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Consuming enough calories
I had surgery last August and as most of you was sent home with a feeding tube. The feeding tube was removed at the end of December. Since then I have struggled to maintain weight. I try as best I can but just can't seem to consume enough. I have lost 100 pounds as of today and do not want to lose more weight as I am very…
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Prayers for a fellow MIE tomorrow
Hello friends, Jim and I have a new friend who is having the MIE tomorrow at Oregon Health and Science University in Portland, Oregon. We fortunately were able to enlighten him about the MIE a week prior to his scheduled Ivor-Lewis in Coeur d'Alene, Idaho. He is a stage 2 and the prognosis is good. Thank you for your…
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Where are you Callaloo? Sherry's Gall Bladder surgury.
Hi Lu Haven't seen you post for awhile and was wondering if you are off in The Caribbean again. I sure hope so. Please call or let us know how you are. I hope you are feeling better each day Sherry after your surgury. Hope you don't mind that I mentioned it on the site but you have been a LIFELINE to all of us now its our…
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My latest post op update
Well, better part of a week out now and I feel amazing, all things considered. UPMC has such an amazing program up here. From the time I walked in the door, everyone has treated me so well. I want to thank everyone for their incredible well wishes and prayers. I am up to eating 2 ounces of full liquids an hour. I am also…
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New User. Please Help. Father Fighting Stage 4 Esophageal Cancer.
This is my first post. My dad, 67, was diagnosed with stage 4 esophageal cancer this past Jan. It had metastasized to his rib. He is being treated by an oncology team - a thoracic surgeon, a radiologist, and an oncologist. We were told surgery was not an option. They did a biopsy and the histology of his tumor is rare,…
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Trying to hang in there!
Diagnosis T3, N1, M0-May 17, 2011 My husband is really struggling with pain, fatigue and having a hard time eating. He has completed 23 radiation treatments, concurrent with 5fu and 2 rounds of cisplatin. The pain has gotten really bad the last couple of days and he is trying to eat but I am not sure that he is getting…
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My dad was diagnosed on July 1 T3, N2, MO
Hi Everyone, My father 67 will be 68 next month, went to the ER last week, he felt food lodge and it wouldn't come up. The dr. did a egd-found a mass and food lodge, suggested it was adenocarcinoma. At this point my mom and I started to look for comprehensive cancer center dealing with esophagus cancer in Illinois and we…
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My post-Op progress
Well, just a short 72 hours ago, I had the MIE here at UPMC. I am doing wonderfully. I was up walking yesterday while I was still in SICU while waiting on my room. The clinical staff in the SICU are and the 7th floor are have both been incredible. They have attended to my every need. I am still NPO pending the swallowing…
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chemo/radiation done pending surgery
It has been quite a long journey for my husband. He had the radiation and then the chemo. After it was all completted, He literally shut down became dehydrated and needed jtube placement done in hospital. He is 16 days out from last radiation and chemo and still complains of awful burning and is not eating. maybe in…
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Severly upset stomach after having a stent put in
Hi, My dad's scan showed that his oesophagus was completely blocked (partly by the tumour and partly by scar tissue) so the surgeon made the call to insert the stent. The procedure was done yesterday at about 16h00 (about 24 hours ago South African time). My dad says he isn't in much pain and has managed to eat some…
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Now Tom's home with good news
You would think that everyone had left Chicago or come into it yesterday. Nope..First we had no cable, phone or internet for awhile last night and then it dame back on. I'm not conplaining part of our town has no electricity..it could be worse and my smart phone does the web. So Tom couldn't call and tell me pick him up.…
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Today is surgery for JimboC...
Praying for peace and that all goes well!!!
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Moving forward
Today is the nine months since diagnosis and eight months since surgery mark for my husband. He is feeling good and doing as much, if not more, than he did before surgery. Just a little good news for this holiday weekend!
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Jimbo's Update
Hi! This is jimbos daughter Candace. My dad wanted me to update everyone on how he was doing after surgery. His surgery began around 7am and ended around 5pm. The doctor had wonderful things to say and said there were no surprises, a very routine surgery. We went back to see him in icu around 6 and he looked great!! His…
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Post Surgery Radiation?
