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Latest scan results
Well I got my CT scan results today from Thursdays scan and after 2 months on maintenance chemo of just 5fu and avastin. In summary the liver tumors are stable the lung tumors are maybe slightly larger but were described as cavitary so they appear to be necrosing from inside but the peritoneal tumors may have progressed…
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Winter Marie and MWNN
I took this out of the lovely "bright sparks" posts and wanted to start anew here ... Winter Marie: I think that is so kind of you to offer an apology to MWNN for possible confusion resulting from lack of sleep, steroids, and losing your kitty ... these are all rough things. You are a great example of how the board can go…
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3rd one down
Just had my 3rd chemo session yesterday and so far so good. Even came to work today wearing my lovely fanny pack. The days of chemo aren't that bad. It's the disconnect day that the symptoms start but it's usually fatigue. The last two sessions, after the disconnect, I was down for the whole weekend just sleeping. If…
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Vicki
Has anyone heard from Vicki? I believe her spleen operation was a week ago. I'm just wondering how she is feeling. Luv, Wolfen
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Interesting article on too many colonoscopies debate
http://www.philly.com/philly/health/cancer/20130315_Too_many_colonoscopies__A_new_study_has_doubters.html
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JoeMetz - Chemo Vacation, Scanxiety & Next Treatment UPDATE
Greetings! It's been awhile since I've posted here, and wanted to share an update. I was dx'd in November 2011. Had surgery in December to get "the bag". Folfox & Erbitux from Jan. 3, 2012 to July 3, 2012. Colon resection, bag take down and 5 week's off chemo. September 1, 2012 to Feb 28, 2013 - Xeloda 5/days a week +…
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TEST for Greta!
Just a test to see if a thread that has been opened by an originator can be DELETED by the originator... The Delete function seems to be missing since the upgrade. This is just a Test for Greta...so they can use this example post to troubleshoot from.
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Debates and arguments go here???
Would love it if we can have one place for all the arguments to go, so those of us that don't want to read them don't have to stumble across the childishness through several different threads. It's completely ridiculous. I liked Ann's post about luck - I thought especially fitting with St. Patrick's day coming up and all,…
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Any word from BigmanforChrist?
Zach - wondering how your treatment is going?
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vectibix and xeloda
Any one on this combination.. if so how is it working for you? any side effects? any benefits? 5FU makes me not sleep well so I guess I will need to be taking naps again.. just when life was coming back together.. I have to start this chemo.. crap again.. I have some minimal growth we are hoping this will whip back into…
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Posted a new avatar so I wouldn't seem so invisible ...
for a long time I had no picture, then one of our dog, and then one of my painting of the horses, and then ... well, since I have been a bit more vocal of late :) I thought it only fair to reveal a bit more of myself. I am a very shy person, but I am encouraged by all the wonderful pictures folks have been sharing. Hoping…
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KayeKay?????
She said her surgery was going to be Tuesday, I am anxious to hear how she is doing. If anyone sees her on Facebook let us know.
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New to all this
Hi! My name is Rosemari and I had a colon resection on January 30. I start chemo next Wednesday, 3/20. It is scary but reading through this discussion board, it seems you all have really good information to share. I am getting a port next week and hope I can do this with your guidance. Rosemari
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Fishing hole Lake Lopez, CA
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If you are a milk drinker,this IS frightening:
http://articles.mercola.com/sites/articles/archive/2013/03/13/unlabeled-aspartame-use.aspx (I'm off for breakfast-walk to diner bit over a mile away- and enjoy milk with my unsweetened coffee and eggs with rye or whole wheat dry;might do glass of milk later or with whey protein in blender)
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Need a laugh? Watch this (39seconds)
http://vimeo.com/61275290 (hopefully even fellow-ostamates will enjoy) Sent to meby a former colleague from work;only man i know who had breast cancer!
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Got to vent, can't tell anyone yet.
