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5.9 Earthquake on East Coast
Felt up here in NY. Epicenter in Virginia. Minimal damage it seems. It's always something isn't it...
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New Chemo Regime Working
But it's kicking my wife worse than FOLFOX. The regime, Xeloda, Irinotecan, Avastin, Neulasta has brought the CEA down from 432 to 174!!! But she is more tired and mentally down this time. I sat on her yesterday to make sure she drank plenty of fluids. From reading the newsgroup, this regime causes dehydration, so I'm on…
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Calling tomorrow
well guys im calling tomorrow to get jorge's CEA count im so scared on friday the doctor was talking about the CEA count and told us that the cancer can be growing because back in april the count was at 2.0 and a month it was 5.1 .i so mope its not growing hugs to all Tina
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Earthquake in Maryland
Yes I'm a wimp! It felt like the building was being shoved sideways. Scary. I hope all on the east coast are OK. Best
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any stage ll colon cancer out there?
Hi all, I went for my post op check up yesterday and my surgeon said my cancer was stageIIa. he took out 43 lymph nodes and all of my colon and all nodes were clear. He said that he would not recommend chemo because the chances of survival only incresaes by 3% and the effects of chemo outway the 3%. He still referred me to…
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Avgame looks like another scammer. Greta- help!
It makes me so mad when I see scammers like this messing with us!! Makes me want to kick some booty!!!
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little bleeding after PET/CAT scan
Anyone ever have small amount (like a drop) of bleeding after scans. Last time thought maybe it was from Avastin, but today had scans and had a small amount either from urethral or (the other) area. As far as I know, I don't have kidney disease. Just another thing to worry about, i guess...sigh.
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Anyone used or heard of this.....any opinions ?
Photodynamic Therapy......I will check into this after my appt Wednesday at Vandy...They offer this at The Jewish Hospital in Louisville Ky..... What is photodynamic therapy? Photodynamic therapy (PDT) is a medical treatment that uses a photosensitizing drug (a drug that becomes activated by light exposure) and a light…
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Making plans - a good thing
Hi Everyone, Well I am happy to say that our family has been enjoying the beginning of our vacation in Massachusetts. When we made plans back in January 2011 for this summer, it seemed so far off. I was hesitant to book airline tickets and a house on Cape Cod. We made sure everything was refundable. We booked everything…
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Has anyone had HIPEC in the state of Florida?
I may be a candidate for HIPEC and am looking for the best surgeon and hospital. It would be great if I could stay in Florida for insurance purposes, but I also want a surgeon and hospital with lots of experience in this procedure. I have been told by my oncologist that Dr. Lavine and or Dr. Sugarbaker are the best in the…
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Upset and scared *Update*
I get a call from my partner telling me my ONC office called to remind me of my appointment, then I panicked, I don't have an appointment, do I and for what? Not supposed to do scans till Sept, then I started counting to my last scan and sure enough its been 3 months. I called my ONC office to find out what time the scan…
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Anyone have strange sensations during infusion of Oxaliplatin?
Hi, having my first infusion of Oxaliplatin on Friday in combination with 14 days of Xeloda. Heard there were some side effects during the infusion. Can anyone shed any light on that for me. Just would like to be prepared. All the best to everyone. Mary
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Probiotics
Any one take Probiotics and know if they are safe for us to take? Are we considered to have a compromised immune system, even we we are not currently on chemo and NED? I have read the web but they of course refer you to your doctor if you do have a compromised immune system.....just wondering if anyone has done any…
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HIPEC costs
Hi First post on here, so bear with me. I live with my partner of 10 years in Surrey, England, he is a 33yr old african american who was diagnosed with colon cancer in Aug 2009. Since then he has had the colon resected to remove the primary tumour (sucessful), 6 rounds of chemo, followed by a liver resection. liver mets…
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Need your quick opinion...Go to Hospital..or not????
