Having colostomy moved I think.

qwe

Hi I have not been here for a wail but I would like to know if any one ever had a colostomy moved and what you went through after surgery? Mine is low med - section and have had 2 surgerys after the first one on March 26 2009 it is flat tried all kinds of supplies so it won't leek under the barrier it gets sores and red rash and my skin will bleed I can't live like this my whole life.
I am going to see my DR. on july 27TH to give me a referral to a surgeon who deals with moving colostomy my stoma nurse said they can move them if you are having a big issue with it.

I need you support I am going to FL to see my sister I have not seen in 20 years on July 20TH will be back on the 26TH so if you don't see me it is cause I'm down there.

Annabelle41415

Hey there kiddo
I've always thought about you and wrote to you on our anniversary March 26, 2009, surgery date. You always mentioned that it was flat. I'm sorry you are having a problem with it but when I'd have to deal with mine it was a nice heighth. For one thing, you shouldn't go back to the doctor that put this one in. Keep us informed as to what is going on. Have a wonderful visit with your sister. Tell hubby hi for me. Think about you often. And still think about smoking. Wow if it wouldn't hurt me I'd light up in a minute. Hope you are still smoke free.

Kim

John23

qwe -
I guess I have to ask.... Have you tried a convex appliance?

Not all stomas are made well, and some of us have to live with
what can be difficult to change. The manufacturers all make
appliances to conform to difficult conditions, and sometimes
we need to experiment awhile to figure out what's best.

I had an Ileostomy since 2006. The first six months were living
hell. The wafer would not stay on for any great length of time,
and every nurse that tried to help, just made conditions worse.

I finally found out a better way, and solved the problem. I went
from not being able to keep a wafer on for more than 4 hours,
to having a wafer last 2-3 weeks average.

In January of 2011, I had been bestowed a second Ileostomy,
one that was not formed correctly, is on a hernia and a fold of skin.

I now not only have a high-output Ileostomy, but a "short bowel"
syndrome along with it, And.... the original stoma still has to be
maintained, since it still has an unknown amount of intestine
connected to it.

The new stoma? After six months of hell, I am finally finding what
may work best. I am slowly going from one day or less of wear-time,
to six days of wear-time.

I'm telling you this to let you know that adverse conditions can be
remedied without surgery. There are appliances that can help in
situations like yours, but you have to take some time to figure it out.

Each abdominal surgical event can (and usually does) cause more
adhesions and hernias. Both are worse than a poorly designed stoma.

My adhesions are so intense, that another intestinal blockage may
end up being the cause of my death. My insides are said to appear
as if it is a solid white mat. Any repair for a hernia, adhesion, blockage,
etc., would be near impossible. If nothing else, I would stand the chance
of losing the remaining small intestine during any surgical procedure.

I hate to scare you, but if you have not discussed the adhesion and
hernia factors with your colorectal surgeon, you should do so prior
to deciding more surgery, especially elective surgery.

If you need assistance with your current appliance problem, there
are many of us here than can help. There is also the UOAA board,
that is dedicated to ostomies of all types.

The help is out here, do not be too shy to ask!

Stay well,

John

neons356

Just curious, does insurance
Just curious, does insurance cover it?

qwe

neons356 said:

Just curious, does insurance
Just curious, does insurance cover it?

Thank you all food for
Thank you all food for thought and yes neons356 insurance does pay if an on going situation calls for it like I can't fined a proper fit and I get bloody rashes and also lose work cause of it this problem came after I had surgery last Jan I have lumps and bumps under the barrier and I use stick-past wipes and put tape on the barrier and put papers towels under the bag in case it leeks
now that is no way to live if I can get it moved to a smooth place and have a stoma cause I do not have a stoma it's more like a tiny oval hole.

Now I know there are more people who have had the colostomy moved I would like to hear from you to.

VickiCO

qwe said:

Thank you all food for
Thank you all food for thought and yes neons356 insurance does pay if an on going situation calls for it like I can't fined a proper fit and I get bloody rashes and also lose work cause of it this problem came after I had surgery last Jan I have lumps and bumps under the barrier and I use stick-past wipes and put tape on the barrier and put papers towels under the bag in case it leeks
now that is no way to live if I can get it moved to a smooth place and have a stoma cause I do not have a stoma it's more like a tiny oval hole.

Now I know there are more people who have had the colostomy moved I would like to hear from you to.

Convex
Qwe,

I didn't have mine moved, but I did switch to convex wafers and it took care of my problems. My stoma does not stand up, it's perfectly flat, and I had blowouts and leaks constantly. Then an ostomy nurse who is also an ostomy patient told me to try convex - it was life changing. It's been over a year now and I am completely confident in my supplies, etc.

Worth talking to your doc or ostomy nurse about.

Many hugs, Vicki