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SIR-Spheres
My husband, Randy, is scheduled to have the SIR-Spheres next month at MD Anderson in Houston. He has cc IV, has had folfox w/avastin (13 treatments) and 8 rounds of Irinotecan w/Erbitux. The folfox stopped working and the other never worked. He has several large mets on his liver and cannot have a resection. My question is…
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Had a "moment" at class last night - Donna
I was at Zumba class and about half way thru the class I catch a glimpse of a young woman on the other side of the room- it just thunder-struck me the similar looks as Donna's picture she used here at the site- The bangs, the gorgeous smile, the shape of her face. I just kind of froze and teared up..took me a while to…
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Donna
It is a year since we lost Donna, I miss seeing her beautiful face on here. Please say a prayer for her, she was very loved on this board.
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Calm before the storm/ Warning: questions about end of life
In my other post, I talked about how I am on a break from chemo after 9 treatments, and a lot of bad side effects. Now that I have been off chemo for approx 3 months, I have recovered and feel pretty good except for some occasional pain, severe neuropathy in my hands and feet, and chemo fog. Life is wonderful, compared…
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dam blood
the day after the onc visit last week i had some bright red blood again. the last time was 20 june a week before my fiji holiday. all checked out, all clear given then. was it just a popped blood vessel. in my first 3 monthly on checkup. the first question my onc asked me was "any blood ?" i said no, none. bowels have been…
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ot....a good song
just wanted to share this with you all.sometimes when i get on here people post funny videos or songs that really uplift me or make me laugh.Martina McBride has a new song out."Im gonna love you through it"i dont know how to post a link to it.i just go to youtube and you can hear it and see the video also.this song will…
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Start chemo Friday
I finally have a plan for chemo. I will be doing folfox every two weeks, taking a pump home for the weekend. This will last for six months. I'm stage IIIb. Is this a typical regimen? My onc said only about 30 percent of people lose their hair. I know a lot of other people who have had different kinds of cancer and they all…
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Muttering to myself
I'll be off the rest of the night, muttering to myself, be out in the back yard saying a few words not fit for family (i.e., grandson) ears in the house. Got some f words to get out. Nothing bad happening in my realm, but I'm getting really f-ing mad over anyone else's bad news and the thing I'm f-ing p!ssed off at is…
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ColonPalooza 9 Chicago October 13-16
If you are attending CP9 and we haven't touched base yet- please IM me with your contact information. I believe I have been in contact will all who are staying at the Embassy Suites, but I may not know if you are coming if you are staying at another hotel or live close enough to join us for the scheduled events. I would…
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Drug shortages article and price gouging
I copied and pasted below an article from msnbc online news about the drug shortage and how it's affecting cancer patients- lots of price gouging going on- pretty awful! ----------------------------- Critical lack of drugs called 'pressing public health issue' Below: WASHINGTON — Federal officials and lawmakers, along with…
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Break from Chemo, then Xeloda?
Dec 2010 stage 4 cancer diagnosis January 2011 start 5 fu, Folfox w/Avastin completed approx 5 treatments, had to drop Avastin due to severe blood clots. Remaining 4 treatments w 5fu, Folfox, then developed Pleurisy and had to take a break from treatment. So, I completed a total of 9 treatments. Have been on about a 3…
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Brown bagging chemotherapy drugs
My husband is currently receiving FOLFOX with avastin for stage 4 rectal cancer. The company he works for is self insured and after seeing the bill for the first chemo told him to check with his doctor to see if they would allow us to bring our own chemo....Has anyone had any experience with this. Our doctor has said that…
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Happy Birthday Beth!!!! .....dorookie
You didn't really think you were gonna slide in here and no one say nutin did ya????? oh...HELL NO! HAPPY HAPPY BIRTHDAY...and many many many more!!!! Luv you my friend..... bottoms up in Chi town!!! Jennie
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What is the little happy pill?
I read some posts before and some of you referred to an antidepressant as a little happy pill. My dad is on Paxil and doesnt feel it is "uplifting his spirits" enough. Any suggestions? I tried to find the posts I read a couple weeks ago where someone referred to a pill that starts with a V and I cant find it. He is going…
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Any suggestions on gaining weight???
