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Any update from Johnsfo
John, I know awhile back you posted how you almost never left your house, you were in so much pain and it was easier to control if you were at home. I have not seen you post in awhile and hope the pain is getting better. Marie
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What is up with crow71?????
How is that young man doing????
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LOUANNS RESULTS
ONC said it in anto carsonima and can be removed with surgery to remove the part of the bile duct and the head of pancreous (sp) part of my small intestens we are doing a pet scan tuesday to make sure it has not spread any where else if it has no surgery only chemo but it has not spread in fact they may see God has already…
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PET Scan
I'm having my second PET tomorrow. I have to go on a low carb diet (only meat, eggs, cheese, and green vegetables). Is this for every one or just because I am diabetic? I have friends coming in to town to go out with us to supper. I guess I'll just have to have a plain salad or chef's salad with no dressing. Thanks, Debbie…
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So much pain
Hello everyone,I have not been on here in a while but still reading daily. As most of you know I have had Sir Spheres to both lobes now and while I know it takes a while to work, in the meantime I have been in so much pain. I started having pain in belly along with bloating before the Sir Spheres. I mentioned this to my…
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Since we are talking about sex....
I received an info packet pertaining to chemo when I first started going to the cancer center.In the printout on Sexuality it states... "Chemotherapy is excreted by the body mainly through urine.It CAN be excreted through any body fluid which includes urine, saliva,vaginal secretions, semen, stool and blood. It can take up…
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Update Patti from late last night
Monday night 10:20 p.m. Patti is not doing well, she is very jaundiced, liver slowly losing function, more pain, labored breathing etc..... Austin was in the room when it was mentioned but I don't think he has figured it all out yet so I'd leave the hospice part out. I don't know that Ally knows anything about it- probably…
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Son's CT results in
Scott got his results of his ct scan and it was good news, the results are quite promising. The mets in the liver are down 35%, the ca counts have reduced from 7800 when he started to 4100 now, and some other counts I did not quite understand what they were are down also. The tumor in the colon is reduced and the…
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Lets do a Cookbook
I was thinking (no jokes). We should do a cookbook by people with cancer, NED, Caregivers, or whatever. If you have a old family recipe or one you made up yourself or maybe comfort food. It can be anything like cake, fish or anything you what to share. I have my Great grandmothers worlds fair winning cake recipe that would…
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Abnormal blood test results
Hello my semi colon family need some advice, had a fasting blood test done last week which included full blood count, liver etc. Today doctor's surgery rang they say my cholestral and liver are abnormal. Now when I took test last week I had been bitten by my dog so was on 625mg three times a day of co amoxiclav tablets.…
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Off to Relay for Life this morning....
Beautiful day! I'm taking you all with me on the survivor's lap!!! Hugs, Kathi
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ittapp UPDATE on Patti P.
Hi Diane, I saw Patti a couple of times last week. She did get chemo on wed eve, I was there during that time and she tolerated it well. I think she has been experienceing more pain so possibly a CT was going to be done. I haven't heard if it has been done and/or results. I hesitate to say how she is really doing- it seems…
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Seeking Tips To Relieve Chemotherapy Side Effects
My husband has now taken two infusions of Oxyliaplatin and Vectibix along with two one-week courses of Xeloda (we're four days into the third course of Xeloda). He also had a 3-hour infusion of iron to address anemia issues. He is starting to have a skin rash. He is beginning to be sensitive to cold. And, his appetite,…
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Extrahepatic bile duct cancer
Well I found online that is what I have and am ordering my medical records tomorrow and calling my ONC there is no dragging your feet room here this is bad stuff and needs to be addressed ASAP so I am getting on it Monday morning. If they don't move fast enough I will go some place else am not sitting around waiting for…
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"male" questions
Okay guys....I need to hear from any 50-60 year olds out there who've had rads/surgery/chemo for rectal cancer. My husband is 55, dx with rectal cancer at end of Dec. '05. Had 25 rads, 6 weeks oral Xelota, then a rectal resection on 4-19-06 and has a temporary ileostomy. Six weeks after surgery, we opted for Folfox and…
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Now how am I going to live-post treatment
I finished treatment on 4/14/10. I am so glad it is done although I still have to deal with the ickies of the last treatment. But I am trying to figure out what my new life will be like. O.K. there are people who don't want me to look to far forward because I scan on 5/10/10 and that is when I should plan things, but I…
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pattis brother Jeff here
Patti's not doing well, they are moving her to a hospice care center tomorrow ...really don't look good,....keep praying ... Jeff
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Am I being petty?
