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To the mods-can't post comments
Don't know if I'm the only one having this problem, but when I tried to post a comment on the post by SilentRenegade, I'm unable to do so. It gives me only the "preview" option, then when I preview the comment, the "submit" button reappears, but clicking on that only returns it to the preview page. I noticed that there is…
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Peter McCallum centre Melbourne Aust
Anyone been to this centre. Experience? amyone had lung surgery here? Good doctors? i was hoping for,microwave therapy but my largest tumor 62mm might be 1cm too big!!! rhen have to,hope for surgery
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might be useful
http://clinicaltrials.gov/show/NCT01522820 "A Phase I Clinical Trial of mTOR Inhibition With Rapamycin for Enhancing Intranodal Dendritic Cell Vaccine Induced Anti-tumor Immunity in Patients With NY-ESO-1 Expressing Solid Tumors"
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Maintence Chemo options: Xeloda vs. 5FU?
Mike's last scheduled treatment is on Tuesday. Due to the study he is partaking in, we will be moving to maintence chemo. He is currently taking Avastin, Leucovorin, Oxailiplatin, Irinotecan, and 5FU pump for 48 hours. For maintence chemo, he has the option of doing Avastin, Leucovorin, and 5FU pump every two weeks or…
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no surgery
They fkund 3 more spots on left chest wall so will not operate. What a waste of time and money.
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MD Anderson
Will be on my way Friday to Houston for a Monday morning appointment! Was scheduled for my 1st treatment today but got the 5pm call yesterday for MD. Will meet Monday, get Lord knows what done to me on Tuesday and meet again Wednesday. A little anxious! but ready to get this fight started. Getting my PET put on a disk to…
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Laz is NED!!!
I just got my PET Scan result and it shows no cancer activity now anywhere, including that seminal vesicle that looked abnormal on the CT. So after almost 10 months os treatment and fear I'm considered NED. I'm very relieved. Thank you so much for all of you. Could not do it without you. Wanna dedicate my happiness to…
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been a while aggie0053
have questions been almost 4 yrs clean the other day pain in stomach had blood work and c scan gall bladder stones pain went away the next day had to see my dr. he checked the results and said 4 lymph nodes in stomach enlarged don't know what it could be, sending me to a dr tomorrow, just worried
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Surgery Tomorrow
My apologoies to the group for being missing in action.....that's how bad the pain is right now, just crippling and I'm mostly in bed all day, it's been a bad scene. The pain pils dull the pain but cannot get me on my feet for long, just enough to do what what I gotta do....then take the pressure off by laying down. Pills…
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Stage IV 5 years NED
I saw my doctor yesterday. My CT and X ray scans were clear so I've gone 5 years NED. I asked him if I was cured. He said as far as he was concerned I was. He said he couldn't find any data to support that because so few stage IV patients go 5 years NED. Does anyone out there know when someone stage iv can be considered…
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Just saying
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CT Scan today
Well VA moving ahead quickly now. I saw onc weds and she asked about bowel movements and got concerned when I said it had been couple days and prescribed medicine for that. Then called yesterday and said Inwas to be admitted on Monday in prep for surgery after talking to surgeon. Then they called this Morning and had me…
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Update on Craig's pain surgery
The following is from Kim, Craig's wife: I wanted to thank everyone for all the prayers and support. He is home and resting. It may take up to 10 days before we know if it worked. Marie if you want to let CSN friends know please feel free to share with them. I know some of them may want to know. Let's all offer our best…
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Scan results...:-(
Friends, Here's the lastest. I meet with a Vascular and Interventional radiologist today to discuss radioembolization for the 20 or so cancer spots I have on my liver. He also addressed doing chemoembolization for the large tumor I now have on my adrenal gland. Today I found out that my cancer is no loger respoding to to…
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Avastin
Looking for any information about avastin. My mom is dealing with incurable cancer and her dr told her yesterday that he was adding avastin to her chemo treatment that she is getting tomorrow. Side effects sound scary. Thank u so much!!! God bless
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Remember us?....=)
Gosh, I'm so sorry I haven't posted on here in a very long time. I've had issues with my rotator cuffs (in both shoulders) so it has been kinda hard to get online for very long at one time, but I'm determined to do an update on Jason's condition, especially since it's all pretty awesome news! I won't go into the long…
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lisa2012 Irinotacan Question
Hi Lisa, Im Rachel, I read that you are on Irinotacan and wondered how you are doing on that chemo? I may be starting it soon as my Xeloda. Eribitux and OXY aren't working and CEA is now going up again. I heard that it's a bit harsher then what I am going through on this chemo cocktail What are the side affects, other then…
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Any advise before PET scan?
