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"Coming Soon!"
The last six-months I've been ruminating about this upcoming post that I just started writing and will be releasing this month when I finish it....the topic will be one of universal understanding...and I believe that the new and old alike will be able to draw something from it...no matter where you find yourselves right…
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and so it returns...The date is set...
and iys back again. in my liver. again. grrr. scheduling a lobectomy. o this is gonna suck! may wake up with a liver pump.
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Tumour Devascularization
I was not going post any more of my reseach on this forum, but have been asked to do so by a few people, so this is just for you. I spent about 2 months researching Tumour Devascularization, also known as Devitalzation. In a nutshell this procedure involves ligating all blood vessels feeding a tumour, and allowing the…
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Dexamethasone Warning
For those who have been following my never ending blood clot saga, I have an update. Steve's ultrasound ruled out a blood clot in the leg. This came as a surprise to all doctors involved. The leg is extremely swollen, bruised and very very painful. Not the calf but the thigh. (no veins popping out, leg not warm to the…
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Empty outs
I was diagnosed in March 2001. Type 3/stage 3 I think. Surgery and chemo. Removed section of colon. no colostomy bag. Cancer free still but also still experience "empty outs" every 2-3 weeks. I have eliminated the obvious stuff - no nuts, seeds, steak, other dense meats, spicy food, etc. Wondering if anyone else is…
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Just got a call from ****UPDATE****
the head research nurse of the trial to confirm lab, doc and infusion times for tomorrow.....she gave me a heads up with the results from Roberts scan last week. Shrinkage!! I don't have any more details than that. A shot or two of that Cptn Morgan Black looks to be in order this evening! ***Update*** Large liver lesion…
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New treatment I'm starting
I went to my naturopathic Dr. yesterday for an appt to go over all the many supplements I'm taking, see if anything needed to be changed or modified, and to see if he had any ideas for me now that I've been told that there's no more traditional/medical treatment that I can be given or qualify for. He was all excited to…
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Disappointed *sighs*
Very disappointed. We decided to seek chemo treatment locally so that we don't have to travel an hour away every day the other oncologist. The local oncologist recommended placement of the port and then do 5 days of chemo with radiation. Good thing I'm working closely with a caseworker for our health insurance. Monday,…
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First Folfox treatment
Had my first Folfox treatment yesterday. So far so good. Get the pack off tomorrow at noon. I slept pretty good considering the steroids in there. Did experience that weird jaw sensation when biting the first time. Thanks to the forum, I knew that was normal and didn't freak out. Cold drinks are a no no so nipped that…
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renw
In case you missed my other post, I don't think sam I am that I'm am idiotic enough to purchase blue scorpion venom, or purple snake venom,or any other ridiculous "antidote" against cancer that you come up with. Am I downing what you posted? Um, yes, and I hate to think that newbies that come to this board think that blue…
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Is This Normal??
Over the last few months since all these symptoms have started, it seems like i get more and more worn out everyday. i havent had any treatment yet but dont remember this happening with the cancer last time. Is this weak and tiredness and just physically drained normal?
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One week to go till our cruise...here is the paragraph I will include (with your permission) with my
"The following list is compiled of warriors and everyday heroes that need and deserve support and strength. Please bring them comfort and peace at a time in their lives where so much is changing. Please help them to celebrate the world around them, keeping them safe in the hearts of all who know and love them. And when the…
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7 years NED!
Hi all. I was diagnosed with stage 2a in Aug 2006. Had resection and 4 rounds of chemo and am still NED. Just to let you know there is life after colon cancer. I lost 40lbs in the hospital which shocked me but have ended up not gaining it all back, which is a good thing. I feel great, exercise and eat healthier than I did…
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Creating a list to leave at the Wailing Wall in Jerusalem...
I have already included "CSN warriors".....if there is someone special you want me to add specifically to the list, let me know... If you would be more comfortable, you can PM me here... A friend of mine, when I had just been dx'ed left my name there...I always remember the thought.... We leave on February 22 for the…
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Erbitux Acne going away almost as quick as it came on
I went in for treatment 2 on Thursday, 2/14. The doctor took one look at the rash and was concerned about an infection. He withheld the Erbitux for this treatment. He also prescribed another antibiotic and clarified that I need to wash with soap a couple times per day. Let the skin dry for a bit. Then apply the…
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Anybody know about liver failure?
