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What was your year after treatment was over like?
My diagnosis was January 2014 so I spent all last year having chemo two surgeries, radiation, and then I had one more surgery this year. Last year going through it all I was on auto pilot and just doing what I had to do to get through it all and everyone says I did so amazing. This year it hit me.......I HAVE/HAD cancer.…
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New Diagnosis of Invasive Ductal Carcinoma
I was diagnosed with IDC 2 weeks ago..I'm waiting for gentic testing results and Oncotype results. I have to decide what I want to have lumpectomy with radiation and possibly chemo and take a chance on it coming back in a few years...or go with the double mastectomy and not have either I'm mentally struggling with the…
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Anyone have whole breast radiation in prone position?
Hi ladies, I have heard of radiation to the whole breast given while the person is on her belly with breast hanging down. (Reminds me of the biopsy!) Does anyone have advice or experience with that? Makes sense to me especially if the woman is big breasted. That would keep rads away from heart, lung and ribs. BUT, it seems…
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Xeloda, anyone?
Hi there! I'm starting Xeloda next week and was wondering if anyone can share their experience with it. We are adding it to Taxotere and Faslodex. The taxotere is working great on my liver mets but the lymph nodes are growing again and the cancer has metastasized to my skin. So looking for the Xeloda to attack those two…
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Fingernail issues
I finished Taxotere in Feb of this year. I'm now on Letrozole, Hercepetin, and Zometa (all indefinitely because of bone met). I know the Taxotere can cause nail problems, and my toenails did get pretty bad towards the end, though I never lost any. Just recently, my fingernails are splitting, and they're very thin, almost…
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Genetic Test Results Question
Hello, new here. I'm a breast cancer survivor who had a lumpectomy, chemo, and radiation, and has been cancer-free for the last 7 years. I just had genetic testing and the result was "Variant of Uncertain Significance Identified in ATM." This genetic testing covered many different types of cancer, including breast,…
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Elevated CA-125
Hi all! I just found out today that I have elevated CA-125 levels. CA-125 is a tumour marker for ovaries. My level is 86, normal values are under 35. I am on Tamoxifen and had my regular gyn US two days ago and my doctor found 2 cysts, so that's the reason she reffered me to make CA-125. I will see my onco on Monday and I…
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Nausea!!!! Help
My first chemo treatment was Monday. Both Monday and Tuesday I was fine. I also have to take a small amount of. predostone. ( steroid) in morning for liver. come Wednesday morn. My nausea kicked in hard ! All day with just slight diarrhea. i am on three different nausea meds. I just want to know does the nausea go away…
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Need Info on Lung Mets
I am in south central Alabama, and in this part of the country, it is quite common for folks to develop small nodules in their lungs, and they are normally caused by something in the soil. When those nodules showed up on my PET scan when I was first diagnosed with Stage 3C Triple Negative Breast Cancer, my oncologist…
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May 28th - Happy Birthday shout out to Aisling8's / Victoria
Happy Birthday to YOU .. Miss Victoria - hoping you have a most treasured day my friend .. ENJOY yourself... Many happy memories Vicki Sam
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Happy Birthday, New Flower
Hoping you have a wonderfully peaceful beautiful day, dear Olga. xoxo Victoria
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Happy Birthday Shout out to Jean0609 - June 9th
Happy Birthday my Friend - Love, Laughter and Health .. I wish for you. Enjoy this very special day. Vicki Sam
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Anyone have advice?
I made it through uterine cancer. Diagnosed and had hysterectomy and radiation. Am 9 months past surgery now, but found lump in my breast and having shoulder pain. Is this a sign, or am I looking for problems were there aren't any? I know a lump isn't a good thing, but I have never heard anything about shoulder pain. I'm…
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to have reconstruction or not!!
Hi everyone, I was a 5 year survivor May 6,2015 and just now thinking about reconstuction,my surgeon is gonna give me some recommendations on a plastic surgeon actually two so i can compare and make a decision, I've read a lot of stories about reconstruction and it seems as if with most you have to have multiple…
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A LATER OT - Crazy Horse Memorial Volksmarch
I forgot to ask - is anyone doing the Crazy Horse Memorial Volksmarch tomorrow or Sunday? I'll be there tomorrow and hopefully we do get to actually do the 10k from the parking lot up onto the arm and then back down to the parking lot. We have a lot of weather/flooding Watches/Warning so the actual 'walk' may not be…
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Tamoxifen & Thickening of the Uterine Lining
Has anyone had to have their uterus scrapped due to thickening of the lining? It appears that Tamoxifen is messing with my uterus. I spoke with my gynecologist today and she is going to schedule for the procedure. Has anyone had this done? If so, what can I expect and how can I prepare? She already told me it's an…
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It's official! My 10-year cancer-free record STANDS!!!!