Ill have a PET scan on Wednesday to check some abnormality in my seminal vesicle ( a gland behind the bladder). Any advise before the Scan? Thank you, Laz
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Waiting Game Pt 3
HI All! Well we have a plan! I am going to start Folfiri w? Avastin again. I responded well to it before, and kicked some cancer hiney for me! We will re-evaluate in about 10 weeks for surgery or more chemo. I have a tumor next to the rectum. I have a couple more in the peritoneum near my belly button. One can actually…
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No lung surgery....microwave?
Drs have told me they won't do lung mets now cos scan shows larger tumor has grown now to 62mm. Bugger! They want to try and get hem under control first...???? Anyone had microwave, radiation therapy? What is it exactly? How successful? side effects? They have had it in melbourne awhile and just bought it to adelaide??…
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Katie Lost her First Tooth!
This past weekend my little angel, the child whose birth forced the discovery of my own illness, lost a tooth. Many of my acquaintances may not understand the significance but I know the folks here on this board will. During my c-section the attending surgeon to my OBGYN felt a node beneath the uterus. She called for an…
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Wow what a day...
Went to Ann Arbor for follow up with the surgeon. CEA is back down to 1. And I have a letter to go back to work part time (lifting restrictions of course). I'm looking forward to surprising my co workers tomorrow. Surgery on 2/7. Home from the hospital on 2/13. Off all meds on 2/16. Back to work part time from home on…
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Any Craig updates?
Has anyone heard from Craig or see any FB updates? Just been thinking about him a lot and missing him around here!
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Restarting treatment trying to find he strength
Hi all, I am looking for some advice from you guys. I have been two weeks without chemo due to illness and after I recovered fully from the illness I finally felt like myself. I mean like my old pre-cancer self. For the first time since I started this journey I had three days of being who I was. The feelings of happiness…
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One year checkup
Popping on to say hello and check on everyone. Can't seem to find any posts from people like Danker and Coppercent. Don't remember what Donna's sign on name is. Will have to do a little research. I got my one year NED marker. Clean colonoscopy. Were there always smiley faces on here? I guess I was too busy fighting cancer…
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IV nutritional therapy
Has anyone tried iv nutritional therapy for pre and post chemotherapy? Oh have read that it really helps with quality of life during chemo. I am on oxaliplatin and irinotecan for stage 3 colon cancer. Any advise would b helpful.
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4 years today
4 years ago today I was diagnosed with Stage IV colon cancer, I also had my bi-weekly visit with my onc today and we reminisced that he thought I had 3 weeks of time on this earth left at the mostback in February 2010, he mentioned no one wanted to touch me, I was glad he was willing. Today I found out my chemo isn't…
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Had to stop Regorafenib
I had to be taken off regorafenib after 10 days due to jaundice and various liver numbers being too far out of whack. I didn't even bother arguing with the doctor that yellow was a good color for me . My platelets fell too, but not enough to be worrisome. I missed out on all of the other side effects. In 2 weeks i see my…
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Erbitux resistance
Anyone had resistance to this drug if so what were signs. How long had u been on it. And what was your next option
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looking for other caregivers-husband w/colon cancer
I am 32, my husband is 34 and was diagnosed with stage 4 colon cancer last year. already been through oral chemo/radiation, surgery, now in the midst of 12 cycles of IV chemo. i'd really like to hear from other young colon cancer survivors. Seems like everyone we meet is 20-40 years older than us. We have three young kids.…