My dad is stage 4 colon. I post for him all the time cuz he has a neurological disease which makes him shake alot and cannot type. He is down to 145lbs. He is 5'9. Having trouble wanting to eat, liking any food and has NO appetite. Any suggestions???
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Hiccups
Hi all, I haven't seen this mentioned before, so I was wondering if anyone has experienced constant hiccups after chemo? Rick is on Folfiri/Avastin, and every time he receives treatment he hiccups every 10 seconds for hours at a time (it's now been four hours straight as I type this). The hiccups are bad for at least two…
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Hope for us all...
I am sort of new around here and to this dreadful disease. My husband was diagosed in Feb.(stage IV with large mets all over liver) this year. When first diagnosed we were given no hope and told to do the chemo if we wanted 2 years but that was the best we could hope for. I want to share the good news about my husband but…
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Left high and dry by BCBS regarding Xeloda
Hi again everyone. I am supposed to start Xeolda on Friday, adjuvant therapy for stage IIIA colon cancer. Because it is regarded as a "Specialty pharmacy" by BCBS and taken at home, it is not covered as chemo as my Oxaliplatin is. I do not have pharmaceuticals on my policy. Anyone dealing with this? I'm distraught. It's…
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a big day daughter turns 10 today at 5.45pm to be precise
Its been a great day i wanted to share. Its started with an 8am visit to my naturiopath who has been away for a few weeks. so i see her with my box of the 40 supplements approx, my blood tests, some new research. I update her on the gym and my physio and my great results from the oncologist. we agree to do live blood…
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Checking in....
Hey Guys..... Thanks so much for keeping an eye on me. Makes me feel good that Ya'll care that much. Sorry it took so long to check in but I just haven't felt like talking. I have been doing a lot of research on different options to treat my lung mets. Next week is a big week for me. I will be talking to several new…
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KathiM !
Not pics of the cruise yet?. Tot ziens !
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Food philosophies
It has been fun and interesting to read everyone's thoughts on nutrition. So I thought I would share what I feel (through study and prayer) is right for me. Isn't it great that we can all work out for ourselves what is best for each of us? Abundant vegetables and fruit (I like to blend, rather than juice. Or I eat them…
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Back from ER....
Went to ER this morning after talking to my PC doc. They ran blood/urine/CT/xray. They have no idea why area by my naval hurting. I have nothing there to hurt. I do have a hernia above naval that is small and not of concern. Other than that the entire stomach cavity is clean with all organs intact and not even a lymph node…
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Delaying chemotheraphy in between
My mother underwent the surgery for - Stage 3c Colorectal cancer. And she has completed her first chemo and then radiation 3 weeks back . Her 2nd chemo is due this week and she needs to start by 26th. But she wants to delay the chemo by 1 week and wants to start from 2nd september. Is that ok? Can we delay the chemo by 1…
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Marinol?
Anyone on this? Any thoughts?
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Do An Act of Kindness
Hello All, Sometimes we need to take a step back and take a look at ourselves.Do a Act of Kindness for Someone. The last 3 weeks have been crazy with bring Dennis home from the hospital and making the decision to do Hospice in or home. During the last 3 weeks I have even questioned myself, can I do this? But in my heart I…
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10 yrs Stage III Still kickin'!
Hello all you wonderful Semi-Colons! Yesterday was my 10 year I HAVE LIVED BEYOND CANCER anniversary day. Just wanted to pop in here to give hope and encouragement to everyone on this journey. I remember well the intense fear and foreboding that accompanied my cancer diagnosis, not to mention the feelings of isolation that…
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Not good news today
I honestly am not sure why I felt like I needed to write this tonight. Maybe a selfish need to just get it out. I was dx with Stage IV colon cancer in July of 2009. Since then it has been a roller coaster. Declared NED in April of 2010 only to find out in Sept 2010 that I have a recurrence in my ovary. I had surgery, did…
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CEA
hey guys what kind of things can make your cea count go up other then cancer growing thank you all hugs tina
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Feeling Hopeful Today
I measure the quality of my days by how hopeful I feel. Today is a good day. We met with husband's oncologist prior to chemo. I came armed with questions thanks to my discussion board friends. My first question was in regard to a 2nd opinion by an oncological surgeon. I had read about the HIPEC surgery on the discussion…