Are there any other 20 plus year since siagnosis childhood cancer survivors out there?

btcat
btcat Member Posts: 51
edited March 2014 in Childhood Cancers #1
I'll be 26 yrs past dx in February. I'd really like to find some other childhood survivors that are 20 years or more past diagnosis. If you are, please reply to me here or better yet e-mail me at my member page.
God Bless,
Christy aka btcat
«13

Comments

  • Unknown
    Unknown
    #2
    This comment has been removed by the Moderator
  • mo2968
    mo2968 Member Posts: 2
    #3
    childhood survivor
    Hi,

    I am a 35 year survivor of Hodgkin's disease. I was diagnosed at age 7. I am also a 7 year survivor of Rectal Cancer. It is so nice to see these numbers and give hope to those batteling this terrible disease right now.
    Maureen
  • btcat
    btcat Member Posts: 51
    #4
    mo2968 said:

    childhood survivor
    Hi,

    I am a 35 year survivor of Hodgkin's disease. I was diagnosed at age 7. I am also a 7 year survivor of Rectal Cancer. It is so nice to see these numbers and give hope to those batteling this terrible disease right now.
    Maureen

    Hi Maureen :)
    Thanks for the reply. It seems my post was sitting here for a long time with no repllies. I started to feel like maybe i was somekind of inigma, like noone makes it to 20+ years. I felt kinda lonely, like i was the only one. It's nice to know there are others out there, not that any of us want to have to be here, (having been thru cancer that is.)
    It is nice give hope to those going trhu this thing.
  • btcat
    btcat Member Posts: 51
    #5
    unknown said:

    This comment has been removed by the Moderator

    hi riceowl :)
    I wish we did get a plaque. Thanks for the reply. It seems my post was sitting here for a long time with no repllies. I started to feel like maybe i was somekind of inigma, like noone makes it to 20+ years. I felt kinda lonely, like i was the only one. It's nice to know there are others out there, not that any of us want to have to be here, (having been thru cancer that is.)
  • Matty
    Matty Member Posts: 21
    #6
    survivor
    I am 43 years post teatment, I do believe in miracles. Diagnosed at 4years old with a malignant brain tumor(ependymoma). Underwent surgery, and radiation.
  • mbundgus
    mbundgus Member Posts: 14
    #7
    unknown said:

    This comment has been removed by the Moderator

    That's amaizing !
    I agree about the plaque... I just rounded 46 years --out from Childhood Hodgkins Lymphoma - 32 Years Thyroid Cancer - 11 years Spinal Meningioma, and I just could not pass the Breast Cancer ride -- 9 years ago. Yes ! I agree where is our Plaque. Sometimes I want to scream it from a mountain or top of a building or definitely at the meeting at work -- Hey !! look at me I have so much to be proud of. Thank you for letting me shout. I just turned 50 this year !
  • mbundgus
    mbundgus Member Posts: 14
    #8
    mo2968 said:

    childhood survivor
    Hi,

    I am a 35 year survivor of Hodgkin's disease. I was diagnosed at age 7. I am also a 7 year survivor of Rectal Cancer. It is so nice to see these numbers and give hope to those batteling this terrible disease right now.
    Maureen

    Me too ! Interesting ...
    Hi Maureen,

    How are you ? Finally a match ! I am a 46 year Hodgkin's Survivor. Wow ! Nice to meet you. I was diagnosed just before the age of 5. If you would not mind I'd like to find out more about the treatment you received... Ok if not.I received Chemo and radiation after they removed 3 malignant tumors from lymph node areas. The therapy years later gave me Thyroid Cancer, various Non Malignant Tumors, a Spinal Meningioma and Breast Cancer. Through it all I have been healthy. : ) I just turned 50 this year.
  • kr1sse
    kr1sse Member Posts: 3
    #9
    20 plus survivor
    Greetings. I just recently joined the blogs, and am pleased to see so many people put there who have gone through life well for the most part since having childhood cancer. If you would like to share stories, or if you have any questions, let me know.
    Cheers.
  • SueBIE2
    SueBIE2 Member Posts: 7
    #10
    Matty said:

    survivor
    I am 43 years post teatment, I do believe in miracles. Diagnosed at 4years old with a malignant brain tumor(ependymoma). Underwent surgery, and radiation.

