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Brain Cancer

Problems with Temodar - interrupt treatment?
I had primary CNS lymphoma in 2012. I got cortisone and then three rounds of four day treatments with Methotrexate, antibodies and other stuff. The tumour vanished. Then my stem cells were collected, I got high dose chemo according to the BEAM scheme and then I got an autologous stem cell transplant. Now I am on 250 mg…
End Stage GBM Stage 4
My Mom is end stage GBM Stage 4 with severe cognitive impairment. Pastoral and hospice counseling offers no solace dealing with her impending death as she simply isn't rational enough to retain the information. I've been thinking of telling her that everything will be okay and she isn't dying but I'm fearful of doing so.…
My mom has AA3 and a low Karnofksy performancescore
My mom was diagnosed with AA3 in February 2014 after a major seizure. It is likely that the tumor was around before that because in October 2013, she blacked out unexpectedly and hit her head, causing a hematoma. Three different neurosurgeons said she could not have surgery due to the tumor's location in her left basal…
Running out of options
Hi. Where to begin? My long term boyfriend/ partner was diagnosed with primary CNS lymphoma of the brain 22 months ago. Very rare, awful disease. I have spent the last two years reading abstracts/ protocols/ searching the internet for all info concerning this cognitive robbing disease. He did the rituxin methotrexate…
Resource - curethekids.org
Resource - curethekids.org - parent /sibling/patient resources, information, college scholarships, medical information, access to specialized childhood cancer social workers, and more for kids/teens/survivors of childhood brain tumors and their families.
38 year Survivor
My daughter had a brain stem glioma at age 16 months and we were told she would die within 3 months. they did radiation and she started getting better! Her tumor melted away - a true miracle, we thought! Now at the age of 38 that same radiation is slowly taking her life. She has had 3 major "stroke-like" events and many…
My husband has Primary Lymphoma :(
Our lives have changed in a flash when I received a call from my husband (away on a business trip) that he was taken to the hospital and they found a tumor in his brain. I immediately booked tickets for my daughter and myself to get to him. He had a small seizure and was stuttering when a co-worker noticed and called 911.…
Long term effects of brain tumor
At 17 I was diagnosed with a germinoma brain tumor. I had radiation and chemotherapy. The tumor was erradicated with the treatment. The whole experience was life changing for my family and I. I was left with only two side effects of the cancer after treatment. I had double vision and my legs were very stiff when I walk. I…
My GBM...
Unfotuneately last year I had my GBM seizure and then had my first surgery... Started withe the Temozolomide and the radiation for the 40 days... After that I went back to U of Washington for other surgery in September. After that one, I then went on the Avanstin since about April/May this year. All though I was a little…
GBM tumor size and location
I had two tumors 100% resected from my right temporal lobe. One was 1.5 cm and the other was 8 mm. The surgeon thought the procedure went very well and that she was able to get all of the tumors as well as some of the surrounding tissue that probably has dendritic activity. The oncologist said the tumors were very small. I…
oligodendroglioma grade 2- how do you hold down a job with seizures.
Hello my name is Jeff and I have Oligodendroglioma grade 2 that i was diagnosed with in august 2011. I didn't have any symptoms at all before having a seizure at work. I was taken to the hospitol and they did a biopsy and that is how they found the type of cancer. I went back to work 2 weeks later. I had a bum foot after…
Anaplastic Astrocytoma Grade 3 - Survivor since 1997
I'm a survivor of an AA3 located in the right cerebellar hemisphere. The tumor was resected prior to radiation and chemo treatments. I have had no recurrence since the tumor was resected. ( 95% + of the right cerebellar hemisphere was removed) I am now wondering, after so many yrs, what kind of long term side effects I may…
For Those Who Need Hope
I am a survivor of a GBN stage 4. It was Dec. of 2007 that I had the surgery then radiation and chemo. The chemo lasted 2 years. I do bi-yearly MRIs and I am 54 years old. “They” gave me 18 months and I will be grateful and excited to hit 7 years this December. There is hope and God numbers our days!
Number of brain tumors?
I don’t recall I have read anything about it, I know a woman who was diagnosed with GBM and has 5 tumors, do you guys know how many brain tumors most patient have? What is the average number?
Avastin-induced tumor calcifications can be elicited in glioblastoma