My husband started his 3rd of 4 rounds of post surgical chemo today and we met with his oncologist. She surprised us by telling us that after he was done with his 4th round of chemo, he would start radiation approximately 3 weeks after (she also mentioned Taxol and Carboplatin weekly during radiation). We were floored.…
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My Love My Hero
Brendon Edward Sneath, 39, of Kansas City, MO, formerly of Marquette, passed away June 19, 2011, after a courageous battle with esophageal cancer. He was born April 29, 1972, the son of Eddie and Sherry (Swisher) Sneath in Sterling, Kansas. Brendon was an avid sports fan who enjoyed playing golf, bowling, fishing, and…
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to eat or not to eat....
My hubby, stage IVB, has been doing very well with eating, until recently. He is having a wee bit of a hard time swallowing, and usually needs to chase every bite down with some water. He has been having some pain most of the time, and especially during and after eating. (not sure if it's his stomach, esophagus or liver…
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Tom ended up in the u of c after a routine ct...blood clots in lungs
and some extra fluid around his heart. It was a wild day for sure. He always takes the train up...he did today and we got the call to page his doctor...he was on the train coming home when he found out he had to go back. So I packed his bag etc and then my son and I drove him back to to the u of c...this is the 4th of July…
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Esophageal cancer
I have never posted before but have been reading this site for many months. My husband, Alan, whose 68, was diagnosed with esophageal cancer Sept. 2009 he was T3N1MO and had chemo, Ivor Lewis op on March 8th 2010 followed by chemo and radiation. It's been a long hard journey but he is very well now and we have just had a…
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NG feeding tube post-rad or no?
Howdy! I'm caring for my dad and he's having some trouble I'm hoping to get some guidance with. His data: III (T3, N1, M0) Finished 6 weekes chemo/radiation May 31 Scheduled for surgery August 5 (was scheduled for July 5, but is too weak) 78 years old Also has: congestive heart failure, copd emphysema, adult-onset diabetes…
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Hi there - I want to introduce myself.
I have been catching up on all of your posts and trying to learn as much as possible. My husband, Luis, age 51, was diagnosed April 11, 2011. He has had acid reflux for 20 plus years and no one ever mentioned that it could cause cancer. He has also had sleep apnea for 10 plus years. In the fall of 2010 he started having…
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UPDATE: Dad
Well, a while ago I posted about my dad's experience with the MIE and numerous complications thereafter. However, I am pleased to report that dad has been doing much better lately. Although he is still in ICU, he makes progress everyday. Physical therapy has been coming in and, even though he has been in a bed for 7 weeks,…
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Surgery soon
To my many friends and comrades in arms in the battle against this horrible disease. I have just finished eating my final regular meal with my diseased esophagus. I start my pre-op diet tomorrow and surgery is Friday in Pittsburgh. I know there has been some debate about the MIE and Pittsburgh lately but I have every…
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New here and asking:
Is there really some hope? HI. I'm new here and apologize for jumping in with a long post but figured I may get a true picture here. My hubs is 53 and was diagnosed end of May. We are still in the staging process (taking too long in my opinion) but he has Adenocarcinoma, a 6 cm tumor with type 1 and 2 cells. The CAT scan…
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from 2B to 4A in one appointment
Well, we certainly learned not to pre-guess the tests or take one doctor’s opinion. This past Monday, June 27th, We saw the general surgeon who would be putting in the J-tube and portacath if we choose to stay with the Reading Hospital. At that apt we learned that the local lymph nodes had shown a reaction in the PET…
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Please pray for my dad
Good Evening - I want to thank you all for your advice and support. I don't post much, but I read everything. My dad had MIE on Friday and is now back in the OR for emergency surgery as his stomach has become diseased. Please pray for him.
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esophgeal
My mom has stage 3 esophageal cancer health wise she wouldnt do good for surgery how is chemo and radiation can that make things worse
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Question for anyone having rad to spine
Steve is presently having rad treatments to spine. Scheduled for four treatments. Three done and one to go. The pain seems to be getting worse. Doc says a small percentage of patients have increased pain for a short time, then pain decreases. Just wondering if anyone had experienced this? Thanks for your info. Nancy
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From Kateel-Interesting Info After Brochoscopy
This morning, my husband, Bill, had a bronchoscopy, because he has been coughing, gagging, and throwing up phlegm after his esophagectomy on April 25th. We thought for sure that he would need a dilation, based on his symptoms, but that is not the case, according to his surgeon. It seems that his muscles are still weak and…
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Post-Sx symptoms
My fiancé is 40 years old and was diagnosed with an adenocarcinoma 1 year ago this July. Today he is 3 wks out post sx MIE. He is having a weird gurgling sound and a lot of pain still. The soft food diet is a challenge, it's hard to know how much to eat and how often to eat it, without causing a lot of pain. Lots of new…