-
If I wake up with this urostomy bag I am going to go nuts.
So monday morning I will be getting my stent placed for whatever blocked my right Kidney. I have a bad feeling since they did not find a stone on CT. The CT was done quickly in ED so no contrast was used. Therefore, they did not see the cancer either but I was told it was "suspect". They put in a temporary urostomy tube. I…
-
Surgery in the near future!!
Looks like I'll be doing surgery instead. The onc put a hold on the chemo and sent me to see the liver surgeon. The liver surgeon (Dr. Visser) that I saw this afternoon says, no reason I can't have surgery, that this one will be harder then the first surgery on me, because he has to cut sideways and up this time and it's…
-
Mags - any new update on Steved?
Hi Mage, just wondering if there is any update on Steved since his wife posted yesterday morning (Eastern Time)? Prayers that all is going well. Marie who loves kitties
-
No more chemo
I will give up chemo, because after 2 and half years , the side effects are devasting. Mouth sores are very bad and it got to the point that water will burn. Losing lots of weight and no appetite. Doctor told me she did not see me living longer than 6 months. Did have a few days of quality. Most of the time in the bathroom…
-
Detox? Anyone, Anyone?
I've read of some doing the juicing and some that have been through a detox program. has anyone every gone to this retreat? http://www.detoxsedona.com what are your thoughts? can one do such a retreat, while on Chemo?
-
Post Lung Resection and Adjuvent chemo Scan tomorrow bright & Early
A small but growing lung tumor removed in march followed by Satan in a Bang, as someone here calls Oxiliplatin! I made it thru 6 rounds before the dreaded allergic reaction set in. I followed with just Irnotcean and the 5FU pump for 2 more rounds. Neuropathy in my feet is ANNOYING!. Standing or walking for more than 5 mins…
-
clever aussies new breakthrough
http://news.ninemsn.com.au/health/8536600/major-cancer-find-for-aussie-scientists We got some talent downunder. Hugs, Pete
-
B6
Anyone taking this? If so at what dosage and who suggested it and why. My husband's onc told him lots of people are taking it but he forgot to get dosage. Thanks
-
steved, Day 2 Wed. Sept. 19, 7am.UPDATE Wed 11am End of Day 2...8pm update
"Well, i wasnt called overnight so that must be good.i rang twice in my sleepless state and steve was stable.had to have yet more platelets but no more blood and his clotting has stabilised so thats a relief.he is " eating up" their sedation drugs according to the itu reg and they are having to give him large amounts to…
-
might be starting chemo, will know tomorrow, UPDATED no chemo hipec instead
I have been a bit down today, not usual for me. It could be the doom and gloom from my chinese oncologist/herbalist. He does alot of colorectal and shared some bad stories. He did say he will tailor a herbal mix to whatever chemo i go onto, if i do. Had the most detailed consult, a few hours on and off with my top alt…
-
Lost and Forgotten
Have you ever been so long in the exam room at the Dr.'s office, so long (like 2 hours) freezing in the overly air conditioned room (wearing long pants and long sleeves even) that you finally came out (well came out several times, looking to see if people were still there, and yes the one that put us in the room saw me…
-
green smoothies....free kindle book
Amazon is offering Green Smoothie Magic by Gabrielle Raiz. For free today....132 recipes. Shes not making any "cure cancer" claims but the recipes look good. Sorry..I haven't figured out how to link from my kindle.
-
Irenotecan without 5FU
HI, anyone doing Irenotecan without the 5FU? Today we removed the 5FU from my treatments. I am now just on Irenotecan and Vectibix,. I am being treated for metastisis to the lungs.. many very tiny nodules. DR referrs to them as very minimal We removed the 5FU to help my hands sores and mouthsores heal. will revisit adding…
-
Hepatic Arterial Infusion
I am undecided whether to use HAI at Sloan Kettering even though I am a perfect candidate according to my doctor. Can someone help me make that choice. Has anyone been treated with the pump and systemis at the same time? My other option is standard systemic FOLFOX with hopes of the clinical trial called EPOCH which uses…
-
see my oncologist tomorrow
In 4.5 years I had never felt better. Felt like I surely was one of the lucky ones with the stage ofCC 3B, successful take down of colostomy, and truly have never looked back. Guys I have had normal bowel movements for over 4 years. Other than the damage from chemo, neuropathy in my hands and feet and chemo head- I have…
-
th_in_Canada passes
Tricia has had no active treatments since September 2011, (only symptom management) Resident in the Norwood Hospice; where we celebrated her birthday, our 37th wedding anniversary and my birthday during our 7 week stay; in the early evening September 11, 2012 and in the company of friends family and the Holy Spirit, our…
-
LivinginNH Thinking of you and Rick
Hello Cynthia, just wanted to let you know we're thinking about you and Rick. Hugs, Winter Marie
-
Doc Hawk...
