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aggie0053
dr just called said cancer in nodes in stomach, he said they think it's colon cancer again, going for more test this week. makes me mad i just had a colonoscopy aug 6 last year.
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New member - Jimmontana
Hi Jim, I have taken the liberty to copy your post from another thread here, so that others will see it and reply. As always we are sorry you had need to find us, but glad you are here among patients, and caregivers who know how it really is. -------------------------------------------------------------- Starting the…
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Chemo making the skin sensitive
How many of you have experienced sensitive skin after (and for me, long after) treatments? I was reading in another thread that Laz has experienced it. I have too, but have not come across any threads related to it, here on the forum. I couldn't stand to wear underwear, and wanted my other clothing to be lose. I didn't…
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To holiday (vacation) or not to holiday.
Because of my unpredictable bowels, I've held off on any trips until last week, when I hopped a plane and headed to my friend in Oregon. I wanted to go to England (home), but I don't think 12 hours on a plane would have been a good idea. To rub salt in my homesick wounds, my Oncologist flew to England on Saturday. It…
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New Member
Hello Everyone, My name is Judy, and I live in Canberra Australia. I am an Australian/American who is 58. I was diagnosed with colon cancer at the end of 2011, and had surgery in December followed by 6mos of chemo (Stage 3). I finished chemo about 20 months ago (August 2012). I've joined and am posting because I can see…
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Desperate for any advice
Hi Everyone I'm hoping that reaching out on the board may bring to light an option we haven't tried or heard of. My dad was diagnosed 5 years ago next month with stage 4 colon cancer he underwent surgery removing most of the colon, infected lymphnodes and part of the intestine. They performed hipec and 3 months later he…
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Resection or microwave ablation
Waiting. For a decision as to what is to be done - micro wave ablation or resection to the recurrent metastases in the liver - met 2cm x 2.5 cm as per current MRI result (yesterday) - in segment 4a am worried if they go for a resection as the recovery would b painful as it was last time docs are going to give me a choice…
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5 Year Mark
April 5th will be my 5 year mark since diagnosis and surgery still NED.... Big Happy Dance this week.
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IV for 4
Four years...it seems like only yesterday. Hers has been a high quality four year journey with mCRC for two uncomplicated surgeries, only slight chemobrain from metronomic immunochemotherapy at home, mild scanxiety on blood tests every 5 weeks to 9 days, without the heavy chemo torture-follies and costs. The first year had…
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waiting for pet scan results- update
And the anxiety is killing me. This never gets easier does it? We have a couple of important family events in the next two weeks and bad news would suck, but I guess there is no good time for bad news. I wish we had put the scan off for a couple of weeks.
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Worried daugther , mom has stage 4 colon cancer Help!!
My mom has been diagnoised with colon cancer, she just had her surgery this monday they had to remove her spleen,colon and one of her ovaries and fallopian tubes and lymnodes. We didnt know what stage it was till the yesterday. The surgery itself went well . The doctor came out and said that it could be stage 3 or maybe…
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Biopsy Blues
Arrgh. I'm trying to get into a clinical trial, so I needed a test to determine if my tumors expressed something. So my onc scheduled me for a liver biopsy last week. Well, I had it done at the hospital and somehow the surgeon doing the test took out healthy liver tissue and not tumor tissue! Arrgh. That was a big waste of…
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Second recurrence - microwave ablation suggested
After a colon and liver resection surgery in August 2012 / September 2012 , I have now faced two recurrences in the liver. I had maintenance Chemo of erbitux post resection from December 2012 till March 2013. Six month after that I had a recurrence. the first one was a liver met 3.5 cm in segment 4b of the liver , ( new…
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Good News!
Went to my onc on 3/21 after surgery. CEA was under 1. Onc did not think chemo would help at this point. He said I have had the main go-to chemo (FOLFOX & Oxciliplatin then FOLFIRI and Erbitux). If I can make it a year without a reoccurrence he would consider chemo again. He did mention other chemo we could try but didn't…
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5 years and back in the OR
Hi Friends, It was 5 years, 3 months ago that I first wrote here when **** was diagnosed. Now, I am once again waiting in the OR waiting room as **** has what we hope is a short and successful surgery. He is having a biopsy so cancer tissue can be fedexed to San Fransisco for some cutting edge bio tech possibilites. Our…
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Sending Love to JohnybeGood
JBG Just wantef you to know.. I was thinking about you... Hoping you are doing well... Lifting you up in prayer... Sending you Love and Light, Phil ALL -- PLEASE JOIN IN, SENDING JBG SOME CYBER LOVE.
