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Just Checking in
Hi everyone and especially to my old Folfox Club people. Some of the original number are still around. I just finished another surgery a couple of weeks ago to repair duel hernias. It turned out when I got chemo-inducted cirrhosis and my abdomen was flooded the pressure caused the hernias. Not a fun procedure and a lot of…
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Sitting w/my IV
Well, this is tx #6. Nurse let me know this is usually where the oxy stuff starts getting worse. It has been pretty good so far. I did get benedryl in the IV, and it kicks in fast. I am quite woozy. I probably shouldn't even be writing anything now lol.
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Neupogen and side effects
I've had two shots so far, and had an awful night with constant shooting pain in my lower back and hips. I took a couple of Tylonol, which brought the pain down a bit, and of course my ever present hot water bottle. I am scheduled to have these shots every five days after getting unhooked from my 5FU. Am I to expect…
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3 years ago
Three years of fighting cancer and still going strong! Anniversary was yesterday but it passed me by without noticing! here's hoping for three more at least! Winter Marie
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Good news today!
I went in for my infusion today. Left the house at 5:30am and made it home at 5:30pm. Yes it was a long day. And I received some good news today. My CEA is 9 today... Down from 40 a short while ago. I love my CEA line chart as it helps me appreciate the progress. And I'm hoping that this is an indicator that the…
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Stem cell therapy
Does anyone know anything about stem cell therapy for colorectal cancer?
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Panitumumab
So here is the question again anyone had Panitumumab treatment? My husbands CEA is down to 2.4 and doctor is starting him on Panitumumab???? He will have it thru IV every two weeks. The doctor says it kills cancer cells. I hope this works the doctor wanted him to have a break from chemo. We will see how his CEA does on…
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NED - for the time being...
Hi, all. I had my first scan last week (PET) and I am more or less NED. I have a large rectal tumor (ouch), four decent sized mets to the liver, and four tic tac sized mets on the lungs. Affected lymph nodes as well. Had 12 hits of Folfox and Avastin and during last week's scan nothing lit up on the PET. I'm relieved, but…
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pet scan right now
I'm sitting in the hospital cafe waiting for my husbands pet scan to finish then on to chemo. This willl be #13...hold the oxi today since the neuropathy is getting bad. He was admitted on monday with blood clots...came home tues with lovenox shots and oxygen. So no avastin either. Hes only had 8 treatments with avastin.…
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"The REPURPOSING of Our Lives In and Out of the Cancer World” - The Concept That Evolved Into an Ide
What is Repurposing? Well, Merriam Webster’s definition is: “To give a new purpose or use to.” What started out as an abstract concept has now evolved into an ideology that I firmly believe holds a great deal of promise in how we look at our own lives – our lives when we have cancer – and our lives when we don’t have…
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we all have a duty!!!
