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New picture
Thanks to all who commented or pm'd. Another coach took the picture when I went up to have lunch with Jim on Thursday. Diane
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Need Input
I was dx in July with Stage IV colon cancer. I was told I had a spot about the size of a quarter on my liver, it was in my lungs and lymph nodes in my abdomen area. Since then, my last CT scan showed the spot on my liver is gone or either small enough they can't pick it up on the scan, since my lungs did not show…
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upcoming surgery
on the 24th, going to deal with ulna nerve entrapment at the elbow and hopefully enough time to tether tendon through arthritic thumb joint. Something about a 2 hour window once they put the tourniquet on and may not have enough time to do both. The ulna nerve entrapment has been an issue for 16 months. I woke up with numb…
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Something we ALL have in common.
Good segment on 60 Minutes tonight IMO. Sure to raise some various points of view. Things have been too calm here... ;-) -p
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melissaincali hoping your husbands surgery
went well! Been thinking about you guys today!
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the hare
I cant help but feel like I should be doing something during this six week perscribed break from treatment until my next scan. I feel like the hare sleeping on the side of the road and cancer is this tortous sneaking up on me. I'm finding this break to be a little difficult as I am not activly getting treatment and…
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Diane's new picture....
I think your new picture is stunning, Diane. You are a very attractive lady. Just so you know..... Sandy
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liver questions
I went to Moffitt on Tuesday and had a PET , CEA and CT. Good news CEA down from 78 to 2.5, yeah!! The ct and PET showed the tumor in liver that was tehre is dead or not lighting up now, but it also showed another small area that did light up in the PET. I am confused why chemo did not get that one. Theyare trying to…
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Friday Riddle Answer
This weeks winner is dorookie. CONGRATS!!!!!!!!!!!!!!!!!!!!!!!! RIDDLE: RIDDLE: What do you do with 365 used condoms? ANSWER: Melt them down and make a tire and call it a Good Year :)
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DRESSING FOR XRAYS,PET/CT SCANS AND MRI'S
JUST THOUGHT I'D PASS THIS PIECE OF INFO ALONG . A FRIEND OF MINE WHO IS A NURSE,TOLD ME THAT IF YOU DRESS WITH NO METAL OR PLASTIC ON YOUR BODY YOU DO NOT HAVE TO CHANGE INTO A HOSPITAL GOWN AT ALL.I HAVE NOT HAD TO CHANGE MY CLOTHES IN 4 YEARS.I WEAR ELASTIC WAIST YOGA PANTS,CAN BE DRAW STRING IF NO METAL GROMMETS( CUT…
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What's up with low energy
Man, I could hardly stay awake in church today. I did not take my meds before bed for pain because they seem to keep me awake, but I was awake all night on & off anyway. I just wake up and start thinking about surgery last week. I am starting to remember new things and bits of conversations and I can't fall back asleep, I…
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Question about blood in stool during chemo
Can you have blood in your stool during chemo? At round 5 of 8. Taking Oxy/Xeloda/Avastin. Really scared about this.
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Elevated CEA test
Just found out my CEA blood test came back elevated to 6.5...I am setting up a PET test. I am just devastated!!! This is the first time it came back elevated!!! I am blown away..I know other people here have it much worse than I do but it is still frightening all the same..I have been NED since the end of April of this…
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robInVancouver
how is the new chemo routine going
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May I just say......
how totally awesome you semicolons are. You respond to folks asking questions who have been just diagnosed and really take the time to explain and give hope to those who are scared. We have just learned that a very dear friend has been diagnosed with bone cancer. I posted on the bone cancer forum here as I know how…
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PM went away
I logged in and noticed I had a PM, when I clicked on it all went away. There is nothing listed in my "inbox" so I am not sure what happend. Anyone else having trouble this way? Thanks Jan
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Lengthening Oxaliplatin infusion time
After getting my nurse navigator to pull up the studies on the syndrome I was getting from oxy (happens in 1-2% of patients - acute neurotoxicity - affecting chest, throat, jaw, tongue, eyes), and the results that lengthening infusion time from 2 hours out to 6 hours can make a difference, we adjusted. Due to time…
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Follow up to staff issues between clinics
The doctor asked me to tell him how round #2 went. I used this opportunity to fill him in on how hard Monday was, and have him look at how low my blood pressure dropped. Then I told him about how the nurse chewed me out because my chart wasn't there, and wasn't going to allow anything other than the Nuepogen shot that had…
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Prayers needed
I've got my 1 years ct scan colonosotope and blood work next Monday. I get the results on Wednesday and i feeling alittle scared. I would really thank you if you could put me on your prayer list. it would nice to have something special to be thankful on thanksgiving. Thank you all for your support. Jeff Just happy to be…
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Feeling very sad after news today!