I have been cancer free for 15 years. I had Colon Cancer when I was 36 years old. I had not been going to my annual exams as I should. The last 5 years I have been dealing with a lot of family issues. Today was my exam. I stayed awake through the exam as I usually do. The doctor and I saw the polyp at the same time. It was…
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Good Bye my Dear, Dear Friend Clift "Buzzard"
My heart is breaking at the loss of another dear friend. I changed my avatar once, and Buzzard wrote and asked me to change it back to me sitting on the beach at the ocean here in Santa Cruz, that's how he always thought of me, sitting, staring into the vast horizon. So I changed it back and it's been that same avatar for…
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Sometimes the Doc just has to listen....
So, I was at the Oncologists today. Doing the normal Chemo treatment. See the nuurse, weigh in, BP, review the blood test, blah blah. The Onc comes in and asks if everything is going OK. I tell her that this chemo (Folfiri w/Avastin) makes me exceptionally nauseated. It makes me run to the bathroom and lose it for the next…
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Here we go again...
Here we go again...seems like just yesterday that I began my first journey of chemo. Port placed and worried how I would handle the drugs. Well...with recurrence only months after ending the first round, more surgery and healing, now had another port placed and beginning treatment again in the morning. Hoping it goes a bit…
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Hi everyone
Haven't been on here for awhile. I'm cancer free now 6 years. Doing pretty good, still dealing with reversal issues, but not as bad as in the beginning. Have a Grandson 18 months old. Another Grandson 1 month old.
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Ketogenic/glucose clarification
Ok, I first mentioned ketogenic diet to Pete a while ago, I also told him I had concerns with it as it didn't work for us, in fact we believe it made our son's tumour grow rapidly. I have posted this on the brain tumour board but people will do what people will do given the situation, who am I to say it wont work for them.…
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My Resection is Tuesday :(
Uugghhh.... Sooo nervous. Might wake up with a liver pump might not. Won't know till I wake up and that's the scary part. Well, one of the scary parts. The whole cancer thing and surgery itself is terrifying. Well, my fellow fighters, here we go with round 2...
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Vectibix
So for George last week Pet & CT are NED. However, Dr. swiched him from irinotecan & Xeloda to Vectibix and CEA went from 2.4 to 4.3. Dr. says dont worry but we worry. If in two weeks his CEA has anymore rise seems to me he should be back on Irinotecan. And how about Xeloda anyone just take that alone???
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Abdominal pain after having ascites drained???
hello, we are so thankful my father could make it in to have his first folfox treatment on Monday. We went back today to have the pump removed and the doctor suggested we go have his ascites drained. He had over 3 liters drained and now he is feeling worse ... We got home and now he has major abdominal pain?? Has anyone…
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2nd day of 1st treatment
Yesterday was my first treatment. I came home with my stylish fanny pack. I get unhooked tomorrow. So far I haven't had any nausea or food aversions. That could be because they gave me an anti nausea med before and a steroid to help with that. I haven't had fatigue yet. I'm trying not to get cocky as I am sure I will not…
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"???" - Scan Results Confirmed? *** UPDATE ***
Well….. This was a frustrating day…took over 4-hours for a blood draw and an onco consult:( As soon as we hit their driveway we knew it was going to be a long day…so busy they had traffic controllers directing cars into waiting areas to queue just to get in line, LOL! Front desk jammed…waiting room packed like…
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The final stretch of first chemo treatment......
Jason is almost finished with his first chemo treatment & all is well.....VERY well as a matter of fact. I'm in tears as I'm typing this, I am so relieved. He has had no nausea, no vomiting, NO sensitivity to cold things (he is sipping on iced tea now) & has been eating more than he has in a few weeks. We are still in the…
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Suitable subjects for this board....
I am just hoping that someone can direct me to the list suitable topics for this site. I hear there are certain subjects that are not allowed and I don't want to make any dumb mistakes.
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New pic
Added a pic of me and my four boys (also have 2 girls, 12 and 15). The boys are (L to R): 5 (Josh), 7 (Ben), 8 (Alex) and 10 (Zach). Tedd