I am 2.5 years out of treatment and NED. I signed up for the local Relay for Life Survivor walk and asked my husband, as my caregiver if he would walk with me. He was very enthusiastic and said, yes, put me down, I'll walk with you. This week, he told me that he is going to his brother-in-laws Army graduation on May 21st.…
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Oxaliplatin Side Effects
Have any of you had uncontrollable teeth chattering and/or shivering as a side effect to the Oxaliplatin? Xeloda? A friend has had this, and her drs are totally unaware of this as a side effect. I know she'd like to know she's not the only one out there. Thanks.
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Right Hemicolectomy
HI, ANYONE ELSE HAVE THIS PROBLEM? I HAD A RT HEMI ALMOST TWO YEARS AGO, BUT I STILL EXPERIENCE OCCASIONAL PAIN ON MY LEFT SIDE. PRIOR TO THE SURGERY I HAD MY APPENDIX OUT, SO I EXPECTED RT SIDE PAIN-NOT LEFT? THANKS, MARIA
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The Reading Room: LA Times--"The many ways to share bad news"
This is an interesting article that appeared in today's LA Times. It is food for thought, I think. Hatshepsut Link: The many ways to share bad news
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Can't tell how husband is doing...
CB has been on Folfox w/Avastin & Xeloda for about 1 1/2 months, and I realy can not tell if it is working or not. His eyes are still extemely yellow, and of course he is fatigued, and working to maintain his appetite. He feels strong anxiety with having chemo only every 3 weeks, but his new onc. says that things are…
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Returning to Work
Well I have healed after my hernia operation and feel better after taking time off from work. I was out two months and missed work so much. I am not a person to stay home, especially if I am disable and can't do a thing. Now hand me some millions and I will see what I can do, that is go, go, go. lol Take Care Friends.…
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colon cancer after effects with sex
ok can any one talk to me my husband had colon cancer 2 yrs ago but sex is stil not right i was told this problem would go away but it hasent
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question about cea
I read all the time about cea levels of all the wonderful people on this site and am truly happy when the levels go down. But, sometimes I find myself being a little jealous. At diagnosis my cea was 1500. Before the folfox stopped working it had dropped below 400. Has anyone else out there had this high of cea level. Just…
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Lizbiz's husband has joined under the name jonrwall
Thank you to everyone that posted their thoughts and feelings about my wife. Today it has been a week since she passed and the end was just so sudden and shocking. With the surgery she may have had 2-4 years. The side effects and fluid buildup in her body did not allow her body's immune system to work. She was in the…
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Friday Riddle Answer
CONGRATS to TxKayaker for providing us with the right answer!!!!!!!!! RIDDLE: Can you find a seven letter word such that: The first two letters are a man. The first three letters are a woman. The first four letters are a great man. The whole word is a great woman. ANSWER: Heroine
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Ileostomy Questions
So, mom had to get an ileostomy after her surgery to give her rectum time to heal and since she is starting chemo in a few weeks, she will have it for a while. I have a few questions for those of you that have had one. I really want her to be as comfortable about this as possible and am looking for any and all info and…
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Chris surgery udate
Hi everyone, I feel that i am finally settled down enough and chris pain is semi-under control enough to write. He went ahead with the double reversal on the 23rd. What was supposed to be a 3 hr surgery was a 7 hr surgery. The take down was a success but chris came close to bleeding out. Even though they stopped his…
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lump under skin of thigh
This is probably a bunch of nothing, but I wanted to ask y'all's advice. I have had a small lump under the skin of my left thing for probably a couple of months. I first noticed it when it felt sensitive when I was wearing jeans. I ran my hand over my leg and could feel the small lump. I figured maybe I had hit my leg…