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Pxa grade 3 anaplastic Tumor .. Rare .. 11 year old boy

Kezzerd
Kezzerd CSN Member Posts: 5
in Brain Cancer #1

My sons been diagnosed with a rare pxa grade 3 Tumor ? Anyone heard of this before ?

 

He has had surgery and are confident they have got it all, will be starting radiation for 6 weeks and chemo for 6-8 months

 

HAs anyone come across this before .. We are devastated 

 

thank you 

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Comments

  • kieragregory
    kieragregory CSN Member Posts: 2 *
    #2

    hello & Sorry to hear of your sons diagnosis,

    My step son has a similar diagnosis as a few months ago, and I Was wondering if you would be willing to give an update on how he is doing or course of therapy and what worked or not.
    thank you so much and god bless

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