MRI done! The final word on my shoulder is that at some point I must have done some damage. My oncologist has referred me to a PT person that comes highly recommended for 'old injuries'.....she said that unless the pain became unbearable, she would not recommend surgery to remove the fluid lump. Thank you all, my dear…
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LIdocaine Infusions for Pain Are Back For Me!
I have been battling PMPS since I woke up for surgery on 1/11/11. I had been receiving Lidocain IV infusions since the summer of 2011. The pain doctor that does them left the practice in December 2014 and I have not had a lidocain infusions since because I was told that the new dr. didn't do them, they told my pcp's office…
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Scopolamine patch for nausea after surgery
For any of you who have surgery coming up and are worried about nausea after anesthesia, I wanted to suggest asking your surgeon or anesthesiologist about a scopolamine patch -- it worked unbelievably well for me. I had bilateral lumpectomies in 2009, and woke up to wicked nausea from the anesthesia. Before my bilateral…
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Cancer Treatment Centers of America
Hi All, I've had a heck of a time finding someone in the Phoenix area who does DIEP reconstruction. There are two med centers who do it. Two docs are at Mayo which my insurance covers only as out of network and I would pay 40% of what Mayo charges out of network people (higher) with no maximum cap on out of pocket…
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Worried about recurrence
Hi, I am a three year survivor of Stage 3C invasive lobular. It was in 10 lymph nodes. Recently I have been experiencing more fatigue than normal, numbness in my arms at night, more pain in my upper back and my muscles burn even after little effort. I also found lumps in my armpit on the non-cancer side. I have had a…
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I miss our Dutch friends!
I miss my Dutch friends! We had the pleasure of their company for a mere 12 days....and in the process put a lot of miles on my car! Itinerary: Day One: pickup at LAX, visit in-process Medical Museum in Pomona, bring to Redlands. Day Two: JetLag day, around Redlands and up the mountains to Lake Arrowhead and around the Rim…
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Musings About Birthdays
Soon I celebrate another birthday. I'm not young; but I'm not old. I used to downplay/ignore birthdays and thought of them as no big deal if it was not a year in which I reached some milestone: 18, 21, 30, 40, 50, the other decades, and then senior discount milestones (50, 55, 60, .... A cancer survivor should be thankful…
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first clean mammo after treatment
Had a 3D mammo, first one since my treatment last summer/fall. Results were waiting for me this morning online - everything clean! Yeah!
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June 3rd, Happy Birthday Greetings to Lintx - Linda
Happy Birthday Miss Linda - Hoping you have a very special day, filled with love, laughter and HOPE. Vicki Sam
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Does anyone know if I can get Herceptin without the other chemotherapy drugs?
Hi Everyone, I live in British Columbia, Canada. I am grateful to have found this support system. I was diagnosed with breast cancer in my left breast in August 2011. I had an Oncoplastic lumpectomy, and Sentinel Node Biopsy on Dec. 6, 2012. The surgeon was amazing, as he lifted my breast, and removed and replaced the…
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Ductal Cancer
For Stage 1 Ductal Cancer of the Breast, has anyone had a lumpectomy versus mastectomy?
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Have to delay chemo because of high liver enzyme count .. NOT HAPPY
Hi, I was supposed to start Chemo Monday. They have since found that my liver enzymes are high, so now i will be delayed with Chemo. I mighy have to do a liver biopsy. In the meant time, i will be doing my Cat scan for pelvis and abdomen and chest, and also bone scan tomorrow. Maybe that will show more of what is going on…
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Turquoise Terrorist back to torment you all
Hi there friends. Just thought I would drop in and update you on my fave subject.... ME! Some of you will remember back in 2008 my first dx with st2, well my onco (Dr. Charisma-Bypass) and I didn't exactly get on like a house on fire. My new onco (Prof. Mincing ****) is even bloody WORSE! He gets me so confused that I…
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Lynch Syndrome
Hi all, Has anyone here had genetic testing for Lynch Syndrome? Its basically a test for colon cancer, but it can predispose you to other cancers also, so sometimes the genetic counselors recommend it to other cancer dx as well. The genetic counselor recommended it when I went for the BRCA test and said that because Lynch…