Avastin (bevacizumab)-induced tumor calcifications can be elicited in glioblastoma microspheroid culture and represent massive calcium uptake death (MCAD) of tumor endothelial cells. Larry Weisenthal, Summer Williamson, Cindy Brunschwiler, and Constance Rueff- Weisenthal Bähr and colleagues reported that 22 of 36…
AA3 Inoperable and desperate for Treatment
My husband has Anaplastic Asystoma III inoperable. There is about 5 clusters of tumors all over the brain that are on all vital spots. We have done your basic targeted radiation and chemo Temadur. The tumors started to progress about 4 months into treatment with severe swelling from radiation. We switched hospitals and…
Brain Cancer in Iraq
Hello everyone, I'm new to this forum. I am a combat veteran that served twice in Iraq. During my tours I was exposed to many things as a gunner. I had constant headaches and the medics would say drink water with a Advil. There was no cat scans or MRI's. I started noticing my right hand was weak and I dropped the dumbell…
Are there any treatments available pst radiation therapy
my father is in his 2nd week of radaiton, he has already done 1 cycle of temador. My father has an extremely rare G 4 tumor which is a bleeding tumor, Dr Cloughsey his docotor who is one of the leading oncologists in the natoin and experts on G4's said he hasn't seen one in 10 years. this in a way is a benefit becuase the…
Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
Looking for mail contact to check MRI of brain, to advise regarding possible gliomatosis cerebri
Hi, i am new to this topic and all this medical terms. looking for an information regarding my mum (61). Doctors suspect that she has gliomatosis cerebri, still seems that medical team in my country (small country in europe) doesn't have much experience to approach the diagnosis. for 3 weeks she is up and down the…
Oligodendroglioma Grade 3
Hi, My name is Cathy on September 12th I had a seizure and from that an MRI showing a 5"x4" tumor on my left frontal of my brain. I had surgery one week later. I had the best surgeon out of Rhode Island Hospital. he said I had the tumor for about 20 years, I'm 50 years old! He removed all but one small portion of the tumor…
All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
grade 4 glioblastoma-multiforme
I'm looking for information on a time line from the beginning of diagnosis up until treatment on GBM IV. My father was diagnosed on mothers day, a Sunday. Two days later, Tuesday, he had a biopsy performed simply for confirmation although the doctors felt confident in the type of tumor he had. They said it would be 4-10…
Air Bubble from Biopsy?
Has anyone heard of or had an MRI show an Air Bubble post surgery? My husband tumore has responded well to MTX and shrank to 3ml but they see annair bubble. Top surgeons are meeting Sunday to discuss. Curiousnif anyone here had this what trestment was followed?
Glioblastoma Grade 4
My 37 yo brother in law woke up Saturday 4/19/14 with vision issues in his right eye, as the day progressed it got worse, so my sister in law took him to the ER. The ER ran a CT scan that came back abnormal, so they did an MRI and that is when they found the tumor in the back left side of his brain. On 4/30/14 he had…
grade 4 glioblastoma
i ha ve just had 80% of my tumour removed last week i am told my cancer is treatable but uncurable about to begin 4-6 weeks radiation and chemo i gues my question is is how worse or dibilitating is this likely to make me i have already lost use of right arm and leg slowly coming back but i really dont want to trade what i…
Glioblastoma IV
On March 21, 2014 my 52 years old brother went to see the Doctor. due to continuos headache and problems with his right leg and hand. A MRI ct scan came out with a big tumor. He has surgeory on April 02, 2014 the biopsy showed a Glioblastoma IV. He is a very active person, right now he is on chimiotherapy and radiation as…
Father just diagnosed with GBM, now what.
My 85 year old dad just lost his wife of 59 years Dec. 2nd 2013. He has gone through chemo to fight Non-Hodgkins Lymphoma. He survived. He has fought prostate cancer. He survived. About 2 weeks ago we noticed that he was having some memory problems. This seemed to get worse the next week. So on Sat. 3/22/14 we took him to…
2 year gruesome anniversary
Hello, This month markes my sister's two year anniversary for having being diagnosed with an anaplastic astrocytoma. A diagnosis that I will never accept as something that a good person should have to endure if this world makes any sense. In some respect I am relieved that she does not have any long term deficit that she…
http://www.cureyourowncancer.org/joanne-crowthers-story-beating-large-b-cell-lymphoma-with-cannabis-
Has anyone tried cannibismoil? I am considering getting my husband on it. Any info or feedback will be appreciated. Thank you

Brain Cancer

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