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New to the network
I just joined the cancer network because Phil64 encouraged me to do so. Thank you Phil. I am almost two years into my journey with stage IV colon cancer. So far, I have managed just fine, but I decided that I could use some support from those of you who actually understand as only a patient can. I probably won't " talk "…
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Flu...
Ugh, I got the flu and it's kicking my ****. I've had a 101 fever for 10 days, sore throat, coughing, nauseua, I've lost 10 pounds, and missed 7 days of work. I have a CT scan set for today, I'll get results tomorrow. All I do is sleep, and not very well, go from my bed, to my living room, to my office, back to bed, etc.…
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Smokeyjoe, Joemetz, other MIA
Was happy to see some recent posting from Craig. Havent seen smokeyjoe or Joe around in awhile.
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Surgery coming up
After 7 months on erbitux and irrinotecan i finally got second opinion and got scan.m(hadn't scanned for,6 months cos if growing couldn't stay on erbitux) Erbitux shrunk tumor mets early, prob for first three months. Scan unfortunately shows larger tumor grown 20 mm, now back up to 62mm. Bugger! Surgeons looking at options…
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It is a time of sadness for some and hope for many … will posting pet pics help?
Maybe it is the winter doldrums or all the struggles ... I don't want to be insensitive, but our animal friends always enrich our lives. Even a photo of a loving anmal can raise our oxytocin levels, reduce stress, and make us feel better ... maybe some pet pictures will be enjoyable. I'll start ... this is my Maxwell.…
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Chemo Changes - Still Effective?
My doctor wants to make some changes to my chemotherapy, and I'm wondering if it will still be effective. A small bit of background - My 6th FOLFOX treatment was delayed a week due to low lab counts (specifically neutrophils). My 8th one (the current one) was also delayed a week due to low counts. This time they gave me a…
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Lost in a sea of pessimism
I very seldom post a topic. In fact this may be the second time ever. But this last week has been very difficult and my anxiety meter is pegged in the red. Options for treatment are starting to be limited more rapidly than we had thought. Oncologist told me last visit it is not time to stop work YET. This is a change in…
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starting regorafenib (Stivarga) - any tips?
Had progression on FOLFOX/Avastin (growth of liver mets after a period where it was shrinking the them a lot) and irinotecan/Erbitux (new liver met after slight shrinkage of the other ones). Oncologist offered up return to 5FU + Avastin (had reaction to oxaliplatin), phase 1 clinical trial, or regorafenib as options. I…
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Did anyone try Cannabis Oil with high CBD content for treatment (not for pain relief) of CC?
I have stage 4 CC with mets to liver (so far). Thinking about trying to get the right strain of Cannabis oil that might stop even stage 4. Did anyone on the board use a good quality oil for treatment of colon cancer or does anyone know someone who was helped by the Cannabis Oil? Could it really be a hope for healing or…
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Waiting Game Pt 2
HI All! I will be waiting a little longer to hear about my results from USC. My colon shut down on Monday. It was due to a blockage. So far, no more information then that. Laurie took me to the hospital at 0030 Monday. The local Mountain hospital gave me a muscle relaxant, took a CT from the oldest CT machine I have ever…
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Johnnybgood
I hope I spelled your name correctly. How are you doing?
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More good News
The results from Pet scan showed the spot on lung not cancerous and the they are going to do surgery possibly next Thursday on colon
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Erbitux vs avastin
Hi We are awaiting results for KRAS mutation test for our second line chemo treatment. I understand that if mutation type is wild then we can add either avastin or erbitux along with FOLFIRI. Is there any data on which one is most effective? Also in terms of side effects which one is better? Your inputs on any…
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Recipes
Martha Stewart has a few good recipes on her website. Look at Cleansing Broth, Detox Soup and Smoothies.
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what does this mean?
