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second trip with Folfox and not liking it one bit
HI I am just finishing up my first round of folfox for the second time. I was DX in 06 and had 4 months of folfox in 07. Was clear until 08 then went on Folfiri. Clear for most of 09 but now back on Folfox. I don't know if I just don't remember it being so hard or it's just gotten harder on me, but I'm sick most the time.…
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What to do...
Hi all! I hope everyone had a wonderful Thanksgiving. My husband and I met with his oncologist today to discuss the next steps in this crazy journey. My husband had surgery on Nov. 9th (right hemi-colectomy). He's a stage 2A with no negative prognostic factors (according to the pathoogist and oncologist). All 32 lymph…
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Will I ever be the same I was before all of this?
Hi guys, Maybe I’m just having a off day or something. But I’ve been doing a lot of wondering lately about how things will be in the future. As most of you know already, I’m a stage 3 dx April 2009. Had radiation/chemo (5FU) for 7 weeks then surgery August 13th to remove the tumor and put in a iliostomy. Now I go every…
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Headache
Tuesday morning at 4:00 I had to wake up my husband to take me to the emergency room. My head was hurting so bad I felt like I had to hold it on my neck. I had a CT scan and some good pain meds and was sent home. The doctor in the Er told me to follow up with my Primary Doc. Today I called my oncologist because I still had…
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Hi, new to this site. Need advice
Hello, i am new to this site and am amazed at all the people that are supportive, I have been on another site since my diagnosis, blogforacure. They have helped me as well as I struggled through this past year. I was diagnosed with rectal cancer last year Novemeber 2008. I have been through alot, 28 radiation treatments…
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New, start chemo Monday...
Hello everyone, I am new to this and am scared...I am being strong for my family and I have positive feelings most of the time but I feel alone, I am having a hard time really connecting my feelings with family and friends, some family and friends change the subject or discuss something/someone different or "worse"...how…
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PET/CT results today.....Drumroll.....NED!.... NED!.....NED!
Pinch me.. I think I'm dreaming!!! I was floored when the onc said "well, according to scan results... you have NO cancer left in your body...anywhere!" WHAT?...WHAT? Shut-up! no.. he was serious. He said that 2 tiny tiny spots showed up in the lungs but did not light up and were read as dead tissue being dissolved by my…
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Need prayers today
I go in today for my first CAT scan after 6 months of 5FU. Need prayers and good vibes sent my way. Thanks for the support Mike
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scan results
I got my results today and I am heartbroken!! the liver tumors have grown and a couple of new ones popped up. We are just devastated, I got the day off to digest this news and will start Ironotecan tomorrow. The Onc. said that my tumors just became resistent to the chemo. I just do not know what to do! I am just so shocked…
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JohnSFO update Scheduled for 12/1!
John experienced another blockage and we made a trip to the ER on Saturday after a valiant but fruitless attempt to move it along with Go-Litely (the daily Miralax doses had stopped working). To make a long story short, he got admitted and will have a colostomy on Monday or maybe Tuesday. We had expected an emergency…
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Calling all people who are on maintenance with Avastin
Hi, I have 5 more treatments on Folfox and 5FU remaining. So far I am responding well, considering I am dx as Stage IV. My doctor told me today that after these treatments, we will do a follow-up CT scan and I will more than likely go on "maintenance" with Avastin. Can anyone doing this now give me an idea of how frequent…
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Back from Doctor
Hi All: Went to the doctor this morning and he wasn't really at all concerned with the amount of blood that I am having. He said that I am going so frequently and this has probably caused some bleeding from the lining inside the rectal area. I feel so much better. He said first of all I need to control the frequency so I'm…
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lonely
I just want to thank all of the people who post and reply to all the people on this site. But, I have a question. What do all of you do to combate the lonliness? Sometimes I feel so all alone I can't stand it anymore. I come here and read the posts and chat some but it just doesn't seem to be enough.
