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Learning to Live an Uncertain Life
NEDdish? NED-like? NEDesque? I can’t quite decide which word to choose to describe my present state. Think I might go with the last one, as it sounds all fancy and whatnot. Anyway, I’ve had two more scans since my thrilling NED scan in March. June’s PET showed an area of potential concern in the sigmoid colon (I still have…
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First Colonoscopy
Just returned from my first colonoscopy. Overall the experience was nowhere near as bad as I expected. The only thing that has be worried is they found two small polyps. When I woke up the doctor came in and said they found two very small polyps. I asked him if I should worry and he said no. They are testing them and he…
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Questions about later rounds of FolFox Treatment (just completed round 7 of 12)
Hello everyone. I just completed my 7th FolFox treatment. This round my platlettes were low so the doctor did not include the oxaliplatin this treatment. He is also planning to reduce the dossage. It seemed like the neurapathy symptoms were negligible by the time the next treatment rolled around. However, this treatment it…
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sulforaphane may help lower circulating tumour cells
only read this post if you have troule getting to sleep, or you were woken from a deep sleep with nappy problems or a massive coughing fit or both. this articles cures insomnia. so i have been hammering broccoli powder from my local supplier, i got this study from them today. its a bit complex to say the least. i got a…
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Liver scan ... Rising ALP
I thought I was doing well with my treatment. I just had Folfox treatment no 5 today. I have been feeling good. Just before my treatment the nurse told me that the Dr wants me to get an ultrasound of my liver and biliary tree? The reason... Rising alk phos... Alkaline phosphatase. Anyone ever have this? Does this mean…
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Any survivors of signent ring cell colorectal cancer
Hi my name is cheri my husband is 26 was diagnosed with signent ring cell colorectal cancer stage 4 in june 2012. He had surgery then to remove a foot of his colon when he was diagnosed along with several lymphnoids, the margins were clear so he started radiation in july along with chemo pills. One eek after starting that…
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surgery now scheduled
They scheduled my surgery for next week. Now I am getting really nervous! The surgen said the chemo and radiation shrank it more that he thought it would which is great! From the size of a silver dollar to the size of a dime. He still didn't really say if he could get me all reconnected or not. Not really sure how to…
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Nuerontin/Gabapentin- Should I or Shouldn't I?
Post folfox neuropathy- the more I walk or stand on me feet, the worse it gets. Onc prescribed Gabapentin- from my internet research on patient reviews, everyone gained weight and it was a 50/50 relief Anything else to keep the burning pain at bay when I walk ? I commute to work- drive to Train station, but being in the…
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free full text website, for budding researchers or if you were just curious
I found this on the lef website, just thought i would share it here, if any of our budding researchers wanted to try out these sites, i will in due course also. i wish i had found these months ago. but i found them today, here hoping it helps us raise our knowledge of health and gives us a fighting chance. who said a…
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HI MATES ! IT IS FRIDAY ! ANY INTERESTING PLAN FOR THE WEEKEND?
Don't know what to do ,I have the beach house ready to go but weather is terrible here and even worst forecasted! just thinking what to do! What about you mates?
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Anybody tried ursolic acid for CRC?
A friend of mine's dad is a senior researcher at Mayo, and he recommended I look into ursolic acid for my colon cancer. I googled and found several scientific articles where they showed good anti-colon cancer activity in human cancer cells (in vitro) and in animal models for colon cancer. Ursolic acid is found in some…
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Circadian Chemo schedule
"The circadian schedule was far less toxic, allowing almost 50% more drug to be safely given with substantially less toxicity than lower doses given by constant-rate infusion. This regimen was also found to have unexpected activity in renal cell carcinoma, a disease in which no other cytotoxic therapy has proven useful.…
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steved's kids visit
Sunday, Sept.23, "Hi all,think posts likely to slow a little now as not so much to say but know some of you were interested in knowing when the kids would be able to go and see steve.i took them yesterday afternoon and after an initial quiet 30 secs sam just flew at steve and gave him a hug then yabbered continuosly…
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Cynthia any news today ?
Love you both !
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If I wake up with this urostomy bag I am going to go nuts.
So monday morning I will be getting my stent placed for whatever blocked my right Kidney. I have a bad feeling since they did not find a stone on CT. The CT was done quickly in ED so no contrast was used. Therefore, they did not see the cancer either but I was told it was "suspect". They put in a temporary urostomy tube. I…
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Surgery in the near future!!
