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oral chemo+off-label drugs+supplements
My wife's CEA jumps and climbs from a very stable trendline in the mid 2's anytime there is a disruption among several critical immunochemo components. So far we have recovered the situation by better chemistry and/or more surgery once, with smaller and fewer imaged lesions and thingies over time. Adding celecoxib, our…
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planned csn maintenance this morning
Planned maintenance will be done on CSN this morning between 5:00 and 8:00 Eastern Time. There may be one or more outages during this time. We apologize for the inconvenience. Greta
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12 Years Cancer Free Today!
12 Years Cancer Free Today! Brief History: Age 40, Diagnosed with Rectal Cancer - Stage 3C 10 out of 14 lymph nodes positive no recurrences Just wanted to share and encourage anyone starting this journey to have Faith and Hope. Be Well! Lisa
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UPDATE - One More Treatment
An update for the below... They put him on Cymbalta to help with the hand and feet numbness. This caused him to have a seizure this morning. He is okay, though. Scared the crap out of my mom though. Seizures are scary, but my fiance, his brother, and his sister all have epilepsy, so it's a "normal" part of life for us...…
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Oh, no. We've been robbed...
I just tried to follow another longtimer's success story and hit a "Time Barrier". I could no longer travel back in CSN before February, 2011 - it's gone. This is a disaster. Thankfully I've already seen, learned and pondered from a lot of others' invaluable experience across 10-12 years these past four years. It really,…
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good CT scan
As a pretty old timer here now, I am sorry I do not post as much as I should. Dx 2006 and now 2.5 years clear after 4 thoracic surgeries, liver surgery, colon surgery, 10 months of folfox, and a couple pulmonary embolisms... many of you are going through worse and I understand the loss, unfairness and pain. It was…
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CT Scan in an hour
My ONC also told me yesterday no surgery to the 3 lung mets while I have a spot in my liver. But if the liver spot is gone he will do the lung surgery. He also told me that I was on chemo for the long haul; this was the first time he didn't look at me in the eye. CT Scan today, CEA should be in soon, it went up 7 last time…
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Cannabis oil Video
I've been on this for a couple months and CEA is now going up, but I learned that I should be using it morning and evening. Going to give it another try. I almost, yea almost. feel like saying heck with chemo and just try this alone.... Hate the thought of chemo breaking my body down. http://youtu.be/WRJxauzFfNMc
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To tan or not tan the belly scars?
I've been thinking and I need your input. I'm Heading to sunny Cancun in May and I'm wondering, how many here actually tan their scars? If so, can oh share your experties. Do the scars appear: 1. No change color, they stay same color. or tanning lotion keeps them white or unchanged. 2. tan the scars, and scars won't be…
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Mom Stage IV.
I posted here before, and she may even read this post (she saw my other one. Eesh.) Anyway, I'll try to keep this short, and I know a lot of things vary and anything could happen, but I figured I'd be best to ask people who have experienced some of this. My mom was diagnosed about two and a half years ago with stage IV and…
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Update from Laz
It's been 4 weeks since I finished chemo. Everything is going well: my hands and feet healed up except some nubness and my vitality is coming back although I just did some light gardening and my energy just dropped like crazy. I'm planning on going back to work part time in a month. I hope by then my hands will improve and…
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Update,
Got a good call from the hospital yesterday,they informed that "part 1" of my Radio Embolization test went well and I am a candidate for this procedure, March 24th. I wish they could do today, but I understand that there's a ton of number crunching involved and everything needs to be perfect. There was some talk about…
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To the mods-can't post comments
Don't know if I'm the only one having this problem, but when I tried to post a comment on the post by SilentRenegade, I'm unable to do so. It gives me only the "preview" option, then when I preview the comment, the "submit" button reappears, but clicking on that only returns it to the preview page. I noticed that there is…
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Peter McCallum centre Melbourne Aust
Anyone been to this centre. Experience? amyone had lung surgery here? Good doctors? i was hoping for,microwave therapy but my largest tumor 62mm might be 1cm too big!!! rhen have to,hope for surgery
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might be useful
http://clinicaltrials.gov/show/NCT01522820 "A Phase I Clinical Trial of mTOR Inhibition With Rapamycin for Enhancing Intranodal Dendritic Cell Vaccine Induced Anti-tumor Immunity in Patients With NY-ESO-1 Expressing Solid Tumors"
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Maintence Chemo options: Xeloda vs. 5FU?