Periductal lymph node containing metastastic adenocarcinoma.... Everything I'm pulling up on periductal refers back to the gall bladder, Just had it removed.. had a PET scan today get results next Friday. I know adenocarcinoma is cancer but is it in the bile duct, ??? I need a medical degree :) I'm thinking this isn't good…
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Just out of the hospital
I just got home from the hospital. Really long week with over ten hours of surgery last Thursday. The surgeons were amazed at the results. I have no good explanation. Still on pain meds and partial bowel function, passing gas but not fecal matter. There is an earlier post that gives details of how the surgery was plagued…
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Finishing chemo today!
I was diagnosed with a large Stage 2 rectal cancer on May 23rd. Went through radiation, chemo and surgery in October. Today I'm finishing chemo and this treatment left me with a colostomy and neuropathy in my hands and feet. I'm still very grateful, because without this treatment I would be dying or dead by now. Ill have a…
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advice needed
I got the results from my mri today. not what i was expectiog. the test revealed a second spot on my liver an the one though to be on my lung is on my chest wall for a total of 2 on my chest wall. He said surgey is not an option at ths tme and should do chemo to see if that changes things. i find this unacceptable. They…
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My angel passed away today....
My sweet wife lost her battle with cancer today. She is in heaven now. No more sufferring, no more pain. I miss her so bad. There is a huge hole in my life. We were perfect together. She was my best friend and soul mate. How will I ever recover?
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Percy's powder
Anyone tried this product. Have done lot of reading on it?!
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Good news today
The kidney lesion is not related to Colon Cancer just got home from getting pet scan see what they say next week. tried to put picture of Chester the dog turned out to large
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Just Asking For Opinions
Hello All, Just looking for opinions and/or our resident insurance guru, if we have one. As many others have done, my former company has decided to no longer be directly involved with supplemental health insurance for those of us on Medicare. I have received & tried to interpret(Ha, Ha!) all the new info. as well as…
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Signet cell carsinoma.
My lovely husband was diagnosed with signet cell carsinoma colorectal cancer.Stage 4. He is only 28.He had surgery followed by chemo one year ago and guess what?? it's back with a vengence. When oncologists did surgery to determine the extent of the illness they found another mass with spread to intestinal areas as well as…
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Happy Valentine's Day!
To a great bunch of very special people, patients and caregivers alike...you have my love and respect for all that you do. But not my marshmallow hearts. I'm sorry, but I have to draw the line somewhere. BIG hugs to you all!
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rls67 ... grief
What I have come to think about grief is that what you are feeling now, even though you feel terrible, is likely healthy and necessary. Bereavement is a long process that unfortunately cannot be finished quickly. I found that in the beginning and continuing for perhaps months is a kind of numbness, or as you said 'feeling…
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severe pain during radiation
My husband has stage 4 colon cancer with Mets to his liver, stomach, brain, and upper spine (back of neck). He is currently getting radiation on his upper spine to alleviate pain from that tumor. He is on day 3 out of 5 treatments. He is in way more pain now than before. Does anyone know if this is normal?
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any suggestion about low cea? how to bring it down?
My father is 77 years old. hee is in China and was diagnosed with colon cancer in March of 2011, had surgery removing about 6 - 8 inches colon in April, followed with 6 x Chemo. He was found lung mets in Oct of 2012 and had conventional chemo treatment. But he doesn't respond very well to the chemo (inclouding Erbitux).…
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Medical MJ
Does anyone have thoughts or experience with medical marijuana? It's seems to be such a taboo subject. As a palliative treatment, it seems to be quite popular. I've read a few articles that indicate there could be some anti-cancer properties also. Nearly 1/2 of the U.S. has approved it in some fashion for medical use. Is…
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I'm in the ER Update, phase 2
Couldnt sleep last night with terrible stabbing pains in lower right back. They think its kidney stones. Just did a scan. As sad as it sounds I hope it is only kidney stones. Its amazing how we would gladly accept something so painful as good news. Update: My surgeon read the scan from last week with his team and as I…
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Winter Marie - can you please please elaborate about high CBD cannabis oil you are taking?
Hi Marie, thanks much for responding to my question. But, sorry, I did not understand it - what do you mean by 35grams and working to 100grams? Are we talking about the same thing? The true cannabis oil is like a resin, it is very concentrated, almost black, extremelly thick (hard to squeeze from suringe) and is usually…