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just wanted to say hello
Just wanted to say hello to everyone hope everyone is doing well hugs Tina
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To eat..or not to eat...that is the question
Hi everyone. Scheduled for first Oxaliplatin infusion and Xeloda tomorrow. Onc didn't tell me if I should eat prior to this. I get it mid morning. What do ya think? Mary
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Good news today
I found out today that only after 2 treatments my cancer marker went down 439 points. Praise the Lord.
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just4Brooks - anyone heard from him lately?
I was wondering if anyone had heard from Brooks.
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In a Nutshell
I just got home from Nashville...........Not real good but I am still here, and as long as I can put 2 feet on a cool floor every morning all will be well, after that, well, I won't have much say in it anyway..... The path reports came back on the 2 areas that were "thought" to be inflammation. Turns out its cancer as well…
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OT Gotta get out of Irene's way
Ugh. NJ has declared a mandatory evacuation of Cape May county for tomorrow. I was hoping it would just be a voluntary one and I could hunker down. Oh well, I stowed my outdoor stuff in the shed and now have to figure out whether to board the dog in PA and stay with my girlfriend or take the dog and stay with my sister.…
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hi
Dear All, As some of you may remember, I am a caregiver to my wife, who was diagnosed with 3B cancer in January. I did not post for long time because i was too depress about the loss of some wonderful people on this board.......and also actually there were not some good news about my wife.....low white blood cells, port…
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sad day for Canada
Hello my dear forum buddies.....as usual i have been in the north woods all summer in my little cabin. Tonight we decided to drive over to the US for a little break before going home....we are on Drummond Island Michigan in a nice wee hotel with running water and wifi and electricity and a washroom....haha all things we do…
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Anne Can RIP.
Up
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I was bad on my birthday
I have been doing a lot of walking (3.5 miles in 45 minutes every day) and trying to avoid fatty foods. I recieved a $50 gift card to a local eatery and ate a 1600 calorie meal. I hope a one time lapse doesn't hurt my body too much!!
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Hi mates it is FRIDAY! any interesting plan for the weekend?
Here is raining ,hope better time tomorrow then Beach!
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Something to think about..............when expressing yourself
Something I just learned.....Some of my family members are logging on in here and reading all that I have placed in posts. Somethings just don't need to be read. Please be careful if and when you place something in here that you may not want people you care about reading. It may save them a lot of agony. Im am really…
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starting my treatments soon
I am very nervous about my upcomming radiation and Chemo treatements. Have already made it through the colon removal surgery and am learning to live with the iliostomy bag. are their any words of wisdom for my fears? Appreciate any.
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Plans are shaping up....
Wow.... major change up. My guts have politely requested me to kick CPT-11 in the booty. No more diarrhea can be tolerated so I stopped all chemo ..for now. I told Onc I want to move on to another option. I have a few I am going to do actually. I see a new doc next week who is the head of thoracic surgery at St. Louis…
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Give Your Children a BIG Hug tonight......
I don't comment very often but I do read daily and you guys are always in my thoughts and imprinted on my heart. Sadness fills my heart tonight as I am grieving the loss of my nieces son. His name was Dylan Frick and was only 10 years old. He passed away from this horrible disease (brainstem glioma)two weeeks ago. I find…
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SIR-Spheres
My husband, Randy, is scheduled to have the SIR-Spheres next month at MD Anderson in Houston. He has cc IV, has had folfox w/avastin (13 treatments) and 8 rounds of Irinotecan w/Erbitux. The folfox stopped working and the other never worked. He has several large mets on his liver and cannot have a resection. My question is…
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Had a "moment" at class last night - Donna
I was at Zumba class and about half way thru the class I catch a glimpse of a young woman on the other side of the room- it just thunder-struck me the similar looks as Donna's picture she used here at the site- The bangs, the gorgeous smile, the shape of her face. I just kind of froze and teared up..took me a while to…
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Donna
It is a year since we lost Donna, I miss seeing her beautiful face on here. Please say a prayer for her, she was very loved on this board.
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Calm before the storm/ Warning: questions about end of life
In my other post, I talked about how I am on a break from chemo after 9 treatments, and a lot of bad side effects. Now that I have been off chemo for approx 3 months, I have recovered and feel pretty good except for some occasional pain, severe neuropathy in my hands and feet, and chemo fog. Life is wonderful, compared…
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dam blood
the day after the onc visit last week i had some bright red blood again. the last time was 20 june a week before my fiji holiday. all checked out, all clear given then. was it just a popped blood vessel. in my first 3 monthly on checkup. the first question my onc asked me was "any blood ?" i said no, none. bowels have been…
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ot....a good song
just wanted to share this with you all.sometimes when i get on here people post funny videos or songs that really uplift me or make me laugh.Martina McBride has a new song out."Im gonna love you through it"i dont know how to post a link to it.i just go to youtube and you can hear it and see the video also.this song will…
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Start chemo Friday
I finally have a plan for chemo. I will be doing folfox every two weeks, taking a pump home for the weekend. This will last for six months. I'm stage IIIb. Is this a typical regimen? My onc said only about 30 percent of people lose their hair. I know a lot of other people who have had different kinds of cancer and they all…
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Muttering to myself
I'll be off the rest of the night, muttering to myself, be out in the back yard saying a few words not fit for family (i.e., grandson) ears in the house. Got some f words to get out. Nothing bad happening in my realm, but I'm getting really f-ing mad over anyone else's bad news and the thing I'm f-ing p!ssed off at is…
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ColonPalooza 9 Chicago October 13-16
If you are attending CP9 and we haven't touched base yet- please IM me with your contact information. I believe I have been in contact will all who are staying at the Embassy Suites, but I may not know if you are coming if you are staying at another hotel or live close enough to join us for the scheduled events. I would…
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Drug shortages article and price gouging
I copied and pasted below an article from msnbc online news about the drug shortage and how it's affecting cancer patients- lots of price gouging going on- pretty awful! ----------------------------- Critical lack of drugs called 'pressing public health issue' Below: WASHINGTON — Federal officials and lawmakers, along with…
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Break from Chemo, then Xeloda?
Dec 2010 stage 4 cancer diagnosis January 2011 start 5 fu, Folfox w/Avastin completed approx 5 treatments, had to drop Avastin due to severe blood clots. Remaining 4 treatments w 5fu, Folfox, then developed Pleurisy and had to take a break from treatment. So, I completed a total of 9 treatments. Have been on about a 3…
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Brown bagging chemotherapy drugs
My husband is currently receiving FOLFOX with avastin for stage 4 rectal cancer. The company he works for is self insured and after seeing the bill for the first chemo told him to check with his doctor to see if they would allow us to bring our own chemo....Has anyone had any experience with this. Our doctor has said that…
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Happy Birthday Beth!!!! .....dorookie
You didn't really think you were gonna slide in here and no one say nutin did ya????? oh...HELL NO! HAPPY HAPPY BIRTHDAY...and many many many more!!!! Luv you my friend..... bottoms up in Chi town!!! Jennie
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What is the little happy pill?
I read some posts before and some of you referred to an antidepressant as a little happy pill. My dad is on Paxil and doesnt feel it is "uplifting his spirits" enough. Any suggestions? I tried to find the posts I read a couple weeks ago where someone referred to a pill that starts with a V and I cant find it. He is going…
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Any suggestions on gaining weight???
My dad is stage 4 colon. I post for him all the time cuz he has a neurological disease which makes him shake alot and cannot type. He is down to 145lbs. He is 5'9. Having trouble wanting to eat, liking any food and has NO appetite. Any suggestions???