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Good News - NED
I wanted to update you all on Rocky. We are at the 9 month marker in this battle (full story in the about me section). Rocky is on a "lighter" version of Chemo and has beed NED since late January. We went for a repeat PET scan this week and today the doctor told us it was again NED. We are thrilled and so blessed! It is…
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Daughters EC
My daughter was diagnosed about 4 years ago. She did not have surgery but had chemo and radiation. All seemed well for a while and then she developed a tumor in her upper left arm. They did surgery on it but couldn't get it all because of the nerves. She also had a rod put into her arm so it wouldn't break because the…
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lost dad june 22
Well, my dad lost his fight June 22nd. He went through treatments in spring/summer of 2010, but wasn't a candidate for surgery because he was very disabled from a stroke he had in 2004. The cancer came back in Fall of 2011 and by March of 2012, he could no longer eat. Around May, he could no longer drink, but he kept going…
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July good news
Well, had my second dose of Irinotecan, and lo! Seeing shrinkage of tumors! Getting radiation on the gum tumor, and that seems to be working as well. Happy happy joy joy... --Jerry
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New here. Leak in the throat, a fistula
I received my EC diagnosis (stage 3 with lymph nodes involved) in March. I have been through chemo and radiation and had a full esoughgetomy June 5. The stomach was resected into a gastric tube. About day 10 after surgery I developed a fistula just above the collarbone in the neck incision. My surgeon says this happens in…
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2nd opinion
Does anyone have a recommendation for a highly skilled thoracic surgeon specializing in esophagectomies, in the midwest. Preferably in the Chicago or Indianapolis area, but will certainly consider other areas. Sally
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free tube feeding formula
my beloved husband has passed away after an 11 month fight with EC. We have a lot of cans of formula that someone can have for the price of the shipping. please contact me if you are interested.
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July good news
Well, had my second dose of Irinotecan, and lo! Seeing shrinkage of tumors! Getting radiation on the gum tumor, and that seems to be working as well. Happy happy joy joy... --Jerry
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St. Joseph's video
Hi all: A few months ago someone posted a video of a young Indian-American Gastroenterologist at a hospital called St. Joseph’s Medical Center or something like that, in which he described EC, Barrets, etc. He specifically talked about a surgical procedure for removing the Barrets from one’s esophagus, which I’d never…
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bad news
Sorry to say bad news Went to duke for check up and cancer in throat, lung and liver. I have had a hard time breathing due to tumor in throat pressing on airway. My last day at work, My brother for those who know who also had same surgery, Not good with him either. Hole they make not fix, feeding tube when wrong and whole…
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Goty2001
Welcome to the family. We have several here who are Stage IV and they will have a lot of information to offer you. Please do not hesitate to ask any questions - there are so many wonderful pioneers here - and they have been through just about everything you can think of. Like someone told me when I posted the first time…
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Any Squamous cell survivors here that didn't have surgery?
Are there any squamous cell EC survivors on this board who have not had surgery? When were you diagnosed, what was your staging and are you NED? I'm hoping for answers to help ease my mind (if that's possible when you have EC!). ptom
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Question about first round of chemo/radiation
Hello everyone, Dave had his port implanted last night, and aside from some pain this morning, it seems like the procedure went smoothly. He heads to Hopkins this afternoon for some "tweaking" prior to radiation and chemo starting on Thursday. We found that the tumor is non-metholating, so he'll be starting on the 96 hour…
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New to this, looking for information.
I was diagnosed Stage 4 esophageal cancer in Jan 2012. I was going to the gym 5 days a week, ran every day and haven't had a drink or a cigarette in 24 years. I'm $8 and was the picture of health when the symptoms first started in November. After not being able to eat any solid food since December had endoscopy early…
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Heading to Mayo Sunday--surgery Wednesday...