Looks like I'll be doing surgery instead. The onc put a hold on the chemo and sent me to see the liver surgeon. The liver surgeon (Dr. Visser) that I saw this afternoon says, no reason I can't have surgery, that this one will be harder then the first surgery on me, because he has to cut sideways and up this time and it's…
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Mags - any new update on Steved?
Hi Mage, just wondering if there is any update on Steved since his wife posted yesterday morning (Eastern Time)? Prayers that all is going well. Marie who loves kitties
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No more chemo
I will give up chemo, because after 2 and half years , the side effects are devasting. Mouth sores are very bad and it got to the point that water will burn. Losing lots of weight and no appetite. Doctor told me she did not see me living longer than 6 months. Did have a few days of quality. Most of the time in the bathroom…
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Detox? Anyone, Anyone?
I've read of some doing the juicing and some that have been through a detox program. has anyone every gone to this retreat? http://www.detoxsedona.com what are your thoughts? can one do such a retreat, while on Chemo?
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Post Lung Resection and Adjuvent chemo Scan tomorrow bright & Early
A small but growing lung tumor removed in march followed by Satan in a Bang, as someone here calls Oxiliplatin! I made it thru 6 rounds before the dreaded allergic reaction set in. I followed with just Irnotcean and the 5FU pump for 2 more rounds. Neuropathy in my feet is ANNOYING!. Standing or walking for more than 5 mins…
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clever aussies new breakthrough
http://news.ninemsn.com.au/health/8536600/major-cancer-find-for-aussie-scientists We got some talent downunder. Hugs, Pete
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B6
Anyone taking this? If so at what dosage and who suggested it and why. My husband's onc told him lots of people are taking it but he forgot to get dosage. Thanks
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steved, Day 2 Wed. Sept. 19, 7am.UPDATE Wed 11am End of Day 2...8pm update
"Well, i wasnt called overnight so that must be good.i rang twice in my sleepless state and steve was stable.had to have yet more platelets but no more blood and his clotting has stabilised so thats a relief.he is " eating up" their sedation drugs according to the itu reg and they are having to give him large amounts to…
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might be starting chemo, will know tomorrow, UPDATED no chemo hipec instead
I have been a bit down today, not usual for me. It could be the doom and gloom from my chinese oncologist/herbalist. He does alot of colorectal and shared some bad stories. He did say he will tailor a herbal mix to whatever chemo i go onto, if i do. Had the most detailed consult, a few hours on and off with my top alt…
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Lost and Forgotten
Have you ever been so long in the exam room at the Dr.'s office, so long (like 2 hours) freezing in the overly air conditioned room (wearing long pants and long sleeves even) that you finally came out (well came out several times, looking to see if people were still there, and yes the one that put us in the room saw me…
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green smoothies....free kindle book
Amazon is offering Green Smoothie Magic by Gabrielle Raiz. For free today....132 recipes. Shes not making any "cure cancer" claims but the recipes look good. Sorry..I haven't figured out how to link from my kindle.
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Irenotecan without 5FU
HI, anyone doing Irenotecan without the 5FU? Today we removed the 5FU from my treatments. I am now just on Irenotecan and Vectibix,. I am being treated for metastisis to the lungs.. many very tiny nodules. DR referrs to them as very minimal We removed the 5FU to help my hands sores and mouthsores heal. will revisit adding…
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Hepatic Arterial Infusion
I am undecided whether to use HAI at Sloan Kettering even though I am a perfect candidate according to my doctor. Can someone help me make that choice. Has anyone been treated with the pump and systemis at the same time? My other option is standard systemic FOLFOX with hopes of the clinical trial called EPOCH which uses…
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see my oncologist tomorrow
In 4.5 years I had never felt better. Felt like I surely was one of the lucky ones with the stage ofCC 3B, successful take down of colostomy, and truly have never looked back. Guys I have had normal bowel movements for over 4 years. Other than the damage from chemo, neuropathy in my hands and feet and chemo head- I have…
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th_in_Canada passes
Tricia has had no active treatments since September 2011, (only symptom management) Resident in the Norwood Hospice; where we celebrated her birthday, our 37th wedding anniversary and my birthday during our 7 week stay; in the early evening September 11, 2012 and in the company of friends family and the Holy Spirit, our…