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Hysterectomy-due to tamoxifen 3 yrs ago this week
Time flies for sure.-IT was a tough tough healing-trips to the ERs, out of work for 6 wks etc but all good now..HAPPY to say..Just reminissing! Denise
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Info I Learned On Foot Draw Protocol From Mayo
For people with bilateral arm/hand LE and Foot Draws: Mayo clinic lab has a protocol that if you need a foot draw for blood draws, the foot needs to stay elevated for 2 hours afterwards. I forgot to ask why, but am assuming because of blood clots. My local clinic NEVER mentioned this to me. I told the Mayo tech that and…
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Welcome to Hogwarts~ A Primer for the New Ones not finding much emotional support at work and with "
These lovely, welcoming words were written by the late Chenheart. No one ever said it better! I know she would want me to bump this up for our newbies: So many new ones have joined our family of Kindred Spirits lately~we sigh that you have had to find us, but of course welcome you with open ♥ You may have noticed, or even…
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Just wanted to say "Hi" and sending you lots of cyber hugs
Hi my sisters and brother, Haven't been on here for a while and just wanted to say "Hi". Been reading some of the post and I just want to reach out and hug all of you. My blood work shows I am still cancer free and I am schedule for my Pet Scan in May. Having the test done doesn't bother me it is the "what if". But I just…
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Arimedex side effects
Hi everyone. I have not been on here for awhile.I been having bad pains in my feet and hands.I been going to a orthopedic dr.He has been giving me shots in my hands.He told me I have trigger finger.Now my feet are cramping and hurting.I have appointment with him in a couple weeks.I have talked to my Cancer Dr. About this…
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Ultrasound question
First a little history about me: I was diagnosed with renal cell carcinoma in February and had a partial nephrectomy. Prior to this I was a very healthy 31 year old. Last week I found a lump in my left breast go I had a mammogram and ultrasound yesterday. I got the results today and the mammogram really did not show…
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New Game - Beautiful Words
Beautiful/Healing Words This is a 'game' I just thought of but thought it might be fun. One word or a short phrase that you find as a positive, gives you support/healing/good feelings. Doesn't matter where they come from - just that they make you feel good. Perhaps a bit of explaination after if it seems right to you but…
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pain in should blade and chest after mactectomy
Has anyone else had pain in the should that has lasted for two year after surgery. What to do for it.
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breast cancer in men
hi everyone! i am a wife of a man who has breast cancer. He has stage 2 cancer and is scheduled for mastectomy next week. The doctors would like to take few of the muscles in the breast to make sure it hasn't spread and his doctor mentioned about removing some of his lymph nodes but we are not completely sure if that is…
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pink bus-annual check up with Radiologist oncologist all good
Didn't think to get Pink Bus...yesterday.. I had to go back to radiology oncologist for my annual check up-could have used some company.. anyhow ALL great good for one more year... woot woot.. Denise
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Everyday is a Miracle
My Mommy has Stage 4 Breast Inflammatory Cancer with Skin, Lung Mets and Triple Negative. Diagnosed March 2012. Undergone 11 cycles of chemotherapy, 33 sessions of radiation and radical mastectomy. She is currently undergoing chemotherapy of taxol and cisplatin weekly with one week off. The first round of chemo was…
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Doxil It Is.
Doxil is my next drug and I will have it on Wednesday. The oncologist would have preferred Xeloda but I wanted more information on how Xeloda interacted with folic acid which I take to go with Methotrexate (chemo drug) for uveitis. I had an echocardiogram and blood work. I will have it once a month. Has anyone had this…
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OT Wedding
I am one dreamy eyed mother-of-the-bride this am. The wedding was soooo perfect. We had San Diego weather: sunny, no humidity and highs in the upper 70's. The Botanical Gardens at City Park was blooming and beautiful; the band magical; the food exceptional; the bride and groom adorable (I am a bit prejudiced) and I had…
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anything new on Nueropathy??
i am 2 months out from my last Chemo - started developing tingling in hands & feet toward the end - now it seems to be getting worse. I am working & on my feet most of the day & am afraid that is making it worse :( I'm not big on taking drugs or using creams over an extended period. Any new suggestions? The doctors do not…
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After Cancer, During Tamoxifen... Before Life
I get depressed and then feel guilty for being depressed because i know there are so many people worse off than me. Doesnt stop me from being depressed though. Im highly emotional & cry at random which I never did before Cancer. Extremely frustrating because prior to that I was very level headed and had no problem…
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Surgery with immidiate reconstruction
hi all, I have been recently diagnosed with ILC and went through uni MX on my left breast. We are still waiting for the detailed path reports. I had requested my surgeon for options for immidiate reconstruction but he said that since i will have to go through radiation, thats not an option for me. However, i see several of…
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Did anyone use fake bangs under hats or scarves? Yay or Nay?
