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Anyone Else HNPCC
Hi, I was hoping to find someone else with HNPCC (hereditary non polyposis colon cancer). Well, that sounds horrible; I hope no one else has it..but I would like someone to talk to about recurrance since we have such a high rate..over 80 percent. We also have the same risk for uterine, ovarian, and so forth... I was just…
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Dad's Surgery Appointment
So he went to see the surgeon today. Rated the best in the area and I get why. He feels that the oncologist has not provided enough information to cut him open. He wants all the facts and feels the PET scan isn't telling the whole story. Therefore, he wants a colonoscopy and in three months a new PET scan. Once he has…
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FOLFIRI (Update)
Greetings to my Friends on CSN, Last scan showed invasion of healthy half of liver at multiple locations, and the left is reinfected as well. To make things more interesting there is a strange rash at the incision site which seems to be spreading. Onc told nurse to get referral to dermatology, no luck with that yet. Oh…
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Feeling alone
I am feeling very alone in this whole careing for my husband. He has had stage 4 colon cancer for 6 years now. He has had every chemo for his illness and all worked, and then he would become toxic to them or they would stop working. We are now seeking out clinical trials trying to prolong his life. Although i have many…
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in the ER not for cancer
I was feeling great and crashed my mountain bike. Busted up my lip and nose. Its not looking good for treatment tomorrow. I am heartbroken about giving my wife more to worry about.
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I was sheltered in oncology...
but now I'm back in the general population, and I can't say I'm too happy about it. My oncologist wasn't the greatest, but man. Now that I'm trying to find a GP to work with, I'm realizing that maybe I had it pretty good. I've seen two family practice docs in the last two months. First guy: -no eye contact -interrupted me…
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It hasn't been asked in quite a while so . . . Any plans for this weekend?
Tomorrow I am going to a "Sexy Karaoke Birthday Party" at an Irish bar. The birthday boy is named Jim and he's a big fan of Stewie from Family Guy so he's having a Stewie Sexy Party. I've never sung Karaoke at a bar so I'm super excited. Some of the people coming are heavy hitter drinkers so it should be entertaining when…
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Learned another lesson today - don't talk to the radiation techs
Good evening all, first of all, let me apologize for being mostly a lurker and much less of an active participant in this board. I want to also thank all of you for being an infinite source of information and an inspiration for me on my journey. After my stage 2 diagnosis, the following surgeries, chemo and some more…
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Need information my dad has cancer
Hey everyone, i need help my dad has a rare diseSe called puertz jegher sydrone. he had surgery to take out polyps in September. While theybwere in there they found a cancerous polyp at the start of the intestine were Ur stomach and Inotes fine meet. It was stage three the do. Was 95% sure he got all of it out. They then…
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TERRIFIED of Biopsy; Questions
Hey You Guys, So, I have this unnatural fear of needles...IVs, pic lines, port draws...just anything needle related. Bummer when you have cancer I like to know every single thing that's going to happen to me before it happens (medically). So I have a couple of questions if anyone could help, pretty please? Lung Biopsy: Is…
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My Patrick passed away today
Devoted husband of 31 years, loving father of our 2 children, great walker of our 2 dogs, and the very best friend that I could ever hope for. He fought this battle bravely for almost 3 years, and when he got knocked down, he dusted himself off, and kept fighting till the very end. He was a hands on type of guy. He loved…
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Inspired By My Child to Live Again
I wanted to share this with you guys. Especially for anyone who just got an ostomy and is feeling down, or feels afraid because of cancer. I was optimistic and hopeful concerning my cancer. The first colostomy was so hard for me. Then an ileostomy came, and then back to a colostomy; in the course of a year. I hid it well…
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Needing answers to my sister's cancer and surgery
In December my sister was diagnosed with stage 4 colon cancer that had moved to her liver. She did 3 months of chemo to shrink the tumors. The doctor said on a scale of 1-10 she had done so well hers was like a 12 and her tumors had shrunk enough to have surgery. She had 3 spots on her liver and they were hoping to do both…
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6 year NED but urinary issues-radiation side effects??
Dad has been NED for 6 years now and had a small suspected recurrence last year Avastin and folfiri (4 cycles) and tumour was completely gone(or never existed),do not know. Off late the radiation from the intial surgery has been causing a lot of fibrosis and his urinary tract and bladder have been affected. He developed…
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Joemetz?