Thinking of you and hope you're feeling better. Peace, Laurie
-
Chemo = Lost voice
and one happy family! lol I am just getting over a cold and have almost completely lost my voice. Doctor told me try resting it and gargling. My family is loving this! I can't even yell up the stairs for the kids to come down. I think I need a bell!
-
Back to reality this week.
Traveling back to MD Anderson today. Tests Tues & rest of lung mets surgery wed. To prep for this have not had any Chemo since Jul 2nd. Hope no further spots have showed up somewhere else. (next body scan will tell) Like before once I stop chemo they pop up. Then surgery to remove ect. Praying this time is it as will be my…
-
PET Scan results etc
The PET Scan which I had on 17 Aug and which also showed the pneumonia had some otherwise good results. There is a non-reactive node in my left lung. We'll be following it to err on the side of caution, but otherwise not much concern. The tumor in my right lung is very small and shows minor activity. The best part is in…
-
MYH mutations
Has anyone here been diagnosed with MYH mutations? I have had 7 surgeries trying to hold off precancerous and cancer tumors, as well as Paget's skin cancer. Hoping to find someone else with this mutation on the colon genes. Not that I would wish it on anyone... just feeling isolated and like I am teaching the docs and…
-
re. a little advice
well turns out i went in for blood work today and my red blood cell count was way low, the shot they prescibed was scary crazy with the side affects, like accelerated tumor growth and heart failure....ahhhhh anyway seems that was a big part in my lack of energy, thank you guys for the input you are the best!!! hope it…
-
Mom went in for CT - liver...embolization?
hi everyone, I posted a few days ago too about mets in my mom's smaller hepatic ducts - we got a CT last night and awaiting results. I hope we can get some adequate and helpful news :) And if it's more positive, that would be awesome!!!!!! Anyways - I talked with my mom's doctor - and liver embolization is a potential. He…
-
Another promising plant for natures pharmacy boswellic acid
Americas best functional doctor sent me this, glad i am a friendly aussie has has some clever friends. just an fyi................ its just my opinion, but my functional doctor here mentioned boswellic acid also a few months ago. hugs, Pete Boswellic acid induces epigenetic alterations by modulating DNA methylation in…
-
Flank Pain turned out to be kidney Obstruction
Well crap! My flank pain only got worse and had to go to ER. Turns out my right kidney stopped working because of an obstruction which they can not identify as a stone. I now have a temporary nephrostomy tube and will have a stent placed monday. They will also explore to see what caused the obstruction. I am not looking…
-
a little advice
hey guys hope all is well with everyone, i am on my 3rd round of this new chemo, and even well after im still sooooo tired, is there anything out there to help with the fatique?? ive read about ginsing, your help is greatly appriciated!!!
-
My Tough Little Cowgirl Needs Your Help
Hello All, Please send some good thoughts, prayers, etc. to my Johnnybegood. She is very ill right now. She finished her two rounds of steroids for low platelets with no improvement. On Tuesday, she had one infusion of Gamma Gobulin which left her with an unbearable headache. On Wednesday, she had a CT, but was not given…
-
Feeling down
Hi everyone. My mom has colon cancer and was diagnosed last month. I'm her 18 year old son (I don't know if anyone remembers because I haven't posted recently). Well after waiting about a month, my mom is finally getting treatment with chemotherapy at Memorial Sloan Kettering hospital in NYC. She is apparently on Folfox…
-
Chemo boosts the immune system
Yes you read it right, 100mg cyclophosphamide daily in 2 X 50mg doses, one week on one week off. Depletes T-reg, stimulates NK cells. http://www.ncbi.nlm.nih.gov/pubmed/16960692 MTD of cyclophosphamide = 3500mg daily (in children)