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Relay for Life
Our Relay for Life was this past Friday and Saturday, what a special event. My husband attended, I didn't expect him to come until the survivor lap, but he showed up about an hour after my youngest daughter and I did and he stayed with me until we both called it a night after the luminaria ceremony at 10:00. He put in at…
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usnews.com just published its rankings of the top hospitals in US
for cancer, top 5 were: 1-U of Texas MD Anderson Cancer Center, Houston 2-MSK in NYC 3-Mayo Clinic, Rochester,MN 4-Johns Hopkins Hospital in Baltimore and 5-U of Washington Medical Center.Seattle followed by: Dana-Farber Cancer Clinic, Boston; Mass. General Hospital, bOSTON; U of Calkif, San Francisco Medical Center;…
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Hurray, another option!
After being told his current doctors were out of ideas, my dad visited Huntsman on Monday. First we met with the genetic counselors. They feel it’s unlikely dad’s cancer is the hereditary type, but will be testing the tumor anyway just to make sure. This is good news, since it means my sister and I should have only the…
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Thought of the Day
“Good judgment comes from experience, and a lot of that comes from bad judgment.” ~ Will Rogers
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Wierdest movie I've seen...but it speaks to my fears....
'Meet Joe Black'. BIG names in it....Anthony Hopkins, Brad Pitt, Angelina Jolie.... Brad plays death. But in an interesting way...coming to collect Anthony Hopkins, but taking a 'vacation' in a mortal body... It spoke to me about my fears of reoccurance, and passing, walking with me everyday... Twisted movie, but well…
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question regarding CEA
In Nov. husband's CEA was 1.8, April 2010 it was .7, this week 1.0. I know that isn't high, but do you think something might be brewing or is this natural. Nurse said it was normal, but I wonder do they look back to see what the last level was. Do you think this is a sign that in Oct. it might be a little higher? Next CT…
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Friday Riddle
Remember NO goolging or searching the Internet allowed, and good luck!! RIDDLE: There was a boy and he was very hungry. He saw a lot of sand on the ground and witches flying above and it was really hot and some dogs were chasing a bone so what is that boy going to eat?
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5-FU and chloroquine (CQ), an anti-malarial drug:
An article at 7th space.com, "Chloroquine potentiates the anti-cancer effect of 5-florouracil on colon cancer cells" cites a study of the ability of CQ, when added to 5-FU to overcome the loss of effectiveness over time of 5-FU......Does not mention combos such as FOLFOX, which also contains 5-FU.......Also, another study…
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Here we go again
In the process of getting screened for my new clinical trial they discovered that I have new liver lesions and in addition, metastasis to the lungs. I have 3 new liver lesions for a total of seven and I have 4 small lung lesions that are on both sides. I always try to have an upbeat attitude and my mood has been pretty…
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mom diagnosed with IIIC need help
My mom is 70 and was recently diagnosed with stage IIIC. She has had her first chemo treatment, but she is very weak. WE don't know how to help her psychologically or physically. Her spirit seems good, but the rest of us are depressed. Although she is the one that is sick, the rest of us are depressed. My siseter and i…
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Good!
Just wanted to update on my post the other day. My CEA was wonderful! I'm so grateful, and I just pray that all of my friends here will be as blessed with recovery as I have been. *hugs* Gail
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THought i would post this alone from another response - just fyi
Please don't take this as advice! This is what I do!!!! NOT RECOMMENDING IT, JUST FYI FOR THOSE THAT ARE LOOKING TO MAINTAIN A HEALTHY LIFE STYLE OF EATING. I would not take the supplements while on chemo, without asking your ONC. To be healed has some great advice. Basically, anything that helps boost the immune system I…
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Highway Patrol
I was stopped by the man last month coming back from chemo. He said I had been swerving a little and he wanted to check if I had been drinking. I told him where I had been and we had a long discussion. As it turns out we're nearly neighbors and I invited him to fish my pond. During our discussion, he asked how I had known…
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when do you undergo radiation
My mom is 3c and is undergoing chemo but no radiation treatments have been mentioned. When do they usually bring in radiation?
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Why is Holland so green?