I don't know what to do. I have a full week planned next week with various doctors BUT..I have a few ongoing issues I may need to address before I can even put that foot forward. Here's the deal. I have had a hoarse barking cough for over a month now. Onc gave me some swish and swallow crap that was useless. Not coughing…
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Help! Can't keep anything in stomach
I did six months of folfox in 2008. I now have 3 lung nodes and a possible stomach node. Went in Wednesday for oxaliplatin and avastin. I haven't been able to keep anything in my stomach since. Any tips for drink or food to help? Thanks. Rebecca
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Healthy ideas for those finished with treatments for CRC
Gail (plh4gail) asked on another thread what kinds of things she should/could be doing now that her western treatments (surgeries, chemo, radiation) are finished. I thought it was a great question and deserved its’ own thread. My situation was dire so many will look upon my list as extreme but I just can’t argue with…
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First chemo today went awry..anybody else have this problem or know anything from experience?
I am Stage IV with mets to the liver that were removed in surgery nine weeks ago. My first chemo was scheduled at 11 a.m. today (had my port put in surgically on Monday and just over that). They let me sit about an hour and a half before calling my name. I finally went to the receptionist to ask what the problem was, as…
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Enlarged lymph node in the neck
Hi, I was diagnosed stage 3 rectal/sigmoid cancer in Aug/Sep 2008 at 37 years old.I recently found a lump in the right side of my neck close to my ear (not subclavicle). My recent CT scans of the body were clean except for a simple cyst in my kidney. A CT scan of the head and neck showed an enlarged lymph node (the one on…
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For better or for worse
For better or for worse, in sickness and in health. Today we celebrate our 40th wedding anniversary.. We are going to dine out which hasn't been very successful previously on chemo. However I timed my Xeloda as well as took other precautionary steps. Actually, the food is not that important. I will be with my most…
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Long term treatment management
I was diagnosed with stage 4 cancer with met to lung in year 2007. After my operation in year 1, I have started with my chemo treatment and continuouly doing chemo treatement year after years with chemo break in between 3-6 months depeding of cancer progression. Until this year (year 4) when all the chemo drug failed to…
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Well...In my eyes I just got my miracle I asked for.....judge for yourself...
Take it however you want to, but I think I just received the miracle I asked for. Let me tell the short leading up to story before the ending... I was checked and CEA elevating up...I knew that something was up. PET scan showed approx 2-3 cm spot lite up around the Hilum area...Figure its cancer back, CEA tracks it pretty…
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Radiation Side Effects
Hi all, I just completed my third week of radiation and the side effects are kicking in big time. I have severe diarrhea and have been taking Immodium but wondered if anyone has advice for using Immodium and/or other dietary advice. I am using sitz baths and Aquaphor for the anal sores which helps some but it is still…
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She thinks we are seeing too much of each other...
...If I only had a nickel for the number of times I have heard this in my life! In this case it is good! news. My onc says that since I have been responding so well to my treatment, we should only meet once a month. I still have biweekly chemo, but will only do the doctor's visit every other time. Sorry for the provocative…
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Just sharing a little of my small stuff....
I know this is such a minor complaint compared to what some of us are living with. But here I am and I will go on anyway. I have to wear a pad everyday. (I won't go into the details but if anyone REALLY wants to know, of course I don't mind telling you.) Learned to live with it. Not a big deal. Who cares anymore that I've…
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Juice
I always see this on posts.....why don't the doctors ever tell you to do that? FM
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I ate a donut
But you have to understand, it was the best donut ever--not the stale grocery store kind that you think you're going to like but don't. This one was worth all the passing up of goodies that I've been doing for months now. :) Biz
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Newly diagnosed with stage III colon cancer starting on xeloda/oxaliplatin
Hi everyone, Diagnosed end of June, surgery 08/01/11 and I'm starting Xeloda with Oxaliplatin 08/26/11. I went from being a 64 year old, never a sick day in my life, no surgeries....to having cancer. I'm overwhelmed. Have a very good pcp, gastroenterologist and my surgeon was great! All very optomistic. However, had my…
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Let the Scanxiety begin
Well, next week is the annual scan and Onc visit. I feel fine but always in the back of my mind is.... Is this the time something will show up? I try not to let it get to me, it is what it is,but the level of anxiety I am beginning to experience with the the impending tests makes my nuts. 2 years ago last week I had my…
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Do you know anything about idlehunters ,( Jennie ).
No news lately!