-
NED
I am new at this and I want to ask a stupid question.....what is NED. I see it all the time but have no idea what it means. FB...sorry for being so stupid.
-
Dumb things people say
Most of you have probably experienced that people don't know what to say to you. In their nervousness to say the right thing, they often times say the wrong thing. During these times I think of smart a-- replies in my head. Here are a few of those stupid comment: "You guys situation makes me and my wife realize how lucky…
-
rehabilitation after abdominal surgery , something most of us have in common
I have been seeing a great physiotherapist for the last week. a week ago I started on static abdominal exercisers to strength core abdominal muscles. After being pretty focused on these exercises about 30 minutes a day, I have graduated to the machines. I still have a little too much fat to see my abdominal muscles but I…
-
Rough week ... would appreciate your thoughts.
Hello everyone and happy Friday! Personally, I am very excited that this horrid week has finally come to an end. My mother had her 2nd chemo cycle on Monday (FolFox6) ... first one went without a glitch with minor nausea and some bone pain due to the neulasta shot. Now on to the second treatment - visit with her oncologist…
-
HI MATES IT IS FRIDAY ,ANY INTERESTING PLAN FOR THE WEEKEND?
Going to Madrid to see the Pope! then coming the same day on hi speed train . Rest of the weekend going to the beach!. Hugs!
-
frustrated with onc
My husband was diagnosed with stage lV in February, at that time we were told there was no treatment or hope. We went to the University in Madison after the 13th treatment to hear that surgery is NOT out of the question (going to see surgical oncologist August 23rd) hoping to schedule surgery. We saw his ocologist today…
-
im getting scared again
Omg I hate this feeling . Tomorrow jorge is going to see the chemo doctor for blood work. And his Cea count will be done in April it was at 2.0 and last month it was 5.1 and jorge's last chemo 2weeks ago . He ended up with something that looks like a burn on chest . The chemo doctor said its from the chemo . Omg I'm…
-
1st post
Hi everyone, this is my first post, although I have been reading and learning from you all for a few months now. Although the stories are different the journey seems very familiar!!!! I am 1 year NED with stage 4....anxious now with a cat scan on thursday and onc appt on friday. Right now everything seems to worry me that…
-
Inspiring juicers!
Thanks so much for all you juicers out there. This morning my husband and I enjoyed our first morning of juice. Just knowing that you are doing one more thing to fight this disease is truly empowering. Keep posting your stories of being disease free and hopefully a year from now we will be able to do the same. We will take…
-
good news, feeling unexpectedly wonderful!!!
I did my first 3 monthly checkup today with blood tests. so cea 1/48 was less than 0.5ug/L. my white blood count has increased steedily from 2.9 to 4.6 in the last 4 months. the only area of weakness is my lymph which is 0.5 and it should be in the range 1-4 i am going to start taking a new supplement to boost this…
-
Sad announcement - Cathy L, aka Kate58
***UPDATE - I found someone that remembered her user name here, Kate58. I do not remember what screen name Cathy used here. There are a few of us that keep in close touch on FB, but the others in our group do not post here anymore, due to various reasons over the last year or so (between conflicts and off-topic problems…
-
Surgery
My husband was diagnosed in June with state 4 rectal cancer with mets in his liver. He had his 2nd FOLFOX chemo today. We were told that he would have 2-3 months of chemo, and then the chemo radiation combination and then the colon surgery. Does anybody else have a similar diagnosis and can offer some advice and…
-
Does anyone have a fistula
My husband developed an entercutaneous fistula after his surgery last August 25. He is stage 4 with mets to liver and lungs. He started chemo last April and his pet scan from last week was encouraging. His biggest problem is the fistula. Does anyone have one or had one and can give us some insight. He cannot have the…
-
Let the Scanxiety begin
Well, next week is the annual scan and Onc visit. I feel fine but always in the back of my mind is.... Is this the time something will show up? I try not to let it get to me, it is what it is,but the level of anxiety I am beginning to experience with the the impending tests makes my nuts. 2 years ago last week I had my…
-
Let the Scanxiety begin
Well, next week is the annual scan and Onc visit. I feel fine but always in the back of my mind is.... Is this the time something will show up? I try not to let it get to me, it is what it is,but the level of anxiety I am beginning to experience with the the impending tests makes my nuts. 2 years ago last week I had my…
-
Frustration
Roby asked me to post this question. He had his apr surgery May 16th. He is still draining from where his rectum use to be. Anyone else had this for a prolonged time? Surgeon says it may not stop till after his chemo treatments are over, he's not concerned about it, no infection. This is just getting old ya know, dealing…
-
Vitamin D. Interesting.