Because, first thing in the morning, the sun is up and shining...birds singing, etc... Then, about noon, it gets rather humid. Still blue skies, but for the Dutch, they know what's coming... About 5 or 6pm, the sky is completely cloudy. An hour later, it rains. Not JUST rain, tho...POURING rain, SHEETS of it, with wind,…
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Potty Talk Part Deux - a wierd question
If there's one place we can talk about poop, it's on the semi-colon board. Well here goes - is it unusual or cause for concern that I've been poopin' alot during the past week or so when I consumed alot of cucumbers? I've been eating cucumber salads like mad- cukes, oill,vinegar,herbs.....it's making me nervous, like Uh…
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Folfori + Avastin Rash??
Hi Everyone, **** had his 2nd round (actually his 14th but 2nd for this time) of Folfori + Avastin last Wednesday - Friday. After unhooking he went for a swim with our dogs in the ocean. Later he noticed a red rash on both inner thighs. We think it is a jelly fish (Portuguese Man o War) sting but just want to check that it…
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As I enter July.....
I am one year and a month since my liver resection and being cancer free, And almost 2 years since I was first diagnosed!! Here's to another year, and hopefully more! I can honestly say that I have never been as happy as I am now, in my relationship with my husband, daughters and my beliefs. I am eating healthy, keeping…
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Surgery next week
My Dad is having 12 inches of his colon removed next Tuesday. As his caregiver, can anyone tell me what to expect?
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More good news
After the worst 15 months of my life, I got the results from my PET/CT and MRI and was given the "all clear"! Had a little scare when the PET/CT showed some 'metabolic activity' in the liver, but the MRI came back completely normal (what a great word!). Still have 2 more surgeries to go ----- one in September to redo my…
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Nice column in this morning's SF Chronicle
http://www.sfgate.com/columnists/carroll/
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Vectibix
I'm going to be starting Vectibix in two weeks. Does anyone have experience with this as opposed to Erbitux?.I am and will be continuing Irinotecan. Any info would be helpful. My doctor has not used it before. Thanks Valerie
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Recently diagnosed and trying to stay strong
I came across this board while researching colon cancer. I am a 43 year old female that lives in Orange County, California. I was diagnosed in March 2010 with stage 4 c.c. I had a colon resection, mass removed near ovaries, hysterectomy, and 2 small spots on liver removed. My PET scan after surgery showed NED of cancer. I…
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Hot off the presses
Varian Medical Systems to Exhibit TrueBeam™ System and RapidArc Radiotherapy Enhancements at 2010 American Association of Physicists in Medicine (AAPM) Meeting PHILADELPHIA, July 14 /PRNewswire-FirstCall/ -- Varian Medical Systems' new TrueBeam™ system for image-guided radiotherapy and radiosurgery will be publicly…
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CEA rise then dip on CPT-11
I've had 2 rounds of Xeliri +Avastic. My CEA rose :( Only 2 cycles so far so we're gonna try another 2 before checking again. My onc said he's aware that, with Oxaliplatin, CEA can rise at first then fall dramatically -- due to cancer cell death (necro-something). I remember have heard that theory on the board before. But,…
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Update...
I thought I had posted this so please forgive me if there is a duplicate floating around.. I am the one who wrote last week about my dad being down just sitting and staring.. Well we got some good news from his latest CT (his CEA had been rising up to 4).. It showed the tumors had shrunk so more (last scan they were…
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Potty talk.....
I can't live another day without describing my toilet experiences with my special semi-colons.... On the ship, it all flushed with a vengence...spraying everything in sight...not good for a 'frequent flyer' like myself... Now, in Europe, many restrooms are unisex...In Rome, we stopped for lunch at a small restaurant with…
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How should I handle flipant radation tech
I try and treat everyone really nice and have a sense of humor as I go through this process and not think I'm the only one in the world. That being said a new radition tech as been added to my team and I just can't stand her whole atitude. My usual one is wonderful and all the people who have helped him have been…
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Scared Daughter
My first post every. I could use some encouragement for me to share with my mother. Five years ago my mom was diagnosed with breast cancer (had surgery, chemo, raditation). Two years ago she had colon cancer, a different cancer than the breast (had surgery, chemo,raditation). Her counts went up about a month ago and she…
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colonoscopy
i have never had one. last time i saw my onc he said i needed one. then upon examination he saw the colostomy and said oh i forgot about that. so he did not schedule one. can you get a colonoscopy with a ostomy? i've been having abdominal cramps and it is worrying me.