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Cardio Myopathy from Adriamyocin

Maragardne
Maragardne CSN Member Posts: 3
edited March 2014 in Childhood Cancers #1
Hi, i'm new at this, am a 24 year survivor of Ewings Sarcoma. I just had a baby and during pregnancy found out about Cardiomyopathy induced by Adriamyocin..want to talk to others w/cardiomyopathy from adriamyocin.
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  • lindazame
    lindazame CSN Member Posts: 46
    #2
    Hi,
    There is a discussion group for long term survivors of childhood/adolescent cancers at ACOR.org We have over 300 members, including survivors of Ewing's. We also have members with cardiomyopathy related to chemo and rads. Come join us. It's a great group with excellent information. You also might be interested in the book Childhood Cancer Survivors by Nancy Keene. You can read about it at Amazon or read it at your local public library. Also see my earlier post about the follow-up guidelines for survivors. That will help you plan and think about future treatment.
    Feel free to contact me directly,
    Linda Zame (zame@earthlink.net)
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  • vickifooks
    vickifooks CSN Member Posts: 2
    #3
    Hi, I am a 28 year survivor of Ewings Sarcoma, and have cardiomyopathy b/c of adriamyocin. I would be happy to talk to you about this.

    Vicki Fooks (vicki@fooks-robb.com)
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