http://www.eurekalert.org/pub_releases/2011-08/vdio-ctv081611.php
-
Dr. starting me on ERBITUX- I don't think I want it any one have any suggestions
Greetings, Need anyones advice on ERBITUX- I used to be on here a few yrs ago (slammer, Amy) anyways now since I have been doing a year of chemo, 2 different types, with changed oncologist now, He wants to but me on irroteecan, avastin & this ERBITUX (cetuximab). I already received fisrt dose last week, but I am so…
-
Got some answers
I asked my colon cancer nurse navigator to assist me in getting more info from the radiologist that read my last two PET/CT scans. They talked about a node in my chest, and 2 in my abdomen that were still enlarged and active (but shrinking and getting less active). But with the abdomen, the wording was "for instance"…
-
"Popular Herbal Supplements May Adversely Affect Chemotherapy Treatment"
as per various website today, such as: medicalxpress.com/news/2011-08-popular-herbal-supplements-adversely-affect.html
-
A promising future ( I'm glad I like cheese)
As someone who is getting surgery next month which may result in a permanent colostomy, this article sounds promising to me.... Maybe someone can put the link in... Biologists grow replacement sphincters in mice…
-
Hi...new member
Hello All…. New to this forum but have been reading your entries for the last few days...ya'll are inspirational, informative and funny! I was diagnosed with Stage 4 colon cancer in January of this year, had surgery to remove cancerous polyp along with lymph nodes, and have been on chemo since March. I’m down to my last 2…
-
This Book is Becoming More About "US" Than Me ***** REVISED EXCERPT ****
I just experienced a pretty emotional moment and felt so strongly about it that I had to stop writing and come here for a minute. That's how strong it is. Got me choking up and teary eyes, even as I write here to you trying to tell you about it. I'm deep into Chapter XI "Recurrence" and it's another in a long saga of…
-
Exercise Discussion and Sharing Information with Your Medical Team
Pete posted an article about exercise and the benefit to CRC patients, though it may have been a bit confusing to some as his delivery (to me) came off as a bit militant where it did not need to be. It does raise the question: How do we share the information we read with our medical team? Using the review Pete brought our…
-
How do you know if your port is infected?
Hi, I was wondering if anyone has ever had their port be infected and how would you know. I'm having alot of pain with mine, when i sleep, move or touch it. Has anyone else had this problem? I feel like no one is listening to me and chalking it up to being paranoid. Can anyone give me any info. Thanks,
-
Recently diagnosed stage 1-3 may get the most benefit from walking therapy
Recently diagnosed stage 1-3 may get the most benefit from walking therapy Not much exercising being reported on the walking post, oh well thats life. I hope its being done anyway. I have have been exercising since diagnosis 3jun2010. Its just dawned on me that as most recurrances occur within the first couple of years,…
-
no right to complain, but...
I feel awful. Last Tuesday (the 9th) my aunt called me here at work and for the first 3 minutes the conversation was fine, then something set her temper off and for the next 20 minutes she yelled, screamed and banged the phone at me. I have never, in my entire life, had anyone talk to me like she did. She hung up on me and…
-
Norms for Scan
What is the norm for scans, if you know. Know two people that had colorectal cancer (neither one of them post on this board). Jane found out she had cancer about the same time as me and also had surgery the same time as me. Betty found out about 9 months after me and had surgery 11 months after me. Both Jane and Betty (not…
-
Onc has finally broken the news
My parents still believed that mum could rid of her cancer altogether with the chemo - they went for a second opinion this morning and the onc broke the news that her cancer will always be there and that the only option is chemo for life. They're devastated as you could expect, given how badly mum is doing with the chemo I…
-
Cancer is back on liver
Hi, probably alot of you don't rem me.. I was dx in 2003 and have been in remission. My husband however was dx in 2008 with colon ca had a liver resection in 2009. He was taking Avastin for spots on his lung that showed on a ct scan, and it caused him to have congestive heart failure. That chemo was stopped and he has been…