It will be 3 weeks from last day of my radiation, but Dr. Deschamps wants to get it done. I have asked for MIE, so keeping my fingers crossed, and will know more after PET scan. I am feeling great, am eating well, exercising and praying. Jan T2N0M0
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It is time for Hospice
I thought I would write an update on where we are with dad's treatment. Last I wrote back in May, he was having some difficulties while undergoing whole brain radiation for mets to the brain that had come back after his craniotomy in December. While we have had some good days since he came from from the hospital (he came…
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Possible treatments for metastatic distant tumor
I am new to this board. My husband, 54 years old, was diagnosed with Stage 3 Esophageal Cancer on 10/14/10. The tumor was at the GE junction and he underwent an esophagectomy on 11/15/10 in which removed 5" of his esophagus and 30% of his stomach. He underwent chemo and radiation as per the McDonald Regimen and was cancer…
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Good results
I received the results of my PET/CT today. I am happy to say that no hypermetabolic activity was noted and all of my nodes are returning to normal size. The doctor said that we will do 11 more rounds of the chemo with scans after round 4 and round 11. At the end of round 11, if everything looks as it does today we will…
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what do i do now
my sad story- this past winter i was told i had esophageal cancer the doctors said i would need chem and radation then surgery. i had 5 weeks of chemo and 6 of radation. i afew days before surgery the pet scan came back with bone mets. me and my poor wife have been so upset that we dont even no what day it is. any way i go…
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Dad passed away last night stage 4 post Ivor Lewis
Hello all, dad passed away peacefully surrounded by his family. Diagnosed August 2011 stage 3 T3N1M0. Chemo and radio for 3 months, ivor Lewis on December 21st 2011, 3 months of clean up chemmo and devastating news of tumors in liver, both lungs and under his new esophegus 2 weeks ago and passed away last night. Dad was…
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Unbearable stomachache all reports normal
Hi guys, As most of you know that my dad had gastric pull up in dec last year ... He was diagnosed t3n1 squamous cell carcinoma His entire esophagous was removed along with a few cm of stomach ....He had unbearable pain in his stomache after a few days while still hospital all test came normal so the doctor thought it was…
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Don's mysterious pain
Hi Everyone: Well, don had the EGD this morning and gatro doc says all looks good - no ulcers and no cancer. He is thinking it is possible scar tissue and something from the nerves being cut. He wants to follow up with Don in his office soon. He told Don to take 1 tablespoon of miralax daily and 1 tablespoon three times a…
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Update on Dave
Hello everyone, Dave and I were at Hopkins today for blood work, and to talk to the clinical trial nurse and get some more information about treatment next week. Well Dr. Kelly, the medical oncologist who is running the trial, says that his nurse can not get the hospital that did the initial endoscopy to send back the…
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Stage IV hope...
First, please know that though the cancer may be the same, all patients are different. Treatment plans are different. Results are different. What works for one doesn't necessarily work for another. But we are all in this together. The fear. The hope. We all have it. I want to share some hope with Stage IV patients. My…
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Thanks Sangora (Sam) for posting and giving me courage to do the same, Lu
It’s been a long time since I’ve posted. A lot has happened. I won’t bother with the details of the blood clots and blood transfusions, We all know how hard chemo is on the body. I was waiting for some bit of good news before posting again, but it never came. The Taxotere stopped working. Then the doc wanted me to start…
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5002dblane - help with gaining weight after Ivor Lewis
Below is the post which was tucked away under another thread - requesting help with ideas to gain weight: July 10, 2012 - 2:59pm Ivor Lewis Feb 23, 2012 new Helloe there! My husband has Ivor Lewis in Fef 23, 2012. This week is his 5th month from surgery. He was diagnosed Stage 2, of the 13 lympnodes removed 1 was affected.…
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Has anyone developed an ulcer after surgery?
Just curious if anyone experienced any ulcers after their surgery? Trying to put the pieces of the puzzle together. Thanks, Judy
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Good news for a Stage 2 and a Stage 4
After a routine mammogram in late Dec, I was diagnosed with Stage 2 T2 N0 M0 highly aggressive Triple Negative BC. From Jan til June 5 I was on chemo. On Thurs.June 28 I had a lumpectomy and the initial path report looked good. Last Sunday (!!!) my surgeon called to tell me he had checked the computer for my final path…
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Let's lighten things up a bit for a moment, shall we?
EC is truly a beast, as many of you are wont to say on this forum. I am so grateful for all that I have learned from you all in just the short time that I have had the privilege to be here. My guy, Dave, who starts treatment next week, is an excellent lead guitarist in a band. He just plays for fun, has a real "day job",…
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FOR EC CAREGIVER
Hi I read your post and just wanted you to know how happy I am that your husband is still cancer free. That is wonderful. I am sorry to report that the VA has done NOTHING to help any of us with regards to EC. I have other friends on this site and other sites trying to get EC listed as a presumptive cancer for agent orange…