Mike's last scheduled treatment is on Tuesday. Due to the study he is partaking in, we will be moving to maintence chemo. He is currently taking Avastin, Leucovorin, Oxailiplatin, Irinotecan, and 5FU pump for 48 hours. For maintence chemo, he has the option of doing Avastin, Leucovorin, and 5FU pump every two weeks or…
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no surgery
They fkund 3 more spots on left chest wall so will not operate. What a waste of time and money.
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MD Anderson
Will be on my way Friday to Houston for a Monday morning appointment! Was scheduled for my 1st treatment today but got the 5pm call yesterday for MD. Will meet Monday, get Lord knows what done to me on Tuesday and meet again Wednesday. A little anxious! but ready to get this fight started. Getting my PET put on a disk to…
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Laz is NED!!!
I just got my PET Scan result and it shows no cancer activity now anywhere, including that seminal vesicle that looked abnormal on the CT. So after almost 10 months os treatment and fear I'm considered NED. I'm very relieved. Thank you so much for all of you. Could not do it without you. Wanna dedicate my happiness to…
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been a while aggie0053
have questions been almost 4 yrs clean the other day pain in stomach had blood work and c scan gall bladder stones pain went away the next day had to see my dr. he checked the results and said 4 lymph nodes in stomach enlarged don't know what it could be, sending me to a dr tomorrow, just worried
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Surgery Tomorrow
My apologoies to the group for being missing in action.....that's how bad the pain is right now, just crippling and I'm mostly in bed all day, it's been a bad scene. The pain pils dull the pain but cannot get me on my feet for long, just enough to do what what I gotta do....then take the pressure off by laying down. Pills…
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Stage IV 5 years NED
I saw my doctor yesterday. My CT and X ray scans were clear so I've gone 5 years NED. I asked him if I was cured. He said as far as he was concerned I was. He said he couldn't find any data to support that because so few stage IV patients go 5 years NED. Does anyone out there know when someone stage iv can be considered…
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Just saying
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CT Scan today
Well VA moving ahead quickly now. I saw onc weds and she asked about bowel movements and got concerned when I said it had been couple days and prescribed medicine for that. Then called yesterday and said Inwas to be admitted on Monday in prep for surgery after talking to surgeon. Then they called this Morning and had me…
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Update on Craig's pain surgery
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Scan results...:-(
Friends, Here's the lastest. I meet with a Vascular and Interventional radiologist today to discuss radioembolization for the 20 or so cancer spots I have on my liver. He also addressed doing chemoembolization for the large tumor I now have on my adrenal gland. Today I found out that my cancer is no loger respoding to to…
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Avastin
Looking for any information about avastin. My mom is dealing with incurable cancer and her dr told her yesterday that he was adding avastin to her chemo treatment that she is getting tomorrow. Side effects sound scary. Thank u so much!!! God bless
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Remember us?....=)
Gosh, I'm so sorry I haven't posted on here in a very long time. I've had issues with my rotator cuffs (in both shoulders) so it has been kinda hard to get online for very long at one time, but I'm determined to do an update on Jason's condition, especially since it's all pretty awesome news! I won't go into the long…
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lisa2012 Irinotacan Question
Hi Lisa, Im Rachel, I read that you are on Irinotacan and wondered how you are doing on that chemo? I may be starting it soon as my Xeloda. Eribitux and OXY aren't working and CEA is now going up again. I heard that it's a bit harsher then what I am going through on this chemo cocktail What are the side affects, other then…
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Any advise before PET scan?
Ill have a PET scan on Wednesday to check some abnormality in my seminal vesicle ( a gland behind the bladder). Any advise before the Scan? Thank you, Laz