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Probiotics
Any one take Probiotics and know if they are safe for us to take? Are we considered to have a compromised immune system, even we we are not currently on chemo and NED? I have read the web but they of course refer you to your doctor if you do have a compromised immune system.....just wondering if anyone has done any…
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HIPEC costs
Hi First post on here, so bear with me. I live with my partner of 10 years in Surrey, England, he is a 33yr old african american who was diagnosed with colon cancer in Aug 2009. Since then he has had the colon resected to remove the primary tumour (sucessful), 6 rounds of chemo, followed by a liver resection. liver mets…
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Need your quick opinion...Go to Hospital..or not????
I don't know what to do. I have a full week planned next week with various doctors BUT..I have a few ongoing issues I may need to address before I can even put that foot forward. Here's the deal. I have had a hoarse barking cough for over a month now. Onc gave me some swish and swallow crap that was useless. Not coughing…
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Help! Can't keep anything in stomach
I did six months of folfox in 2008. I now have 3 lung nodes and a possible stomach node. Went in Wednesday for oxaliplatin and avastin. I haven't been able to keep anything in my stomach since. Any tips for drink or food to help? Thanks. Rebecca
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Healthy ideas for those finished with treatments for CRC
Gail (plh4gail) asked on another thread what kinds of things she should/could be doing now that her western treatments (surgeries, chemo, radiation) are finished. I thought it was a great question and deserved its’ own thread. My situation was dire so many will look upon my list as extreme but I just can’t argue with…
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First chemo today went awry..anybody else have this problem or know anything from experience?
I am Stage IV with mets to the liver that were removed in surgery nine weeks ago. My first chemo was scheduled at 11 a.m. today (had my port put in surgically on Monday and just over that). They let me sit about an hour and a half before calling my name. I finally went to the receptionist to ask what the problem was, as…
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Enlarged lymph node in the neck
Hi, I was diagnosed stage 3 rectal/sigmoid cancer in Aug/Sep 2008 at 37 years old.I recently found a lump in the right side of my neck close to my ear (not subclavicle). My recent CT scans of the body were clean except for a simple cyst in my kidney. A CT scan of the head and neck showed an enlarged lymph node (the one on…
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For better or for worse
For better or for worse, in sickness and in health. Today we celebrate our 40th wedding anniversary.. We are going to dine out which hasn't been very successful previously on chemo. However I timed my Xeloda as well as took other precautionary steps. Actually, the food is not that important. I will be with my most…
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Long term treatment management
I was diagnosed with stage 4 cancer with met to lung in year 2007. After my operation in year 1, I have started with my chemo treatment and continuouly doing chemo treatement year after years with chemo break in between 3-6 months depeding of cancer progression. Until this year (year 4) when all the chemo drug failed to…
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Well...In my eyes I just got my miracle I asked for.....judge for yourself...
Take it however you want to, but I think I just received the miracle I asked for. Let me tell the short leading up to story before the ending... I was checked and CEA elevating up...I knew that something was up. PET scan showed approx 2-3 cm spot lite up around the Hilum area...Figure its cancer back, CEA tracks it pretty…
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Radiation Side Effects
Hi all, I just completed my third week of radiation and the side effects are kicking in big time. I have severe diarrhea and have been taking Immodium but wondered if anyone has advice for using Immodium and/or other dietary advice. I am using sitz baths and Aquaphor for the anal sores which helps some but it is still…
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She thinks we are seeing too much of each other...
...If I only had a nickel for the number of times I have heard this in my life! In this case it is good! news. My onc says that since I have been responding so well to my treatment, we should only meet once a month. I still have biweekly chemo, but will only do the doctor's visit every other time. Sorry for the provocative…
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Just sharing a little of my small stuff....
