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Giving away Jevity
Hi All, We are moving and have a few left over cases of Jevity from my mom. Does anyone need any? There is a $14.95 flat rate box that will fit about a dozen cans, so you would just need to pay for shipping. Email me if interested. groffalicious at gmail dot com thanks!
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update from Kathy
Pray for ray,,cancer doc came in his blood is too thin to put feeding tube in..they gave him a vitamin k injection so that hopefully by we'd. Am he can have the tube put in. They say he will not come home til at least Friday..they are getting him an air mattress for his hospital bed at home, and a pillow that allows…
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Mrs. Botch - have question
Ucsf_smile posted this under another thread - so pushing it to the top for you Barb. Thx - JR Mrs botch, In researching pasts posts I saw your husband had constant drainage of chest fluid. Sid he have a tap? What was prognosis at that point? I am so heartbroken to find my mom is at the same stage now and I'm trying to…
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Information across the communication boards and the web
Hi All, My husband,50,was Adenocar. Stage IV, diag. 12/6/10, Chemo treatments, died 9/28/11. I'm on sabatial for a year and will be working on connecting EC information together across the web so its easier for people to find communication boards like this one. If you have an interest, I would appreciate some advice. Thanks
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feeding tube questions
Hi. My husband was diagnosed last August with stage IV. He is HER2 postitive and really sensitive to chemo. He is currently doing well on Herceptin and Taxotere. Tumors and lymph nodes are responding and beginning to shrink. He had a J tube placed several months ago before he started chemo because with his first round of…
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Judy and Don
Judy, I think of both of you so much and wonder what you have heard recently on Don. I have started to write you several times from my IPAD but that crazy pad does not do e-mails well for me and I just started back on my regular computer. Vince and I were avid motorcyclists so Identify with you guys on that. Is Don's pain…
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Almost five years
Great news once again- my test results are once again NED. I am now on a once a year schedule for a scan. I was diagnosed 5 years ago this Nov. I am very blessed and want to tell the world! Hugs to all, Sandra
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Question about Surgery
My dad was recently diagnosed with Stage 3 Esophageal cancer. He has been through Chemo and Radiation and his PET scan shows "reduced activity" (not really sure what that means). We met with a surgeon at Mayo Rochester (Dr. Shen) and he recommends surgery in 2-3 weeks. My dad is hesitant to do the surgery and the surgeon…
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Sharp Stomach Pain
Hello again, I have a question that maybe some of you can help with. Dave is about a week and a half into his treatment ~ continuous 5FU, oxaliplatin every other week, and radiation. He continues to tolerate it well, I am so pleased at how he is doing, but he does have one troublesome symptom, sharp stomach pain that comes…
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Looking for answers, hope and miracles
Hi everyone, This is my first post here. I'm learning as I go, so I may not have all of the lingo or information completely correct, so please bear with me. I have been reading the boards for the past few days as I sit by my father's bedside at a community hospital in NJ. He has been in intensive care here for 9 days,…
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Some pretty good news - a positive story
I havn't been on here for a while, I found that it scared me to death reading all the negative stories. Well mine is a very positive story. I had heart complications just after diagnosis, have had a stent inserted in my coronary artery and another heart procedure to replace a pacemaker/icd which ran out of battery at the…
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Update on Dave
Hello everyone, Dave started treatment on Thursday (and yes, I did drive up from the beach to be with him, I couldn't not!) He tolerated the oxaciplatin (sp?) well, and is on a continuous infusion of the 5FU. So far so good. He's a little tired, but still has a good appetite. In reading the list of side effects I noticed…
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Question about chemo/hydration
Hi everyone. I have a question about chemo and hydration. My dad had his last chemo treatment on June 18. During the 6 weeks of chemo he would often get very tired as a result of dehydration and end up at the cancer center to be hydrated. He has been doing ok lately but he has also been working very hard in the 90 degree…
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Foods for early post surgery. I know it's been discussed before
I am struggling with what I can be eating at this point. My esphogetomy was 7 weeks ago. My withdrawal from the feeding tube was delayed first because my stomach was in rough shape from the chem and radiation, then I developed the neck fistula. I Was just given permission to stop the feeding tube altogether. I have a list…
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New Kid on the Block and Question about Driving
I stumbled on the discussion board from googling different things I didn't understand about EC. I am T3N1M0 Stage 3. Supposed to start Combined Chemo/Radiation Aug 6th and I've been so anxious about it all. So glad to have found this to see that others have already been where I am headed. Drs were going to use Proton Based…
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Esophageal Cancer Action Network
Hello everyone, I just received a phone call from ECAN (esophogeal cancer action network)this morning, to disucss how I can help their organization. Coincidentally they are located here in the Baltimore area like I am. I had gone on their website and offerd to help in any way I can. I hope to get fully involved in this…
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Stent or Radiation?
