4 monthes for the next 2 years? Does that sound right? Just wondering how often all of you get scanned? Linda
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Question for Donna
Hey Donna, Could not PM for some reason, anyway I wanted to ask since you and I are dealing with multiple mets in the liver, and inoperable at this point until enough shrinkage. Do you still have pain in your liver? It's not severe but feels tender and if I take a real deep breath it feels tender. My last scan showed that…
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Anyone on Coumadin
Hi, Looking for those who are taking Coumadin, a blood thinner, to avoid blood clots. Just wondering what your dosage is....mine is 7.5mg 4 days a week and 5mg the other 3 days. Wondering how high they go with this as mine has been increasing. Any info would be appreciated, Manny
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Scan on Wednesday
Well with chemo done, I get my first scan since my diagnosis and scan back in December when I found out. I am so nervous as most of you are. My doctor said that I've done everything I need to do. She won't commit to taking port out until the scan comes back clean and normal. Would you please keep me in your prayers and…
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Why is it that every evening I start feeling like crap
Every evening at around 5pm or so I start to feel run down... I feel cold, my body starts aching and just generally start feeling like crap. I seem to do better during the morning and day time hours. I wonder if I'm just tired. Does anybody else seem to have times of the day that they feel worse?
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mucous discharge from rectum
Anyone have a permanent colostomy. I am doing great from that ,but have a constant mucous discharge and have to where a pad.Went to the the surgeon yesterday and he said removal of the rectum is life threatening due to so much radiatiion.Wondering if anyone is dealing with this?
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No surgery Oct. 16
Hi all, My primary physician cancelled the surgery for my cervical spine. He is ordering more tests and then sending me to Stanford. I am a little relieved to say the least. I am having circulation issues. So the third surgery may be a blocked artery below the waist. But we shall see. That may end up being first surgery by…
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What diagnostic test should be done
Thanks to everyone for your help, but I have another question. I have stage 3 colon cancer, I have had surgery, no tests were done except for colonoscopy, chest xray and normal cbc lab work. My oncologist says I should just have a CT of ABD and pelvis with contrast. We have people telling us that I need more than this CT…
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Power Port Insertion
I have questions for everyone who has had a port implanted. How sore were you after the surgery, and how long did it last? I have a very high pain tolerance, and expected this was going to be very simple. In fact, I figured I'd be working late afternoon. Thank goodness I told my clients I was out for the entire day. I had…
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Not Cancer related... But my wife is making me a Dutch Apple pie today
I know this isn't cancer related. But my wife is making me a Dutch Apple pie today. Sure wish I could have some of you over to help me eat it and watch a football game. Maybe I'll add a scoop of icecream on it too. I hope everyone is having a nice Sunday
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Question about cea test
I would like yo know if anyone can tell me who did your first CEA testing before surgery,was the surgeon or was your primery care physician that order your pre-op tests? as I now have reached the 3 years mark and NED I had all my tests and scan done last August and everything was fine my oncologist told me to see him in 6…
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Get Screened! Low Cost Colonoscopy...
Funds are being made available for uninsured or under-insured people to get colonoscopy and follow up care if needed! Tell your friends... Check out this press release from the CDC: CDC Press Release
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Abnormal food cravings
Have read that people get abnormal food cravings during chemo. At the moment l have cravings for sweets which l know is bad and lam trying to put a stop to it but apprently its common.But just wondering if anyone else has unsual cravings during chemo? hugs sonia
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Mexico
Hi everyone, I just wanted to tell everyone that just because your a stage 4 cancer patient going through chemo dosn't mean you can't do things you enjoy. I am leaving for cabo san lucas next saturday to go deep sea fishing for Marlin with my dad and brother, and they say life ends at stage 4 ( I DONT THINK SO ) I will…
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Straight Connect
Looking to talk with someone who has had a straight connect. Help! I had my surgery 6 months ago and I'm having a serious meltdown! Badly! I want the bag back! Anyone else going through this??
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H1N1?????
Hello everyone! I haven't been posting these last couple of days because i got a terrible flu i believe was that bad swiney flu everyone's talking about. It was probably the nastiest bug i've ever had, and one of the fastest moving ones i've ever seen. I got it Thursday night, one day after i ended my fast, so i know my…
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Swollen Circumvallate papillae
Has anybody had these with chemo? They just came up yesterday and I also have swollen lymph glands under my throat. I can't taste anything and my throat is really hurting but I'm not running a fever. It has been a week since my last chemo treatment. Thanks, Scared Debbie
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Can't read my own post!
Frustrating!! Certain posts are not able to open for me here, now even my own post won't open!! I can't read the responses to my H1N1 post! Anyway, i tried to call the CDC, but they're not open today. lol! I called some epidemiologist here in San Diego, and they told us to go to the hospital. Sounds like a good plan to…
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Abdominal swelling post-chemo
So, I've just finished 6 months Folfox + Avastin, every other week. Had part of colon removed in April & did radiospheres as well. My dx is Colon Cancer w/ liver mets - 8 tumors spread throughout liver so resection of liver not an option, nor is transplant. Now I'm 21/2 weeks out of chemo & my abdomen has swollen badly.…
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Looking forward to colonoscopy on 10/12! LOL
This will probably be the only time I am looking forward to my one year colonoscopy. I having bowel control problems and tired of "crapping my pants"! The surgeon who is doing the colonoscopy thinks that the radiation my have shrunk the surgical opening and things are getting backed up. I had state 3 rectal cancer, they…
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Best way to clean adhesive marks from skin due use of colostomy bag
Its been five weeks so far that I've used ConvaTec Sur-Fit Natura two-piece colostomy bag. Alread am getting adhesive markings from skin barrier stuck on abdominal skin. How do I safely remove adhesive that remains on skin? Also, little hairs are starting to grow back on ab. Hoping someone's experience will help me here.…
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VA Surgeon says nothing to offer
I had a consultation with the Phoenix VA surgery department, the same team that left me with a wound infection on my first surgery and were unable to get clear margins on my sole liver lesion in July. This stellar group says the PET shows some inflamed lymph nodes and regrowth at the spot where we incompletely excised that…
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Krass mutated gene treatment
HELP, I am in my second year of treatment for colon cancer. The 1st year I had surgery and 4fu and xeloda chemo. My cancer had already gone outside of my colon to an ovary and a lymph node. Two months after my chemo I felt something was wrong again. My wonderful Dr. had me do a pet scan and it was positive in 4 places…