I know this is such a minor complaint compared to what some of us are living with. But here I am and I will go on anyway. I have to wear a pad everyday. (I won't go into the details but if anyone REALLY wants to know, of course I don't mind telling you.) Learned to live with it. Not a big deal. Who cares anymore that I've…
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Juice
I always see this on posts.....why don't the doctors ever tell you to do that? FM
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I ate a donut
But you have to understand, it was the best donut ever--not the stale grocery store kind that you think you're going to like but don't. This one was worth all the passing up of goodies that I've been doing for months now. :) Biz
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Newly diagnosed with stage III colon cancer starting on xeloda/oxaliplatin
Hi everyone, Diagnosed end of June, surgery 08/01/11 and I'm starting Xeloda with Oxaliplatin 08/26/11. I went from being a 64 year old, never a sick day in my life, no surgeries....to having cancer. I'm overwhelmed. Have a very good pcp, gastroenterologist and my surgeon was great! All very optomistic. However, had my…
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Let the Scanxiety begin
Well, next week is the annual scan and Onc visit. I feel fine but always in the back of my mind is.... Is this the time something will show up? I try not to let it get to me, it is what it is,but the level of anxiety I am beginning to experience with the the impending tests makes my nuts. 2 years ago last week I had my…
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Do you know anything about idlehunters ,( Jennie ).
No news lately!
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NED
I am new at this and I want to ask a stupid question.....what is NED. I see it all the time but have no idea what it means. FB...sorry for being so stupid.
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Dumb things people say
Most of you have probably experienced that people don't know what to say to you. In their nervousness to say the right thing, they often times say the wrong thing. During these times I think of smart a-- replies in my head. Here are a few of those stupid comment: "You guys situation makes me and my wife realize how lucky…
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rehabilitation after abdominal surgery , something most of us have in common
I have been seeing a great physiotherapist for the last week. a week ago I started on static abdominal exercisers to strength core abdominal muscles. After being pretty focused on these exercises about 30 minutes a day, I have graduated to the machines. I still have a little too much fat to see my abdominal muscles but I…
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Rough week ... would appreciate your thoughts.
Hello everyone and happy Friday! Personally, I am very excited that this horrid week has finally come to an end. My mother had her 2nd chemo cycle on Monday (FolFox6) ... first one went without a glitch with minor nausea and some bone pain due to the neulasta shot. Now on to the second treatment - visit with her oncologist…
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HI MATES IT IS FRIDAY ,ANY INTERESTING PLAN FOR THE WEEKEND?
Going to Madrid to see the Pope! then coming the same day on hi speed train . Rest of the weekend going to the beach!. Hugs!
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frustrated with onc
My husband was diagnosed with stage lV in February, at that time we were told there was no treatment or hope. We went to the University in Madison after the 13th treatment to hear that surgery is NOT out of the question (going to see surgical oncologist August 23rd) hoping to schedule surgery. We saw his ocologist today…
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im getting scared again
Omg I hate this feeling . Tomorrow jorge is going to see the chemo doctor for blood work. And his Cea count will be done in April it was at 2.0 and last month it was 5.1 and jorge's last chemo 2weeks ago . He ended up with something that looks like a burn on chest . The chemo doctor said its from the chemo . Omg I'm…
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1st post
Hi everyone, this is my first post, although I have been reading and learning from you all for a few months now. Although the stories are different the journey seems very familiar!!!! I am 1 year NED with stage 4....anxious now with a cat scan on thursday and onc appt on friday. Right now everything seems to worry me that…
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Inspiring juicers!
Thanks so much for all you juicers out there. This morning my husband and I enjoyed our first morning of juice. Just knowing that you are doing one more thing to fight this disease is truly empowering. Keep posting your stories of being disease free and hopefully a year from now we will be able to do the same. We will take…
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good news, feeling unexpectedly wonderful!!!
I did my first 3 monthly checkup today with blood tests. so cea 1/48 was less than 0.5ug/L. my white blood count has increased steedily from 2.9 to 4.6 in the last 4 months. the only area of weakness is my lymph which is 0.5 and it should be in the range 1-4 i am going to start taking a new supplement to boost this…
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Sad announcement - Cathy L, aka Kate58
***UPDATE - I found someone that remembered her user name here, Kate58. I do not remember what screen name Cathy used here. There are a few of us that keep in close touch on FB, but the others in our group do not post here anymore, due to various reasons over the last year or so (between conflicts and off-topic problems…
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Surgery
My husband was diagnosed in June with state 4 rectal cancer with mets in his liver. He had his 2nd FOLFOX chemo today. We were told that he would have 2-3 months of chemo, and then the chemo radiation combination and then the colon surgery. Does anybody else have a similar diagnosis and can offer some advice and…