Hello, I wanted to ask for your kind help. My mother has stage 4 esophageal cancer, and her cancer has spread to multiple lymph nodes near her lungs and tranchea. Since she was not a candidate for surgery, she was given chemotherapy for about a year. Unfortunately, however, her swallowing problems became worse and an…
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stage IV post surgery/chemo mouth sores/sore throat help
Hello everyone. First, I have looked on this site off and on for a while. There are so many brave and inspirational people on here and I truly appreciate you all sharing your good and bad news in a public forum that helps so many people better understand this terrible disease. Background: My Dad was diagnosed in January…
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Post esophagectomy was a success but cancer found in lymph nodes.
Hello everybody, I'm new to these discussion boards, I've been looking around the internet for a while now with people who have or know's someone whith this terrible disease. I'm glad to have found this community and I look forward to supporting each other through these tough times. My name is Jeffrey sipin and my Father…
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New Here
Hi everyone. I've been looking at these boards for a few days now and decided to stop lurking, and actually post something. Our story- my dad was diagnosed with EC on April 11 of this year after having an endoscopy. He had 6 treatments of taxol/carboplatin and 6 weeks of radiation. At first he seemed to tolerate the…
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Laryngectomee
I had a total Larynx removal in December 2001 and i was never told about the Voice Box prothesis. I will be 80 years old on January 20, 2013. I am a Korean vet and i would like to know something about this product. Can anyone help me?
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back pain
Has aneone had back pain during eating after surgery. I think it may be related to the vagus nerve. thanks phil -Dianne
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Dr. Daniela Molena at JH
Good morning~ This is more specifically for our "ace researcher", William. Dr. Moleana, at Hopkins, does the MIE. As a good reference librarian I should do this myself, but frankly I'm on vacation and a little sick of EC at the moment! After the 12 hour day I had going from the beach to Baltimore, and then back again, I'm…
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Are swollen ankles significant?
My husband was diagnosed with esophageal cancer in 2005 and had the Ivor Lewis surgery. However, 6 years down the track his tumour markers started to rise and following a CT scan and laparoscopy it was discovered he had mets to the peritoneal cavity. This was being treated with chemo and was responding. A complication…
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saw surgeon
We met with dr orringer 7/19,our 43 anniversery. He gave us areat present. He said I am now tomono,ned. He even said the cured word.Had a chest exray and it looked great. I feel good still tring to learn how to eat. Im almost embadessed to say such good news ,when so many are fighting so hard.I feel so blessed I pray for…
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WHAT IF--WHAT IF---WHAT IF?????
What if after the six weeks of chemo/rad, the tumor is gone, no more hot spots, the appetite returns, and I don't have the MIE. Has anyone done this and if so, how long before the tumor comes back. The horror stories I am reading about (post surgery) are not conducive to wanting the surgery. Even with the surgery, the 5…
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Good News - NED
I wanted to update you all on Rocky. We are at the 9 month marker in this battle (full story in the about me section). Rocky is on a "lighter" version of Chemo and has beed NED since late January. We went for a repeat PET scan this week and today the doctor told us it was again NED. We are thrilled and so blessed! It is…
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Daughters EC
My daughter was diagnosed about 4 years ago. She did not have surgery but had chemo and radiation. All seemed well for a while and then she developed a tumor in her upper left arm. They did surgery on it but couldn't get it all because of the nerves. She also had a rod put into her arm so it wouldn't break because the…
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lost dad june 22
Well, my dad lost his fight June 22nd. He went through treatments in spring/summer of 2010, but wasn't a candidate for surgery because he was very disabled from a stroke he had in 2004. The cancer came back in Fall of 2011 and by March of 2012, he could no longer eat. Around May, he could no longer drink, but he kept going…
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July good news
Well, had my second dose of Irinotecan, and lo! Seeing shrinkage of tumors! Getting radiation on the gum tumor, and that seems to be working as well. Happy happy joy joy... --Jerry