To HELP spread the word! http://www.cancer.org/cancer/news/features/coloncancer-prevention-and-early-detection-what-you-need-to-know
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Tcm, Acupuncture & qigong
I delved into the world of TCM over the last few weeks with, Acupuncture, qigong and TCM herbs. If anyone is interested, there are some new posts on my blog. http://www.mcrc4.com/?p=1085 http://www.mcrc4.com/?p=603
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On our way
Dennis' appointment is at 1:20 pm CST to get results of scan. Please pray for good things for him. Bless you GOD for carrying us! Brenda
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CMet Inhibitor
Dear all, Does anyone of you heard of Cmet inhibitor? What are their side effects? My mum is Kras-mutant and can she use both Avastin and Erbitux (combine together)? I searched the internet and there isn't much information about cmet inhibitor and it's side effects. As for combination of Avastin Erbitux, research stated it…
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Change In Strategy
As the battleground changes, so do the plans of hubby's doctors. We went to appt. today prepared to attack with chemo, but the committe has decided that the lung cancer is very agressive and growing at a fast pace, so skipping chemo at the moment and starting 10 treatments of rads on Monday, replacing the originally…
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just healing from spleenectomy
hello all im just hanging in there trying to let my body heal from my spleenectomy that was done on feb.7.met with surgen yesterday and he was very pleased about the incision healing.got blood work done and my appt moved up with chemo onc it is in 2 weeks.we will discuss our next plan of action main topic will be starting…
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Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…
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Question about colon cancer and immunosuppressants
Hi, I have a question that is difficult to research and I'm hoping someone here might know the answer: My uncle was recently diagnosed with stage 3B colon cancer. About 30 years ago he had a kidney transplant and has been taking 75 mg of azathioprine every day to keep his body from rejecting it. Now he's going to be given…
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An Extra Prayer---UPDATE
Hello All, Sure hope you guys don't run out of prayers and good vibes. I seem to always be asking for them. We met with Surgical Onc today. Tomorrow, hubby will be have fourteen teeth removed, chemo port put in, and feeding tube. He will be kept in the hospital, at least overnight. Home Health will come out to help with…
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No chemo today - White blood cell count too low
Anyone else had their chemo postponed because of low blood cell count? I have had two shots of Neupogen and sent home. I will get shots of Neupogen every day for a week, and blood work done everyday too. Quite disappointed.
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Thank you for messages on my husband's passing
Baz passed away early Sunday morning in his sleep. He is now at peace and free from pain. We will miss him terribly. Rubyrose Thank you all for your kind thoughts and messages. Rubyrose
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disappointed....
well since my last post mom was to be donning the surgery gown... but the doc wants mom to sign a waiver saying there is a 10% chance that she will end up with a bag, and mom won't sign b/c she just DOESNT WANT A BAG!!!!!! 'sigh' so mom is upset... as i am... i figured we could finally move on with this... as it is... now…
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Frustrated
So the scan report mentioned a area of concern... with a rising CEA (46) I guess I have resolved that it is a reoccurance. I asked for the scan report so that I could get it to our team in Madison today still. I got home, scanned the report and sent it to the surgeons assistant and waited to hear what everyone had to say.…
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Just Kidding
Ha i was just kidding. They called and said they are changing the surgery from March 6th to March 12th. Another week of anxiety and pre op stress. Yay!
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Please HELP Me!!!
Ok so my fiance has never had to deal with cancer or someone having cancer. I think he thinks I'm being a jerk when i really dont mean to be he just doesnt understand what is going on. I dontnknow if its him still in shock that the cancer is back or if he really doesnt understand. Someone please help, he is my everything…
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To: Swordranch
Laura, Did you see my message to you under Coloncancerblows (First Folfox) ? Anyway. I know you are new and I didn't want your questions to go unanswered. It would be best if you started a new topic. You can title it something like..... APR & Colostomy Questions. That will draw attention to those that have that particular…
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Mom having dizzy spells
Mom has vertigo and dizzy spells. Her blood work in December had no cancer markers. We are concerned. I hate these months leading up to "the scan". Doctor is going to give her a scan. My sister and i are neevous about the acan. Any thoughts?
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Food for Folfox
I'm starting my chemo this week and lots of people are planning on bringing food for myself and family. From your experience on Folfox, are there any do's and don't foods? I'm assuming nothing greasy, spicy or smelly foods but just wanted some food ideas. Thanks! Cyn
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Stage 4 that passed to the liver
my husband is 29yrs young and was diagnosed with stage 4 rectal cancer that went to his liver in 2 spots. Can anyone tell me if this is curable???? Please help i need answers so bad all this research says no but then i see people who are completely cured of it I need hope i need to know things can get better
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new here...have a question
Hi, I am new here to this forum but not new to cancer. I was diagnosed almost 3 years ago (July 2010) with stage 3 rectal cancer. I had 6 weeks 5fu chemo and radiation which shrunk the tumor quite a bit. The tumor was up high in the rectum and the doctor removed my entire rectum and part of my colon. He had enough that he…