Hey everyone, I went to scheduled chemo today,I go to the hospital to get my infusions (not Onc. office) I had my CEA tested today and it is up to 22 from 10.5 4 weeks ago. I even had a scan in Oct. and it showed everything shrinking and dieing off. I also have had chemo since then. I am so confused!! It really knocked the…
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early best wishes for a great holiday
Hello all of my American friends....just sending you early wishes for a great Thanksgiving and holiday time. As you know we Canadians have Thanksgiving much earlier so I have moved on to Christmas....hence new avatar. We do not have any snow yet and that is a blessing. I would like to send a special wish and thanks to all…
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News for those who have been seeing higher cea numbers out of the blue
here is a link to a discussion on another forum. I noticed several of you have posted about your suddenly elevated cea numbers. It seems there is a new reagent being used that is causing significantly elevated numbers that do not correspond to clinical observations. So hopefully for you all it is just a glitch.…
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1st Oxyplatin Treatment & started Zeloda - anyboday take L-Acetyl Carnitine
Had my first Oxplatin treatment and started Zeloda pills. I have neuropathy and wondered if anyone takes L-Acetyl Carnitine? If so - where to get it? Need something for sure. Also have jitters from the steroids I take. So far no nausea - just had my 3rd day of Imend and also take prylosec. Hope it continues to keep it…
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New Diagnosis
Hi-I have been diagnosed with a carcinoid tumor with one lymph node involved, or possibly involved. I had a ct on the 9th, followed by, visits to surgeon, oncologist and GI specialist; then PET scan one day and Endo/colonoscopy the next; waiting today to find out about surgery scheduling. I was kind of worried about the…
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Harp Music
Dear folks, The Sunday after my resection on friday was the worst. My colon started waking up and they took me off the button release pain medication. I had horrible cramps and things were going badly for me. I couldn't think of anything to take my mind off of it and the painrelievers they gave me orally weren't working as…
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cea test
Hi folks, I am new in this journey call colorectal cancer!!!! What is a cea test?? I have surgery a week from today. I have stage 3 and am starting to realize that this is more serious than I thought!!!! Just read about the lymph nodes and how the cancer spreads. So far I have had 6 weeks of chemo and radiation. After…
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confusion now------HELP
I just got a email from the doctor who told me two days ago that I had a new tumor in liver, that now says that he had a special radiologist look at it and maybe it nis not a tumor and he will let me know later. He says maybe I can have surgery now? What else would light up on a PET if not a tumor?? Any ideas would be…
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I'm wired for sound!!!
As I write, I have been hooked up to my holter monitor...and, for the next 24 hours, my cardiologist will know all of my activities...lol...he always teases Hans and I about "You know, a minimum of once a week means good heart health!!!" Hummmmmm, how would THAT entry look in my little 'diary'???? Do you think he would…
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CEA Numbers
Hi! Last tx I was told my Cancer numbers dropped from 27 to 5 and again this tx from 5 to 2.2 with a white blood count of 6.8. I have no idea what this all means does it mean that if my count stays below 5 I will be considered in remission. I still have 6 more tx to go so things could change along the course but for now it…
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Treatment decisions & PET scan
Hi All, I read & research on this site but don't often post. This time, I thought I would post to see if you've experienced this..... Thoughts??? Blake had an appt with the Palliative doc yesterday. He broke down & told her he was DONE. He does not want any more chemo. He's sick & tired of being SICK & TIRED! This doc is…