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lumbosacral plexopathy - Did anyone else get this
I am a stage 4 guy. It got my rectum, one node and my liver. They killed off 1/2 of my liver with chemo last year and last PET in August showed clear as did one in Feb. Get another CT tomorrow. From the chemo/radiation on the node, I got lumbosacral plexopathy. It only happens to 1 out of 300 that get chemo/radiation. It…
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blood during bowel movement-need info concerning this please
My husband had resection done last April (09). Found out in October he has leak again where he was resectioned. Doctors have told us that it is a wait and see game now to see if it will healed or not. We are to continue monitoring for fever....My question: he sees fresh blood about once a week when he has bowel movement-he…
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TOMORROW,TOMORROW
Well tomorrow I start a new (6th time) round of chemo,Irinatecan, so wish me luck.I'm not as anxious as I thought I would be, Maybe it's starting to feel normal!! Talked to my doctor on friday and we talked about what all of you said about the side effects and drugs you took to alleviate them. She said she already added…
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Need your prayers, thoughts, good vibes etc this week
Hello all Well my delightful 45 days of no blood tests, doctors visits, scans, etc ends this week. Tomorrow it's the blood tests and then Wednesday the drive to Salt Lake for a PET/CT Thursday morning, a rectal scope and exam Thurs afternoon, and then meet with my medical oncologist on Friday morning who will tell me…
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Struggling after my reversal operation
Sorry I haven't been more active on the board lately, and I'm hoping that all of you had a wonderful Thanksgiving with family and friends. I have not had a real great experience with this reversal. I am going to the bathroom 20-25 times in about 2 hours, something that I knew could happen but was hoping it didn't. I am so…
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Hello I'm Mark DX'd June 18th w/ Stage 4 to Liver
Hi Everyone, I've been getting strength from the positive posts here. I want to thank everyone for sharing their stories. I intend to share mine until NED. See I already know some acronyms. Probably like some of you I went to the emergency room on 6/13 obstructed and emergency surgery found the 5cm tumor and a spot removed…
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Scan results tomorrow!!
I go in tomorrow for my scan results from Fiday's scan. This will tell me whats going on with my cea levels rising. I am so scared and have much anxiety. I got the cea results before Thanksgiving, scan on black Friday and went for a mammogram today. Tomorrow is scheduled chemo so, after reslults I have to go get chemo and…
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Donna aka Shayenne
Where are you Woman? Havent see you post in a while and thought I would check up on you. Sure hope everything is okay, please if you get the chance let us know your okay.. Beth
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It's here, it's here!!!!!! Happy Anniversary!!!!
I just checked my file....I was officially diagnosed with cancer on November 26, 2004....and given 6 MONTHS to live!!!!!!! THAT means that tomorrow, Thanksgiving Day, I will be 5 YEARS since diagnosis!!!!!!! Yes, it's true, now that was my first (rectal cancer) and, my second (breast cancer) is coming in July, 2010. I am…
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Friday Riddle Answer
Everyone got it right! Way to go team.... Nudgie, this is a tough job. I don't mind filling in when needed. -p
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Good News
Hi everyone. Just sharing good news, oncologist appt. today went well. CEA staying stable, 3.6 which is normal for me. Going to go to a CT scan every 6 months and Colonoscopy every other year, both of which are due next month. The liver lesion seems to have resolved. Mammogram, lump in breast, does not look to be anything…
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Flipping Mad
I can't even begin to tell you all how flipping mad I am.....After 7 months of being NED I am told I have 4 nods on my liver..I go to the doc on the 4th..to discuss my options and determine what stage it is in...I am so mad that this has happened to me again..Why did I have to get it back when so many other people…
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Tiny magnetic discs could kill cancer cells: study
I saw this and found it to be interesting. Goes to show that new things come up everyday, and soon there will be a CURE for us ALL.... Just food for thought... PARIS (AFP) – Tiny magnetic discs just a millionth of a metre in diameter could be used to used to kill cancer cells, according to a study published on Sunday.…
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Please remember
Please remember our Soldiers especially at this time of the year. Cancer is very hard, but our Soldiers have a rough time fighting everyday for what we take for granted. My youngest is in Iraq.
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THe shades are all closed
The shades are all closed so that i can do the happy naked dance!!! I just got back form the Doc and got the word, NED for 1 year. Thank all your prayers and well wishes. It gives me something to be reallly thankful on thanksgiving!! Jeff Just happy to be here!!!
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I got a juicer!!
My brother surprised me with a juicer at Thanksgiving, it is a magic bullet. I was looking at the champion but they did not even know that. I am just so appreciative that they were thinking of me and wanted to get me one on their own, I never even mentioned it to them. Anyway I am just excited but do not know where to…
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Got my card!
Hey, Diane. I got my Christmas card today. Yours was the first we've received this season! Thank you so much, dear. Mine will be in the mail as soon as I finish them! *hugs* Gail