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FOLFOX Side Effect Questions
I had my 9 of 12 FOLFOX chemotherapy today, and I had a couple questions. It should be noted that they pulled the 5FU bolus (I still have the 2-day fanny pack) last time because my labs kept tanking and they didn't want to keep delaying treatment. So my first question...does anyone ever feel kind of "panty" the first day…
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update from aggie0053
had a endoscopic test today( been 4 years in may clean) SAID I HAD PERIGASTRIC LYMPHADENOPATHY from ct scan doc said pancreas, esophagus, liver were normal. have to wait a couple days for biopsy. i hate this not knowing, thanks just wanted to talk
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lung Surgery at last - any advice?
nervous but excited. After three and a half years of chemo and no new tumors finally having surgRey to remove lung nodules became resistant to erbitux so options running out. Molokai at microwave targeted therapy but larger tumor one inch too big ....six mm. tumor in left lung dead, or whatever they call it so the three in…
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janderson
Hey Jeff...just wondering how its going. Don't think I've seen a recent post from you.
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Maxicat?
Hi Maxicat - have not heard from you in a while. As another 3B signet cell, I like to make sure you are doing ok. Just let us know.
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Scan this week...
Hi Guys, I just thought I would let everyone know that Dennis has a scan this Thursday. I don't have to tell you how anxious I am wondering what kind of news we will get. Dennis had Sirispere a few weeks ago so the scan is to see how effective it was or wasn't. I have to be honest and say that I am mentally and physically…
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My sweet Sister
Hi all. Where do I begin.....my sister was diagnosed with Colon Cancer 12/24/12 and told she only had a year, maybe less. She, thank God, is still with us but is beginning to decline rapidly. The cancer has spread to her liver (about 80% filled with tumors), her Kidneys, her stomach lining, her pancreas, and her Sternum…
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Finally
Surgery finally scheduled for April 7th barring any complications. I see the Oncologist on the March 19th for follow up then the preop team for my instructions on getting ready then report for surgery on the 7th fingers crossed no more problems. But while looking at Drs notes after last Ct scan they are mentioning…
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lump in throat
I had chemo #3 last Friday and for the last few days have had a feeling of having a lump in my throat all the time and wanting to swallow. Has anyone else experienced this and know what it might be ? Thanks. Sue.
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PhillieG
Does anybody know how Phil is doing? I have been sort of spotty in attendance here. Hoping he's okay. *hugs* Gail
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Discussion of new immunotherapy trial (plus a lot of other useful info)
I just wanted to make sure that you all saw this thread from the Colon Club forum. There is one member there who has put a great deal of time and energy into tracking new clinical trials as they come up. The link below is to a discussion of an immunotherapy trial that looks promising, and has/will have numerous locations,…
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update just needing prayers and cyber family love
I know its been awhile since i have updated you with all my recent problems.after the stent was put in my bile duct because the tumor on my pancreas was blocking it i gained my strength and continued on with irrtiatecan and avastin.i had this dose even lower because liver enzymes were still up.then in 2 weeks went in for…
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Stivarga (regorafenib) did not work
After 4 months on the oral med Stivarga (regorafenib), we got the results of Pat's latest CT scan that the drug is not working. So, he was taken off of it. He was in the hospital in Jan for 6 days fighting an infection. A visiting nurse was coming to our home every week to help Pat avoid a return to the hospital.…
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Wife has stage 4
Hello Everyone, My wife was diagnosed stage 4 colon cancer a year ago next week. She had gone almost 1- 1/2 years being misdiagnosed and not taken seriously. A doctor friend decided to check her out and found a 5" tumor obstructing her transverse colon and small intestine. The cancer has invaded her liver and has affected…