Hi, still searching for head coverings for my upcoming chemo-induced hair loss. I see that several sites offer fake bangs that you velcro or stick on. Hmmm, wonder if they look like fake bangs velcroed on! Did any of you try these products and if so, did you like them or recommend them? TLC sells them…
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Common "ground"
I'm posting this link for anyone who might be interested, because the video has a lot of really good information regarding ER+ breast cancer, as well as uterine cancer. Although the topic is uterine cancer and is from a presentation to gyn cancer survivors and the presenter is a gynecologic oncologist, he does such a good…
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Tumor markers were right
After 5 years, my breast canceer has spread to my ribs. To be honest, I am in shock. I thought after 5 years I was in the clear. How silly was that ??? ONcologist has already given me two shots of Faslodex. Another series of shots in two weeks. She is very optimistic as the "spots" are very tiny and this was caught early.…
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Tamoxifen affect
I always find this site so informative. I have had a stressful month and was quite cranky almost well very PMS like. I am on tamoxifen for 4 years and havent had a cycle since chemopause 4.5 years. then one day started bleeding and have continues. Called my gyn, had an Ultrasound. lining was 0.9 mm supposed to be 0.4 mm.…
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Taxol Failed ...
After 13 1/2 months of Taxol, it failed. I had a couple of blood clots from the lungs on Sunday night. I called my oncologist's nurse, yesterday and they order a ct scan that had stronger dye. Though they could not find anything in the pulmonary arteries, they did find progression in the right hilar mass and the right…
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Doris how are you doing? What is next?
Doris I have been thinking about you today. How was your appointment? how are you doing? What is next? Sending positive thoughts your way Hugs
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Happy Birthday to Me!
I just had to write because the first thing I thought of this morning as I woke up was at this time last year I was at the hospital getting a double mastectomy! (on my birthday!) I have to say it's a much better birthday this year! I am one thankful birthday girl!!
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Happy Belated Birthday -- Mariam_11_09 -- April 14th
Sorry, we missed celebrating your Birthday yesterday - so please accept our apologies .. Hoping you had a wonderful, and Happy day. Vicki Sam
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O.T. snow last night-
Anyone else wake up to snow and ice? I put my flip flops on weeks ago-I always say no going back to shoes/ sneakers until fall. I was wrong-this am sneaker and socks back on again. Denise
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head sweating
Since I have been with no hair I have been expierencing when i go to bed to try and sleep My head sweats so bad that i have to change pillows every 2 to 3 hrs a night and I at my wits end with it,Does any1 else have a problem with head sweating?thank you and god bless
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Reconstruction Woes...
One year ago I had my mastectomy...followed by another surgery to get clear margins. After having radiation, my tissue expander moved out of place due to the radiated tissue encapsulating the expander. That surgery was in December to re-position a new expander. Now, four months later, my incision line has open sores that…
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Anyone with Stage 4 with Lung Mets, need your opinion please...
Hi ladies! I haven't been here for some time now. But you're all in my prayers. I have a friend who was dx almost at the same time as me (2010). She is going through something right now and I need your input please. She wanted to fix reconstruction this Friday. During the prep-tests yesterday, they “saw something.” They…
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any vacation plans? fun weekend etc?
Just wondering if others have any fun plans for sping/summer? visiting out of town family? (both sides of my family all live within 10 miles) I have 3 long-weekend camping trips-WDW & Disney Cruise! BIG CELEBRATION TRIP) Denise
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Possible Tamoxifen shortage - refill now if you can
I received a letter in today's mail from my mail-order pharmacy (Express Scripts, for Anthem) that there's apparently a "shortage of the active ingredient used to manufacture Tamoxifen products," and warning me that they may not be able to fill prescriptions for Tamoxifen for some unspecified period of time, possibly…