My Husband has swollen legs and feet, and bloating stomach, also very short of breath. (CRC with mets to liver and peritoneum). He sees Oncologist tomorrow Mon 18 Feb - expecting bad news. Doctor has confirmed his symptoms are due to liver failure. Just wondered if there are any experiences of loved ones who have had…
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6 Years out and NED
Hi all. Haven't posted for a few years. I was diagnosed with stage 2a in August 2006. Had a resection and some chemo. stoped chemo less than 1/2 the way through as I got CDIF and was back in the hospital. I've had a colonoscopy each year except the last one. I'm getting one in the next couple of weeks. Just wanted to let…
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Not medically related and a little long but a week later I'm laughing that I almost caused a brawl i
So I warned everyone over and over that I don't do well with anasthesia. I said it to everyone who would listen. I feel like I'm drowning when I wake up. Well I had never had a five hour surgery and they give you a lot of anasthesia so when I "woke up" I told everyone around me to GET OUT! Can't you see I'm in pain, help…
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Hi my friends it is FRIDAY any interesting plan for the weekend ?
We have the baptism of my wife niece on Saturday ! Tomorrow night dinner with my sister and husband, and Sunday, dinner with brother and mum, as you may see just family plans, hope something funnier for next week! What about you mates?
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Post-Op
Had the surgery on my rectum yesterday and I'm feeling huge improvements already. The site of the spasm no longer hurts, in fact the only pain I have now is from wiping after going to the bathroom. The pain level had been so high for a month that my eyes would water all of the time. Now it's gone, but still a bit difficult…
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Supplements
My order of phospholipids arrived today. Another $900 well spent (or wasted as some would say), on a 2 month supply. Something new to add to my ever growing supplement list. This is a good time to take stock of my supplement regime, as it is getting out of hand. I have become a victim of my own research it seems and my…
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Radiologist vs Oncologist
When meeting with the radiologist about my spleen he said that we should at another time do ablation to the spots on my liver and that he can help one with other spots as well. I have multiple mets. He cannot touch the lungs as there are too many spots and that I would still need to do chemo but let's take care of what we…
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Big Pharma no different wherever it is..What does this bode for future?
Has anyone heard of similiar cases in US/Europe,elsewhere? This is not about Austraila,per se, nor any specific individuals and in fact, action is no different that what "Big" anything does(auto,tobacco,insurance,law firms,agriculture,etc,)Money comes first!!!!!…
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For Those Of You Following My "Soap Opera"
Not quite sure, but I believe I mentioned an upcoming Urologist visit for my hubby. He has now had another setback. Last week, the Urologist scheduled an in office Cystoscopy for today. He was unable to complete the procedure, but was able to determine that there is a partial bladder blockage due to the inept treatment he…
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Husband is home now....
Jason got to come home today. He is feeling pretty good, much better than before he went into the hospital, despite having been opened up & having nothing done. (yet) While he was in the hospital he received 2 units of blood which seemed to help a lot, it brought his hemoglobin up to almost normal, his WBC down from what…
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Hipec
We went to see Dr. Lentz today at USC he feels my husband is doing well. He is responding good to chemo etc. Thing is he really believes Hipec surgery would be a good option for him to kill the cancer in his lymph nodes. I have read all about this surgery and to me it seems pretty scary anyone had this surgery. Would like…
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Dexamethasone and muscle cramps
For those of you who have done dex. on a regular basis. (Not just with the chemo cocktail). Have you had any trouble with muscle cramps? Steve has been on it for 28 days and muscle cramps have become a problem. His arms and fingers have been jerking out in spasms. The legs are the worst. In the night he had cramps so…
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Erbitux Acne - Ready to Scream
I just started Folfiri and Erbitux on 1/31. Treatement 2 is scheduled for this Thursday 2/14. The Erbitux achne has set in. It is on my cheeks, nose, forehead, back, and chest. I read an older post that suggested using head and shoulders to help. I am taking ibpropen to help with the pain. I didn't start an antibiotic yet.…
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Blue Scorpion Venom
Anyone have any experience with the Blue Scorpion Venom (Escozine)? This was one of the first things I tried, being a knee jerk reaction to my diagnosis. In hind sight, not the best investment as had no noticeable impact. May work in breast cancer and leukemia, but very little evidence that it works for colorectal. More…
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"Novel designed molecules could stop colon cancer metastasis"
http://medicalxpress.com/print280052957.html (and once again, on relevancy of mice and us) www.medicalnewstoday.com/releases/256124.php and maybe where you or your parents or grandparents came from might determine your specific CRC:…