    You've got me beat
    Wow Matty, you've got me beat by 3 years.
    I'm a 40 year survivor of cancer of the salivary gland, diagnosed at age 8.
    There aren't many of us out there, thanks to the slash and burn techniques in the 60s. I'm thankful my surgeon was as stubborn as I am!! He did a great job.
  • btcat
    btcat Member Posts: 51
    #11
    mbundgus said:

    That's amaizing !
    I agree about the plaque... I just rounded 46 years --out from Childhood Hodgkins Lymphoma - 32 Years Thyroid Cancer - 11 years Spinal Meningioma, and I just could not pass the Breast Cancer ride -- 9 years ago. Yes ! I agree where is our Plaque. Sometimes I want to scream it from a mountain or top of a building or definitely at the meeting at work -- Hey !! look at me I have so much to be proud of. Thank you for letting me shout. I just turned 50 this year !

    Wow
    You've really been through it! you really deserve that plaque!
  • btcat
    btcat Member Posts: 51
    #12
    Matty said:

    survivor
    I am 43 years post teatment, I do believe in miracles. Diagnosed at 4years old with a malignant brain tumor(ependymoma). Underwent surgery, and radiation.

    Hey
    Just when i was starting to wonder about fellow childhood ca brain tumor survivors. you got me beat for years past.
  • btcat
    btcat Member Posts: 51
    #13
    kr1sse said:

    20 plus survivor
    Greetings. I just recently joined the blogs, and am pleased to see so many people put there who have gone through life well for the most part since having childhood cancer. If you would like to share stories, or if you have any questions, let me know.
    Cheers.

    Hi : )
    Nice to see you join in. I'm at 26 years past diagnosis of a cancerous brain tumor (medulablastoma) and 7 past a noncancerous tumor on the top of my brain caused by the radiation. What kind of cancer did you have?
  • Kerri Lynn
    Kerri Lynn Member Posts: 17
    #14
    Hey there
    Well I dont have 20 years under the belt but I am coming up on my 16-Year Anniversary on April 10 so I thought I'd throw that out there! Congrats to all those who have been passed 20 years. I hope all the best for everyone and many good years to come!
  • Survivor86
    Survivor86 Member Posts: 18
    #15
    I am a 23 year survivor of HD
    Are you dealing with any late effects? Do you know of any follow up facilities that help the uninsured, I live in TN. Smokey Mountains, the doctors here don't know about the long term health problems I'm having.

    Thanks,
    Survivor86
  • feather80
    feather80 Member Posts: 15 Member
    #16
    Survivor86 said:

    I am a 23 year survivor of HD
    Are you dealing with any late effects? Do you know of any follow up facilities that help the uninsured, I live in TN. Smokey Mountains, the doctors here don't know about the long term health problems I'm having.

    Thanks,
    Survivor86

    23 years since diagnosis (leukemia)
    Hello everyone,

    I had leukemia 23 years ago, when I was 6.
    It's nice to see that there are so many people who are more than 20 years since diagnosis.
    And it's amazing to hear about people who had childhood cancer 40 years ago! Wow! I'm impressed! It's so nice to hear that children were cured in those days as well. Congratulations!

    Feather
  • Aquagirl18
    Aquagirl18 Member Posts: 45
    #17
    hi everyone
    I'm 30 and I had my cancer when I was about 13 months old. I have been out of treatment since I was maybe 2 or three years of age. I'd like to find other childhood cancer survivors too. If anyone wants to talk we can exchange messages here or trade e-mail addresses. Nice to meet all of you.
  • deedee0119
    deedee0119 Member Posts: 5
    #18
    Aquagirl18 said:

    hi everyone
    I'm 30 and I had my cancer when I was about 13 months old. I have been out of treatment since I was maybe 2 or three years of age. I'd like to find other childhood cancer survivors too. If anyone wants to talk we can exchange messages here or trade e-mail addresses. Nice to meet all of you.

