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JohnSFO update Scheduled for 12/1!
John experienced another blockage and we made a trip to the ER on Saturday after a valiant but fruitless attempt to move it along with Go-Litely (the daily Miralax doses had stopped working). To make a long story short, he got admitted and will have a colostomy on Monday or maybe Tuesday. We had expected an emergency…
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Calling all people who are on maintenance with Avastin
Hi, I have 5 more treatments on Folfox and 5FU remaining. So far I am responding well, considering I am dx as Stage IV. My doctor told me today that after these treatments, we will do a follow-up CT scan and I will more than likely go on "maintenance" with Avastin. Can anyone doing this now give me an idea of how frequent…
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Back from Doctor
Hi All: Went to the doctor this morning and he wasn't really at all concerned with the amount of blood that I am having. He said that I am going so frequently and this has probably caused some bleeding from the lining inside the rectal area. I feel so much better. He said first of all I need to control the frequency so I'm…
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lonely
I just want to thank all of the people who post and reply to all the people on this site. But, I have a question. What do all of you do to combate the lonliness? Sometimes I feel so all alone I can't stand it anymore. I come here and read the posts and chat some but it just doesn't seem to be enough.
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lumbosacral plexopathy - Did anyone else get this
I am a stage 4 guy. It got my rectum, one node and my liver. They killed off 1/2 of my liver with chemo last year and last PET in August showed clear as did one in Feb. Get another CT tomorrow. From the chemo/radiation on the node, I got lumbosacral plexopathy. It only happens to 1 out of 300 that get chemo/radiation. It…
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blood during bowel movement-need info concerning this please
My husband had resection done last April (09). Found out in October he has leak again where he was resectioned. Doctors have told us that it is a wait and see game now to see if it will healed or not. We are to continue monitoring for fever....My question: he sees fresh blood about once a week when he has bowel movement-he…
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TOMORROW,TOMORROW
Well tomorrow I start a new (6th time) round of chemo,Irinatecan, so wish me luck.I'm not as anxious as I thought I would be, Maybe it's starting to feel normal!! Talked to my doctor on friday and we talked about what all of you said about the side effects and drugs you took to alleviate them. She said she already added…
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Need your prayers, thoughts, good vibes etc this week
Hello all Well my delightful 45 days of no blood tests, doctors visits, scans, etc ends this week. Tomorrow it's the blood tests and then Wednesday the drive to Salt Lake for a PET/CT Thursday morning, a rectal scope and exam Thurs afternoon, and then meet with my medical oncologist on Friday morning who will tell me…
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Struggling after my reversal operation
Sorry I haven't been more active on the board lately, and I'm hoping that all of you had a wonderful Thanksgiving with family and friends. I have not had a real great experience with this reversal. I am going to the bathroom 20-25 times in about 2 hours, something that I knew could happen but was hoping it didn't. I am so…
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Hello I'm Mark DX'd June 18th w/ Stage 4 to Liver
Hi Everyone, I've been getting strength from the positive posts here. I want to thank everyone for sharing their stories. I intend to share mine until NED. See I already know some acronyms. Probably like some of you I went to the emergency room on 6/13 obstructed and emergency surgery found the 5cm tumor and a spot removed…
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Scan results tomorrow!!
I go in tomorrow for my scan results from Fiday's scan. This will tell me whats going on with my cea levels rising. I am so scared and have much anxiety. I got the cea results before Thanksgiving, scan on black Friday and went for a mammogram today. Tomorrow is scheduled chemo so, after reslults I have to go get chemo and…
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Donna aka Shayenne
Where are you Woman? Havent see you post in a while and thought I would check up on you. Sure hope everything is okay, please if you get the chance let us know your okay.. Beth
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It's here, it's here!!!!!! Happy Anniversary!!!!
