lumbosacral plexopathy - Did anyone else get this

Kerry S

I am a stage 4 guy. It got my rectum, one node and my liver. They killed off 1/2 of my liver with chemo last year and last PET in August showed clear as did one in Feb. Get another CT tomorrow.

From the chemo/radiation on the node, I got lumbosacral plexopathy. It only happens to 1 out of 300 that get chemo/radiation. It makes pain like I have never had in my life. It screws up the nerves big time. None of my doctors understands it.

I have learned that if I start my day eating bacon and eggs and drink 2 big glasses of Gateraid. I can keep it in check. If I don't it is going to be a percocet day. It will also make my right leg twist outward and I walk with a limp.

Has anyone else been down this road?????

Kerry

cyndi2324

No I haven't. Wow sounds
No I haven't. Wow sounds awful. Your protein and salt intake seem to help you. You might try other proteins for a variety. Good Luck
Cyndi