    43 YEARS IN REMISSION AND COUNTING!!!!
    Was diagnosed with Wilms tumor when I was 17 months old. Mom was told even after surgery and chemo and radiation that I would have a 30% chance of living -- and that if I did I would never have children. Well I am now 45 years old...have three healthy beautiful boys -- a 20 year old and twin 19 year olds...and am still here!! Having a lot of latent effects from chemo/radiation...anyone else??? Would like to know I'm not the only one.
  • Survivor86
    Survivor86 Member Posts: 18
    #19
    deedee0119 said:

    43 YEARS IN REMISSION AND COUNTING!!!!
    Was diagnosed with Wilms tumor when I was 17 months old. Mom was told even after surgery and chemo and radiation that I would have a 30% chance of living -- and that if I did I would never have children. Well I am now 45 years old...have three healthy beautiful boys -- a 20 year old and twin 19 year olds...and am still here!! Having a lot of latent effects from chemo/radiation...anyone else??? Would like to know I'm not the only one.

    Late effects
    Congratulations, 43 years that's great! What type of late effects are you having? No your not alone. It's wonderful you were albe to have children!! I also am experiencing the late effects of chemo and radiation, I was 11 years old when I was diagnosed with stage IVB Hodgkin's My parents were told that I would probably die, but I beat the odds, and have been in remission for 23 years. I was unable to have children and had to have a hysterectomy when I was 28 yrs. old, I have terminal IC (bladder disease), I experience pain daily in my joints, bones and muscels, I have nodules on my tyroid, that the doc's said they would just watch, and spots on my breast they said they would also watch. I have had sever memory loss, I have had scare tissuse removed twice from my abdomen, do to the radiation. I notice you are new to this site, I have found another site that you might find much needed support (LT-SURVIVORS@LISTSERV.ACOR.ORG) feel free to e-mail me if you want to chat @ bmrigney29@aol.com

    Brandie
  • BlueKari
    BlueKari Member Posts: 2
    #20
    Survivor86 said:

    Late effects
    Congratulations, 43 years that's great! What type of late effects are you having? No your not alone. It's wonderful you were albe to have children!! I also am experiencing the late effects of chemo and radiation, I was 11 years old when I was diagnosed with stage IVB Hodgkin's My parents were told that I would probably die, but I beat the odds, and have been in remission for 23 years. I was unable to have children and had to have a hysterectomy when I was 28 yrs. old, I have terminal IC (bladder disease), I experience pain daily in my joints, bones and muscels, I have nodules on my tyroid, that the doc's said they would just watch, and spots on my breast they said they would also watch. I have had sever memory loss, I have had scare tissuse removed twice from my abdomen, do to the radiation. I notice you are new to this site, I have found another site that you might find much needed support (LT-SURVIVORS@LISTSERV.ACOR.ORG) feel free to e-mail me if you want to chat @ bmrigney29@aol.com

    Brandie

    23 years
    This Memorial Day it will be 23 years (I'm 29 now) since my left leg was amputated and I was diagnosed soon after. My mother was told by the doctor that I had a pulled ligament and to go home and wait it out. Since he was a doctor my mom trusted him (she still feels guilty for that). A few weeks later my tumor was the size of a smaller grapefruit. I was rushed that night to a Sacramento hospital and my leg was amputated the next morning. I had Osteosarcoma which had spread to my lungs as well. I had two years of chemo and have been cancer free ever since. Although I'm always nervous it will come back. :(

    I was told I couldn't have children but I have an absolutely beautiful 8 year old daughter that is the love of my life (sappy mom talk lol).

    It's great to see all of your stories :)
  • Gene0440
    Gene0440 Member Posts: 1
    #21
    29 Years in Remission !!
    Hi btcat..

    Saw your post and thought I would drop you a line.

    Diagnosed when I was 1 year old with Rhabdomysarcoma ( Bladder ) Cancer. Have had a great life. Ride Dirt bikes and snowboard on the reg. Live in Sunny Southern California ( Los Angeles Area ) and would love to share my story with anybody who is interested..

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