Do I have his user name right? Anyway, you guys know who I mean! Anyone heard from him? It seems like it's been ages since he posted here. Just wondering how he's doing.
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Stinking lump
Had dental work and my gland has been swelling for a few weeks so I wrote is off as dental work related. Now I have a hard lump on another part of my body. Grumble grumble grumble. Going on Thursday to have it checked. Too tired for this and so done. Cancer can kiss my grits. Hoping it's just some normal problem. I would…
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spreading into mesentery
Wondeing what you all know about mesentery? my father who is stage 4 recently showed on the scans that there is 'activity' on his abdomnial lining (mesentery). they are not sure if this is lymph nodes, tumors or even swelling. he was given a 6 week break from chemo as he was on it for 1.5 every two weeks but now b/c of…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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Nodes on Lungs Always Colon Cancer That's Spread?
It's been almost two years since I had the tumor removed from my colon. I had to fight long and hard after that because of radiation almost killing me, but here I am; alive and hopefully well. I had a catscan about 9 months ago that showed two nodes on my lungs. I had another one last thursday that shows that one of the…
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Would I get tos'd if
I ask for prayer for my family. Going through things, everyone losing jobs, divorces, mom's scan coming up, and dad losing memory. Sitting here crying a lot lately. Crying in the car at work in the bathroom in church, etc. Shaking all the time, can't eat, can't sleep, can't drink water. Just need some love from my other…
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Trying to wean myself from forums for a while....
I'm NED for over 2 years now and have found that when I come and read posts about symptoms or reccurences, I go into a real tailspin of anxiety. I've talked with a therapist who has insisted that I need to stop fixating on cancer and try to get on with my life. She says I have PTSD and have developed Health Anxiety (I call…
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Saying Hi
Hi everyone. Sorry I have been out for such a long time. I felt like I needed to rest myself from feeling all depressed and worrying. I hope everyone is doing well or just fine would be at least good for me to hear. My mom is doing fine. Neuropathy is her biggest enemy right now. I hope there is something that I can do to…
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Recovering from my Microwave Ablation 'Cooked Liver' procedure - Update April 30th
OK, this was my 11th surgery. Why oh why oh why did I not ask more questions? I mean, come on, I really should know better. So, I figured that seeing they made it an outpatient procedure, I would be good to go in just a few days. IDIOT! Yesterday I was so tried of the pain that I talked to my surgeon's nurse. "Why am I…
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CEA question about an old thread
I had bookmarked an old thread where one of our members had listed her CEA for years and it jumped all over the place, tho she remained clear of cancer. I kept it because I always worry so much while waiting for my CEA results. I tried to access it today and it says the thread is not found. I don't remember who was the…
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Complete Colon Removal?
I met with my surgeon today...lots of good information. We are considering a complete colon removal; attaching the small intestine to the rectum...I will go to the bathroom 3-4 times per day (he says) for the rest of my life if we do this.. Has anyone had this done? Would you mind terribly to share your story (what day to…
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Looking for insight from all of you
As many of you know, my brother has had a lot of medical issues that interfered with his getting chemo on several occasions. He also had to have his chemo reduced and some of the chemo meds eliminated because of the side effects. He is now on 5-FU and irinotecan. They had to cut the dose of 5-FU in half because of the side…
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A Day At Sloan Kettering.....
I spent yesterday at Memorial Sloan Kettering Cancer Center, first at some programs, and then at my surgeon’s research lab, where they are doing amazing studies on colorectal cancers. I saw my doctors, but purely on a social basis. We traveled there for the luncheon discussion from their Integrative Medicine group. Some…
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Been awhile
It has been awhile since I've been on, alot is going on..I've started my folifiri, 5FU and Avastin. Had my first does of Avastin Wednesday and it has not been kind to me at all. Between the cramping, diaherra, nauseau, I've been pretty miserable. I think (I used that word lightly) that I am beginning to feel better. I…
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Surgery Thursday - UPDATE April 25th
My surgical oncologist doesn't want to resect the liver, so he is doing a Microwave Thermal Laparoscopic Ablation. He will also remove my appendix if there is not too much scar tissues and adhesions. My appendix has been enlarged for a while. We are just going to stay up in the big city until the surgery is over. If all…
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start chemo
i start 6 months every 2 weeks of folfox and avastin, nervous