I just checked my file....I was officially diagnosed with cancer on November 26, 2004....and given 6 MONTHS to live!!!!!!! THAT means that tomorrow, Thanksgiving Day, I will be 5 YEARS since diagnosis!!!!!!! Yes, it's true, now that was my first (rectal cancer) and, my second (breast cancer) is coming in July, 2010. I am…
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Friday Riddle Answer
Everyone got it right! Way to go team.... Nudgie, this is a tough job. I don't mind filling in when needed. -p
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Good News
Hi everyone. Just sharing good news, oncologist appt. today went well. CEA staying stable, 3.6 which is normal for me. Going to go to a CT scan every 6 months and Colonoscopy every other year, both of which are due next month. The liver lesion seems to have resolved. Mammogram, lump in breast, does not look to be anything…
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Flipping Mad
I can't even begin to tell you all how flipping mad I am.....After 7 months of being NED I am told I have 4 nods on my liver..I go to the doc on the 4th..to discuss my options and determine what stage it is in...I am so mad that this has happened to me again..Why did I have to get it back when so many other people…
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Tiny magnetic discs could kill cancer cells: study
I saw this and found it to be interesting. Goes to show that new things come up everyday, and soon there will be a CURE for us ALL.... Just food for thought... PARIS (AFP) – Tiny magnetic discs just a millionth of a metre in diameter could be used to used to kill cancer cells, according to a study published on Sunday.…
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Please remember
Please remember our Soldiers especially at this time of the year. Cancer is very hard, but our Soldiers have a rough time fighting everyday for what we take for granted. My youngest is in Iraq.
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THe shades are all closed
The shades are all closed so that i can do the happy naked dance!!! I just got back form the Doc and got the word, NED for 1 year. Thank all your prayers and well wishes. It gives me something to be reallly thankful on thanksgiving!! Jeff Just happy to be here!!!
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I got a juicer!!
My brother surprised me with a juicer at Thanksgiving, it is a magic bullet. I was looking at the champion but they did not even know that. I am just so appreciative that they were thinking of me and wanted to get me one on their own, I never even mentioned it to them. Anyway I am just excited but do not know where to…
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Got my card!
Hey, Diane. I got my Christmas card today. Yours was the first we've received this season! Thank you so much, dear. Mine will be in the mail as soon as I finish them! *hugs* Gail
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How long does it take for a colon to heal?
I was told it takes from three to six months for the colon to heal after a colon resection and I’m now at six months, but the area where part of the colon was removed still has discomfort when I bend or get out of bed too quickly. Is this normal, or is the colon still healing? Also, what are the chances of leakage where…
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The Reading Room ala Hatshepsut-The Month of Giving
Greetings all Here's an NY times article on Giving that you all might enjoy http://www.nytimes.com/2009/12/01/health/01well.html As I was reflecting on that article, I remembered yesterday when my husband's horse's stifle joint locked up. He's had this issue before and I've massaged him out of it though the last time was…
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Been MIA
Hi Everyone, Yes, I have been MIA! I have not forgotten any of you here, you have all remained in my thoughts and prayers. I guess I have been enjoying being NED and getting on with life as to say. We are in full blown homeschooling now on this end and having a blast with it. I am learning daily to deal with the side…
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Help! Is there hope out there?
My husband is 44 years old. He went to the emergency room last week with a severe leg pain. They found a bone tumor and within this past week he was diagnosed with stage IV colon cancer. I have 2 young children and I am scared to death. He had no other symptoms. He has always been athletic and eats well. He is beginning…
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What to do.. I hate my Job and the Stress
First.. I am Mike I have been on this site for over two years. Have at times posted, but not much. I do appreciate that there is a site like this. It has helped tremendously reading how others are handling/dealing this type of cancer. Just a quick note about my cancer. I am stage 4 colon cancer. I had surgery in Jan 08…
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long term survivors
For anyone that has been cancer free for over 6 years,how often do you see your oncologist and how often do you have a CT scan?
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stuff going on this week
Well, this week will be a full one for me... Tomorrow morning (Monday), I'll be having a PET/CT scan. I usually walk out of the place w/ a CD of the scan and then I go the next day to the hospital records room and get my copy of the written report. My CEA has been rising over the past 8 weeks, which has always been a…
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The Burn is here
I know many of you have experienced much worse than I have, so far. But I will complain anyway and take any helpful advice. I've just completed the fourth week of radiation and my radiation oncologist was surprised that I had no major complaints. Well now, the Burn is here, in my vagina and anus. The butt wipes I used to…
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Hi everyone, Can I join your team?
Hello everyone, My name is Joanne and I was DX'd with stage IIIB Anal Cancer in June of '08. Radiation and Chemo was very successful and all was clear until my most recent PET on Oct 27. Now I am stage IV with a single liver metastases (biopsy confirmed) in the left lobe. I am currently in the process of lining up the…